Guest guest Posted June 7, 2002 Report Share Posted June 7, 2002 Has anyone in the group had any luck in educating his doctors? I'd like to read the study that all the docs. seem to cite that pertains to a study group where half the patients were banded and half were not. The results (I'm told) indicated that those banded were no better off " years " later. If true, these results are hard to believe, and are at best biased. I'd like to write a lengthy letter to our neurosurgeon not so much chastising him, as educating him, especially from the parental viewpoint. It breaks my heart to hear " our story " over and over across the country. Has anyone taken their headsicles in to show their doctors? How did they respond? Does anyone know of any scientific studies proving that banding is highly effective? Maybe the folks at Cranial Tech. can tell me if they have participated or initiated any studies, particularly follow-up studies on their patients? Other than those with craniosynostosis and mild cases, who is NOT a candidate for banding, or in other words what plagio. conditions can't be improved by banding? Ellen (Mom to Amy- 2nd day in DOC Band and doing great) New Jersey ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
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