Re: I'm new and need advise! I'm sorry this is so long.

[Guest guest]

-

Your daughter and my son have very similar cases. He had breathing

problems due to reflux and they NICU staff sepcifically told us to

hold or lay him on his right side. He developed positional tort and

plagio as a result. His face looked very much like your

daughter's. He wore a DOC Band from 5- 8 months. His ear and

facial asymmetry are gone, thanks to the DOC Band.

Good luck. I can't imagine schlepping 5 kids around! Wow!

Dane's mom DOC Grad

> Hi,

> I guess I'll start but giving everybody my daughters back ground.

> When she was born she was put in the NICU because she had

breathing problems

> and was put on a respirator.They always laid her on her right

side. (I only

> noticed that when I went back and looked at all the pics I took of

her when

> she was in there)About a month after she came home I noticed that

her head

> was always tilted in the same position. I took her to the doc who

said " it's

> not what you think it is " . I took her to another doc who said " it's

not the

> condition that you think it is " . I knew that something wasn't

right, the

> right side of her head was getting flatter by the day or so it

seemed. I

> took her to another doctor who FINALLY said she had torticollis.

She only

> had 15-20% range of motion when she started PT. She went to PT

twice a week

> for 3 months(We did ALOT of streching excecises at home and

repositioning)

> and now has 100% range of motion. Her head has rounded out some

since the PT

> But it's still somewhat flat behind her right ear, it's more

noticable when

> her hair is wet. Her ears are misaligned, her right ear is more

forward then

> her left and at times her right eye is bigger then her left.Her

forehead

> bulges too.The last time (9mth well baby) she had her head

measured and she

> was in the 91st percentile.Her pedy ordered a CT scan and referred

me to a

> neurosurgeon. Craino and fluid were both ruled out. The ns I took

her too

> said her head is perfect and not to worry about the facial

asymmetry

> everybody has it. He was totally anti-treatment.He told me about a

study

> that was done on a group of kids, all with plagio. Half of them

were treated

> with helmets and the other half weren't, 6 months later the helmet

kids had

> rounder heads.They went back 4 1/2 years later and the helmet kids

heads

> were flat again. So I took her for a second opinion yesterday to a

plagio

> friendly doctor who told me that

> " there is a mild-moderate degree of right occipital flattening

with a

> mild-moderate degree of shearing of the right ear " . But that she

didn't need

> a helmet because it has rounded out since the tort was resolved. I

told him

> that I'm not really all that concerned about her head I'm more

concerned

> about the facial asymmetry. He said a helmet wouldn't help with

the facial

> asymmetry. (He uses Hanger) I knew from my research of the doc

band and my

> reading of all your posts that it does correct facial asymmetry. I

emailed

> Carol from CT (wow what a great lady, very helpful.)with a picture

of my

> daughter attached. I called her and she said from the picture it

looks like

> my daughter would be a canidate for the doc band. I have an

appointment with

> CT on Thursday the 13th for a consult. I have to go to NJ and I

live in NY,

> on Long Island) My question to all of you is: Did banding your

children

> really help the facial asymmetry? I'd hate to have to travel to NJ

twice a

> month with 5 kids, if it's not going to help the facial asymmetry.

If it

> will correct the facial asymmetry I'd be willing to drive there

everyday if

> need be. is already 10 months old. I'm going to attach a

picture of

> her. She just got done eating she was sitting so still that I just

snapped a

> pic, dirty face and all.You can really see the facial asymmetry in

this pic.

> Please let me know if you can see it and if so would you consider

the doc

> band if she were your child.

> I'm sorry this is soooo long.

> Thank you for all your help,

>

[Guest guest]

My son was born with an asymmetrical headshape and quite significant

facial asymmetry with one cheek and one ear much further forward due

to breech birth. He started treatment at the CT in NJ at 9.5

months. He just graduated from his second band at 17 months. His

facial and ear asymmetry are almost nonexistent. I'm sure I am the

only one who can see it if I really, really look for it. Charlotte

is terrific at the NJ office.

Candy, mom to (DOCband #1, 10/5/01, #2, 2/25/02, Graduate 6/3/02)

land

> Hi,

> I guess I'll start but giving everybody my daughters back ground.

> When she was born she was put in the NICU because she had breathing

problems

> and was put on a respirator.They always laid her on her right side.

(I only

> noticed that when I went back and looked at all the pics I took of

her when

> she was in there)About a month after she came home I noticed that

her head

> was always tilted in the same position. I took her to the doc who

said " it's

> not what you think it is " . I took her to another doc who said " it's

not the

> condition that you think it is " . I knew that something wasn't

right, the

> right side of her head was getting flatter by the day or so it

seemed. I

> took her to another doctor who FINALLY said she had torticollis.

She only

> had 15-20% range of motion when she started PT. She went to PT

twice a week

> for 3 months(We did ALOT of streching excecises at home and

repositioning)

> and now has 100% range of motion. Her head has rounded out some

since the PT

> But it's still somewhat flat behind her right ear, it's more

noticable when

> her hair is wet. Her ears are misaligned, her right ear is more

forward then

> her left and at times her right eye is bigger then her left.Her

forehead

> bulges too.The last time (9mth well baby) she had her head measured

and she

> was in the 91st percentile.Her pedy ordered a CT scan and referred

me to a

> neurosurgeon. Craino and fluid were both ruled out. The ns I took

her too

> said her head is perfect and not to worry about the facial asymmetry

> everybody has it. He was totally anti-treatment.He told me about a

study

> that was done on a group of kids, all with plagio. Half of them

were treated

> with helmets and the other half weren't, 6 months later the helmet

kids had

> rounder heads.They went back 4 1/2 years later and the helmet kids

heads

> were flat again. So I took her for a second opinion yesterday to a

plagio

> friendly doctor who told me that

> " there is a mild-moderate degree of right occipital flattening with

a

> mild-moderate degree of shearing of the right ear " . But that she

didn't need

> a helmet because it has rounded out since the tort was resolved. I

told him

> that I'm not really all that concerned about her head I'm more

concerned

> about the facial asymmetry. He said a helmet wouldn't help with the

facial

> asymmetry. (He uses Hanger) I knew from my research of the doc band

and my

> reading of all your posts that it does correct facial asymmetry. I

emailed

> Carol from CT (wow what a great lady, very helpful.)with a picture

of my

> daughter attached. I called her and she said from the picture it

looks like

> my daughter would be a canidate for the doc band. I have an

appointment with

> CT on Thursday the 13th for a consult. I have to go to NJ and I

live in NY,

> on Long Island) My question to all of you is: Did banding your

children

> really help the facial asymmetry? I'd hate to have to travel to NJ

twice a

> month with 5 kids, if it's not going to help the facial asymmetry.

If it

> will correct the facial asymmetry I'd be willing to drive there

everyday if

> need be. is already 10 months old. I'm going to attach a

picture of

> her. She just got done eating she was sitting so still that I just

snapped a

> pic, dirty face and all.You can really see the facial asymmetry in

this pic.

> Please let me know if you can see it and if so would you consider

the doc

> band if she were your child.

> I'm sorry this is soooo long.

> Thank you for all your help,

>

[Guest guest]

Hi,

I think your daughter is beautiful!! What a cutie. My inital

reaction when seeing the pic was..I can't see any facial assymetry.

Your daughter may have mild facial assymetry but definately nothing

the general population can notice.

Hope that helps!

Dana (mom2)

helemt 04/17/02

In Plagiocephaly@y..., Taime <taime@o...> wrote:

> Hi,

> I guess I'll start but giving everybody my daughters back ground.

> When she was born she was put in the NICU because she had

breathing problems

> and was put on a respirator.They always laid her on her right

side. (I only

> noticed that when I went back and looked at all the pics I took of

her when

> she was in there)About a month after she came home I noticed that

her head

> was always tilted in the same position. I took her to the doc who

said " it's

> not what you think it is " . I took her to another doc who said " it's

not the

> condition that you think it is " . I knew that something wasn't

right, the

> right side of her head was getting flatter by the day or so it

seemed. I

> took her to another doctor who FINALLY said she had torticollis.

She only

> had 15-20% range of motion when she started PT. She went to PT

twice a week

> for 3 months(We did ALOT of streching excecises at home and

repositioning)

> and now has 100% range of motion. Her head has rounded out some

since the PT

> But it's still somewhat flat behind her right ear, it's more

noticable when

> her hair is wet. Her ears are misaligned, her right ear is more

forward then

> her left and at times her right eye is bigger then her left.Her

forehead

> bulges too.The last time (9mth well baby) she had her head

measured and she

> was in the 91st percentile.Her pedy ordered a CT scan and referred

me to a

> neurosurgeon. Craino and fluid were both ruled out. The ns I took

her too

> said her head is perfect and not to worry about the facial

asymmetry

> everybody has it. He was totally anti-treatment.He told me about a

study

> that was done on a group of kids, all with plagio. Half of them

were treated

> with helmets and the other half weren't, 6 months later the helmet

kids had

> rounder heads.They went back 4 1/2 years later and the helmet kids

heads

> were flat again. So I took her for a second opinion yesterday to a

plagio

> friendly doctor who told me that

> " there is a mild-moderate degree of right occipital flattening

with a

> mild-moderate degree of shearing of the right ear " . But that she

didn't need

> a helmet because it has rounded out since the tort was resolved. I

told him

> that I'm not really all that concerned about her head I'm more

concerned

> about the facial asymmetry. He said a helmet wouldn't help with

the facial

> asymmetry. (He uses Hanger) I knew from my research of the doc

band and my

> reading of all your posts that it does correct facial asymmetry. I

emailed

> Carol from CT (wow what a great lady, very helpful.)with a picture

of my

> daughter attached. I called her and she said from the picture it

looks like

> my daughter would be a canidate for the doc band. I have an

appointment with

> CT on Thursday the 13th for a consult. I have to go to NJ and I

live in NY,

> on Long Island) My question to all of you is: Did banding your

children

> really help the facial asymmetry? I'd hate to have to travel to NJ

twice a

> month with 5 kids, if it's not going to help the facial asymmetry.

If it

> will correct the facial asymmetry I'd be willing to drive there

everyday if

> need be. is already 10 months old. I'm going to attach a

picture of

> her. She just got done eating she was sitting so still that I just

snapped a

> pic, dirty face and all.You can really see the facial asymmetry in

this pic.

> Please let me know if you can see it and if so would you consider

the doc

> band if she were your child.

> I'm sorry this is soooo long.

> Thank you for all your help,

>

[Guest guest]

Hi & welcome to our group

Your daughter is TOO cute! What a cute little picture, I guess she

wasn't in a smiling mood huh? LOL, so serious! Pretty blue eyes,

pretty earrings .

I am happy to read that her torticollis has been resolved & she now

has full ROM! YAY. That's a huge accomplishment.

As for her facial assymetry, I noticed some,but it doesn't look too

severe. I wouldn't have noticed it had you not pointed it out.

My daughter began her DOCband at 11.5 mos - 15.5 mos of age with

severe plagio & some assymetries as well. The DOCband defintiely

improved her assymetries along with the flatness she had. I don't

know why so many Drs & specialists are so opposed to this treatment &

say it doesn't work!!! GRRRRR!! TRUST me, these bands DO work.

Whether or not you do get a band, that's entirely your decision. It

sounds like you have your hands full with 5 kids? I'm sure you are a

busy woman .

I am happy that you've already been in touch with Carol E. from CT.

Maybe you could schedule a consultation with CT in NJ to see what

they suggest looking at your daughter?

Do you have any more pics that we could look at?

Welcome again to our group.

Pleaes keep us updated on your decision.

Debbie Abby's mom DOCGrad 3/1/00 DOCGrad 2/16/01-6/22/01

MI

> Hi,

> I guess I'll start but giving everybody my daughters back ground.

> When she was born she was put in the NICU because she had breathing

problems

> and was put on a respirator.They always laid her on her right side.

(I only

> noticed that when I went back and looked at all the pics I took of

her when

> she was in there)About a month after she came home I noticed that

her head

> was always tilted in the same position. I took her to the doc who

said " it's

> not what you think it is " . I took her to another doc who said " it's

not the

> condition that you think it is " . I knew that something wasn't

right, the

> right side of her head was getting flatter by the day or so it

seemed. I

> took her to another doctor who FINALLY said she had torticollis.

She only

> had 15-20% range of motion when she started PT. She went to PT

twice a week

> for 3 months(We did ALOT of streching excecises at home and

repositioning)

> and now has 100% range of motion. Her head has rounded out some

since the PT

> But it's still somewhat flat behind her right ear, it's more

noticable when

> her hair is wet. Her ears are misaligned, her right ear is more

forward then

> her left and at times her right eye is bigger then her left.Her

forehead

> bulges too.The last time (9mth well baby) she had her head measured

and she

> was in the 91st percentile.Her pedy ordered a CT scan and referred

me to a

> neurosurgeon. Craino and fluid were both ruled out. The ns I took

her too

> said her head is perfect and not to worry about the facial asymmetry

> everybody has it. He was totally anti-treatment.He told me about a

study

> that was done on a group of kids, all with plagio. Half of them

were treated

> with helmets and the other half weren't, 6 months later the helmet

kids had

> rounder heads.They went back 4 1/2 years later and the helmet kids

heads

> were flat again. So I took her for a second opinion yesterday to a

plagio

> friendly doctor who told me that

> " there is a mild-moderate degree of right occipital flattening with

a

> mild-moderate degree of shearing of the right ear " . But that she

didn't need

> a helmet because it has rounded out since the tort was resolved. I

told him

> that I'm not really all that concerned about her head I'm more

concerned

> about the facial asymmetry. He said a helmet wouldn't help with the

facial

> asymmetry. (He uses Hanger) I knew from my research of the doc band

and my

> reading of all your posts that it does correct facial asymmetry. I

emailed

> Carol from CT (wow what a great lady, very helpful.)with a picture

of my

> daughter attached. I called her and she said from the picture it

looks like

> my daughter would be a canidate for the doc band. I have an

appointment with

> CT on Thursday the 13th for a consult. I have to go to NJ and I

live in NY,

> on Long Island) My question to all of you is: Did banding your

children

> really help the facial asymmetry? I'd hate to have to travel to NJ

twice a

> month with 5 kids, if it's not going to help the facial asymmetry.

If it

> will correct the facial asymmetry I'd be willing to drive there

everyday if

> need be. is already 10 months old. I'm going to attach a

picture of

> her. She just got done eating she was sitting so still that I just

snapped a

> pic, dirty face and all.You can really see the facial asymmetry in

this pic.

> Please let me know if you can see it and if so would you consider

the doc

> band if she were your child.

> I'm sorry this is soooo long.

> Thank you for all your help,

>