Re: need sleep help (it got long, sorry!)

[Guest guest]

,

Sorry to hear you had a bumpy night!!! Poor Mackenzie- and poor tired mom and

Dad too! I looked at the pics (too cute!), and I think you said the left eye

looks swollen, but the right eye concerned me more. I think its a little

close to the right eye, and I would ask them to trim off a little of the

edge- its so close that a little shaving shouldn't be a hassle- usually they

don't like to take off too much- but just a touch for comfort should help! I

thought that the left ear cut out was a little close to the ear in the front

as well- but this is really normal and if you look inside of the band in that

area, it shouldn't really be even resting on the ear (but maybe this needs

adjustment in correlation with the swollen eye?). I had to ask to trim

around his ear because it kept getting pinched- but in the back of the ear.

The band will be a little loose in the beginning, and its typical for it to

slide forward with movement- but the trim should not be so close to the eyes

that it may be causing some problems. I could be way off base here, and you

should talk with CT and they might say, we can't trim this because this needs

to stay, etc. BUT, really address your concerns with them, let them know

about her being uncomfortable in the band, and I am sure they will try to

adjust it so that it is not an issue. They did talk with me at length and if

I really wanted something that did not compromise treatment, they accomodated

me. You really do want to keep the band on as long as possible, especially

in the crib where there is nothing but pressure on the back of that head, and

you really do not know if your taking a chance missing a great huge growth

spurt!! I have heard that children grow when sleeping as the body is rested

(that's what I've heard anyway!). More time in it now, means less time in it

altogether- just remember that when you want to take it off- and then think,

well, this might add another week or two to treatment time- I could be

missing a huge growth spurt! It might take you even a couple of weeks to get

this adjusted to the point that Mackenzie is comfortable- and I think CT will

tell you that it takes a few fittings for some to get it right. Any concerns

that you have, whether its the fit, red spots, swollen eyes!, etc., don't

hesitate to get in touch with them asap- the sooner you can get these issues

worked out, the sooner you'll get sleep and Mackenzie won't be as miserable.

Good luck and please keep us posted on what they do!

' Mom

[Guest guest]

In a message dated 5/30/2002 10:37:56 AM Eastern Daylight Time, trisham@... writes:

on the right eye the band shifts down and he cant hold his eye open much and sometimes it is pushed closed....Thanks ahead of time...Trisha

Trisha,

Definetly contact them about this fitting problem. The band will slip forward ( looked like a shar-pei puppy sometimes with the squished skin), but it should not be closing the eyes or even coming down to the bridge of the nose. That area should be trimmed a bit so that it does not come down so far. They did trim the front for as well, and this solved a lot of those issues. For sure contact them about this- his eyesight should not be hindered AT ALL! Keep us posted!

' Mom

[Guest guest]

In a message dated 5/30/2002 11:12:37 AM Eastern Daylight Time, rella1234@... writes:

More time in it now, means less time in it

altogether- just remember that when you want to take it off- and then think,

well, this might add another week or two to treatment time- I could be

missing a huge growth spurt!

,

Just wanted to stress that although its always best to keep it on as much as possible, you should keep it off if you think there is a real problem with the fit (irritation, red marks, tightness)- but not because she is upset about it being on. If she is just unhappy with it being on, it might take a few days to get her used to it.

' Mom

[Guest guest]

Hey I am so sorry mackenzie is not sleeping well with the band- that

does not make for a happy house hold that is for sure. Sometimes brians doc

was not dry before we put him to bed so we would slip it on him after he fell

asleep and that ws successfu

[Guest guest]

, she is so freaking CUTE!!! OMG!!!

and thanks for posting this....we are going through the exact same thing!!!! I

did take Braedens off last night and I caught some grief from my husband...but

you know he wasn't the one dealing w/the screaming and didnt have to be up @

4:00am...Please anyone help...I am actually having to take Braeden back to have

the band adjusted again...on the right eye the band shifts down and he cant hold

his eye open much and sometimes it is pushed closed....Thanks ahead of

time...Trisha

need sleep help (it got long, sorry!)

Hi all,

Now that you've helped me thru Mackenzie wearing the band during the

daytime, we need some help/advice on her sleeping with it on. The first

night that she wore it (Tuesday night) we ended up taking it off of her

about 1015pm or so because she woke up very unhappy and wouldn't settle

until we did take it off. I talked to Margie, the orthotist at the

Phoenix CT office, yesterday to ask if we could work up to Mac wearing

the band all night and she said that we shouldn't. She said that if we

did we could risk not having it on when Mac is having a growth spurt.

So...last night we left it on her all night and let me tell you, none of

us got any good sleep at all. Mac again woke up about 1020pm or so...we

got her kind of settled down again and then she was back up at 1110pm. I

stood over her bed and she just moved & moved & moved and couldn't seem

to get comfortable. I got her out of bed...she was falling asleep

against me but again couldn't settle down enough to get back to sleep. I

so wanted to take off her band so that she could sleep but we decided to

go thru with what Margie had said. She didn't settle down until after

100am and then was crying & moaning throughout the night. A couple of

things I noticed last night were first that Mac's left eye (not the side

where the band is supposed to be holding back the bossing) was quite

swollen and secondly, that her band shifts on her head. No matter how I

put the band on, it seems to shift up in the back and down in the front.

I don't know if that is what is causing the swelling in her eye or not.

Anyway, to make a long story a little bit shorter, a couple of questions

- have any of you built up to your baby wearing the band all night,

little by little? If so, did it affect the results? Does your baby's

band shift as much as Mac's seems to do? I believe that I am putting it

on the correct way. I've attached a couple of pictures so that you can

see how she wears it during the day (the eating with band shot) plus

some that I took this morning to show you her eye (it doesn't look as

bad as it does in person) and to show you how it shifts around her ear.

Any advice would be great...

Thanks,

& a very tired Mackenzie

Phoenix, AZ

For more plagio info

[Guest guest]

Thanks...we are going in at 2:00..Can I say I am so glad I am only 10 mins from there...Trisha

-----Original Message-----From: rella1234@... [mailto:rella1234@...]Sent: Thursday, May 30, 2002 10:15 AMPlagiocephaly Subject: Re: need sleep help (it got long, sorry!)In a message dated 5/30/2002 10:37:56 AM Eastern Daylight Time, trisham@... writes:

on the right eye the band shifts down and he cant hold his eye open much and sometimes it is pushed closed....Thanks ahead of time...TrishaTrisha,Definetly contact them about this fitting problem. The band will slip forward ( looked like a shar-pei puppy sometimes with the squished skin), but it should not be closing the eyes or even coming down to the bridge of the nose. That area should be trimmed a bit so that it does not come down so far. They did trim the front for as well, and this solved a lot of those issues. For sure contact them about this- his eyesight should not be hindered AT ALL! Keep us posted!' Mom For more plagio info

[Guest guest]

Trisha -

I'm sure it's getting frustrating with all these adjustments! Just

know that the first week is obviously the hardest trying to get it

perfect!

Dane's mom

> Thanks...we are going in at 2:00..Can I say I am so glad I am only

10 mins from there...Trisha

>

> Re: need sleep help (it got long, sorry!)

>

>

> In a message dated 5/30/2002 10:37:56 AM Eastern Daylight Time,

trisham@a... writes:

>

>

>

>

> on the right eye the band shifts down and he cant hold his eye

open much and sometimes it is pushed closed....Thanks ahead of

time...Trisha

>

>

>

>

>

> Trisha,

> Definetly contact them about this fitting problem. The band will

slip forward ( looked like a shar-pei puppy sometimes with

the squished skin), but it should not be closing the eyes or even

coming down to the bridge of the nose. That area should be trimmed

a bit so that it does not come down so far. They did trim the front

for as well, and this solved a lot of those issues. For

sure contact them about this- his eyesight should not be hindered AT

ALL! Keep us posted!

>

> ' Mom

> For more plagio info

[Guest guest]

Hi ,

We had the same issues with the bands shifting on Sam and Sara, but as soon as they hit a growth spurt the shifting stopped. I think they leave a little room to begin with on purpose so that there is growth room. And maybe the band shifting is pushing the skin around Mackenzie's eye so it looks swollen, but really the skin is just bunched up. Does that make sense? Sam's band did the same thing, and when we took him in for his first adjustment they trimmed the band around the eyes (again) and the problem was gone.

As far as her not sleeping well, is it possible that something else is going on, like teething? I'm one of those moms that will give Tylenol or Motrin at bedtime if my child is fussy, just in case it is teething pain. I don't do it all the time, but when I do it seems to help. Just a suggestion.

And may I just add that Mackenzie is soooooo cute in her band.

Gail

need sleep help (it got long, sorry!)

Hi all,Now that you've helped me thru Mackenzie wearing the band during thedaytime, we need some help/advice on her sleeping with it on. The firstnight that she wore it (Tuesday night) we ended up taking it off of herabout 1015pm or so because she woke up very unhappy and wouldn't settleuntil we did take it off. I talked to Margie, the orthotist at thePhoenix CT office, yesterday to ask if we could work up to Mac wearingthe band all night and she said that we shouldn't. She said that if wedid we could risk not having it on when Mac is having a growth spurt.So...last night we left it on her all night and let me tell you, none ofus got any good sleep at all. Mac again woke up about 1020pm or so...wegot her kind of settled down again and then she was back up at 1110pm. Istood over her bed and she just moved & moved & moved and couldn't seemto get comfortable. I got her out of bed...she was falling asleepagainst me but again couldn't settle down enough to get back to sleep. Iso wanted to take off her band so that she could sleep but we decided togo thru with what Margie had said. She didn't settle down until after100am and then was crying & moaning throughout the night. A couple ofthings I noticed last night were first that Mac's left eye (not the sidewhere the band is supposed to be holding back the bossing) was quiteswollen and secondly, that her band shifts on her head. No matter how Iput the band on, it seems to shift up in the back and down in the front.I don't know if that is what is causing the swelling in her eye or not.Anyway, to make a long story a little bit shorter, a couple of questions- have any of you built up to your baby wearing the band all night,little by little? If so, did it affect the results? Does your baby'sband shift as much as Mac's seems to do? I believe that I am putting iton the correct way. I've attached a couple of pictures so that you cansee how she wears it during the day (the eating with band shot) plussome that I took this morning to show you her eye (it doesn't look asbad as it does in person) and to show you how it shifts around her ear.Any advice would be great...Thanks, & a very tired MackenziePhoenix, AZ

[Guest guest]

Glad to hear you can get in so soon Trisha; I am sure they'll again

adjust it. The first week or even 2 can be difficult trying to get

the band to fit just right. After you get thru this though, it

should be smooth sailing to a rounder head.

Let us know how it goes

I'm sure you're VERY happy you're sooooo close to their office!

Debbie Abby's mom DOCGrad

MI

> Thanks...we are going in at 2:00..Can I say I am so glad I am only

10 mins from there...Trisha

>

> Re: need sleep help (it got long, sorry!)

>

>

> In a message dated 5/30/2002 10:37:56 AM Eastern Daylight Time,

trisham@a... writes:

>

>

>

>

> on the right eye the band shifts down and he cant hold his eye open

much and sometimes it is pushed closed....Thanks ahead of

time...Trisha

>

>

>

>

>

> Trisha,

> Definetly contact them about this fitting problem. The band will

slip forward ( looked like a shar-pei puppy sometimes with

the squished skin), but it should not be closing the eyes or even

coming down to the bridge of the nose. That area should be trimmed a

bit so that it does not come down so far. They did trim the front

for as well, and this solved a lot of those issues. For

sure contact them about this- his eyesight should not be hindered AT

ALL! Keep us posted!

>

> ' Mom

> For more plagio info

[Guest guest]

i'm no expert on how those things sit on heads so i can't help you on that..what i can tell you is that for the first week we had our band we were incouraged to work up to sleeping with it on all night..we had a problem with tucker to ..so little by little we worked up to it..when he would finally take a full nap with it on we tried it at night and within i'd say 10 days, he was wearing it 23 hrs a day..hope that helps a bit..how long has she had her band??

brenda

mom of tucker

need sleep help (it got long, sorry!)

Hi all,Now that you've helped me thru Mackenzie wearing the band during thedaytime, we need some help/advice on her sleeping with it on. The firstnight that she wore it (Tuesday night) we ended up taking it off of herabout 1015pm or so because she woke up very unhappy and wouldn't settleuntil we did take it off. I talked to Margie, the orthotist at thePhoenix CT office, yesterday to ask if we could work up to Mac wearingthe band all night and she said that we shouldn't. She said that if wedid we could risk not having it on when Mac is having a growth spurt.So...last night we left it on her all night and let me tell you, none ofus got any good sleep at all. Mac again woke up about 1020pm or so...wegot her kind of settled down again and then she was back up at 1110pm. Istood over her bed and she just moved & moved & moved and couldn't seemto get comfortable. I got her out of bed...she was falling asleepagainst me but again couldn't settle down enough to get back to sleep. Iso wanted to take off her band so that she could sleep but we decided togo thru with what Margie had said. She didn't settle down until after100am and then was crying & moaning throughout the night. A couple ofthings I noticed last night were first that Mac's left eye (not the sidewhere the band is supposed to be holding back the bossing) was quiteswollen and secondly, that her band shifts on her head. No matter how Iput the band on, it seems to shift up in the back and down in the front.I don't know if that is what is causing the swelling in her eye or not.Anyway, to make a long story a little bit shorter, a couple of questions- have any of you built up to your baby wearing the band all night,little by little? If so, did it affect the results? Does your baby'sband shift as much as Mac's seems to do? I believe that I am putting iton the correct way. I've attached a couple of pictures so that you cansee how she wears it during the day (the eating with band shot) plussome that I took this morning to show you her eye (it doesn't look asbad as it does in person) and to show you how it shifts around her ear.Any advice would be great...Thanks, & a very tired MackenziePhoenix, AZ For more plagio info

[Guest guest]

,

She originally got her band last Friday but due to some fitting

problems, we had to eventually take her out of it by Sunday morning. We

went back in on Tuesday and Margie (our orthotist) said to do the 3 hour

checks that day and then to start her in it 23 hours that nite. We did

and she didn't handle the band well at all so we took it off of her

after 2 1/2 hours. She seemed to take naps in it well so I thought that

we could get the whole night out of her last night. It was very

difficult but the good news is that she took a nap (2 1/2 hours) this

morning and actually woke up in a good mood with the band on. She had

fussed a few times but I let her be and all went relatively well. I " m

hoping that tonight will go as well. Keep your fingers crossed!

& Mackenzie

[Guest guest]

I started to post earlier and then had tor un to crying babies sorry. I

looked at her pictures she is beautiful! You must be a very proud mommy-

better keep her away from the boys:-) Maybe she needs an adjustment- it could

be that when she lays on her back the helmet is rubbing her ear or something.

Why don't you call the ortho and see if you can get in for a look see and see

if they have any rec. It lookslike you are putting the band on correctly and

it is big when they first get them but they grow into them in no time. I hope

this doesn't last long-it is so frustrating. Keep us posted!

beck

[Guest guest]

MacKenzie is sooooo cute. What a beautiful little girl. She is looking happy

enough with the band during the day so let's see what we can do about the

night. If the band is too close to the eye or may be causing the swelling

then CT needs to have a look at it and address the issues. Some trimming and

another adjustment may be in order. She should be experiencing discomfort

when she is sleepin in it at night.

I'm sorry to hear of the lack of sleep. To say it is a major bummer would be

an understatement!!!!

Marci (Mom to )

Oklahoma