Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 Hi Elena welcome to you and Jake many moms can respond to the second band and older band part of your question- I don't have personal experience with that as my son was young when we banded him but I understand that you can see positive results and many of our mothers have opted for a second band. I am sure they will respond. Welcome and we are glad you have found us! Beck Mom to doc grad Memphis, TN one of the moderators Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 Elena, I personally did not have to make this decision but I have read so many posts from parents who have gone with the second band, and many are glad that they did. I hope you can weigh the pros and cons and come out with a decision, and still keep your sanity!! Good luck with it and if you decide to go for the second, please keep us posted on how its going and if you felt it was worth it for your case. ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 Hello, My son Jake was diagnosed with severe positional plagio (back right). No tort. He received the DOC Band when he was 10 months. Now at 15 months we are complete with the band but are trying to decide whether to get a second band. Does anyone have any experience with an older baby and second band? We are wondering how much correction to expect. He has received quite a bit of correction, however it is still flat close to the ear. Thanks! Elena __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 Hi Elena: Your story sounds just like mine! My Abby had severe plagio back right as well, began her DOCband at 11.5 mos - 15.5 mos when we were faced with the decision whether or not to get her a 2nd DOCband. We decided against it, mainly becuz she had also wore a STARband from 8- 11 mos with no improvement at all, then we switched her to a DOCband. So honestly she had been in 2 bands for 8 mos., + her age, + our long drives to the nearest CT.. I wish I could give you more info. about a 2nd band at Jake's age. I hope someone else who did go for a 2nd band will give you their story. About how much correction has Jake rec'd? What does CT suggest? Tough decision I know! Good luck. Debbie Abby's mom DOCGrad MI > Hello, > My son Jake was diagnosed with severe positional > plagio (back right). No tort. He received the DOC > Band when he was 10 months. Now at 15 months we are > complete with the band but are trying to decide > whether to get a second band. Does anyone have any > experience with an older baby and second band? We are > wondering how much correction to expect. He has > received quite a bit of correction, however it is > still flat close to the ear. > Thanks! > Elena > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 Hi Elena My second son Dylan was diagnosed with severe plagio and i was told from the start that he would be a 2 band baby. He started his first DOCband at 8 months and outgrew at age 1 Thats when he started his second DOCband which he is still in. I have been told the second band is concentrating on the foreheand bossing more than anything. Also with his growth slowing down he is getting more wear out of this one. I am also hoping his ears come more into align as well. I wish you luck, keep us posted. Best wishes Kerry - Marcus (3) Dylan in second DOCband (16months) Calgary,AB >From: Elena <sailadvntrs@...> >Reply-Plagiocephaly >Plagiocephaly >Subject: How much correction in second band??? >Date: Mon, 3 Jun 2002 12:17:20 -0700 (PDT) > >Hello, >My son Jake was diagnosed with severe positional >plagio (back right). No tort. He received the DOC >Band when he was 10 months. Now at 15 months we are >complete with the band but are trying to decide >whether to get a second band. Does anyone have any >experience with an older baby and second band? We are >wondering how much correction to expect. He has >received quite a bit of correction, however it is >still flat close to the ear. >Thanks! >Elena > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 I already tried posting this response once so I apologize if it shows up twice. My son started his first DOCband at 9.5 months and received good results. He started out moderate/severe. He went into his second band at 14 months. I am very happy with my decision to do a second band. It really finetuned things you might say. He got a lot of the major correction areas such as rounding with the first band. With the second band he got major facial asymmetry correction, ear alignment from 6mm to 1mm; and a lot more filling in of the flat spot on the back left side. He's not 100 percent perfect but who is. He looks normal which is what makes me very, very happy. I would guesstimate total correction of about 90 percent. He went for his exit casting today and is now officially a graduate! Candy, mom to (DOCband #1, 10/5/01, #2, 2/25/02, Graduate 6/3/02) land > Hello, > My son Jake was diagnosed with severe positional > plagio (back right). No tort. He received the DOC > Band when he was 10 months. Now at 15 months we are > complete with the band but are trying to decide > whether to get a second band. Does anyone have any > experience with an older baby and second band? We are > wondering how much correction to expect. He has > received quite a bit of correction, however it is > still flat close to the ear. > Thanks! > Elena > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Elena, We have quite a few members here whose kids have worn 2 bands. I can't recall any of them ever regretting it. In fact, I think they have all been thrilled and amazed at the additional correction their child received. I am sure more people will chime in and share their experiences! Niki Kaylie & Danny (STAR grads) Phila., PA > Hello, > My son Jake was diagnosed with severe positional > plagio (back right). No tort. He received the DOC > Band when he was 10 months. Now at 15 months we are > complete with the band but are trying to decide > whether to get a second band. Does anyone have any > experience with an older baby and second band? We are > wondering how much correction to expect. He has > received quite a bit of correction, however it is > still flat close to the ear. > Thanks! > Elena > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Elena, My daughter started with her helmet at 9 months and ended at 15 1/2 months. We did not get another helmet although she still had some flatness and assymetry. We are satisfied with our choice and I guess that is really the bottom line. If you feel like there is more correction to be had then it is something to seriously consider. We have people who have gone both ways on this one. Some have gotten the second band and have been very glad that they did. I hope you get some good responses from people who have gone through the decision making process on whether or not to get the second band. Best wishes and let us know what you decide to do. Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 Elena please keep us posted on Jake's progress with the second band and how you like your new clinic. Thanks beck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 Hi - Thanks for the replies everyone sent. They were very helpful. We have decided to get a second band for Jake. He had his casting on Saturday. A bit more painful than the first...but we made it through. We have also switched clinics from the CT clinic in Chicago to the Straight Ahead PT (CT licensed clinic) in Cleveland, OH. It is closer to where we live (metro Detroit area) and less expensive for travel cost and treatment cost. The CT Chicago clinic was great and our decision was purely travel and cost related. An interesting thing we learned from the Cleveland clinic was that Jake does have some tort (it was never diagnosed). The PT's there specialize in tort and say that all plagio babies have some form. Thanks again. Elena, mom to Jake Elena <sailadvntrs@...> wrote: Date: Mon, 3 Jun 2002 12:17:20 -0700 (PDT)From: Elena Subject: How much correction in second band???Plagiocephaly Hello,My son Jake was diagnosed with severe positionalplagio (back right). No tort. He received the DOCBand when he was 10 months. Now at 15 months we arecomplete with the band but are trying to decidewhether to get a second band. Does anyone have anyexperience with an older baby and second band? We arewondering how much correction to expect. He hasreceived quite a bit of correction, however it isstill flat close to the ear.Thanks!Elena__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 Elena: Thanks for the update. Sorry the 2nd casting was tough, but happy to hear it's over! Any less travel time & money will be worth the switch of clinics. You must have some looonnnngggg drives to Chicago from Detroit area. I had long drives too to Chicago from Grand Rapids but the drives were worth it for Abby's rounder head today. Let us know when the band is in. Debbie abby's mom DOCGrad MI Date: Mon, 3 Jun 2002 12:17:20 - 0700 (PDT) > From: Elena > Subject: How much correction in second band??? > Plagiocephaly@y... > > Hello, > My son Jake was diagnosed with severe positional > plagio (back right). No tort. He received the DOC > Band when he was 10 months. Now at 15 months we are > complete with the band but are trying to decide > whether to get a second band. Does anyone have any > experience with an older baby and second band? We are > wondering how much correction to expect. He has > received quite a bit of correction, however it is > still flat close to the ear. > Thanks! > Elena > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 In a message dated 6/12/2002 1:00:55 PM Eastern Daylight Time, sailadvntrs@... writes: The PT's there specialize in tort and say that all plagio babies have some form. Elena, Wow this is very interesting (and you are in great hands with KKR!). My CT clinic told me recently that they are going to have ALL kids do neck exercises for good measure because they see way too many kids that are not dx with tort that should be Good luck and please keep us posted! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 , I have tried this too and feel that because I overcompensated using my right side to accomodate ' left side, I would swear I got tort too! I was reading that adults can get it (stiff neck really) as well! Oh my aching neck! () ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 - told me that we all have tort, it's just a matter of to what degree. I can touch my right shoulder with my chin,but not my left. It doesn't hurt and I never noticed it before she said that! Dane's mom DOC Grad > In a message dated 6/12/2002 1:00:55 PM Eastern Daylight Time, > sailadvntrs@y... writes: > > > > The PT's there specialize in tort and say that all plagio babies have some > > form. > > Elena, > Wow this is very interesting (and you are in great hands with KKR!). My CT > clinic told me recently that they are going to have ALL kids do neck > exercises for good measure because they see way too many kids that are not dx > with tort that should be > Good luck and please keep us posted! > > ' Mom Quote Link to comment Share on other sites More sharing options...
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