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.... We r in the same boat although Kenzie is a sophomore in hs now. I am

anxious to see the replies u get as it has been a struggle!!! No inclusion time

at all ... Self contained all day.. I hate it! IEP coming up in April...I am

bringing in the big guns from middle school to plead my case. Kenzie has

certainly lived down to their expectations this year!

Hancock

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On Mar 21, 2012, at 2:20 PM, Kerrigan <leslie-kerrigan@...> wrote:

> We are at a crossroads, and not sure which path to take. has

> been included in regular ed since kinder (some pullouts in elementary

> for math/reading, and now resource classes for math/reading.) She has

> always got good reviews from the regular ed teachers, as she

> participates, contributes, and really does seem to learn a lot (although

> does not necessarily test well here.) And, it's always a struggle to

> figure out how to get them to do their jobs and modify first, rather

> than giving her the regular assignments/hw and then having us either

> struggle/modify for her, or modify after the fact (but this is mostly my

> problem, not 's.) Overall, successful, and she is well liked

> by peers in these classes. In resources classes, she generally is able

> to do them with little help,although since math has moved to

> pre-algebra, we're having to teach her a set of rules to attack these

> problems, since it doesn't look like the teacher has. But, she's

> getting it, and did about half the homework independently (with her

> " rules " ) last night.

>

> So, as we try and make a plan for high school, and after a lot of

> discussion with the team (whose input is variable across the board, so

> they are not really helpful), we see that there are two paths. (1)

> Diploma track, which means all classes must be taken w/o modifications

> (only acccomodations). This would likely be met by taking all academics

> in a resource class (3 or 4 of 6 periods), and then being mainstreamed

> into regular ed electives and PE. Different from her current placement,

> and much more limited interactions with regular ed peers. OR, (2)

> Certificate of completion track, which means she just has to basically

> attend whichever classes to meet school requirements, but can be

> modified as needed. So, she could be in the awesome, dynamic bio

> teacher's class, and not do all the same work, but she'd be with her

> regular ed peers and a really interesting teacher/class (since resource

> just meets the standards, they are really " no-frills " which in our

> observation, was also kind of dull.) And be with the awesome kids she's

> been with primarily since kinder. But, with 45 kids in a fast-paced

> high school class, would the interactions be the same as in elementary

> and/or middle?

>

> Because our crystal ball is cloudy, we don't know if working towards a

> diploma will be of benefit to or not in her post-high school

> life :-) We think she can probably do it, but we're not sure if there

> will be a benefit to her. Those of you, especially with older kids, if

> you got a certificate of completion (or equivalent) did you ever feel

> that your child's options were limited w/o the diploma (in a job or

> situation that you know they were capable of, but someone wanted that

> piece of paper?) Or if anyone did go the diploma track, did you find

> that it was a benefit for your child, or did whatever they did post-high

> school depend more on job/vocational training and their abilities, and

> no one cared about the diploma.

>

> Thanks for reading, and any advice is appreciated!

> , mom to (16), (14 DS) and Sammy (12), auntie to

> (18)

>

>

>

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I know I struggled emotionally a lot while was growing up about these

issues.  I finally came to the conclusion that I first needed to consider what I

thought she would do after high school and if a " diploma " would make a

difference.  For , who is nonverbal and reads about 1st grade level and

does simple addition/subtraction, I concluded that she would not need a high

school diploma to get the type of job she would " probably " have after high

school.  I have to tell you that when I came to that conclusion there was a TON

of weight lifted from me. 

 

After that we truly focused on what skills we all thought she needed.  ie., she

will need to use a calculator to balance her checkbook or estimate shopping list

so no matter what math class she was in she to using a calculator while staying

fresh with simple math.  She continued to be included in school and continued to

learn (we conceded about 8th grade).  In a chemistry class she had to learn what

was metal and nonmetal (very important skill for cooking in overn and

microwave).  We didn't waste time on things she wouldn't need in life like

understanding the periodic table of elements.  She had several job over the

summers thru a program and her being around gen ed peers was instrumental in her

knowing what behaviro was appropriate.  In a video store she put back movies on

the shelves so needed alphabetizing skills.  We continued to look at what we

thought she could and would want to do as an adult. 

 

I am happy with my decisions with and for her.  She is now 24yo and has been

working for over 2 1/2 years.  She may keep this job forever but for now she

loves it and is good at it.  :)  Hope that helps some.

Kathy Everett

678 230-6985

Kathy Everett Consulting

www.KathyEverett.com

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This clearly is a sensitive topic because so many families see the

diploma as a highly desired achievement in life. I will give you my

experience which isn't current, but might help with your thought process.

My daughter was a peer of Kingsley and Mitch Levitz. The three

are close in age, meaning in the vicinity of 40. They were three who

really benefited from supportive parents and the opening of education to

our kids. All lived in the suburban Westchester county area and knew

each other growing up. Mitch Levitz's family had traced his life

growing up and at the end of high school, his story was picked up for

the Jane Pawley show. One of the features was Mitch's prom date with

Jan. In the promo spots they featured Jan. I used to have a videotape

of the show, but Jan wrote over it.

Anyway, Mitch and had families who strongly wanted their kids to

get diplomas .. in NY that meant the regents diploma. All the kids were

primarily in sped classrooms for academics plus lots of time mainstream

on open school settings. Getting the diploma took a whole lot of

devoted family tutoring and included a fair amount of both failure and

recovery from same. I know that Mitch got the diploma, but I'm less

sure about , but that is inconsequential in what I'm writing. They

did increase the requirements just after Mitch graduated and his Mom

once said that he couldn't have met the revised requirements.

We chose similar class settings for Jan. There was a lot of networking,

but the three never were in the same school or classroom at any one

time. We were happy that Jan loved learning and encouraged her in

computer use and in things like learning regular kid things like mowing

lawns, raking, and working after school in a daycare setting for 6-8

year olds. I also kept Jan physical active because she was a top level

athlete .. quite a contrast from the boys. She graduated with a special

education diploma with her high school class, but other nearby schools

were not even giving that.

So, with two boys and a diploma and one girl without, did it make any

real difference. I personally think it made little difference. All

three left high school with strong self image and went to similar post

high school settings. Mitch went to the Jespy House program, Jan went

to Chapel Haven, and went to Maplebrook.

You can see the forward projections .. at around post-high program time

in the book, " Count Us In " . It is a very positive view coaxed out of

the two young men by their mothers and a good read.

With that background, how have their adult lives worked out. All three

have struggled at times, but they all have done very well in finding

appropriate lives. I haven't seen the young men for about five years,

but Mitch lives near his family in a house they purchased for him. He

works with local politicians as an effective advocate. lives in a

group setting which is run by the three residents and which was written

up a couple of years ago in the NY Times. Each of the residents has

their own day activities and they have a good social environment. There

is a live-in house monitor, but his job seems to be to help enable the

residents to live as independently as they can.

You have heard about Jan here off and on since the beginning of this

list. She has lived the last five years in California in her own

apartment with most weekends visiting her parents.

I don't think that the presence or absence of a diploma made any

difference. These adults can read and function in life quite well, but

do require some continuing support. They all are making their marks as

adults. I am proud of all of them. None of the three has a significant

job for pay, but I don't think that is a good measure of their

contribution to society. Should Jan be cleaning tables in Macs

(as she was for a while in high school) or was her volunteer job

assisting people more handicapped than herself more important. I

believe it was the latter and that certainly got a whole lot more press

and attention. I think it really contributed to the world in a way that

was unique.

You have to look at your own family and achievement priorities. The

more inclusive setting may be better for developing social skills with

normal development peers. On the other hand, so long as their is an

open school setting, that will continue to exist, but at a lower level.

The right SPED environment is a chance for social development with

intellectual peers who may or may not be life long friends. This is not

assured, but I find that Jan really likes socialization with young women

like herself and considers them her best friends. You don't have to

agree with or go in the direction we have allowed.

What seems to me to be important is for each of our children to be

educated as close to their potential as possible. I think that many of

our kids achieve higher levels relative to their abilities than do the

regular students. Keeping the focus and love for learning is probably

more important than the setting in my mind.

Rick

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Sorry I am late chiming in on this.

has done well in school with inclusion at younger years,

mainstreaming later. When the time came for high school, we realized that

with her attention span, and the block scheduling in high school, that

academic classes for her would be extremely difficult. The block

scheduling gives the high schoolers four 90 minute classes in a school day.

So we really had to sit and look at her strengths and what we wanted out of

high school for her. has always been a very strong reader and enjoys

it. Math is weaker for her. The diploma track was just not an option for

her to pursue as she would have to pass the exit exams, and to be honest, I

thought it would be too much. Now that isn't being negative about her

abilities, just realistic.

Now will be graduating in June. She has had a wonderful high school

time. She is accepted at her school. She works in the media center and

office. She takes art and other classes. She has taken Food and

Nutrition, Fashion Design and Culinary Arts. She also goes to the PAES Lab

for job training. She has been the girls basketball team manager and truly

has been a good part of the team. If you ask her, and I have, she loves

high school. She has had academics, reading, math, science and history.

She works in the chemistry lab and participates in appropriate

experiments. So it has been a good experience for her.

After graduation, she will spend one year in a job training program, then

she will be going to Coastal Carolina University in the LIFE program. This

program is designed for young adults with developmental disabilities to

give them a college experience along with education and the future. And to

top it all off......if she had graduated with a diploma, she would not be

eligible for this program. When we were making her high school plans, I

didn't even know the LIFE program existed, so things do happen for a reason.

, I would suggest thinking past high school. If you would be

interested in a post secondary program, find out their admission

requirements, that may help you decide.

Sharon

Mom to , 20 with DS and , 16.

On Wed, Mar 21, 2012 at 2:20 PM, Kerrigan <leslie-kerrigan@...>wrote:

> **

>

>

> We are at a crossroads, and not sure which path to take. has

> been included in regular ed since kinder (some pullouts in elementary

> for math/reading, and now resource classes for math/reading.) She has

> always got good reviews from the regular ed teachers, as she

> participates, contributes, and really does seem to learn a lot (although

> does not necessarily test well here.) And, it's always a struggle to

> figure out how to get them to do their jobs and modify first, rather

> than giving her the regular assignments/hw and then having us either

> struggle/modify for her, or modify after the fact (but this is mostly my

> problem, not 's.) Overall, successful, and she is well liked

> by peers in these classes. In resources classes, she generally is able

> to do them with little help,although since math has moved to

> pre-algebra, we're having to teach her a set of rules to attack these

> problems, since it doesn't look like the teacher has. But, she's

> getting it, and did about half the homework independently (with her

> " rules " ) last night.

>

> So, as we try and make a plan for high school, and after a lot of

> discussion with the team (whose input is variable across the board, so

> they are not really helpful), we see that there are two paths. (1)

> Diploma track, which means all classes must be taken w/o modifications

> (only acccomodations). This would likely be met by taking all academics

> in a resource class (3 or 4 of 6 periods), and then being mainstreamed

> into regular ed electives and PE. Different from her current placement,

> and much more limited interactions with regular ed peers. OR, (2)

> Certificate of completion track, which means she just has to basically

> attend whichever classes to meet school requirements, but can be

> modified as needed. So, she could be in the awesome, dynamic bio

> teacher's class, and not do all the same work, but she'd be with her

> regular ed peers and a really interesting teacher/class (since resource

> just meets the standards, they are really " no-frills " which in our

> observation, was also kind of dull.) And be with the awesome kids she's

> been with primarily since kinder. But, with 45 kids in a fast-paced

> high school class, would the interactions be the same as in elementary

> and/or middle?

>

> Because our crystal ball is cloudy, we don't know if working towards a

> diploma will be of benefit to or not in her post-high school

> life :-) We think she can probably do it, but we're not sure if there

> will be a benefit to her. Those of you, especially with older kids, if

> you got a certificate of completion (or equivalent) did you ever feel

> that your child's options were limited w/o the diploma (in a job or

> situation that you know they were capable of, but someone wanted that

> piece of paper?) Or if anyone did go the diploma track, did you find

> that it was a benefit for your child, or did whatever they did post-high

> school depend more on job/vocational training and their abilities, and

> no one cared about the diploma.

>

> Thanks for reading, and any advice is appreciated!

> , mom to (16), (14 DS) and Sammy (12), auntie to

> (18)

>

>

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I have been thinking about this question since it was first posted. What

bothers me is that I'm not seeing anything that resembles inclusion being

offered to the student or IDEA requirements being met. The options seem to

be:

She can have access to the general education curriculum and environment, but

only IF she does not need any modifications and can manage with just

" accommodations. " But IDEA says " A child with a disability is not removed

from education in _age-appropriate regular classrooms_ solely because of

_needed modifications_ in the general education curriculum. "

She can have access to the general ed curriculum and needed modifications,

but only IF she is in an LD (self-contained) environment, so she can't have

LRE.

A third that usually seems to exist in some schools--not sure about

yours--is that she could be in the general ed environment, but would only

receive instruction in her IEP goals rather than the gen ed curriculum and

just not pursue a regular ed diploma--not sure where the requirement that

child with IEPs " make progress in the general education curriculum " has

gone, but many schools are not meeting it anymore under this menu.

A couple of other things that bothered me in the original post...

The poster says that she's been told students have only four years to earn

credits for the regular diploma - in our state, students can attend school

(without an IEP) until age 19 or 20 (can't remember offhand) with students

with an IEP can attend until age 21 inclusive. If they don't get all the

necessary credits, they can go an extra year, even two sometimes, to finish

taking and passing the necessary classes. Only receiving a regular diploma

ends public education eligibility before those ages. What do the state

regulations where you are (not just for sped, but secondary ed in general)

say about that?

In our state, the localities decide what grade is needed for passing a class

and receiving credit. Most cut off at a D, but some stop at C-. Again, you

have to look at state regs and local policies to know what the " rules " are

in your state and district.

Finally, a word about accommodations and modifications...IDEA has always

expected students with IEPs to be provided with " appropriate supports,

accommodations, and curriculum modifications. " The only federal prohibition

of modification is in state standardized testing; that is where only

accommodations are allowed. However, this area has become quite convoluted.

For example, at one time our state allowed taped oral readings of materials

for all standards except reading, creating a situation where a number of

kids could pass all their required standards, but couldn't graduate because

they couldn't read. Of course, the federal law doesn't require the standards

be high stakes for graduation; that was all the states' idea...lots of

craziness in education and sped right now--especially at the state and local

levels. I don't envy those with kids in still in school.

Judi

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Hi Judi,

Hope this answers some of your questions....

Our district is not saying she can't have the full inclusion she's been

having since kindergarten (yet) but they are saying that regular ed with

modifications doesn't meet the state standards (due to the

modifications) and therefore, she will not receive credit towards

graduation. She will receive credits under these circumstances towards

a certificate of completion. So, if we are fine with that being her

goal, then she can attend general ed academics and electives with

appropriate supports and modifications (and likely an aide.) She could

take longer to graduate (although we would like her to walk with her

class, as she has a sibling a year behind, and we'd like little sis to

have her own graduation, not have to share) and then participate in the

district transition/vocational/job skills/life skills program until age

21. So, basically, they want us to think about " diploma track " or

" certificate track " now so we choose the right classes for next year.

They will modify, and in fact, even have some classes that are

" collaborative " where they have one regular ed teacher, and a cluster of

special ed students and a special ed teacher, somehow team teaching the

class. Virtually all of these sped kids are on the diploma track, and

this is the added support they need, but they get accommodations and

hence graduation credit. But, this might be a good placement for

if we went for regular ed academics, as the sped teacher could

also modify (should we choose the certificate track.)

We were learning towards full inclusion, and not worrying about the

diploma, even though I think she could do it with resource classes

(which meet the graduation requirement, as they meet the state

standards.) Just weighting where she will be happier... she told me the

other day she wants to take resource everything because those classes

are easier than regular ed.... well, and then choir and french :-)

IEP part 2, with the high school resource teacher attending, will be in

a few weeks... hopefully we will have our list of questions ready for her!

, mom to (16), (14 DS), Sammy (12) and auntie to

(18)

On 3/26/2012 9:22 PM, FireRose wrote:

> I have been thinking about this question since it was first posted. What

> bothers me is that I'm not seeing anything that resembles inclusion being

> offered to the student or IDEA requirements being met. The options seem to

> be:

>

> She can have access to the general education curriculum and environment, but

> only IF she does not need any modifications and can manage with just

> " accommodations. " But IDEA says " A child with a disability is not removed

> from education in _age-appropriate regular classrooms_ solely because of

> _needed modifications_ in the general education curriculum. "

>

> She can have access to the general ed curriculum and needed modifications,

> but only IF she is in an LD (self-contained) environment, so she can't have

> LRE.

>

> A third that usually seems to exist in some schools--not sure about

> yours--is that she could be in the general ed environment, but would only

> receive instruction in her IEP goals rather than the gen ed curriculum and

> just not pursue a regular ed diploma--not sure where the requirement that

> child with IEPs " make progress in the general education curriculum " has

> gone, but many schools are not meeting it anymore under this menu.

>

> A couple of other things that bothered me in the original post...

>

> The poster says that she's been told students have only four years to earn

> credits for the regular diploma - in our state, students can attend school

> (without an IEP) until age 19 or 20 (can't remember offhand) with students

> with an IEP can attend until age 21 inclusive. If they don't get all the

> necessary credits, they can go an extra year, even two sometimes, to finish

> taking and passing the necessary classes. Only receiving a regular diploma

> ends public education eligibility before those ages. What do the state

> regulations where you are (not just for sped, but secondary ed in general)

> say about that?

>

> In our state, the localities decide what grade is needed for passing a class

> and receiving credit. Most cut off at a D, but some stop at C-. Again, you

> have to look at state regs and local policies to know what the " rules " are

> in your state and district.

>

> Finally, a word about accommodations and modifications...IDEA has always

> expected students with IEPs to be provided with " appropriate supports,

> accommodations, and curriculum modifications. " The only federal prohibition

> of modification is in state standardized testing; that is where only

> accommodations are allowed. However, this area has become quite convoluted.

> For example, at one time our state allowed taped oral readings of materials

> for all standards except reading, creating a situation where a number of

> kids could pass all their required standards, but couldn't graduate because

> they couldn't read. Of course, the federal law doesn't require the standards

> be high stakes for graduation; that was all the states' idea...lots of

> craziness in education and sped right now--especially at the state and local

> levels. I don't envy those with kids in still in school.

>

> Judi

>

>

>

>

>

>

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The big hidden thing here is that a diploma is supposed to represent

some base level of academic achievement. While that may be ignored in

some circumstances, doing so robs those getting the diploma of its

meaning. No matter what environment our kids are trained in, stretching

to meet the diploma level may or may not be possible .. depending upon

the upon both the student, the teaching environment, and the willingness

of the school to be flexible (bend the rules for a particular student).

Of the adults I know with down syndrome, there is little evidence that

the presence or absence of a diploma makes much difference except family

pride (or failure and disappointment if not achieved).

Rick

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