Re: Ways to Deal with your Illness

November 4, 2005

Yanni,

I have been through a lot in my life and if I told you just the last 10 years,

you would find it unbelievable.

I have always tried to have a positive outlook on anything and do believe that

things happen for a reason.

What I do not understand is how a " Company " or workplace can sit by while

someone that worked for them loyally for years is trying very hard to live.

Because of their practice of ignoring the health affects of mold or anything

else in the " air " , innocent people suffer.

I still try to have a positive outlook even though I can not stand long, sit

long, lay down long, breathe long, eat much, concentrate on anything long, hurt

all the time, and the list continues.

I am positive that they will be held accountable for what has happened. It may

take awhile but right now all I have is time. Since I have no money, food,

phone, gas or medications....ALL I HAVE IS TIME TO THINK OF THIS.

Yes...I am positive that I am sick and do not have any help except to get the

IVIG's every 4 weeks just to keep me alive. I am positive that I have to wear a

mask where ever I go because anything will make me sicker or kill me.

Yes....I am positive and thank GOD that I am still here today but the suffering

has got to stop. Not just for me but for the thousands of innocent people that

have had this awful illness come upon them.

My voice will be heard and so will the members of this group that sent their

story's to me. I will do everything I can to make sure that it will be a "

Positive " outcome for everyone.

Yanni, I am very glad that you have come above all this and are doing better but

I am not there yet. I pray every day to feel like you do. I am positive that I

will be some day but till then, please excuse those of us who have not arrived

to that level yet.

Sincerely,

Marcie

drzack52 <drzack@...> wrote:

Dear Members,

I have been following your posts and reading all of the discussions

on this board for quite some time. I know that some my take offense

at what I'm about to say, but I'm ready to take that chance.

I am truly sorry for all of the serious medical conditions that

everyone is facing. As you know, I am also suffering from life-

threatening exposure to stachybotris, chaetomium,

aflatoxins,satratoxins, and secondary exposure to Methamphetamines,

Heroin and Cocaine. Not only did the house have these toxic Molds,

but it had also been used as both a Crack House and Meth Lab. I

nearly lost my life. In spite of it all, I am still here.

One of the ways I have found to get myself better, besides diet and

exercise, is to always have a positive atitude and not focus on my

disability or illness. I hardly ever talk about it anymore to anyone,

and I'm finding that the symptoms when they do occur are not as bad.

That, coupled with a strong faith in God is what has kept me going.

Recently, I have read many stories about people who have gone through

numerous trials in their life as well as crippling and debilitating

illnesses. One of the themes which constantly appeared throughout all

of these people's stories was that they always kept a positive

attitude and did not focus on their illnesses by constantly giving

it " voice " . That is what helped them to beat the odds and remain

alive.

I have gotten to the point where I too have found that if I do not

discuss or talk about my illness, but focus on the positive things in

life( that I am alive) and withmy strong faith in God, I am and will

be able to continue and survice and enjoy my life. As a former

educator with over 20 years working with all ages- young children to

adult learners, I always stressed in developing in them a positive

mental attitude for success. I am now applying what I said to myself-

and I am seeing results.

Yanni

FAIR USE NOTICE:

November 4, 2005

Thanks Rosie.....you were thinking clearer than I was. :-)

Marcie

<toria@...> wrote:

GOOD EMAIL, ROSIE.

VICTORIA

[] Re: Ways to Deal with your Illness

>>

>> While I think it is simply wonderful to keep a positive attitude, it

>> won't get you out of Mold Hell and not talking about mold or

>> focusing on it doesn't result in your own education or that of

>> others.

>>

>> Virtually everyone around me told me to " quit obsessing over mold "

>> and just " beat your illness using the power of the mind " .

>>

>> I was also told to just put my fate in God's hands and trust that

>> things would turn out OK.

>> My response was " Isn't it said that God helps those who help

>> themselves? I'm not going to sit here and wait for whatever happens

>> if I keep getting worse and hope that God will step in "

>>

>> And as far as my good friends, families and doctors assertions

>> of " mold obsession " , if I hadn't been so " obsessed " , I never would

>> have discovered the characteristics of mold plumes and mycotoxin

>> exposure which allowed me to devise an avoidance strategy which lets

>> me KICK ASS on a problem that used to kick MINE.

>> I like to tell people that having a BAD ATTITUDE and OBSESSIVE

>> NATURE is the very reason why I am out mountain climbing

>> while " happy smiley people " are still being beat to death by mold.

>> -

>>

>

> FAIR USE NOTICE:

>

November 4, 2005

,

Very well said. Stay " MAD AT MOLD " and hopefully we can all overcome this

illness and our feeling of ignored by the " companies " . ( Just hope the

" companies " have a positive attitude.) LOL!

Marcie kmoldwarrior

<erikmoldwarrior@...> wrote:

While I think it is simply wonderful to keep a positive attitude, it

won't get you out of Mold Hell and not talking about mold or

focusing on it doesn't result in your own education or that of

others.

Virtually everyone around me told me to " quit obsessing over mold "

and just " beat your illness using the power of the mind " .

I was also told to just put my fate in God's hands and trust that

things would turn out OK.

My response was " Isn't it said that God helps those who help

themselves? I'm not going to sit here and wait for whatever happens

if I keep getting worse and hope that God will step in "

And as far as my good friends, families and doctors assertions

of " mold obsession " , if I hadn't been so " obsessed " , I never would

have discovered the characteristics of mold plumes and mycotoxin

exposure which allowed me to devise an avoidance strategy which lets

me KICK ASS on a problem that used to kick MINE.

I like to tell people that having a BAD ATTITUDE and OBSESSIVE

NATURE is the very reason why I am out mountain climbing

while " happy smiley people " are still being beat to death by mold.

-

FAIR USE NOTICE:

November 4, 2005

Great post, Marcie. I agree with you--there are those on this list who HAVE

recovered, & I'm truly glad for them. However: those people who have

recovered (partly, or mostly) have to remember that there are those of us on

the list who will NEVER be better. Our health & our lives have been

destroyed by all this, & NO medicine will make us 100% well, ever again.

That's part of the reason I'm SO angry. Despite any methods I try to do,

for example, its never going to re-myelinate my spinal cord. It's never

going to give me back my bowel & bladder control. It's never going to

prevent me from having future surgeries that are necessary, for me to

continue the " lifestyle " I now have. (Which is FAR from good--I've already

had 3 surgeries since my onset of this illness!).

Each and EVERY step I take I have to take with a conscious effort...to avoid

tripping over my own toes, & so I don't fall down. Tell me, somebody--how

do you have a totally POSITIVE outlook, when you can't even walk? When you

have pain 24/7, & many other issues?

Don't get me wrong, everybody on here: I am NOT complaining. I've come a

VERY long way, for a gal who was never supposed to walk again. I have a

strong faith in God also, & I know He allowed me to become this sick so I

could attempt to educate others--but at the same time, I want MY life back!

It's true that there are many sick people on this site. Just remember:

some are far sicker than others, & it's not up to ANY of us to judge others.

Take care, all, & God bless,

Re: [] Ways to Deal with your Illness

> Yanni,

>

> I have been through a lot in my life and if I told you just the last 10

> years, you would find it unbelievable.

> I have always tried to have a positive outlook on anything and do believe

> that things happen for a reason.

> What I do not understand is how a " Company " or workplace can sit by while

> someone that worked for them loyally for years is trying very hard to

> live. Because of their practice of ignoring the health affects of mold or

> anything else in the " air " , innocent people suffer.

> I still try to have a positive outlook even though I can not stand long,

> sit long, lay down long, breathe long, eat much, concentrate on anything

> long, hurt all the time, and the list continues.

> I am positive that they will be held accountable for what has happened. It

> may take awhile but right now all I have is time. Since I have no money,

> food, phone, gas or medications....ALL I HAVE IS TIME TO THINK OF THIS.

> Yes...I am positive that I am sick and do not have any help except to get

> the IVIG's every 4 weeks just to keep me alive. I am positive that I have

> to wear a mask where ever I go because anything will make me sicker or

> kill me.

> Yes....I am positive and thank GOD that I am still here today but the

> suffering has got to stop. Not just for me but for the thousands of

> innocent people that have had this awful illness come upon them.

> My voice will be heard and so will the members of this group that sent

> their story's to me. I will do everything I can to make sure that it will

> be a " Positive " outcome for everyone.

> Yanni, I am very glad that you have come above all this and are doing

> better but I am not there yet. I pray every day to feel like you do. I am

> positive that I will be some day but till then, please excuse those of us

> who have not arrived to that level yet.

>

> Sincerely,

>

> Marcie

>

> drzack52 <drzack@...> wrote:

> Dear Members,

> I have been following your posts and reading all of the discussions

> on this board for quite some time. I know that some my take offense

> at what I'm about to say, but I'm ready to take that chance.

> I am truly sorry for all of the serious medical conditions that

> everyone is facing. As you know, I am also suffering from life-

> threatening exposure to stachybotris, chaetomium,

> aflatoxins,satratoxins, and secondary exposure to Methamphetamines,

> Heroin and Cocaine. Not only did the house have these toxic Molds,

> but it had also been used as both a Crack House and Meth Lab. I

> nearly lost my life. In spite of it all, I am still here.

>

> One of the ways I have found to get myself better, besides diet and

> exercise, is to always have a positive atitude and not focus on my

> disability or illness. I hardly ever talk about it anymore to anyone,

> and I'm finding that the symptoms when they do occur are not as bad.

> That, coupled with a strong faith in God is what has kept me going.

> Recently, I have read many stories about people who have gone through

> numerous trials in their life as well as crippling and debilitating

> illnesses. One of the themes which constantly appeared throughout all

> of these people's stories was that they always kept a positive

> attitude and did not focus on their illnesses by constantly giving

> it " voice " . That is what helped them to beat the odds and remain

> alive.

> I have gotten to the point where I too have found that if I do not

> discuss or talk about my illness, but focus on the positive things in

> life( that I am alive) and withmy strong faith in God, I am and will

> be able to continue and survice and enjoy my life. As a former

> educator with over 20 years working with all ages- young children to

> adult learners, I always stressed in developing in them a positive

> mental attitude for success. I am now applying what I said to myself-

> and I am seeing results.

> Yanni

>

> FAIR USE NOTICE:

>

November 4, 2005

THANKS VICTORIA,

Sometimes some people feel " there way " was the best or " there way of thinking "

is the best but what we have to understand is everyone is different.

Believe me, if all I had to do now was think " DON'T WORRY....BE HAPPY " and sing

a couple of bars of it, I would. I know, with what little bit of brain matter

that is functioning now, that will not work for me. Sure I get depressed but if

you knew what I have been through in my life and to come to this, it is very

disheartening.

I do smile at funny things and beautiful things outside but I don't have very

many things to smile about. I am hoping that changes and am praying for that to

change but there are a lot of mean, stupid people out there that say.... " Mold,

no way will that make you sick. "

I lay in bed some nights just wanting to get into these people's faces and say "

Wake up, look at me. " I was not like this before the exposure. I am tired of my

Police Officer friends saying " What happened to you, or where is the rest of

you? " Or " you USED to be the strongest woman we knew. "

I do try to stay positive or else I would give up on trying to help as many

people as I can just getting the story out. ( And it will get out.)