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Hi everyone,

To refresh your memories, my daughter (now 10 months) has

torticollis and plagio. She wore a StarBand on and off between

February and April. We saw some improvement but nothing much to

speak of. also has moderate facial assymmetry. Left eye is

smaller (actually slightly recessed), one cheeck fuller, and the

right/back of her head is basically flat. Our NS at the time sent us

for a CTScan in April. The scan revealed a closed metopic suture.

But, has NONE of the characteriscs of a baby with a " typical "

early metopic fusion. Well, after 2 plastic surgeon visits, an

another NS visit and a Conference for Craniofacial Issues -

Craniosynthosis was ruled out. Basically, we were told to forget

about the closure. If she didn't have other " issues " we would enver

had known. On PS actually recommend surgery to fix her asymmetries

but all the rest ruled against. had not be in her band since

April when we were waiting to found out if surgery was in order. Now

she has out grown it so we are going for a new casting tomorrow. I

know 10 months old is a little late in the game (a regular band from

a local place) but it's better then nothing. Definitely worth the

true. We are hoping for the best.

As always, thanks so much for being here. It truly is such a huge

comfort and help.

Dina and (10 months)

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  • 2 years later...

In a message dated 1/1/2005 11:03:45 PM Eastern Standard Time,

georgenmaggie@... writes:

>

>

> stopped throwing up and seems to be feeling much better. Thank you

> all so much for your prayers. It's so encouraging to see prayers answered.

> Thanks again,

> Roni

>

--\

There is some kind of " bug " going around that starts with a day or two of

throwing up, followed by a week or so of congestion.

- Becky

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In a message dated 1/1/2005 11:03:45 PM Eastern Standard Time,

georgenmaggie@... writes:

>

>

> stopped throwing up and seems to be feeling much better. Thank you

> all so much for your prayers. It's so encouraging to see prayers answered.

> Thanks again,

> Roni

>

--\

There is some kind of " bug " going around that starts with a day or two of

throwing up, followed by a week or so of congestion.

- Becky

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