Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Hi Debi So good to hear from you again! I just read over 's website at the CAPPS sight, oh, tears have been flowing out of my eyes . Both tears of happiness for 's terrific outcome, but also tears of sadness becuz should not have had to go thru that surgery. I am sure you are happy this is all behind your family and is as healthy, active & smart as any other 2.5 yr old boy! It's probably hard to beleive it's been a year already huh? Hugs to you & your family. Thanks so much for your post. It is great to hear from you again. Debbie Abby's mom 3/1/00 DOCgrad 2/16/01-6/22/01 MI > June 4th, 2002 > > What a day to sit back and really count my blessings! One year ago > today, I brought my son who then was 18 months old, home from > the hospital. We had Positional Plagiocephaly and by the time we got > the band on, it was to late for the progress we needed to correct his > eye sight and cross bite. So we opted for surgery. We went into > Phoenix Childrens Hospital on June 1st, 2001. What a day. He was in > surgery by 9:00 am and out by 2:00 pm. I think for the first time in > my life, I realized just how miraculous and extremely strong babies > are. I always knew they were special and could handle extreme > circumstances. Any way to make it short., I justed need to touch > base and to give a little of what was given to me over those many > nights I sat in tears and felt know one would understand just what I > was feeling. Then I found this group and the support I received and > the advice and the kind and friendly words were way beyond and > explanation. I don't know if I would have made it if it wasn't for > this support group. So from me to the people who are signing on for > the first few times, keep the faith, keep coming back, don't give up > hope, take a deep breath and hold on. You are about to take the ride > of your life. One that will be worth it. For those of you who were > there, thank you for all you have done for me and my sanity. You are > wonderful. May happiness and sunshine always be yours. > > Now for a quick update. came home from the hospital on June > 4, 2001 about 10:30 am. We have had nothing but progress since that > wonderful day. We are totally and completely satisfied and couldn't > have asked for better results. had some dental work that > needed to be done. He had 4 teeth pulled, 4 Crowns, and 7 fillings. > I swear this is the child my parents wished upon me. He is starting > to look more like an investment?????!!!!!!!????? Just Kidding. I > would go through it a million times over to see his beautiful > smiling toothless face. > > I wondered for the longest time if he would have any trouble in other > areas due to the surgery, reading, writing, talking, etc.... But as > of today, he is on schedule or more advanced. Thank God. > > We went to Disneyland over the Memorial Holiday and had the most > wonderful time. Things are back to normal and I think I might be > going back to work in July. I haven't worked since I was 4 months > pregnant. Talk about nervouse. I told my husband I needed a break, > I needed a job. He laughed. will be 3 in November. And he > is all Boy and all Two. > > Well I need to go. Take care and I Love You for all you have meant to > me and what you have done. If anyone wants to contact me, > > > Debi Romero Home # 480-610-2357 > Debi Romero Cell # 480-200-4626 > > New E-Mail Address debiromero@a... > > 's Story is posted on the Capps Sight. The address to anyone > who might be interested in reading his story or seeing some photos of > him while in the hospital are at; > > > http://www.cappskids.org/CAPPSPlagioKid.htm > > We hope you get what you might be serching for. The answers are out > there in lots of shapes and behind lots of doors. You just have to > find the courage to open it. They say a dream is only a dream until > you write it down on paper. Then it becomes a reachable goal. > REALITY. Good luck to those who have just begun > > > Love, > > Debi, and her three boys, my sunshine, my life. > (husband) > (11 year old) > ( my miracle) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Goodness Debi, has it been a year already? Thank you for the update on . That was a very beautiful and inspirational post you sent. I am so glad to hear that things are going so well for your family, you are truly blessed to have such a trooper! Niki Kaylie & Danny (STAR grads) Phila., PA > June 4th, 2002 > > What a day to sit back and really count my blessings! One year ago > today, I brought my son who then was 18 months old, home from > the hospital. We had Positional Plagiocephaly and by the time we got > the band on, it was to late for the progress we needed to correct his > eye sight and cross bite. So we opted for surgery. We went into > Phoenix Childrens Hospital on June 1st, 2001. What a day. He was in > surgery by 9:00 am and out by 2:00 pm. I think for the first time in > my life, I realized just how miraculous and extremely strong babies > are. I always knew they were special and could handle extreme > circumstances. Any way to make it short., I justed need to touch > base and to give a little of what was given to me over those many > nights I sat in tears and felt know one would understand just what I > was feeling. Then I found this group and the support I received and > the advice and the kind and friendly words were way beyond and > explanation. I don't know if I would have made it if it wasn't for > this support group. So from me to the people who are signing on for > the first few times, keep the faith, keep coming back, don't give up > hope, take a deep breath and hold on. You are about to take the ride > of your life. One that will be worth it. For those of you who were > there, thank you for all you have done for me and my sanity. You are > wonderful. May happiness and sunshine always be yours. > > Now for a quick update. came home from the hospital on June > 4, 2001 about 10:30 am. We have had nothing but progress since that > wonderful day. We are totally and completely satisfied and couldn't > have asked for better results. had some dental work that > needed to be done. He had 4 teeth pulled, 4 Crowns, and 7 fillings. > I swear this is the child my parents wished upon me. He is starting > to look more like an investment?????!!!!!!!????? Just Kidding. I > would go through it a million times over to see his beautiful > smiling toothless face. > > I wondered for the longest time if he would have any trouble in other > areas due to the surgery, reading, writing, talking, etc.... But as > of today, he is on schedule or more advanced. Thank God. > > We went to Disneyland over the Memorial Holiday and had the most > wonderful time. Things are back to normal and I think I might be > going back to work in July. I haven't worked since I was 4 months > pregnant. Talk about nervouse. I told my husband I needed a break, > I needed a job. He laughed. will be 3 in November. And he > is all Boy and all Two. > > Well I need to go. Take care and I Love You for all you have meant to > me and what you have done. If anyone wants to contact me, > > > Debi Romero Home # 480-610-2357 > Debi Romero Cell # 480-200-4626 > > New E-Mail Address debiromero@a... > > 's Story is posted on the Capps Sight. The address to anyone > who might be interested in reading his story or seeing some photos of > him while in the hospital are at; > > > http://www.cappskids.org/CAPPSPlagioKid.htm > > We hope you get what you might be serching for. The answers are out > there in lots of shapes and behind lots of doors. You just have to > find the courage to open it. They say a dream is only a dream until > you write it down on paper. Then it becomes a reachable goal. > REALITY. Good luck to those who have just begun > > > Love, > > Debi, and her three boys, my sunshine, my life. > (husband) > (11 year old) > ( my miracle) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Debbi: Thanks for the wonderful story! It really gives those of us coming up behind you hope and the courage to carry on!!! Best wishes for continued " normalcy " !!!! , Rhiannon's mom > June 4th, 2002 > > What a day to sit back and really count my blessings! One year ago > today, I brought my son who then was 18 months old, home from > the hospital. We had Positional Plagiocephaly and by the time we got > the band on, it was to late for the progress we needed to correct his > eye sight and cross bite. So we opted for surgery. We went into > Phoenix Childrens Hospital on June 1st, 2001. What a day. He was in > surgery by 9:00 am and out by 2:00 pm. I think for the first time in > my life, I realized just how miraculous and extremely strong babies > are. I always knew they were special and could handle extreme > circumstances. Any way to make it short., I justed need to touch > base and to give a little of what was given to me over those many > nights I sat in tears and felt know one would understand just what I > was feeling. Then I found this group and the support I received and > the advice and the kind and friendly words were way beyond and > explanation. I don't know if I would have made it if it wasn't for > this support group. So from me to the people who are signing on for > the first few times, keep the faith, keep coming back, don't give up > hope, take a deep breath and hold on. You are about to take the ride > of your life. One that will be worth it. For those of you who were > there, thank you for all you have done for me and my sanity. You are > wonderful. May happiness and sunshine always be yours. > > Now for a quick update. came home from the hospital on June > 4, 2001 about 10:30 am. We have had nothing but progress since that > wonderful day. We are totally and completely satisfied and couldn't > have asked for better results. had some dental work that > needed to be done. He had 4 teeth pulled, 4 Crowns, and 7 fillings. > I swear this is the child my parents wished upon me. He is starting > to look more like an investment?????!!!!!!!????? Just Kidding. I > would go through it a million times over to see his beautiful > smiling toothless face. > > I wondered for the longest time if he would have any trouble in other > areas due to the surgery, reading, writing, talking, etc.... But as > of today, he is on schedule or more advanced. Thank God. > > We went to Disneyland over the Memorial Holiday and had the most > wonderful time. Things are back to normal and I think I might be > going back to work in July. I haven't worked since I was 4 months > pregnant. Talk about nervouse. I told my husband I needed a break, > I needed a job. He laughed. will be 3 in November. And he > is all Boy and all Two. > > Well I need to go. Take care and I Love You for all you have meant to > me and what you have done. If anyone wants to contact me, > > > Debi Romero Home # 480-610-2357 > Debi Romero Cell # 480-200-4626 > > New E-Mail Address debiromero@a... > > 's Story is posted on the Capps Sight. The address to anyone > who might be interested in reading his story or seeing some photos of > him while in the hospital are at; > > > http://www.cappskids.org/CAPPSPlagioKid.htm > > We hope you get what you might be serching for. The answers are out > there in lots of shapes and behind lots of doors. You just have to > find the courage to open it. They say a dream is only a dream until > you write it down on paper. Then it becomes a reachable goal. > REALITY. Good luck to those who have just begun > > > Love, > > Debi, and her three boys, my sunshine, my life. > (husband) > (11 year old) > ( my miracle) Quote Link to comment Share on other sites More sharing options...
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