Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Hi Velma: It sounds like is doing very well in his DOCband. That's terrific Let's hope for another good growth spurt soon. I would like to wish an early Happy 1st Birthday! Do you have a big party planned? Debbie Abby's mom DOCgrad MI > Hi Nicollette, > > My son, , is almost 1 (6 more days!), and he's been in his DOC band for > almost 3 months now, so I figured I'd chime in and let you know how we've > been doing. I am blessed that our health nurse knew that there was > treatment for 's brachiocephaly (flat on the back), and told us we > should get a referral from our family physician to go to the cranio dept. at > the hospital. I am grateful for her knowledge because I know not a lot of > people know there are things you can do about this. I know there are a lot > of moms on this forum who are trying to increase public awareness so parents > can force their doctors to help. Anyway...here go the answers... > > 1. What age did you treat your child and how successful was it? > > started at about 9 months. We have seen some correction so far. It's > still flat on the back, and still have a ways to go, but there is definitely > improvement. We were told he'd probably wear the helmet for 5 months, so > I'm hoping for more improvement. I'm not expecting 100%, but any > improvement is good. > > 2. Was it uncomfortable for your child? > > only cried when I put on the helmet for the first two days. He's > actually gotten to the point where when I take it off, he taps it against > his head as if to say put it back on. In all actuality it's saved his > little bean a few times! He's walking around furniture, and going up and > down stairs, so it's actually been a good thing to have from that point of > view too. > > 3. How long was the treatment? > > As I said above we were told about 5 months. I don't care if he has to wear > it for 8 or 9 months, if it's going to help. > > 4.Have you noticed any delays with your child in development? > > is catching on to things very quickly. He's smart just like his mommy > (lol), and musically gifted like his dad (drums/pots you know). I'm a first > time mommy, so I'm one of those who thinks my son is the cutest and the > smartest. > > 5.Was it uncomfortable dealing with the " looks " from other > people? > > The first week I was self-conscious. doesn't care, and doesn't notice > the stares. I'm quite comfortable with it now. Sometimes people ask what > it's for, and then I get the surprises like the 9 year old girl who knew > what it was for because her teacher's son had one. I'm quite happy to talk > about it now because I know how little people know about it, and they just > may know someone whose child needs one. I'm sure there are many of us too > who wish we knew earlier that there are things we can do about this. It's > such a short amount of time in the helmet when you think about how old we > all live to...under a year in probably 70 to 80 years...not much time at > all. > > Good luck with everything. You'll find lots of great support here. There > are SO many knowledgeable and caring people hanging out here. > > Velma, Mom to > Calgary, Alberta, Canada > http://www.momsforlife.com/?vg39616 > > Date: Tue, 04 Jun 2002 11:00:59 -0000 > From: " knicnac " <nikknac@r...> > Subject: Treating Toddlers > > Hi, > I have a 19 month old toddler boy named Luke. ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Hi Debby & Abby, He is doing well, and I'm glad he's actually grown to like his " hat " . As for his birthday, yes, we are having a " Blues Clues " birthday for him, and between friends and family it's bigger than dh would like, but I think it's going to be fun. I actually think the 1st birthday is for everybody but the baby. We're having it on Saturday (2 days early) so family from out of town can come. Then Monday is his birthday, and Tuesday I go back to work. Dh is returning to school, so I have no choice but to work. It's worth it though. Brief pain for years of gain. Velma, Mom to Calgary, Alberta, Canada http://www.momsforlife.com/?vg39616 Message: 8 Date: Tue, 04 Jun 2002 17:28:06 -0000 From: " debbieandabby " <dj2kirby@...> Subject: Re: Velma & Hi Velma: It sounds like is doing very well in his DOCband. That's terrific Let's hope for another good growth spurt soon. I would like to wish an early Happy 1st Birthday! Do you have a big party planned? Debbie Abby's mom DOCgrad MI Quote Link to comment Share on other sites More sharing options...
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