Guest guest Posted July 6, 2012 Report Share Posted July 6, 2012 While the doctors seem to have reason to worry about what is coming, Jan is currently healthy although perhaps a little worried. She doesn't want to talk about how she is. The doctors think that AML will be on its way back, big time unless treatment works. She's had radiation which seems to have pretty well cleared up the mass behind her eye which was largely leukemic white cells. She has the first of two rounds of chemo at much less intensity than the usual induction treatment and the second is due in a couple of weeks. After that, they are talking about a lymphocyte infusion from her brother to hopefully put her into an extended remission. We keep hearing that her case doesn't have history from others like it to get much guidance. She probably will be part of a study Stanford is doing which might provide guidance for others in the future. The good news is that she acts healthy! Here's a quick example of a day ... the Fourth of July! It was a very full day. Jan and I are at a cabin at Donner Lake in the mountains of California. Her Mom is home working and will be with us starting this weekend. We got up early and had a quick breakfast. Then we got on bicycles and rode to town (Truckee). Jan walked the hills, but we were on the parade route by 9:50, ten minutes before the parade started. For a small town, this is a big parade. It took about an hour for everything to pass us. Both Jan and I took a lot of pictures. Toward the end, she went off and got each of us a bagel and also a soda and water for me. After the parade we rode the rest of the way to town where we window shopped and had lunch out. Eating out is something Jan really likes. Then we rode home. This route had essentially no hills and she just zoomed ahead of me, arriving ten minutes before I did. The total distance out and back was about eleven miles. She watched videos and did word puzzles until a fairly late supper and then we went out on a dock to watch the fireworks. They were fired from the end of the lake and we had really good seats for the show. This isn't bad for someone who finished chemo a week before. The future may be difficult, but we are living good days now. Rick .. dad to 39 year old Jan who is post AML treatments, a bone marrow transplant, and now into unexpected new challenges. The eight year remission was wonderful, but it's come to an end. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2012 Report Share Posted July 6, 2012 Thanks for the update Rick. Glad to hear she is feeling well. Give her a hug from us too, and tell her we said she should give you a big hug from us also. Sharon in SC Mom to (20, DS) and (16) Sent from my iPhone On Jul 6, 2012, at 12:13 PM, Rick Dill <rdill@...> wrote: > While the doctors seem to have reason to worry about what is coming, Jan > is currently healthy although perhaps a little worried. She doesn't > want to talk about how she is. The doctors think that AML will be on > its way back, big time unless treatment works. She's had radiation > which seems to have pretty well cleared up the mass behind her eye which > was largely leukemic white cells. She has the first of two rounds of > chemo at much less intensity than the usual induction treatment and the > second is due in a couple of weeks. After that, they are talking about a > lymphocyte infusion from her brother to hopefully put her into an > extended remission. We keep hearing that her case doesn't have history > from others like it to get much guidance. She probably will be part of > a study Stanford is doing which might provide guidance for others in the > future. > > The good news is that she acts healthy! Here's a quick example of a day > .. the Fourth of July! It was a very full day. > > Jan and I are at a cabin at Donner Lake in the mountains of California. > Her Mom is home working and will be with us starting this weekend. We > got up early and had a quick breakfast. Then we got on bicycles and > rode to town (Truckee). Jan walked the hills, but we were on the parade > route by 9:50, ten minutes before the parade started. For a small town, > this is a big parade. It took about an hour for everything to pass us. > Both Jan and I took a lot of pictures. Toward the end, she went off and > got each of us a bagel and also a soda and water for me. > > After the parade we rode the rest of the way to town where we window > shopped and had lunch out. Eating out is something Jan really likes. > Then we rode home. This route had essentially no hills and she just > zoomed ahead of me, arriving ten minutes before I did. The total > distance out and back was about eleven miles. > > She watched videos and did word puzzles until a fairly late supper and > then we went out on a dock to watch the fireworks. They were fired from > the end of the lake and we had really good seats for the show. > > This isn't bad for someone who finished chemo a week before. The future > may be difficult, but we are living good days now. > > Rick .. dad to 39 year old Jan who is post AML treatments, a bone marrow > transplant, and now into unexpected new challenges. The > eight year > remission was wonderful, but it's come to an end. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2012 Report Share Posted July 6, 2012 You are both so blessed and are blessing us in your knowledge!!! Re: Update on Jan > Thanks for the update Rick. Glad to hear she is feeling well. Give her a > hug from us too, and tell her we said she should give you a big hug from > us also. > Sharon in SC > Mom to (20, DS) and (16) > > Sent from my iPhone > > On Jul 6, 2012, at 12:13 PM, Rick Dill <rdill@...> wrote: > >> While the doctors seem to have reason to worry about what is coming, Jan >> is currently healthy although perhaps a little worried. She doesn't >> want to talk about how she is. The doctors think that AML will be on >> its way back, big time unless treatment works. She's had radiation >> which seems to have pretty well cleared up the mass behind her eye which >> was largely leukemic white cells. She has the first of two rounds of >> chemo at much less intensity than the usual induction treatment and the >> second is due in a couple of weeks. After that, they are talking about a >> lymphocyte infusion from her brother to hopefully put her into an >> extended remission. We keep hearing that her case doesn't have history >> from others like it to get much guidance. She probably will be part of >> a study Stanford is doing which might provide guidance for others in the >> future. >> >> The good news is that she acts healthy! Here's a quick example of a day >> .. the Fourth of July! It was a very full day. >> >> Jan and I are at a cabin at Donner Lake in the mountains of California. >> Her Mom is home working and will be with us starting this weekend. We >> got up early and had a quick breakfast. Then we got on bicycles and >> rode to town (Truckee). Jan walked the hills, but we were on the parade >> route by 9:50, ten minutes before the parade started. For a small town, >> this is a big parade. It took about an hour for everything to pass us. >> Both Jan and I took a lot of pictures. Toward the end, she went off and >> got each of us a bagel and also a soda and water for me. >> >> After the parade we rode the rest of the way to town where we window >> shopped and had lunch out. Eating out is something Jan really likes. >> Then we rode home. This route had essentially no hills and she just >> zoomed ahead of me, arriving ten minutes before I did. The total >> distance out and back was about eleven miles. >> >> She watched videos and did word puzzles until a fairly late supper and >> then we went out on a dock to watch the fireworks. They were fired from >> the end of the lake and we had really good seats for the show. >> >> This isn't bad for someone who finished chemo a week before. The future >> may be difficult, but we are living good days now. >> >> Rick .. dad to 39 year old Jan who is post AML treatments, a bone marrow >> transplant, and now into unexpected new challenges. The >> eight year >> remission was wonderful, but it's come to an end. >> >> > > > Quote Link to comment Share on other sites More sharing options...
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