Re: Rhiannon's casting at CT

[Guest guest]

Oh !

I am SO happy to read of your GREAT visit to Cranial Technologies!

If anyone deserves a good outcome - it's you & little Rhia. I

understand totally what you are saying. I too was amazed at how

incredibally thoughtful, caring & knowledgeable everyone at CT was

compared to what I had previously gone through.

You should be VERY proud of the correction Rhia has already gotten

from your repositioning efforts. You are a terrific mom & should be

very proud of yourself.

Glad to hear the drive went well Hoping your future trips will be

so happy as well.

Also glad the casting wasn't as bad as you had prepared for!

Next up is a rounder head for Rhia.

You sound very upbeat & happy with your decision already. Now just

wait to see her head rounding over the next few mos..

Let us know when her band is in.

Debbie Abby's mom DOCgrad

MI

> Hello to all:

>

> Just wanted to check in and let you all know Rhiannon was casted

> today at CT in Madison. The drive (5 hours each way) went really

> well - Rhia did not cry even once!! And the meeting with the CT

> folks, well I could not be happier with how it went!

>

> First, I brought along photos of Rhia from when she was just born.

> The OT was so impressed by how far she has come (the birth photos

> really show the effects of the inter-uterine constraint, and my

poor

> baby was pretty banged-up.) She was amazed that the asymmetries

were

> so relatively minor at this point and that her tort issues were so

> minor, comparitively. She was very supportive of all the hard

work

> I have done, and of all the therapies that I do with her -

> alternative and conventional. Also, she gave me the most important

> piece of information for my piece of mind (other than that my

> daughter will get a good result with this helmet). That was that

> everything that I had thought and fought about with my previous

> providers was correct! That I was not the crazy one, (no matter

how

> much they wanted me to think it.) My thoughts on the tort/plagio

> are/were in line with the folks at CT, and by following my gut I

had

> been able to provide my baby with good therapies that provided good

> results! I could have cried!

>

> Rhiannon tolerated the casting really well. Of course there were a

> few tears, but not what I had prepared myself for. The therapist

was

> VERY thorough and was so kind, compassionate, informative, and

> professional. It felt so good to be treated so well. (Sad, isn't

> it? That I'm amazed to be treated well by my conventional health

> professional?) Anyway, to anyone out there with a long drive ahead

> of them to get to a CT clinic, I would say go for it. It is worth

> the trip, even if you would decide not to band.

>

> Good luck to all of our plagio babies out there, may there be many

> growth spurts this week!

>

> Kind regards,

> , Rhiannon's mom

[Guest guest]

Holly,

Just a thought- does anyone have a letter in the database that would allow a

draft copy to be written by you, and then sent to the staff so that they

could tweak it how they want it- but it would get a jump start on getting

that letter written? Lots of times we (totally non-medical though) get draft

letters from companies that state what and how they want the City to write

their letters, and we just go off of that and make the changes we feel are

important. This might help in getting their attention at the very least,

while at the same time trying to afford them the extra help that staff needs

right now. May be a long shot but thought I'd throw it out there!

' Mom

[Guest guest]

, Glad to hear that the casting went well. As I have stated

before, I am impressed that you are driving so far for the treatment!

I also agree with you about kind treatment by folks at CT. I have

gotten so used to being rushed in and out of medical appts. by

providers who seem to be in a hurry to get to the next patient. It

was refreshing to meet with people who really seemed to care about our

baby and were willing to take the time to answer our questions.

My pediatrician's office, on the other hand, STILL hasn't written

the letter of medical necessity that I need, despite 4-5 phone calls

by me. (They plead understaffing and keep promising to do it.) I am

glad that 's ped. diagnosed the plagio early but really wish

that his staff would follow up on their promise to write the letter!

Holly & (to receive DOC Band on 5/30)

> Hello to all:

>

> Just wanted to check in and let you all know Rhiannon was casted

> today at CT in Madison. The drive (5 hours each way) went really

> well - Rhia did not cry even once!! And the meeting with the CT

> folks, well I could not be happier with how it went!

>

> First, I brought along photos of Rhia from when she was just born.

> The OT was so impressed by how far she has come (the birth photos

> really show the effects of the inter-uterine constraint, and my poor

> baby was pretty banged-up.) She was amazed that the asymmetries

were

> so relatively minor at this point and that her tort issues were so

> minor, comparitively. She was very supportive of all the hard work

> I have done, and of all the therapies that I do with her -

> alternative and conventional. Also, she gave me the most important

> piece of information for my piece of mind (other than that my

> daughter will get a good result with this helmet). That was that

> everything that I had thought and fought about with my previous

> providers was correct! That I was not the crazy one, (no matter how

> much they wanted me to think it.) My thoughts on the tort/plagio

> are/were in line with the folks at CT, and by following my gut I had

> been able to provide my baby with good therapies that provided good

> results! I could have cried!

>

> Rhiannon tolerated the casting really well. Of course there were a

> few tears, but not what I had prepared myself for. The therapist

was

> VERY thorough and was so kind, compassionate, informative, and

> professional. It felt so good to be treated so well. (Sad, isn't

> it? That I'm amazed to be treated well by my conventional health

> professional?) Anyway, to anyone out there with a long drive ahead

> of them to get to a CT clinic, I would say go for it. It is worth

> the trip, even if you would decide not to band.

>

> Good luck to all of our plagio babies out there, may there be many

> growth spurts this week!

>

> Kind regards,

> , Rhiannon's mom

[Guest guest]

Hi Holly:

Thanks for your post, and your support. It is exciting to be waiting

for the band, isn't it? I just want to get it on her and let it

start working! It looks like we will be getting our bands one day

apart - us on the 29th and you on the 30th! We'll have to keep in

touch!

I hope that your ped's office gets that paperwork done asap. Too bad

that you have to wait around for it. Very frustrating.

Hoping for good news on the paperwork...

, Rhiannon's mom

> > Hello to all:

> >

> > Just wanted to check in and let you all know Rhiannon was casted

> > today at CT in Madison. The drive (5 hours each way) went really

> > well - Rhia did not cry even once!! And the meeting with the CT

> > folks, well I could not be happier with how it went!

> >

> > First, I brought along photos of Rhia from when she was just

born.

> > The OT was so impressed by how far she has come (the birth photos

> > really show the effects of the inter-uterine constraint, and my

poor

> > baby was pretty banged-up.) She was amazed that the asymmetries

> were

> > so relatively minor at this point and that her tort issues were

so

> > minor, comparitively. She was very supportive of all the hard

work

> > I have done, and of all the therapies that I do with her -

> > alternative and conventional. Also, she gave me the most

important

> > piece of information for my piece of mind (other than that my

> > daughter will get a good result with this helmet). That was that

> > everything that I had thought and fought about with my previous

> > providers was correct! That I was not the crazy one, (no matter

how

> > much they wanted me to think it.) My thoughts on the tort/plagio

> > are/were in line with the folks at CT, and by following my gut I

had

> > been able to provide my baby with good therapies that provided

good

> > results! I could have cried!

> >

> > Rhiannon tolerated the casting really well. Of course there were

a

> > few tears, but not what I had prepared myself for. The therapist

> was

> > VERY thorough and was so kind, compassionate, informative, and

> > professional. It felt so good to be treated so well. (Sad,

isn't

> > it? That I'm amazed to be treated well by my conventional health

> > professional?) Anyway, to anyone out there with a long drive

ahead

> > of them to get to a CT clinic, I would say go for it. It is

worth

> > the trip, even if you would decide not to band.

> >

> > Good luck to all of our plagio babies out there, may there be

many

> > growth spurts this week!

> >

> > Kind regards,

> > , Rhiannon's mom