Guest guest Posted June 9, 2002 Report Share Posted June 9, 2002 Hi Beth and welcome! We have had a number of people from the Kansas City area join fairly recently so hopefully you will hear from one of them directly about the treatment options in your area. Are you thinking of getting a band or helmet for Ryen? I'm impressed your doctor told you about this group. Sounds like you have a pretty good doctor. Anyways, if you could tell us a bit more about Ryen then I'm sure we could give you some great advice and support. Have you seen a specialist yet? Have you already gotten an RX for a band? Does Ryen have flatness in the back or on the side? Does he have tort? I'm glad you have joined our group and I look forward to learning more about Ryen. I think you will find all the support, advice and friendship you need from this group. I know that they were a Godsend to me and my husband when was going through treatment. (She finished about a year ago) Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
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