Re: Blog posts that may interest some of you

[Guest guest]

Loved your blog ! I have to say, my daughter is now 14,

and we've had many, many, many more of the " Ava " moments than the " park "

moments in her life. Like last year, in 7th grade, was

apparently seated near a CD player/speakers in Social studies, and

is disturbed by loud noises when she's trying to concentrate

(much like her Mom!) So not the regular ed teacher, resource teacher,

or aide thought that loud rock music playing during work time might be a

problem for , but one of the girls in her Scout troop came to

me and explained the situation, and thought that it was probably too

loud for ,and that maybe she'd rather have a different seat, as

it seemed to be making it hard for her to work! Smarts, good

observations, and compassion from that kiddo, and enough maturity to

seek me out to tell me. (No comment as to why none of the adults

noticed!) Many, many stories over the years of kids being wonderful

advocates for !

That said, I'm sure there are things that are said and done that we are

not aware of, but she has been raised as much as possible " just like the

other kids " and I think that her outlook on life is quite positive. She

has started asking lately, as a reason for things " Is that because I

have Down Syndrome? " Like her bloodwork came back today, her thyroid

is fine but her cholesterol is a little high... Told her " no, it's not

because you have Down Syndrome, it's because you love beef and hate to

exercise! " but it did make me wonder if she's hearing things, or just

really getting a better grasp on her situation.

Gabe is such a cutie! What a great family for him to belong to, with so

many brothers and sisters, nieces and nephews.... I'll be he is thriving!

, mom to (16), (14 DS), Sammy (12) and auntie to

(18) at the House of Teenagers!

On 3/23/2012 11:28 AM, keithslady316 wrote:

>

> I keep a blog for my distant friends and family but have a few recent

> posts on our 6-year-old son Gabe (ds) that might interest some of you.

>

> First, I wrote up a recap of Gabe's last year for his recent birthday.

> I really enjoy reading about the struggles and successes of other kids

> with DS since we just don't have any other kids in our small

> community. They just help me be prepared a little bit for what kinds

> of things to expect as we move forward. I thought some of you with

> younger kids might enjoy seeing the world of DS from Gabe's 6th year

> point of view.

> http://threesyllables.blogspot.com/2012/03/long-long-overdue-gabe-update.html

>

> The other post tells two stories of our experiences (this week in our

> community) of children's reactions to Gabe, one heart-rending, one

> encouraging.

> http://threesyllables.blogspot.com/2012/03/my-national-downs-syndrome-day.html

>

> --northern Wisconsin

>

>