Re: Educating Doctors Tami

[Guest guest]

Hi Tami,

Thank you, Thank you,Thank you!

> > > Has anyone in the group had any luck in educating

> > his doctors? I'd

> > like

> > > to read the study that all the docs. seem to cite

> > that pertains to a

> > > study group where half the patients were banded

> > and half were not.

> > The

> > > results (I'm told) indicated that those banded

> > were no better

> > off " years "

> > > later. If true, these results are hard to

> > believe, and are at best

> > > biased.

> > >

> > > I'd like to write a lengthy letter to our

> > neurosurgeon not so much

> > > chastising him, as educating him, especially from

> > the parental

> > viewpoint.

> > > It breaks my heart to hear " our story " over and

> > over across the

> > country.

> > >

> > > Has anyone taken their headsicles in to show their

> > doctors? How

> > did they

> > > respond?

> > >

> > > Does anyone know of any scientific studies proving

> > that banding is

> > highly

> > > effective? Maybe the folks at Cranial Tech. can

> > tell me if they

> > have

> > > participated or initiated any studies,

> > particularly follow-up

> > studies on

> > > their patients?

> > >

> > > Other than those with craniosynostosis and mild

> > cases, who is NOT a

> > > candidate for banding, or in other words what

> > plagio. conditions

> > can't be

> > > improved by banding?

> > >

> > > Ellen (Mom to Amy- 2nd day in DOC Band and doing

> > great)

> > > New Jersey

> > >

> > >

> >

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> >

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>

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