Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 Dina: Thanks so much for the update. Wow, I bet you have been thru an emotional rollercoaster with your craniosynostosis worries. Ugggg. It sounds like you've gotten good advice from 2 specialists & I really hope her new band will produce some results. Good luck with her casting tomorrow. 10 mos is not too late to " start again " . I'm sure will hit some growth spurts in the coming mos.. Please let us know how it goes. Debbie Abby's mom DOCgrad MI > Hi everyone, > To refresh your memories, my daughter (now 10 months) has > torticollis and plagio. She wore a StarBand on and off between > February and April. We saw some improvement but nothing much to > speak of. also has moderate facial assymmetry. Left eye is > smaller (actually slightly recessed), one cheeck fuller, and the > right/back of her head is basically flat. Our NS at the time sent us > for a CTScan in April. The scan revealed a closed metopic suture. > But, has NONE of the characteriscs of a baby with a " typical " > early metopic fusion. Well, after 2 plastic surgeon visits, an > another NS visit and a Conference for Craniofacial Issues - > Craniosynthosis was ruled out. Basically, we were told to forget > about the closure. If she didn't have other " issues " we would enver > had known. On PS actually recommend surgery to fix her asymmetries > but all the rest ruled against. had not be in her band since > April when we were waiting to found out if surgery was in order. Now > she has out grown it so we are going for a new casting tomorrow. I > know 10 months old is a little late in the game (a regular band from > a local place) but it's better then nothing. Definitely worth the > true. We are hoping for the best. > As always, thanks so much for being here. It truly is such a huge > comfort and help. > Dina and (10 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 Dina, Thank you so much for the update on . I am breathing a huge sigh of relief for you that cranio was ruled out. I am sure you can expect some additional rounding when gets her new hat. She is still at a good age to receive some correction, though it may not come as fast as it would if she were younger. Good luck and please be sure to keep us up to date. Niki Kaylie & Danny (STAR grads) Phila., PA > Hi everyone, > To refresh your memories, my daughter (now 10 months) has > torticollis and plagio. She wore a StarBand on and off between > February and April. We saw some improvement but nothing much to > speak of. also has moderate facial assymmetry. Left eye is > smaller (actually slightly recessed), one cheeck fuller, and the > right/back of her head is basically flat. Our NS at the time sent us > for a CTScan in April. The scan revealed a closed metopic suture. > But, has NONE of the characteriscs of a baby with a " typical " > early metopic fusion. Well, after 2 plastic surgeon visits, an > another NS visit and a Conference for Craniofacial Issues - > Craniosynthosis was ruled out. Basically, we were told to forget > about the closure. If she didn't have other " issues " we would enver > had known. On PS actually recommend surgery to fix her asymmetries > but all the rest ruled against. had not be in her band since > April when we were waiting to found out if surgery was in order. Now > she has out grown it so we are going for a new casting tomorrow. I > know 10 months old is a little late in the game (a regular band from > a local place) but it's better then nothing. Definitely worth the > true. We are hoping for the best. > As always, thanks so much for being here. It truly is such a huge > comfort and help. > Dina and (10 months) Quote Link to comment Share on other sites More sharing options...
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