Re: Leana - Katya's mom

[Guest guest]

Hi Leana:

It's good to hear from you again, but I'm sorry to hear you haven't

seem much improvement in Katya's head . Has Katya ever had a CT

scan or Xrays done to rule out craniosynostosis?

Also, DO NOT blame yourself for " overlooking " the problem earlier!

You are hardly to blame! Unfortunately SO many pediatricians &

specialists tell us parents not to worry & that the head will round

out on it's own over time.

I'll keep my fingers crossed that Katya hits some good growth spurts

SOON.

Please keep us updated on her progress & good luck

Debbie Abby's mom DOCGrad

MI

> > Hi everyone! Well, our son n got his DocBand yesterday so

> > hopefully we're on our way to some noticeable improvements! He's

> 12

> > months, 3 weeks and I so wish we had known about any treatment

> > options sooner! I definitely feel like we're doing the right

> thing,

> > though, even with the late start. I've been so amazed that it

> hasn't

> > really bothered him at all! He cried very briefly the first

couple

> > times we put it on, but since then, no tears at all. And he took

a

> > nap in it yesterday, then slept all night - no problems. He

hasn't

> > even taken it off, which we were a bit worried about since he's a

> > little older. The orthotist explained the " pink spots " we might

> see

> > and what to look for. So far he has had some pink spots, but

they

> > seem to fade pretty quickly when the band is removed and there

> > doesn't seem to be any chafing or irritation to the skin. Can

any

> of

> > you tell me what you noticed the first few days as far as pink or

> red

> > spots? I feel pretty confident that n's are nothing to

worry

> > about, but am just wondering about any of your kids' experience,

> > especially with a band. Also, are there any of you who have had

an

> > older baby in a band who can tell me how long it was before you

> > started noticing any improvements? I know it will take longer,

but

> > now that we've gotten started, I'm just so anxious. And I'm

sure

> it

> > varies by individual child and their growth spurts. Thanks

> everyone

> > for welcoming me to your community!

[Guest guest]

Debbie & ,

Thank you very much for your wonderful words of encouragement. And I

will try not to blame myself even though ... oh, here I go again :-)

Debbie, Katya had never a CT scan or X-rays done. May be I should ask

about it a CT specialist next time I go there? To be honest with you,

I don't even know what craniosynostosis is. Last 3 months I was

concentrating on learning as much as I can about plagio.

I will probably have to talk to the specialist at CT.

Thank you again & I will keep you updated.

Leana, Katya's mom.

> > > Hi everyone! Well, our son n got his DocBand yesterday

so

> > > hopefully we're on our way to some noticeable improvements!

He's

> > 12

> > > months, 3 weeks and I so wish we had known about any treatment

> > > options sooner! I definitely feel like we're doing the right

> > thing,

> > > though, even with the late start. I've been so amazed that it

> > hasn't

> > > really bothered him at all! He cried very briefly the first

> couple

> > > times we put it on, but since then, no tears at all. And he

took

> a

> > > nap in it yesterday, then slept all night - no problems. He

> hasn't

> > > even taken it off, which we were a bit worried about since he's

a

> > > little older. The orthotist explained the " pink spots " we

might

> > see

> > > and what to look for. So far he has had some pink spots, but

> they

> > > seem to fade pretty quickly when the band is removed and there

> > > doesn't seem to be any chafing or irritation to the skin. Can

> any

> > of

> > > you tell me what you noticed the first few days as far as pink

or

> > red

> > > spots? I feel pretty confident that n's are nothing to

> worry

> > > about, but am just wondering about any of your kids'

experience,

> > > especially with a band. Also, are there any of you who have

had

> an

> > > older baby in a band who can tell me how long it was before you

> > > started noticing any improvements? I know it will take longer,

> but

> > > now that we've gotten started, I'm just so anxious. And I'm

> sure

> > it

> > > varies by individual child and their growth spurts. Thanks

> > everyone

> > > for welcoming me to your community!