Re: Please Help...

[Guest guest]

Hi :

I think I need to clarify - I meant follow the advise that was posted

by the other moms on this board to get to CT.

I just want you to know that I, too, have had a very hard time with

Dr's, helmet, PT, etc. so I know how frustrating it can be. I had my

mini " nervous breakdown " last week. But, I'm ok now. I just fired

everyone that was giving me a hassle and found my own way. I

realized that they don't give a damn about my baby, and I had better

understand that. It truly is up to us as moms to figure out what to

do. It is an awsome responsibility, (especially since we're not

Doctors, Phyical Therapists, Orthotists, etc.) but there are

wonderful people out there who can and will help you. You will find

them! In my case, I started with my Rolfer, who referred me to a

Cranial Osteopath, who referred me to a Cranial-Sacral Therapist and

a Pediatric Massage Practioner. They are wonderful, and they truly

care about the wellbeing and recovery of my baby. Unlike the doctor

who told me last week that " if I didn't like it, I could just

quit. " . Whatever.

Keep up the good work, and keep looking for those practioners that

care. I think CT will see your baby without referral, but to band

they need one.

Good luck!

, Rhiannon's mom

> >

> > Hello,

> >

> > My name is . I had my first baby, a son named Grant, on

> September 26, 2001. Not long after he was born, we noticed he had

a

> tendency to turn his head to the left. We did see him occasionally

> turn it to the right, but never to the extent that he turned it to

> the left. We also noticed that when he settled down and fell

asleep,

> his head would always fall the left. When his hair starting

> thickening up, we noticed that he had a lot more hair on the right

> side...like he was wearing away the hair towards the back of the

left

> side. I mentioned this at EVERY doc appt and was told about

> positioning opposite directions on changing table, in crib, etc.

> minimize use of bouncy seat, swing, etc. I did all these things,

but

> he would just find something new to look at in the left direction

and

> we never were really using the bouncy seat, swing, etc. anyway. He

> never really liked those kind of toys. Well, even now, with him

> sitting up or on his tummy all the time it's growing worse. The

> flattening is getting very noticeable on the left side and his ears

> look misaligned. I don't really notice any asymmetry in his face,

> though. Well, a couple of weeks ago I took him to the

pediatrician

> to get his ears checked (he was pulling at them). We saw a

different

> ped..the one who was taking emerg. sick visits. She took one look

at

> him and noticed the head flattening, favoring one side with neck,

> etc. She seemed a bit alarmed (even though our normal ped blows it

> off constantly and he is one of the top noted pediatricians in the

> city?!). She gave me one exercise to do with him, stressed tummy

> time (we're doing it all day already), and said he needed to come

> back in 3 weeks and be evaluated for possible PT. Hello? Why wait

3

> weeks? I was confused and angry and scared. After a couple days

of

> these excruciating exercises (they are getting a bit easier now) I

> called back and demanded to talk to our normal ped. I asked him

for

> a referral to a specialist to see what needed to be done (after

much

> reading up on this stuff on my own). He agreed and gave me a

name

> of a craniofacial specialist (a pediatric reconstructive/plastic

> surgery doc)... I call this guy and can't get in until July 18th!!!

> My baby will be almost 9 mos. old then!!! I called my ped back to

> tell him and see what my alternatives where (can he grease the

> wheels? Is there someone else?) and he says just keep doing the

> exercises...you won't get in anywhere else sooner. HELP...what

would

> you experienced ladies do in my spot? What do I do next? Will it

be

> too late to fix his head shape? Would you find someone to call on

> your own? Help, please. Anyone in the KC area? Thanks so much.

> >

> > R, mom to Grant

> >

> >

> >

> > ---------------------------------

> >