Re: Ronica - 's Mom new member

[Guest guest]

Hi Ronica:

I just wanted to welcome you to our group! You sound very very

educated about plagio . It's great to have you in our group. I am

glad that 's CT scan came back negative & he handled it well.

Is currently wearing a helmet or a band right now then? What

type if he is (DOCband, STARband, local helmet)? How old is he (you

mentioned 6 mos)?

We'd love to hear more of 's story if you wouldn't mind sharing

it with us all! Thanks.

Welcome again.

Debbie Abby's mom DOCGrad

MI

> I'm only referring to plagiocephaly. I don't know anything about

cranio.

>

> Congratulation on the adoption and good for you for being so

proactive in

> getting assistance for your daughter. The specialist we are seeing

explained

> the risks of not getting treatment like this: The brain has to

grow. If it

> can't grow backwards it will grow up or forward or to the sides

causing the

> head to be abnormally shaped. " The bands will work as long as the

bones

> haven't fused together. An x-ray or CT will let the doctor know if

the bones

> are open. We had a CT. It was scary because they had to sedate

, but

> he did great. The anesthesia was a liquid and it wore off

quickly. The

> sedation is necessary because the child has to be still for the

scan to be

> accurate. At 6 months we are pleased that the helmet was an

option. I'm new

> to this group, but I have heard success stories after a year. I

think that

> generally speaking the later treatment starts the longer it can

take. The

> helmet basically encourages growth in the areas that are flat by

offering

> some resistance (not pressure) in the other areas. The head grows

in the

> spot of least resistance. It can take longer for older children

because

> their growth has slowed down.

>

> Be persistent when you talk to your pediatrician and find another

one if

> he/she won't refer you to a specialist. So many children go

without

> treatment because of lack of knowledge within the medical community.

>

> Good luck.

>

> Ronica