Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Hello all I have been reassured by all your stories of bands and improvements you have noticed. My daughter Chloe is 6.5 months old and will pick up her band in 1 week's time. We live near Sydney Australia. I have encountered so many problems from health professionals taking plagiocephaly seriously. It was only through contact with Kendra and the support group that I found a specialist in Sydney. I tried repositioning for last 3 months and there have only been slight improvements (but I think it stopped the flattening from getting worse). Chloe has a flat spot on the right side of her head and her right ear looks larger as it protrudes further forward than the left ear. I am only just starting to notice differences in the symmetry of the eyes (ever so slight) Just a couple of questions: 1) does the band affect sleeping initially (Chloe likes to sleep on her stomach - I am constantly having to turn on her onto her side - worried about the SIDS thing). She doesn't like to sleep on her back but does the band bring better results if they are on their backs? 2) How long did it take before you noticed improvements? Thanks again - love hearing all your experiences it is good to know I'm not alone in this and we have similar concerns etc Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Beth - Welcome. My son wore a band from 5-8 months. It never bothered him. He was sleeping in it by the 3rd night. We worked up to it because his body temperature was still adjusting. We started seeing improvements within the first week. Dane had some great growth spurts, so our timing was wonderful. I'm sure you will notice a difference relatively soon also. With the band, it shouldn't matter how she sleeps. Our dr. told us that once the kids start rolling onto their stomachs themselves, to let them sleep that way. It is my understanding (I'll probably get yelled at here!) that as long as you don't lay them that way, it's okay and when they start flipping themselves it's fine to leave them that way. Dane's mom DOC Grad > Hello all > > I have been reassured by all your stories of bands and improvements you have noticed. My daughter Chloe is 6.5 months old and will pick up her band in 1 week's time. We live near Sydney Australia. I have encountered so many problems from health professionals taking plagiocephaly seriously. It was only through contact with Kendra and the support group that I found a specialist in Sydney. I tried repositioning for last 3 months and there have only been slight improvements (but I think it stopped the flattening from getting worse). Chloe has a flat spot on the right side of her head and her right ear looks larger as it protrudes further forward than the left ear. I am only just starting to notice differences in the symmetry of the eyes (ever so slight) > > Just a couple of questions: > 1) does the band affect sleeping initially (Chloe likes to sleep on her stomach - I am constantly having to turn on her onto her side - worried about the SIDS thing). She doesn't like to sleep on her back but does the band bring better results if they are on their backs? > > 2) How long did it take before you noticed improvements? > > Thanks again - love hearing all your experiences it is good to know I'm not alone in this and we have similar concerns etc > > Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Hi Beth, and welcome to the group! I am so glad that you were able to find a specialist there in Sydney, is it safe to assume that you are seeing Dr. Teo? That's the only name I am familiar with in Sydney. Both of my twins needed to wear bands to help correct their plagio. I think the first night we had them sleeping in their bands, they fussed a bit. But every other night after that, they slept just as peacefully as they had before. I really don't think it matters which position your child sleeps in to achieve maximum correction. It just matters that the helmet is on ;o) We started seeing results within the first 2 or 3 weeks. Some see it sooner, while others later. It really helped that my twins were going through a growth spurt at just the right time. How quickly your child grows, depends on how quickly you see results. Good luck to you and Chloe! Please be sure to keep us updated! Niki Kaylie & Danny (STAR grads) Phila., PA USA > Hello all > > I have been reassured by all your stories of bands and improvements you have noticed. My daughter Chloe is 6.5 months old and will pick up her band in 1 week's time. We live near Sydney Australia. I have encountered so many problems from health professionals taking plagiocephaly seriously. It was only through contact with Kendra and the support group that I found a specialist in Sydney. I tried repositioning for last 3 months and there have only been slight improvements (but I think it stopped the flattening from getting worse). Chloe has a flat spot on the right side of her head and her right ear looks larger as it protrudes further forward than the left ear. I am only just starting to notice differences in the symmetry of the eyes (ever so slight) > > Just a couple of questions: > 1) does the band affect sleeping initially (Chloe likes to sleep on her stomach - I am constantly having to turn on her onto her side - worried about the SIDS thing). She doesn't like to sleep on her back but does the band bring better results if they are on their backs? > > 2) How long did it take before you noticed improvements? > > Thanks again - love hearing all your experiences it is good to know I'm not alone in this and we have similar concerns etc > > Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Hi Beth I'm so happy that you have finally found a Dr. in your country who will treat Chloe! That is great Kendra was able to help!!! Good luck with Chloe's band next week. I'll answer your questions below: > Just a couple of questions: > 1) does the band affect sleeping initially (Chloe likes to sleep on her stomach - I am constantly having to turn on her onto her side - worried about the SIDS thing). She doesn't like to sleep on her back but does the band bring better results if they are on their backs? We have other members whose baby sleeps on their stomach with bands on. I don't think you'd get better results if Chloe was on her back vs. her belly, that would probably be a good question to ask your orthotist. Some babies do have a difficult time sleeping in their band for the first couple days or so, MOST babies adjust to their new band w/o any trouble. I'm sure Chloe will do fine > > 2) How long did it take before you noticed improvements? That all depends on the age your child begins therapy. Chloe being 6.5 mos old, you should probably (hopefully) start noticeing improvement w/i 2-4 wks. It also depends on growth spurts. Is Chloe's helmet going to be a " passive " style design? Good luck next week. Be sure you let us know how it goes! Debbie Abby's mom DOCGrad MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Beth, Welcome to the group. My son wore the helmet from 5-8 months of age and we received about 90-95% correction. His facial asymmetry and ear misalignment are no longer issues I feel due to a combination of the DOC band and agressive pt to stretch out his tight muscle (he had tort). Here's our experience on your questions: 1) does the band affect sleeping initially (Chloe likes to sleep on her stomach - I am constantly having to turn on her onto her side - worried about the SIDS thing). She doesn't like to sleep on her back but does the band bring better results if they are on their backs? My unscientific, unprofessional answer to this is that you do not receive better results if they lay on their backs or otherwise for that matter- I think in our case the helmet worked period, in whatever sleep position he took- as the helmet held the growth area and left a void for the flat spot to grow into- this is why it was such a relief because I no longer had to worry about keeping him off that flat spot, the band was working for me. By the way my son started sleeping on his stomach at around 7-8 months of age I think. He just prefers this way of sleeping (he was very able to pick his head up and was very mobile at that point). 2) How long did it take before you noticed improvements? As my son started fairly early- we were getting constant shaving every week that indicated growth was happening that rapidly. Within that 3 months, not a week went by without shaving some off the inside! We probably didn't visually notice any change until about 2 weeks into it. Good luck with everything and I hope Chloe hits major growth spurts and is done in no time! Please keep us posted! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2002 Report Share Posted June 6, 2002 Beth, Great to hear that Chloe will be getting her band in one week! I'm sorry to hear about the rough start trying to get someone to take the plagio seriously. I'm glad that ultimately you were able to find a source of help. wore a locally made helmet and never had trouble sleeping in it. She started at 9 months old and was pretty much sleeping whatever way she wanted because she was very mobile. It didn't seem that sleeping on either the tummy or back was a problem for her! Improvement for came pretty slowly partly because of her somewhat late start, her slow growth rate and the fact that she wore a passive device. Some people have noticed improvement in just 2 weeks. Every baby is different and it depends heavily on growth spurts. Best wishes and keep us posted! Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
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