Re: need sleep help (it got long, sorry!)

[Guest guest]

-

We got Dane's band on a Thursday and he didn't start wearing it for

24 hours until Sunday. His body temperature needed some time to

adjust. If we left it on all night for the first couple of nights,

he would have sweated his head off! This is what was suggested to

us. Are you wiping her head down often?

Dane's eye did the same thing. We just had trim it above the

eye and it was fine.

Good luck!

Dane's mom

[Guest guest]

Hi poor

Gosh, how frustrating for you right now . Mackenzie is such a

beautiful little girl, I'm sure you just want her to be happy too!

As for the shifting, shifting of the DOCband for the first week or

two even, is very common in the beginning. I remember on the way

home from Chicago after Abby got her DOCband, I looked at her in the

backseat & the band was quite shifted on her head. This was like

this for about 10 days, then she filled into it some! It is more

likely to shift when pressed up against something, like how she was

in the high chair or carseat. Mackenzie is very young, so I " m sure

if she'll let you keep the band on her for periods of time, she'll

grow into it very soon. Shifting bands in the beginning of treatment

is a common question to the board.

As for her swollen eye, like 's reply, did you mean her right

eye? I noticed it did look a bit bigger than her left (beautiful

blue eyes BTW!). She might be in need of a trim above the eye area

there. While Abby was in her STARband, it pushed down on her eye

frequently & caused her to have a " squinty " appearance, until her

orthotist trimmed the area, then all was fine.

As for sleeping, IF Mackenzie is that miserable & upset, I would

probably slowly work her into it. I give you loads of credit for

being so strong & keeping it on her last night. It is important to

have it on 23 hrs a day, esp. at night, but maybe she needs to ease

into it a bit more? Maybe take it off the 3rd time she wakes up with

it on?? I dunno what really to suggest about that! I know how

important it is for the full 23 hrs a day, BUT I also know how hard

it is to have your baby screaming & upset . You're in a lose lose

situation.

Have you been in touch with Margie at CT yet this morning??? Let us

know if so.

Good luck!!!!!!!!!!!!!

Debbie Abby's mom DOCGrad

MI

> Hi all,

>

> Now that you've helped me thru Mackenzie wearing the band during the

> daytime, we need some help/advice on her sleeping with it on. The

first

> night that she wore it (Tuesday night) we ended up taking it off of

her

> about 1015pm or so because she woke up very unhappy and wouldn't

settle

> until we did take it off. I talked to Margie, the orthotist at the

> Phoenix CT office, yesterday to ask if we could work up to Mac

wearing

> the band all night and she said that we shouldn't. She said that if

we

> did we could risk not having it on when Mac is having a growth

spurt.

> So...last night we left it on her all night and let me tell you,

none of

> us got any good sleep at all. Mac again woke up about 1020pm or

so...we

> got her kind of settled down again and then she was back up at

1110pm. I

> stood over her bed and she just moved & moved & moved and couldn't

seem

> to get comfortable. I got her out of bed...she was falling asleep

> against me but again couldn't settle down enough to get back to

sleep. I

> so wanted to take off her band so that she could sleep but we

decided to

> go thru with what Margie had said. She didn't settle down until

after

> 100am and then was crying & moaning throughout the night. A couple

of

> things I noticed last night were first that Mac's left eye (not the

side

> where the band is supposed to be holding back the bossing) was quite

> swollen and secondly, that her band shifts on her head. No matter

how I

> put the band on, it seems to shift up in the back and down in the

front.

> I don't know if that is what is causing the swelling in her eye or

not.

> Anyway, to make a long story a little bit shorter, a couple of

questions

> - have any of you built up to your baby wearing the band all night,

> little by little? If so, did it affect the results? Does your baby's

> band shift as much as Mac's seems to do? I believe that I am

putting it

> on the correct way. I've attached a couple of pictures so that you

can

> see how she wears it during the day (the eating with band shot) plus

> some that I took this morning to show you her eye (it doesn't look

as

> bad as it does in person) and to show you how it shifts around her

ear.

> Any advice would be great...

>

> Thanks,

> & a very tired Mackenzie

> Phoenix, AZ

[Guest guest]

Hi, . I have absolutely no advice, and am actually a little

concerned myself as we are going to get 's DOC Band this

afternoon--and then leaving tomorrow for my in-law's house for 3 days!

(Nowhere near a CT clinic.) But I just wanted to say that Mackenzie

is absolutely adorable! She looks SO cute in her band! How did you

decorate her band? It looks great!

Holly &

> Hi all,

>

> Now that you've helped me thru Mackenzie wearing the band during the

> daytime, we need some help/advice on her sleeping with it on. The

first

> night that she wore it (Tuesday night) we ended up taking it off of

her

> about 1015pm or so because she woke up very unhappy and wouldn't

settle

> until we did take it off. I talked to Margie, the orthotist at the

> Phoenix CT office, yesterday to ask if we could work up to Mac

wearing

> the band all night and she said that we shouldn't. She said that if

we

> did we could risk not having it on when Mac is having a growth

spurt.

> So...last night we left it on her all night and let me tell you,

none of

> us got any good sleep at all. Mac again woke up about 1020pm or

so...we

> got her kind of settled down again and then she was back up at

1110pm. I

> stood over her bed and she just moved & moved & moved and couldn't

seem

> to get comfortable. I got her out of bed...she was falling asleep

> against me but again couldn't settle down enough to get back to

sleep. I

> so wanted to take off her band so that she could sleep but we

decided to

> go thru with what Margie had said. She didn't settle down until

after

> 100am and then was crying & moaning throughout the night. A couple

of

> things I noticed last night were first that Mac's left eye (not the

side

> where the band is supposed to be holding back the bossing) was quite

> swollen and secondly, that her band shifts on her head. No matter

how I

> put the band on, it seems to shift up in the back and down in the

front.

> I don't know if that is what is causing the swelling in her eye or

not.

> Anyway, to make a long story a little bit shorter, a couple of

questions

> - have any of you built up to your baby wearing the band all night,

> little by little? If so, did it affect the results? Does your baby's

> band shift as much as Mac's seems to do? I believe that I am putting

it

> on the correct way. I've attached a couple of pictures so that you

can

> see how she wears it during the day (the eating with band shot) plus

> some that I took this morning to show you her eye (it doesn't look

as

> bad as it does in person) and to show you how it shifts around her

ear.

> Any advice would be great...

>

> Thanks,

> & a very tired Mackenzie

> Phoenix, AZ