Re: update on Skye and Family

[Guest guest]

Hi nna,

Thanks for the update on Skye and . When you get a chance could you

explain the middle ear condition that Skye has? I don't want to be ignorant,

but does that mean she cannot hear? Or maybe just not process different

sounds? Hopefully the surgery will solve that problem for her.

Glad to hear that is getting the assistance he needs and is doing well.

It was good to hear from you again - drop us a line whenever you have a

chance. I know how very busy you must be!

Marci (Mom to )

Oklahoma

PS - I wouldn't mind seeing a new picture of Skye if you have the means to

post one!

[Guest guest]

Hi Marci

As you would know the middle ear not only controls hearing but many

people with middle ear problems also have a lack of balance - as Skye

has no middle ear function in either ear (meaning both are blocked by

fluid) her hearing is impaired - she may or maynot be able to hear

most things depending on the tone.

The Doctor's think that this could also be part of the problem with

her being unable to stand alone yet or walk.

The ENT surgeon explained that because of her ear misalignment

(because her skull is now permamently misshapen) the plagio could be

a major part of her problem - everything inside her head seems to be

crooked aswell making it difficult for the eustation tubes to drain

effectivly as they should therefore blockages are more common - we

should know more soon we have to wait and see what the outcome will

be.

Regards

nna

Skye's mum

Brisbane Australia

> Hi nna,

>

> Thanks for the update on Skye and . When you get a chance

could you

> explain the middle ear condition that Skye has? I don't want to be

ignorant,

> but does that mean she cannot hear? Or maybe just not process

different

> sounds? Hopefully the surgery will solve that problem for her.

>

> Glad to hear that is getting the assistance he needs and is

doing well.

>

> It was good to hear from you again - drop us a line whenever you

have a

> chance. I know how very busy you must be!

>

> Marci (Mom to )

> Oklahoma

>

> PS - I wouldn't mind seeing a new picture of Skye if you have the

means to

> post one!

[Guest guest]

Thanks for the explanation nna. I am convinced that had severe ear

infections because of her headshape. She has tubes now and they have made a

huge difference. However, I still blame the head shape for the problem.

All my best for Miss Skye and please do let us know what you learn from the

ENT.

Marci

[Guest guest]

nna,

So good to hear from you! I hope that once Skye's ear canal problem is over

she will be able to hear better and her balance will kick in! I have heard

that the fluid in the ear does make all the difference with hearing and

balance as well, so I'm hoping you'll see some good results from the surgery-

soon you'll wish she wasn't as fast and getting away from you!

I'm glad that you were able to get into an environment that is geared

to enhance his skills- my friend is currently going through the process of

getting a diagnosis for her son (2 years old)- who the Doctors also feel has

autism. I have done research for her (internet is good!) and as you probably

know, the degrees of severity are very different for every child, and in

today's day and age, there are more ways to handle and understand this than

ever before. Good luck to you all- please update us all on Skye when the

surgery is over and let us know how is doing too! Hugs to you all!

' Mom