RE: Has anyone used CT in Connecticut?

[Guest guest]

Dana,

We haven't used the Connecticut CT, but we've just been to the NJ office

and were so pleased. We went to CT first, to see if they recommended the

band, then back to our ped. to tell him what we wanted. I would get an

appt. with CT, they can point you to someone in your area who refers to

the DOC Band and you won't waste precious time. Our daughter will have

her band in about 1 1/2 weeks at 13 months of age. We expect 2 bands and

at least 6 months of treatment. My opinion is that if you start looking

for a ped. to help you, you'll hear the same old " it'll round out over

time " and " it's a cosmetic thing. " Good luck! You know what your child

needs and this group will cheer you on. I was on the fence for some time

because I didn't want to think about my daughter with one of those bands

on her head, but deep down, I knew it was what she needed.

Ellen, Mom to Amy

New Jersey

On Mon, 27 May 2002 21:43:41 -0000 " brigwife " <brigwife@...>

writes:

> Hi,

> Just wondering if anyone had any experience with this particular

> office? It will be the closest office, but still about 5 hours+ from

>

> where we will be. I don't know where to even start looking for a

> doctor up there. I guess the first step will be to take her to a

> regular doctor up there and hope for some assistance.

> Dana

>

>

>

[Guest guest]

We are

working with that office, although I haven’t actually been there in person

yet.  We go for our casting on June 3rd.  I have spoken with on the phone many

times and she told me about Dr. Persing and Dr. Shin who are Cranialfacial Specialists

who work at Yale.  They have a clinic

every Friday and usually Lynn Ball (an Occupational Therapist) from CT is there,

however when we went she couldn’t be there that day.  We saw Dr. Persing who was absolutely wonderful and diagnosed

Timmy with moderate Plagio and wrote a prescription for the DOC band.  We elected not to go see Lynn for our consultation

before the casting because it is an hour drive for us and since Timmy had

already been seen by the doctor, we didn’t feel that it was necessary.  After CT got the prescription from Dr.

Persing, was wonderful and dealt with our insurance company and didn’t

even mind me calling a few times to check if she had heard anything yet.  Also, when we were waiting at our

appointment with Dr. Persing, we met another mom and baby who already had a DOC

band.  She said that Lynn and CT were

just awesome.  She said it was really

relaxed in the office and definitely geared toward taking the best care of your

child.  We were very glad to speak with

her and hear all the details from a mom who was already going through all this.

Good

luck!  If you want, I can let you know

more about the office after our June 3rd appointment.

~, mom

to Timmy, in Connecticut

Has anyone used

CT in Connecticut?

Hi,

Just wondering if anyone had any experience with this particular

office? It will be the closest office, but still about 5 hours+ from

where we will be. I don't know where to even start looking for a

doctor up there. I guess the first step will be to take her to a

regular doctor up there and hope for some assistance.

Dana

For more plagio info

[Guest guest]

Dana,

Hey you! So glad to see your post- I'm glad that was able to help you

with the CT office she's using. If you do decide on that route, you can call

CT and get honest information about time tables and growth spurts for kids

over 1 year. We have lots of banded beauties over 1 year, and I hope that

other members will chime in and talk with you about their situations and rate

of progress- I have heard many talk about getting good results! Good luck to

you and I hope your move went well!

keep us posted!

' Mom

[Guest guest]

Hi ,

I'd love to hear how it went after your appointment. We are in a

difficult position because we will be living in VT, and that is the

closest office. I did finally find someone who gave me a

recommendation up in the area we are moving to, so that may be the

route we end up going, I don't know. It just bothers me so much that

I listened to the Dr's here in NC and didn't do anything, and now

she's almost a year and her head still isn't as right as I'd like it

to be. I just want the best for my baby, even if it means I have to

drive all the way down to CT.

I hope everything goes well with the casting, and thank you so much

for the response!

Dana

> We are working with that office, although I haven't actually been

there in

> person yet. We go for our casting on June 3rd. I have spoken with

> on the phone many times and she told me about Dr. Persing and Dr.

Shin who

> are Cranialfacial Specialists who work at Yale. They have a clinic

every

> Friday and usually Lynn Ball (an Occupational Therapist) from CT is

there,

> however when we went she couldn't be there that day. We saw Dr.

Persing who

> was absolutely wonderful and diagnosed Timmy with moderate Plagio

and wrote

> a prescription for the DOC band. We elected not to go see Lynn for

our

> consultation before the casting because it is an hour drive for us

and since

> Timmy had already been seen by the doctor, we didn't feel that it

was

> necessary. After CT got the prescription from Dr. Persing,

was

> wonderful and dealt with our insurance company and didn't even mind

me

> calling a few times to check if she had heard anything yet. Also,

when we

> were waiting at our appointment with Dr. Persing, we met another

mom and

> baby who already had a DOC band. She said that Lynn and CT were

just

> awesome. She said it was really relaxed in the office and

definitely geared

> toward taking the best care of your child. We were very glad to

speak with

> her and hear all the details from a mom who was already going

through all

> this.

>

> Good luck! If you want, I can let you know more about the office

after our

> June 3rd appointment.

>

> ~, mom to Timmy, in Connecticut

>

>

> Has anyone used CT in Connecticut?

>

> Hi,

> Just wondering if anyone had any experience with this particular

> office? It will be the closest office, but still about 5 hours+ from

> where we will be. I don't know where to even start looking for a

> doctor up there. I guess the first step will be to take her to a

> regular doctor up there and hope for some assistance.

> Dana

>

>

>

>

>

[Guest guest]

Dana,

Great news!!! I'm so glad you've gotten some good leads on Doctors- great

idea to start the process now since appts. can take forever to get! Its

really a godsend to have a network of friends all over the world! Good luck

on getting some resolve for your daughter- your a great mom to go the

distance- keep fighting the good fight!!! Please do check in and keep us

posted- we would love to hear good things are happening for you guys!!!!

' Mom

[Guest guest]

,

Thanks. I also went through the CAPPS site and found someone up in VT

who is going to help me up there, She gave me the name of her ped who

she says is really good, and they go to the Childrens Hospital at

Dartmouth. We are going to be calling up there to get an appt even

before we move to hopefully get the ball rolling.

Thanks for everything!

Dana

> Dana,

> Hey you! So glad to see your post- I'm glad that was able to

help you

> with the CT office she's using. If you do decide on that route,

you can call

> CT and get honest information about time tables and growth spurts

for kids

> over 1 year. We have lots of banded beauties over 1 year, and I

hope that

> other members will chime in and talk with you about their

situations and rate

> of progress- I have heard many talk about getting good results!

Good luck to

> you and I hope your move went well!

> keep us posted!

>

> ' Mom

[Guest guest]

Dana,

We had our casting appointment today. The CT office in Clinton is very nice and Lynn Ball there is wonderful. She was great with Timmy and made us feel right at ease about the whole process. I saw from another message that you might be able to see someone in VT. That would be good so you wouldn't have to drive so far, but if you do decide to come down to Connecticut, you can be assured the place is very nice.

Has anyone used CT in Connecticut?> > Hi,> Just wondering if anyone had any experience with this particular> office? It will be the closest office, but still about 5 hours+ from> where we will be. I don't know where to even start looking for a> doctor up there. I guess the first step will be to take her to a> regular doctor up there and hope for some assistance.> Dana> > > > >