Re: Help ... our ortho says our son needs 2nd band after only 8 wks of treatment

[Guest guest]

Willilam's Mom-

My heart goes out to you and your travels. We have to drive 2.5

hours each way for our appts every other week and I thought that was

bad. So best of luck there.

As far as measurements and pictures, our Ortho measures every time

and takes pictures every time. He is very concerned about fit and

explained to us it should not roll over his ears or down over his

eyes. We have STAR Band, but the fit issues are the same as with Doc

Band. Our son has severe plagio and he said if the helmet doesn't

fit correctly it could do more damage than good for his head. I

would definetly pursue this further with the ortho or even someone

higher up. We also had red spots and he wanted to see him right away

to make sure it wasn't a fit issue. My son has only had his on two

weeks, but the care we have received is outstanding.

Good Luck, I'll be thinking of you

-Ian 6.5 months old

> > We are concerned because our son has only been in the helmet

for 8

> > weeks when his ortho told us we need to get a second band, as

soon

> as

> > possible. (We have now agreed that July 3rd will be the

casting

> date

> > and he will get the helmet 10 days later which will mean he

gets

> the

> > second helmet after 3 1/2 months.) Then she said he would be in

> that

> > band through November. (In the beginning she couldn't tell us

how

> > long treatment would be, she just kept saying " average

treatment

> time

> > is 4 1/2 months. " ) It seems a little early to decide he needs

a

> new

> > band.

> >

> > BACKGROUND: We have not been able to get our insurance to pay,

and

> we

> > live in Colorado so we have to fly to Arizona for treatment

every

> > other week. (Which will be $6000 in helmets and 7 months of

flights

> > and cab rides.) Will was 7 1/2 (almost 8) months old when he

> started

> > and is 9 1/2 months now. We haven't seen much improvement, and

we

> > believe our ortho is not that experienced and may have messed

up

> our

> > helmet early on with bad adjustments. We use Cranial Tech in

> > Arizona. His flatness is all on the back side, and we were

told it

> > was moderate to severe (on a scale of 1 to 10, a 7 or 8.) (His

> > cephalic index is 99.25 which is more than 2 standard

deviations

> from

> > normal.)

> >

> > When we began treatment our ortho didn't do any pictures or

> > measurements until I insisted. She also hasn't done anything

> > but " eyeball it " to decide he needs a second band. I think I

may

> > insist on another set of measurements and pictures! (When I

asked,

> > she said that it would come out differently each time because

it is

> > not that scientific!!)

> >

> > He had bad luck with red spots early on and she had to adjust

the

> > band accordingly. Now the band is pretty loose. When he turns

his

> > head it can actually move so much that his ear is underneath

it. Is

> > this normal?

> >

> > We want to do what is best, but we were wondering (1) if anyone

> else

> > has had this experience where they recommend a second helmet so

> early

> > in treatment, (2) if anyone else thinks Margie in Arizona is

not

> that

> > good (I know there was a different therapist there last year),

(3)

> > how the helmet is supposed to fit, (4) if anyone else didn't

get

> any

> > measurements or pictures done (until they insisted), and (5) if

> > anyone has anything else to add.

> >

> > ANY advice will help!!! Thank you in advance!!!

> > -Mom to

>

>

>