Re: To 's Dad

[Guest guest]

I'm a newbie too, my daughter Amy doesn't even have her band yet, but we

just went to a Cranial Technologies office. Go to their website-

cranialtech.com or cranialtechnologies.com or search under positional

plagiocephaly. We went for a free consultation and finally got the

affirmation we were waiting for. After 2 visits to the neuro. who just

eyeballed her and gave his diagnosis, CT will measure your son for

cranial vault asymmetry, cranial base asymmetry and facial asymmetry, if

2/3 measurements are over 6mm, they recommend banding, or at least they

did for us. This may vary site to site. Maybe the group can add more.

Don't wait! Someone else gave us this same advice and it was the best

thing we ever did. Your son is just at the right age for treatment,

don't give up hope. I have already gotten good advice and support from

this group.

Also, at CT we saw a wonderful clinician and they can point out things

you don't even notice. Amy's head had a curve on top we never saw and

one eye was pushed forward more than the other. They are trained to see

these asymmetries and can tell you severity. You as the parent know what

is right for your son! You just need to see someone sophisticated in

treatment, unfortunately, the medical community isn't getting this one

right. Even if your neuro. on Monday says " don't worry " still see CT or

a craniofacial surgeon. From our experience, if developmentally and

neurologically everything is fine, a neuro won't be as concerned.

Ellen, mom to Amy

Bridgeton, NJ

On Sat, 18 May 2002 16:35:07 -0000 " eklucky1 " <eklucky@...> writes:

> Here is another one for the group, my son . He is 5 months old

> and has a flat spot on the right back side of his head. He will be

> seeing a nuerosurgeon monday.

>

> I am in shock, angry, sad, confused, and scared. I read the messages

>

> archives and I want to crawl under a rock. I have not told anyone

> other than my closest family members and I feel ashamed for keeping

> it inside. My son is so beautiful that I cannot stand to even

> imagine

> what he is going to experience in his very near future.

>

> My wife and I have heard the typical responses, that are common to

> this group, from our pediatrician that I finally demanded that she

> refer my son. She obviously has very little experience I guess, I

> still feel she is an incompetent, uncaring, asshole!

>

> My very first question from this group is how can I determine

> 's

> severity? He has a very visible flat spot on the rightside, his ears

>

> are misaligned, and he is rightside dominant...but I do not see

> buldging on his forehead.

>

> Please let me know

>

>

> 's Dad,

>

>

>