Guest guest Posted July 7, 2005 Report Share Posted July 7, 2005 Dear Peggy, Thank you. I know what was in the vaccines she gave. She admitted to me after the fact, once my son was diagnosed at two, that three of the four shots he received that day contained thimerosal. She said, " Yes, but.. " and then she giggled as she continued to say, " It's safe. " He got 62.5 mcg that day and his total was 237. 5, I believe, over the first fifteen months of his life. He was always underweight, so I think that made a difference as well. This was confirmed at Dr. Cave's clinic. Thanks again, Haven Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2005 Report Share Posted July 17, 2005 I wonder if anyone knows any remedies for someone confinedto a wheel chair due to old sports injuries .. would ozone or homozon help any? appreciate any feedback, kathelee@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2005 Report Share Posted July 17, 2005 massage, exercise for stimulation if there is no sever of spinal nerves. Cranio Sacral Therapy is excellent with few contra indications. Kathelee <kathelee@...> wrote:I wonder if anyone knows any remedies for someone confinedto a wheel chair due to old sports injuries .. would ozone or homozon help any? appreciate any feedback, kathelee@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 > Kathelee <kathelee@...> wrote:I wonder if anyone knows any > remedies for > someone confinedto a wheel chair due to > old sports injuries .. > would ozone or homozon help any? > appreciate any feedback, > kathelee@... Google Scenar and LazrPulsr. Both can do wonders to help regenerate nerve tissue. Nenah Nenah Sylver, PhD http://www.nenahsylver.com * The Handbook of Rife Frequency Healing * The Holistic Handbook of Sauna Therapy * products and services for wellness Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 Re: re: question > nothing comes up for lazr pulsr > Is there any online groups for this please Therapeutic-Laser_Therapy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 > I wonder if anyone knows any remedies for someone confinedto a wheel > chair due to old sports injuries .. would ozone or homozon help any? > appreciate any feedback, kathelee@... Lymphosizing is probably the best general purpose way to rehabilitate someone like this - but they will need someone to help them until they are able to sustain the bouncing themselves. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 Hi Kathelee. This is such a broad question. I personally would like to have more information about this person. How serious is the injury? Is it in the knees or spine or??? Is there paralysis? Nerve damage? Joint damage? Muscle or tendon damage? And what have they done so far. There are so many options. Are they in pain? Far infrared is profoundly healing for tissues and joints and is a great pain reliever. Bromelain is a wonderful anti inflammatory, as is EMU oil and also msm. Colostrum helps rebuild joints fantastically. The Chi machine does wonders for paralysed people who cannot exercise, or disabled people who cannot exercise. Homozon is great if the bowel is slow, but really should be used after the person has made the right dietary changes to try to get results without success. Ozone can be helpful for almost anyone. . . Sunshine helps most everything. . .except sunburn. Chuckle. Lots of clean live water. . . I guess the suggestions could go on and on, But without more information about what the person has already done it is pretty much a guessing game. Blessings Donna http://www.excellentthings.com re: question I wonder if anyone knows any remedies for someone confinedto a wheel chair due to old sports injuries .. would ozone or homozon help any? appreciate any feedback, kathelee@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 thanks Re: re: question massage, exercise for stimulation if there is no sever of spinal nerves. Cranio Sacral Therapy is excellent with few contra indications. Kathelee <kathelee@...> wrote:I wonder if anyone knows any remedies for someone confinedto a wheel chair due to old sports injuries .. would ozone or homozon help any? appreciate any feedback, kathelee@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 thanks i'll find out more he's an ex football player and coach who can't walk and went to Duke university they can't find anything wrong with him ? I hate football and those kind of sports...they are brutal and i saw on tv one guy took four hours to get up after years of playing football is it really worth it? re: question I wonder if anyone knows any remedies for someone confinedto a wheel chair due to old sports injuries .. would ozone or homozon help any? appreciate any feedback, kathelee@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2005 Report Share Posted July 19, 2005 - There is an old 5000 year old Chinese Nei Gong exercise - Gently Slapping. Yes! Slapping. Try not to laugh. Start at the soles of your feet, top and bottom, gently slap them with both hands, one hand on top of your foot, and the other on the sole of your foot; then work your way up the legs, top and bottom, then go to the sides of your legs starting at your ankles, and slap your legs all the way up the sides to your hips. Then do the same thing from your pubic bone slapping all the way up over your chest with both hands on the front all the way up to your neck. If you can without straining, (no pun intended) start at the bottom of your behind and slap all the way up until you can't go any further to mid back; take both your hands over your shoulders (right and left) and slap all the way up to the top of your shoulders up the back of your neck and head and the sides of your head, up around the top of the crown of your head, and down your forehead, all over your face and around your ears down the front of your chin and neck. Now, do the same thing on both hands and arms all the way up to your shoulders. Start the same thing on top of one hand all the way up to the top of your shoulders, then the bottom of your hand all the way up to the top of your shoulders. Make sure you get both sides of your arm. Then do the other hand both top and bottom and sides. The idea here is to cover as much of your body as possible, gently slapping or gently tapping with your entire palm(s) of your hand and fingers to get the lymph and blood moving. Do this upon waking, before going to sleep, and once during the day. Every time you do this Nei Gong exercise, drink some hot water, like as in coffee hot. This is to help eliminate what you just released into the body's system, and get it out out of the body. Very important! You will feel great! No kidding. This is an excellent Eastern exercise that anyone can do, especially if you are wheelchair bound. If you can't reach your back or any other part of your body, simply imagine you are slapping this part. It will work just the same. Or maybe you can have a friend help. -- re: question > I wonder if anyone knows any remedies for someone confinedto a wheel > chair due to old sports injuries .. would ozone or homozon help any? > appreciate any feedback, kathelee@... Lymphosizing is probably the best general purpose way to rehabilitate someone like this - but they will need someone to help them until they are able to sustain the bouncing themselves. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2005 Report Share Posted August 1, 2005 Ursula: I was thinking about you this weekend. I was reading my handy " ons " internal medicine book (a little light reading) and it was mentioned that a reverse CD4/CD8 ratio indicates infectious mononucleosis/EBV. I believe you mentioned Les has that reverse ratio so I wanted to throw that out there at you. (mom to , age 6-1/2, dairy intolerant-related GERD -- currently has polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other defs... and also to Kate, age 2-1/2, more dairy intolerant but very healthy!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2005 Report Share Posted August 1, 2005 the first ones mention are t-cell tests. the 3 4 and 50 are complement tests. both are part of the immune system just different components. Do you know what the CD4 and CD8 counts run in your family? Ursula Holleman mom to (12 yrs old) and Macey (10 yr. old with CVID, Diabetes Insipidus, colonic inertia) http://members.cox.net/maceyh Immune Deficiency Foundation - Peer Contact for GA http://www.primaryimmune.org IDF Patient/Family Handbook http://www.primaryimmune.org/pubs/book_pats/book_pats.htm / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2005 Report Share Posted August 1, 2005 thanks. When I was battling chronic EBV about 2 years ago he was tested. The full 5 serotype test. IgG and IgM levels. plus the antinuclear. All were negative. Macey's IgM EBV test is also negative (since her IgG will always show positive because of the passive antibodies passed through IVIG). Dr. Myers at Duke has said that the inverted ratio is seen in CVID so they use it as a diagnostic marker. Ursula Holleman mom to (12 yrs old) and Macey (10 yr. old with CVID, Diabetes Insipidus, colonic inertia) http://members.cox.net/maceyh Immune Deficiency Foundation - Peer Contact for GA http://www.primaryimmune.org IDF Patient/Family Handbook http://www.primaryimmune.org/pubs/book_pats/book_pats.htm / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2005 Report Share Posted August 1, 2005 Hi all, Today is my first day on the program. I successfully completed a challenge about 2 years ago. I had good results. Not great, but definately good. Unfortunately, I habe not been anle to stick to a challenge since then. I have tried at least 10 times. I have also tried WW, SBD, .... the list goes on and on. Anyway, I am turning 30 on Friday (which will be my free day) I am determined to finish this challenge. BFL is the ONLY thing I have ever stuck with. Wish me luck! My question is for all of you who have been successful with BFL. Did you follow the program exactly? If not, what did you do differently? I'd really like to hear how many people who do extra cardio or only eat 5 meals instead of 6 and do not take a free day. I followed it by the book, including my free day. Free days were free days. I ate LOADS. Everything. I know it probably slowed my results, but I needed free day to stay on track during the week. I looked forward to my free day all week. Whenever I attended a party or something during the week it did not bother me to pass up a bowl of ice cream because I knew that I could eat a gallon of ice cream on the weekend without going off my diet. Id just wait till the weekend! Has anyone had great results eating lots on free day? Thanks, Looking forward to your responses. Tammy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2005 Report Share Posted August 2, 2005 Tammy if I eat loads on my free day, I don't see results. I have 1 free meal during the week, and that's it. Also if I stay on the lean- out foods that has on her website I do a lot better. I also have to drink TONS of water or I don't see results. Hope this helps! Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2005 Report Share Posted August 2, 2005 An insane free day will definitely slow (and in some cases stall) your progress, BUT, if it's the only way you can manage 6 great days out of 7 and you saw good progress, then I say do what works for you. BUT, I am about to post a ... post (lol) on my free day this week. If you've never had a look at the numbers, you might want to read it Phoenix Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2005 Report Share Posted August 2, 2005 In a message dated 8/1/2005 11:55:34 AM Central Standard Time, uahollem1@... writes: > Dr. Myers at Duke has said that the inverted ratio is > seen in CVID so they use it as a diagnostic marker Hmmm... interesting. Wouldn't you say that adds a t-cell component to the disorder? 's CD4/CD8 was fine, but her CD19 and CD3/CD8+ ratios are both lower than normal. Not hugely though, and her absolutes were fine, so the ID doc said it didn't mean anything (then why have a normal to compare it to?). The CD19 (B-cell) actually makes sense considering her ab issue, but I'm not sure what the other one could mean. If at some point we do another workup (with a new practice), I guess I want to see those #s checked again. Meanwhile, what a great summer! Wish it could go on forever. (mom to , age 6-1/2, dairy intolerant-related GERD -- currently has polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other defs... and also to Kate, age 2-1/2, more dairy intolerant but very healthy!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2005 Report Share Posted August 2, 2005 If you'd like my story and what I did during my program, visit my blog and scroll down a bit - i posted all my results and such http://fuzzyelfone.blogspot.com/ tammy benton wrote: > Hi all, > Today is my first day on the program. I successfully > completed a challenge about 2 years ago. I had good > results. Not great, but definately good. > Unfortunately, I habe not been anle to stick to a > challenge since then. I have tried at least 10 times. > I have also tried WW, SBD, .... the list goes on and > on. > Anyway, I am turning 30 on Friday (which will be my > free day) I am determined to finish this challenge. > BFL is the ONLY thing I have ever stuck with. Wish me > luck! > My question is for all of you who have been successful > with BFL. Did you follow the program exactly? > If not, what did you do differently? I'd really like > to hear how many people who do extra cardio or only > eat 5 meals instead of 6 and do not take a free day. > I followed it by the book, including my free day. Free > days were free days. I ate LOADS. Everything. I know > it probably slowed my results, but I needed free day > to stay on track during the week. I looked forward to > my free day all week. > Whenever I attended a party or something during the > week it did not bother me to pass up a bowl of ice > cream because I knew that I could eat a gallon of ice > cream on the weekend without going off my diet. Id > just wait till the weekend! > Has anyone had great results eating lots on free day? > > Thanks, Looking forward to your responses. > Tammy > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2005 Report Share Posted August 2, 2005 This is interesting....Chris' CD4/CD8 was inverted at the time of his CVID diagnosis. I don't think it has been re-tested since. They also thought the last big illness chris had before his diagnosis was MONO, very severe mono. But when the infection disease Dr. saw the inversion, she sent us immediately for an HIV test and to an oncologist...(I started smoking again that day!!!...but have since quit Needless to say, no HIV, but instead CVID. What I don't know is if the numbers are still inverted...Is that something they normally monitor regularly?? Kim (Mom to 8 - CVID; Nick 10 and 6 Re: question > In a message dated 8/1/2005 11:55:34 AM Central Standard Time, > uahollem1@... writes: > > >> Dr. Myers at Duke has said that the inverted ratio is >> seen in CVID so they use it as a diagnostic marker > > Hmmm... interesting. Wouldn't you say that adds a t-cell component to the > disorder? > > 's CD4/CD8 was fine, but her CD19 and CD3/CD8+ ratios are both lower > than normal. Not hugely though, and her absolutes were fine, so the ID doc > said > it didn't mean anything (then why have a normal to compare it to?). The > CD19 > (B-cell) actually makes sense considering her ab issue, but I'm not sure > what > the other one could mean. If at some point we do another workup (with a > new > practice), I guess I want to see those #s checked again. > > Meanwhile, what a great summer! Wish it could go on forever. > > (mom to , age 6-1/2, dairy intolerant-related GERD -- currently > has polysaccharide antibody def, previously had transient IgG, IgA, t-cell > & > other defs... and also to Kate, age 2-1/2, more dairy intolerant but very > healthy!) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2005 Report Share Posted August 18, 2005 Cheryl - were any labs drawn to know if she has normal levels of her vaccinations? These are sometimes called function tests and they usually draw levels to see if the Prevnar and MMR vaccinations produced a sufficient amount of antibody protection. Also I would have an appointment with an immunologist. An allergist might be board certified in immunology but that doesn't mean that they are a practicing physician in it or have any clinical experience. Our first doc was an allergist because that was the closest thing around and our ped had no other patients with this disease so she sent us there. She knew he was " board certified " but he didn't know squat (and he'd be the first to tell you that). He had us thinking all kinds of things. Eventually we were sent on to an immunologist who ordered the right testing and Macey was diagnosed. I've always liked IgA numbers above 40 or so. Different labs will tell you different levels. Macey's recent labs showed her IgA to be " low " but it was 58. 58 is a great number to me and when I questioned our Pediatric Immunologist about it she couldn't figure out where that lab came up with its numbers. Hope that helps. Ursula Holleman mom to (12 yrs old) and Macey (10 yr. old with CVID, Diabetes Insipidus, colonic inertia) http://members.cox.net/maceyh Immune Deficiency Foundation - Peer Contact for GA http://www.primaryimmune.org IDF Patient/Family Handbook http://www.primaryimmune.org/pubs/book_pats/book_pats.htm / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2005 Report Share Posted August 18, 2005 It sounds like he has some clue. Her numbers while low are functional if he said the other results were good. Now treatment would depend on her clinical status. There are patients who have IgG in the 300's who are stable medically and don't seek treatment. Probably more than we know because they never get tested. But if she's low and staying infected then treatment should be sought. If he won't pursue the matter it might require another opinion. Her number being what it is and her function being good she would be termed Hypogammaglobulinemic and hopefully will not progress any further. Ursula Holleman mom to (12 yrs old) and Macey (10 yr. old with CVID, Diabetes Insipidus, colonic inertia) http://members.cox.net/maceyh Immune Deficiency Foundation - Peer Contact for GA http://www.primaryimmune.org IDF Patient/Family Handbook http://www.primaryimmune.org/pubs/book_pats/book_pats.htm / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2005 Report Share Posted August 18, 2005 Thanks again Ursula. Aly is clinically doing well, although summer is usually a healthy time for her. She can eat when and what she wants, she can sleep late, and no one is coughing and sneezing on her. Once school starts we generally are not as healthy. The last two winters we have struggled with chronic pneumonia, which is what led to the blood work last spring. Her ped feels as though she would benefit from prophylactic antibiotics during the winter and I imagine she will end up on Amox., which is fine with me. Anything to give her a little advantage. Thanks again, Cheryl --- Ursula Holleman <uahollem1@...> wrote: --------------------------------- It sounds like he has some clue. Her numbers while low are functional if he said the other results were good. Now treatment would depend on her clinical status. There are patients who have IgG in the 300's who are stable medically and don't seek treatment. Probably more than we know because they never get tested. But if she's low and staying infected then treatment should be sought. If he won't pursue the matter it might require another opinion. Her number being what it is and her function being good she would be termed Hypogammaglobulinemic and hopefully will not progress any further. Ursula Holleman mom to (12 yrs old) and Macey (10 yr. old with CVID, Diabetes Insipidus, colonic inertia) http://members.cox.net/maceyh Immune Deficiency Foundation - Peer Contact for GA http://www.primaryimmune.org IDF Patient/Family Handbook http://www.primaryimmune.org/pubs/book_pats/book_pats.htm / This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribegroups (DOT) To search group archives go to: /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Hey Jen, The memory thing happens to all of us in varying degrees. Next time you have blood work done ask them to check your ammonia levels, the higher it is, the worse your short time memory is. I spend a lot of time in various rooms wondering what in hell I was going to do there but at least I don't get lost driving home from the grocery store like some people I could name. Write things down, anything & everything. Start a a diary 'cause half the stuff you do now you won't remember tomorrow or even this afternoon. Kathy Boo re posted an article called Brain Fog last week, read it - it says it all. I can't address the add but I'm on effexor - I'm sleeping a lot but that's the fatigue - normal with HCV. I had to hire a kid to mow my lawn & I can't even keep my cheque book in order, I'm just taking the banks addition on faith. Having HCV is like having a low grade flu, achy all over & blech are normal at least in my life. You might have your doctor check your viral load but it won't necessarily be elevated - viral loads aren't that good a marker for viral activity. It comes & goes with me, I can never tell from one day to the next how much energy I'm going to have, whether I'll be on the couch all day or out weeding the garden, you just have to(excuse me for this) go with the flow & don't expect too much of yourself. SuZie Jen <diegowench@...> wrote: Hey. I have been wondering - I have really been feeling like crap lately. The arthritis is kicking in big time, and I cannot concentrate etc., I take concerta (time released ritalin) for my add, but it isn't helping at all - all I want to do is sleep. I am forgetting stuff (short term not long term) which is bad because I have a borderline photographic memory. I don't know what in the heck is going on. I am almost maxed out on my AD (zoloft), which I tend to do with all the ADs that they try me on. Plus I just feel achy all over and just blech. Should I be worried about this? Therefore do not be anxious about tomorrow, for tomorrow will be anxious for itself. Sufficient for the day is its own trouble. 6:34 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 suzie: I guess I am spoiled - I felt like this prior to tx, but haven't felt this bad in years. I guess I got used to having a low energy level, but feeling pretty ok. I had blood work yesterday, my doc is so funny - he did an acute hep panel (I was like - hey I have been chronic for probably 9 years!!!) but whatever, they also did a metabolic function/chem panel/thyroid function - I asked them to fax me with the results, so I have them on hand (thanks guys - for giving me the nerve to do that). I worked in the medical field for a long time - and have no problem with that kind of stuff, but I really guess I didn't want to deal with any of this and pushed it to be back of my mind. I have huge files on all of the other stuff that goes wrong - especially with the kids... but this I guess I really didn't want to deal with. I read the book, front to back, and the only thing I really appreciated was the breakdown of the lab tests, so I have it on my bedside table - think I need to get the newer version. suzie <suzieandsandy@...> wrote: Hey Jen, The memory thing happens to all of us in varying degrees. Next time you have blood work done ask them to check your ammonia levels, the higher it is, the worse your short time memory is. I spend a lot of time in various rooms wondering what in hell I was going to do there but at least I don't get lost driving home from the grocery store like some people I could name. Write things down, anything & everything. Start a a diary 'cause half the stuff you do now you won't remember tomorrow or even this afternoon. Kathy Boo re posted an article called Brain Fog last week, read it - it says it all. I can't address the add but I'm on effexor - I'm sleeping a lot but that's the fatigue - normal with HCV. I had to hire a kid to mow my lawn & I can't even keep my cheque book in order, I'm just taking the banks addition on faith. Having HCV is like having a low grade flu, achy all over & blech are normal at least in my life. You might have your doctor check your viral load but it won't necessarily be elevated - viral loads aren't that good a marker for viral activity. It comes & goes with me, I can never tell from one day to the next how much energy I'm going to have, whether I'll be on the couch all day or out weeding the garden, you just have to(excuse me for this) go with the flow & don't expect too much of yourself. SuZie Jen <diegowench@...> wrote: Hey. I have been wondering - I have really been feeling like crap lately. The arthritis is kicking in big time, and I cannot concentrate etc., I take concerta (time released ritalin) for my add, but it isn't helping at all - all I want to do is sleep. I am forgetting stuff (short term not long term) which is bad because I have a borderline photographic memory. I don't know what in the heck is going on. I am almost maxed out on my AD (zoloft), which I tend to do with all the ADs that they try me on. Plus I just feel achy all over and just blech. Should I be worried about this? Therefore do not be anxious about tomorrow, for tomorrow will be anxious for itself. Sufficient for the day is its own trouble. 6:34 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Are you on treatment Jen?Sounds like treatment sides unless you are getting a flare up. Gail http://deveauxkennels.tk mailto:gaila@... Question Hey. I have been wondering - I have really been feeling like crap lately. The arthritis is kicking in big time, and I cannot concentrate etc., I take concerta (time released ritalin) for my add, but it isn't helping at all - all I want to do is sleep. I am forgetting stuff (short term not long term) which is bad because I have a borderline photographic memory. I don't know what in the heck is going on. I am almost maxed out on my AD (zoloft), which I tend to do with all the ADs that they try me on. Plus I just feel achy all over and just blech. Should I be worried about this? Therefore do not be anxious about tomorrow, for tomorrow will be anxious for itself. Sufficient for the day is its own trouble. 6:34 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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