Guest guest Posted May 10, 2002 Report Share Posted May 10, 2002 Does anyone think that the middle of their children's head is getting a little cone shaped? The part of 's head which is not being shaped by the helmet seems to be growing fast!! I am just a little nervous. When I take the helmet off his head seems a little unproportional! Dianne Massachusetts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2003 Report Share Posted May 8, 2003 Hello Bill and welcome! I'll agree that it sounds like brachy. Can you post a picture of your son? It sounds like you have already received some information regarding banding. Have you been referred to a particular clinic for treatment? Marci (Mom to ) Oklahoma --- In Plagiocephaly , " wethomen " <wethomen@y...> wrote: > I am considering a head band for my son who is 6 months old. His > head is equally flat on both sides in the back and sticks up into > a " cone " shape. This shape was intially caused by trauma when he was > born. Has anyone had any experience with a child with a head shape > similar to my son's and, if so, what sort of results were achieved? - > Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2003 Report Share Posted May 8, 2003 Find a Preferred Physician: Search by Location bill check out this link it might help you find another provider that has more experience. beck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2003 Report Share Posted May 8, 2003 Debbie - I appreciate the link. I have taken my son to a plastic surgeon but he seems more like an order taker for head bands than a cutting edge resouce. The orthoist that he referred me to has done 80 head bands but has no experience in brachy. Looking at the web site you sent me to, my son clearly is a brachy. I live in San Francisco and hopefully someone out there on the west coast has had success with banding a brachy baby and can refer me to someone with experience. I don't want my son to be the orthoist first. Thanks again - Bill -- In Plagiocephaly , Debbie <dj2kirby@s...> wrote: > Hi Bill & welcome :)I'd agree w/christina that is sounds like brachy. You can visit www.plagiocephaly.org/support and compare headshapes. There are many members with brachy shaped children who have indeed banded them with good results!Debbie Abby's mom DOCGradMI > > wethomen <wethomen@y...> wrote:I am considering a head band for my son who is 6 months old. His > head is equally flat on both sides in the back and sticks up into > a " cone " shape. This shape was intially caused by trauma when he was > born. Has anyone had any experience with a child with a head shape > similar to my son's and, if so, what sort of results were achieved? - > Bill > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2003 Report Share Posted May 8, 2003 Beck - Thanks for the link. My son clearly looks like a brachy. The plastic surgeon who wrote me a prescription for a headband listed my son's diagnosis as plagiocephaly. After reading through the website and other links that I have been sent, I have even less confidence in him. Hopefully someone can refer me to an orthoist with experience in my son's situation. - Bill > <A HREF= " http://www.plagiocephaly.org/support/types.htm " >head shapes</A> > <A HREF= " http://www.plagiocephaly.org/brachy.htm " >Click here: Brachycephaly.Info</A> > > hi welcome to the baord we are glad youa re here. You sound slike a great dad > and you are at a great time to get effective treatment so that is wonderful. > Here are a few links to check out I hope they are helpful for you. I am sure > you ill get some replies from other moms on the board. Please keep us posted. > We would love to know more about you and your son we might have other parents > in your are that can help you with Drs. and such. > beck > Mom to > <A HREF= " http://www.plagiocephaly.org/support/questions.htm " >Questions for the Doctor</A> > <A HREF= " http://www.plagiocephaly.org/support/faq.htm " >commonplagioquesti ons</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2003 Report Share Posted May 8, 2003 - Thanks for the message. Its good to finally hear that someone else has had the same experience. Did your orthoist have experience with Brachy babies before he banded your son and could you give me his name and phone number so that I can contact him? I would like to have someone with experience in brachy band my son's head. - Bill > Hi Bill, > > My son was DOCbanded at 6 1/2months with brachy. Although his head was > cone-shaped when he was born, as he got older, his head became more wide > shaped and was equally flat in the back...very flat. Our son, Jake, has had > his band on for 7 weeks now and we are very impressed with the results. Jake > was considered borderline as to whether he should be banded, but we decided > to go the " better safe than sorry " route. We're glad we did. > > The hardest part of this whole process, for us, was just making the decision > to do it. Jake never went through an adjustment phase and doesn't even know > it's on. We are anticipating Jake wearing his band for another 3 weeks, > which will give him a total of 10 weeks in it. > > Keep reading these posts. There's a lot of good information here and a lot > of support. It's a great group! Good luck in your decision. > > , Mommy to (DOCbanded on 3/21) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2003 Report Share Posted May 8, 2003 Marci - I'm not sure how to post a piture on this site but after looking at the web sites I was referred to, my son clearly has brachy. The orthoist I was referred to has done 80 head bands and has no experience with brachy. I live in San Francisco and am looking for a referral to an orthoist that has experience. Thanks for the support. - Bill > > I am considering a head band for my son who is 6 months old. His > > head is equally flat on both sides in the back and sticks up into > > a " cone " shape. This shape was intially caused by trauma when he was > > born. Has anyone had any experience with a child with a head shape > > similar to my son's and, if so, what sort of results were achieved? - > > Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2003 Report Share Posted May 8, 2003 Bill, I'm sorry if I missed this, but where are you located? Maybe someone in the group is near you and can recommend someone to you. Check out www.cranialtech.com to see if there are any DOCband clinics near you or you can check out www.orthomerica.com for STARband orthos. Marci (Mom to ) Oklahoma > > <A HREF= " http://www.plagiocephaly.org/support/types.htm " >head > shapes</A> > > <A HREF= " http://www.plagiocephaly.org/brachy.htm " >Click here: > Brachycephaly.Info</A> > > > > hi welcome to the baord we are glad youa re here. You sound slike a > great dad > > and you are at a great time to get effective treatment so that is > wonderful. > > Here are a few links to check out I hope they are helpful for you. > I am sure > > you ill get some replies from other moms on the board. Please keep > us posted. > > We would love to know more about you and your son we might have > other parents > > in your are that can help you with Drs. and such. > > beck > > Mom to > > <A > HREF= " http://www.plagiocephaly.org/support/questions.htm " >Questions > for the Doctor</A> > > <A > HREF= " http://www.plagiocephaly.org/support/faq.htm " >commonplagioquesti > ons</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2003 Report Share Posted May 8, 2003 files Find a Preferred Physician: Search by Location Orthomerica DOC Hey Bill these links might be helpful the files has a list of rec dr's in it as well. Maybe if you can find a recc dr in your area then you can find an experienced ortho as well. Angel Flight is available to provide free air transportation to you should you have to travel for treatment. I used them to fly from TNto GA every week and it was wonderful. Here is there link but I certainly can provide you with more info on them. My best to you are doing a great job please let us know how we can help/ Beck Mom to and ANGELFLIGHTS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2003 Report Share Posted May 9, 2003 Bill are you near Palo Alto? Kim (mom to Kurt) I believe is getting her STARband from a facility in Palo Alto. Several other members have used this facility as well and seem pleased with it. I just posted a message to Kim with a subject line " Kim/Kurt Palo Alto " so maybe we'll get some feedback from her or another Palo Alto person. Marci (Mom to ) Oklahoma > > > I am considering a head band for my son who is 6 months old. His > > > head is equally flat on both sides in the back and sticks up into > > > a " cone " shape. This shape was intially caused by trauma when he > was > > > born. Has anyone had any experience with a child with a head > shape > > > similar to my son's and, if so, what sort of results were > achieved? - > > > Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2003 Report Share Posted May 9, 2003 Marci - We are located in San Francisco. I sent an e-mail to Starband this morning asking for a list of orthos in the area. No response yet. According to the DOCband web site, the nearest clinics are in Southern California. I will try them if I can't find someone with the proper level of experience in Northern California. - Bill > > > <A HREF= " http://www.plagiocephaly.org/support/types.htm " >head > > shapes</A> > > > <A HREF= " http://www.plagiocephaly.org/brachy.htm " >Click here: > > Brachycephaly.Info</A> > > > > > > hi welcome to the baord we are glad youa re here. You sound slike > a > > great dad > > > and you are at a great time to get effective treatment so that is > > wonderful. > > > Here are a few links to check out I hope they are helpful for > you. > > I am sure > > > you ill get some replies from other moms on the board. Please > keep > > us posted. > > > We would love to know more about you and your son we might have > > other parents > > > in your are that can help you with Drs. and such. > > > beck > > > Mom to > > > <A > > HREF= " http://www.plagiocephaly.org/support/questions.htm " >Questions > > for the Doctor</A> > > > <A > > > HREF= " http://www.plagiocephaly.org/support/faq.htm " >commonplagioquesti > > ons</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2003 Report Share Posted May 9, 2003 Beck - Thanks for the follow up. I sent an e-mail to Othomerica this morning looking for experienced orthos in my area. The doctors an the list at the links are all in Southern California. The are my next resort if I can't find the right level of experience here in the San Francisco area. Thanks again. - Bill > <A HREF= " Plagiocephaly/files/ " >files</A> > <A HREF= " http://www.plagiocephaly.org/ppcs-location.asp " >Find a Preferred Physician: Search by Location</A> > <A HREF= " http://www.orthomerica.com/ " >Orthomerica</A> > <A HREF= " http://www.cranialtech.com/ " >DOC</A> > > Hey Bill these links might be helpful the files has a list of rec dr's in it > as well. Maybe if you can find a recc dr in your area then you can find an > experienced ortho as well. Angel Flight is available to provide free air > transportation to you should you have to travel for treatment. I used them to > fly from TNto GA every week and it was wonderful. Here is there link but I > certainly can provide you with more info on them. My best to you are doing a > great job please let us know how we can help/ > Beck > Mom to and > <A HREF= " http://www.aircareall.org/ " >ANGELFLIGHTS</A> Quote Link to comment Share on other sites More sharing options...
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