Re: My son had his appointment today

[Guest guest]

:

Congratulations!! Isn't it a relief to know that something is being

done for your little ? I am very impressed with your approach,

and only wish that I would have known more in the early days as you

did - it would have been much easier!

Take care, and keep us posted. Good luck to you and little !

Kind regards,

, Rhiannon's mom

> First, I would like to thank all of you who replied to my initial

> message. This group and the experiences that come with it are quite

> impressive. In the last couple of days I have scrolled the message

> archives for hours trying to understand plagiocephaly and develop

> some sort of strategic approach...and to find some comfort and

> relief. Thank you all!

>

> My son was seen by a neurosurgeon at Kaiser in Sacramento. Within

10

> seconds, he said he could see my son had Plagiocephaly. He

continued

> to explain to me the origin, saying it was a benign condition and

> other than a minor cosmetic challenge my son would enjoy a

successful

> life. He highlighted on positional therapy as a very successful

> treatment and would provide some written material on several

> techniques. I cannot believe his response. I read the exact

response

> in this group, word for word.

>

> I let him finish his canned assessment and he asked if I had any

> questions. I said, yes.

>

> I asked about helmets and bands and his thoughts. He said there

have

> been some surprising results, but overall, these devices were high

> maintenance and could cause sores and most-likely, disappointing

> results.

>

> I told him about all the successes I have read about within this

> group and other means, and that I would certainly classify the

> results as genuine and very appealing. I continued to articulate

that

> I have chosen the method of treatment I feel best suits my son and

> cranial orthosis is it. He looked at my son's head one more time

and

> said he would write the referral to Stanford University's Orthosis

> department. Kaiser doe's not offer the service directly and

contracts

> this type of treatment.

>

> YAAAAAAAAAAAAAHHHHHHHHHHOOOOOOOOOOOOOOOOOOO!

>

> I pulled out the list of questions I downloaded from

> WWW.plagiocephaly.org, regarding " questions to ask your Doctor " . He

> answered most of them but seemed bewildered at my preparation.

>

> I asked him if he conducts CT scans to eliminate the possibility of

> craniosynostisis. He was very adimate against exposing my son to

the

> radiation. He was very confident that his 22 years as a pediatric

> neurosurgeon had exposed him to plagiocephaly and he can spot the

> characteristics instantly. I accepted his answer and decided to

> comply with his non-recommendation.

>

> As for his severity, the doctor said it was mild-moderate, and that

> the people at Stanford would give me exact symmetrical

misalignments.

> Great!

>

> It was very important for me to educate myself ASAP and arm myself

> against replies from the medical establishment that align

themselves

> with insurance costs. If I would have went to the neurosurgeon and

> listened to his initial response I would be treating a moderate

case

> of plagiocephaly with repositioning techniques only.

>

> Thanks again from all of you for your suggestions / support and

most

> importantly, your personal experiences. I will continue to update

> this group and reply to all who answered my posting. I will post my

> pictures of my son's head soon.

>

> Thanks,

> 's Dad,

[Guest guest]

:

Congratulations!! Isn't it a relief to know that something is being

done for your little ? I am very impressed with your approach,

and only wish that I would have known more in the early days as you

did - it would have been much easier!

Take care, and keep us posted. Good luck to you and little !

Kind regards,

, Rhiannon's mom

> First, I would like to thank all of you who replied to my initial

> message. This group and the experiences that come with it are quite

> impressive. In the last couple of days I have scrolled the message

> archives for hours trying to understand plagiocephaly and develop

> some sort of strategic approach...and to find some comfort and

> relief. Thank you all!

>

> My son was seen by a neurosurgeon at Kaiser in Sacramento. Within

10

> seconds, he said he could see my son had Plagiocephaly. He

continued

> to explain to me the origin, saying it was a benign condition and

> other than a minor cosmetic challenge my son would enjoy a

successful

> life. He highlighted on positional therapy as a very successful

> treatment and would provide some written material on several

> techniques. I cannot believe his response. I read the exact

response

> in this group, word for word.

>

> I let him finish his canned assessment and he asked if I had any

> questions. I said, yes.

>

> I asked about helmets and bands and his thoughts. He said there

have

> been some surprising results, but overall, these devices were high

> maintenance and could cause sores and most-likely, disappointing

> results.

>

> I told him about all the successes I have read about within this

> group and other means, and that I would certainly classify the

> results as genuine and very appealing. I continued to articulate

that

> I have chosen the method of treatment I feel best suits my son and

> cranial orthosis is it. He looked at my son's head one more time

and

> said he would write the referral to Stanford University's Orthosis

> department. Kaiser doe's not offer the service directly and

contracts

> this type of treatment.

>

> YAAAAAAAAAAAAAHHHHHHHHHHOOOOOOOOOOOOOOOOOOO!

>

> I pulled out the list of questions I downloaded from

> WWW.plagiocephaly.org, regarding " questions to ask your Doctor " . He

> answered most of them but seemed bewildered at my preparation.

>

> I asked him if he conducts CT scans to eliminate the possibility of

> craniosynostisis. He was very adimate against exposing my son to

the

> radiation. He was very confident that his 22 years as a pediatric

> neurosurgeon had exposed him to plagiocephaly and he can spot the

> characteristics instantly. I accepted his answer and decided to

> comply with his non-recommendation.

>

> As for his severity, the doctor said it was mild-moderate, and that

> the people at Stanford would give me exact symmetrical

misalignments.

> Great!

>

> It was very important for me to educate myself ASAP and arm myself

> against replies from the medical establishment that align

themselves

> with insurance costs. If I would have went to the neurosurgeon and

> listened to his initial response I would be treating a moderate

case

> of plagiocephaly with repositioning techniques only.

>

> Thanks again from all of you for your suggestions / support and

most

> importantly, your personal experiences. I will continue to update

> this group and reply to all who answered my posting. I will post my

> pictures of my son's head soon.

>

> Thanks,

> 's Dad,

[Guest guest]

:

What a GREAT dad you are! You have educated yourself MUCH more than

the neurosurgeon you saw & KNOW all the facts regarding plagio,

cranio & helmet successes.

I am happy to hear you did not back down from the specialist and will

be going with your gut feelings regarding helmet therapy.

Let us know when will be seeing the orthotist for a helmet or

band.

Good luck - GREAT job

Debbie Abby's mom DOCgrad

MI

> First, I would like to thank all of you who replied to my initial

> message. This group and the experiences that come with it are quite

> impressive. In the last couple of days I have scrolled the message

> archives for hours trying to understand plagiocephaly and develop

> some sort of strategic approach...and to find some comfort and

> relief. Thank you all!

>

> My son was seen by a neurosurgeon at Kaiser in Sacramento. Within

10

> seconds, he said he could see my son had Plagiocephaly. He

continued

> to explain to me the origin, saying it was a benign condition and

> other than a minor cosmetic challenge my son would enjoy a

successful

> life. He highlighted on positional therapy as a very successful

> treatment and would provide some written material on several

> techniques. I cannot believe his response. I read the exact

response

> in this group, word for word.

>

> I let him finish his canned assessment and he asked if I had any

> questions. I said, yes.

>

> I asked about helmets and bands and his thoughts. He said there

have

> been some surprising results, but overall, these devices were high

> maintenance and could cause sores and most-likely, disappointing

> results.

>

> I told him about all the successes I have read about within this

> group and other means, and that I would certainly classify the

> results as genuine and very appealing. I continued to articulate

that

> I have chosen the method of treatment I feel best suits my son and

> cranial orthosis is it. He looked at my son's head one more time

and

> said he would write the referral to Stanford University's Orthosis

> department. Kaiser doe's not offer the service directly and

contracts

> this type of treatment.

>

> YAAAAAAAAAAAAAHHHHHHHHHHOOOOOOOOOOOOOOOOOOO!

>

> I pulled out the list of questions I downloaded from

> WWW.plagiocephaly.org, regarding " questions to ask your Doctor " . He

> answered most of them but seemed bewildered at my preparation.

>

> I asked him if he conducts CT scans to eliminate the possibility of

> craniosynostisis. He was very adimate against exposing my son to

the

> radiation. He was very confident that his 22 years as a pediatric

> neurosurgeon had exposed him to plagiocephaly and he can spot the

> characteristics instantly. I accepted his answer and decided to

> comply with his non-recommendation.

>

> As for his severity, the doctor said it was mild-moderate, and that

> the people at Stanford would give me exact symmetrical

misalignments.

> Great!

>

> It was very important for me to educate myself ASAP and arm myself

> against replies from the medical establishment that align

themselves

> with insurance costs. If I would have went to the neurosurgeon and

> listened to his initial response I would be treating a moderate

case

> of plagiocephaly with repositioning techniques only.

>

> Thanks again from all of you for your suggestions / support and

most

> importantly, your personal experiences. I will continue to update

> this group and reply to all who answered my posting. I will post my

> pictures of my son's head soon.

>

> Thanks,

> 's Dad,

[Guest guest]

, It is interesting the different responses/treatment ideas people

have received from their medical providers. In my case, baby 's

pediatrician (a rather gruff fellow) told us at our 4 month appt. that

he needed a " helmet " for his " flat head " (doctor's terminology). He

gave us a brochure from CT with a prescription for DOC-Band attached

and told us to schedule an appt. ASAP. I never needed to go to a

specialist, and the pediatrician never discussed repositioning

techniques. I am so thankful that the pediatrician diagnosed him

because, in my total ignorance of plagio, its causes and treatment, I

had noticed 's flat spot on the back of his head but didn't

think it was anything to be worried about. Again, thank goodness for

a ped. who knew what he was doing even if he didn't take the time to

explain plagio to us! I'm sorry to hear about your negative

experience with CT in San Diego (I believe?). The CT office here in

ATL is great. Keep us posted--

Holly & (to receive DOC Band on 5/30)

> First, I would like to thank all of you who replied to my initial

> message. This group and the experiences that come with it are quite

> impressive. In the last couple of days I have scrolled the message

> archives for hours trying to understand plagiocephaly and develop

> some sort of strategic approach...and to find some comfort and

> relief. Thank you all!

>

> My son was seen by a neurosurgeon at Kaiser in Sacramento. Within 10

> seconds, he said he could see my son had Plagiocephaly. He continued

> to explain to me the origin, saying it was a benign condition and

> other than a minor cosmetic challenge my son would enjoy a

successful

> life. He highlighted on positional therapy as a very successful

> treatment and would provide some written material on several

> techniques. I cannot believe his response. I read the exact response

> in this group, word for word.

>

> I let him finish his canned assessment and he asked if I had any

> questions. I said, yes.

>

> I asked about helmets and bands and his thoughts. He said there have

> been some surprising results, but overall, these devices were high

> maintenance and could cause sores and most-likely, disappointing

> results.

>

> I told him about all the successes I have read about within this

> group and other means, and that I would certainly classify the

> results as genuine and very appealing. I continued to articulate

that

> I have chosen the method of treatment I feel best suits my son and

> cranial orthosis is it. He looked at my son's head one more time and

> said he would write the referral to Stanford University's Orthosis

> department. Kaiser doe's not offer the service directly and

contracts

> this type of treatment.

>

> YAAAAAAAAAAAAAHHHHHHHHHHOOOOOOOOOOOOOOOOOOO!

>

> I pulled out the list of questions I downloaded from

> WWW.plagiocephaly.org, regarding " questions to ask your Doctor " . He

> answered most of them but seemed bewildered at my preparation.

>

> I asked him if he conducts CT scans to eliminate the possibility of

> craniosynostisis. He was very adimate against exposing my son to the

> radiation. He was very confident that his 22 years as a pediatric

> neurosurgeon had exposed him to plagiocephaly and he can spot the

> characteristics instantly. I accepted his answer and decided to

> comply with his non-recommendation.

>

> As for his severity, the doctor said it was mild-moderate, and that

> the people at Stanford would give me exact symmetrical

misalignments.

> Great!

>

> It was very important for me to educate myself ASAP and arm myself

> against replies from the medical establishment that align themselves

> with insurance costs. If I would have went to the neurosurgeon and

> listened to his initial response I would be treating a moderate case

> of plagiocephaly with repositioning techniques only.

>

> Thanks again from all of you for your suggestions / support and most

> importantly, your personal experiences. I will continue to update

> this group and reply to all who answered my posting. I will post my

> pictures of my son's head soon.

>

> Thanks,

> 's Dad,