Question

August 25, 2005

I did the Peg-Intron monotherapy 1 year for the first tx, no ribavarin. I am on antidepressants now, they would probably have to add a second one. The Peg-Intron caused horrific aggression and anxiety with me. Do you know if the other forms do the same thing? I am bipolar so the effects I was told are somewhat exaggerated.Gail Deveaux <gaila@...> wrote:

You can't use the same treatment again because the virus has built up an tolerance for the old treatment.You have to go on antidepressents during treatment and you will be fine emotionally,but still foggy.Find out if the virus is still active,then talk about treatment if it is and if they will treat you with antidepressents along with the treatment.Peg-Intron is the next step for treatment.It is one shot a wk and pills every day.As for your arthritis.Yes the hep c will give it to you and treatment increases the chance of getting it.I to have been diagnosed with ostiporosis and have to take calcium every day and 1 pill a wk of 50,000 units of vitamin D to maintain my bone density.Advil helps on the bad days.All forms of treatments also have to be used with anti depressents because of the sides from treatment.One of the girls here is on a new treatment and we are waiting to see how it goes.Take care

girl.

Gail

http://deveauxkennels.tk

mailto:gaila@...

Question

Hey. I have been wondering - I have really been feeling like crap lately. The arthritis is kicking in big time, and I cannot concentrate etc., I take concerta (time released ritalin) for my add, but it isn't helping at all - all I want to do is sleep. I am forgetting stuff (short term not long term) which is bad because I have a borderline photographic memory. I don't know what in the heck is going on. I am almost maxed out on my AD (zoloft), which I tend to do with all the ADs that they try me on. Plus I just feel achy all over and just blech. Should I be worried about this?

Therefore do not be anxious about tomorrow, for tomorrow will be anxious for itself. Sufficient for the day is its own trouble. 6:34

__________________________________________________

August 25, 2005

I did the Peg-Intron monotherapy 1 year for the first tx, no ribavarin. I am on antidepressants now, they would probably have to add a second one. The Peg-Intron caused horrific aggression and anxiety with me. Do you know if the other forms do the same thing? I am bipolar so the effects I was told are somewhat exaggerated.Gail Deveaux <gaila@...> wrote:

You can't use the same treatment again because the virus has built up an tolerance for the old treatment.You have to go on antidepressents during treatment and you will be fine emotionally,but still foggy.Find out if the virus is still active,then talk about treatment if it is and if they will treat you with antidepressents along with the treatment.Peg-Intron is the next step for treatment.It is one shot a wk and pills every day.As for your arthritis.Yes the hep c will give it to you and treatment increases the chance of getting it.I to have been diagnosed with ostiporosis and have to take calcium every day and 1 pill a wk of 50,000 units of vitamin D to maintain my bone density.Advil helps on the bad days.All forms of treatments also have to be used with anti depressents because of the sides from treatment.One of the girls here is on a new treatment and we are waiting to see how it goes.Take care

girl.

Gail

http://deveauxkennels.tk

mailto:gaila@...

Question

Hey. I have been wondering - I have really been feeling like crap lately. The arthritis is kicking in big time, and I cannot concentrate etc., I take concerta (time released ritalin) for my add, but it isn't helping at all - all I want to do is sleep. I am forgetting stuff (short term not long term) which is bad because I have a borderline photographic memory. I don't know what in the heck is going on. I am almost maxed out on my AD (zoloft), which I tend to do with all the ADs that they try me on. Plus I just feel achy all over and just blech. Should I be worried about this?

Therefore do not be anxious about tomorrow, for tomorrow will be anxious for itself. Sufficient for the day is its own trouble. 6:34

__________________________________________________

August 25, 2005

Pegesis isn't to bad with the pills also included.You need the dual therapy and it is also the pills that do more of a head trip then the shot.That is why we call it riba rage from the riboveron.I didn't have any control over my mind or temper when I was on interferon and riboveron for one year.I did it in 98-99 and we were not allowed anything for sides except tylenol.This group has a girl right now on a new trial drug so stay with it and every day read the notes.She seems to be doing ok with the drugs and only gets a shot every second wk and pills.I think with your by polor most treatments will be hard on you,but the doctors should know what medication to put you on to keep you at a level temperment.

Gail

http://deveauxkennels.tk

mailto:gaila@...

Question

Hey. I have been wondering - I have really been feeling like crap lately. The arthritis is kicking in big time, and I cannot concentrate etc., I take concerta (time released ritalin) for my add, but it isn't helping at all - all I want to do is sleep. I am forgetting stuff (short term not long term) which is bad because I have a borderline photographic memory. I don't know what in the heck is going on. I am almost maxed out on my AD (zoloft), which I tend to do with all the ADs that they try me on. Plus I just feel achy all over and just blech. Should I be worried about this?

Therefore do not be anxious about tomorrow, for tomorrow will be anxious for itself. Sufficient for the day is its own trouble. 6:34

__________________________________________________

August 25, 2005

Pegesis isn't to bad with the pills also included.You need the dual therapy and it is also the pills that do more of a head trip then the shot.That is why we call it riba rage from the riboveron.I didn't have any control over my mind or temper when I was on interferon and riboveron for one year.I did it in 98-99 and we were not allowed anything for sides except tylenol.This group has a girl right now on a new trial drug so stay with it and every day read the notes.She seems to be doing ok with the drugs and only gets a shot every second wk and pills.I think with your by polor most treatments will be hard on you,but the doctors should know what medication to put you on to keep you at a level temperment.

Gail

http://deveauxkennels.tk

mailto:gaila@...

Question

Hey. I have been wondering - I have really been feeling like crap lately. The arthritis is kicking in big time, and I cannot concentrate etc., I take concerta (time released ritalin) for my add, but it isn't helping at all - all I want to do is sleep. I am forgetting stuff (short term not long term) which is bad because I have a borderline photographic memory. I don't know what in the heck is going on. I am almost maxed out on my AD (zoloft), which I tend to do with all the ADs that they try me on. Plus I just feel achy all over and just blech. Should I be worried about this?

Therefore do not be anxious about tomorrow, for tomorrow will be anxious for itself. Sufficient for the day is its own trouble. 6:34

__________________________________________________

August 31, 2005

At 09:58 AM 8/30/2005, you wrote:

>Can someone direct me to pomegranate essential oil and a source for it?

Hi

There is supposedly a pomegranate *seed* absolute. I have two refs for it.

I suggest getting a sample first. I know nothing about these companies:

http://www.victorie-inc.us/pomegranate_rare.html

http://www.aromathyme.com/essentialoils3.html

>Also is there a pomegranate carrier oil? If so, where can I get it?

I did a google and found lots of refs for the carrier oil:

http://www.google.com/search?num=100 & hl=en & lr= & newwindow=1 & safe=off & q=%22pomegra\

nate+oil%22 & btnG=Search

Anya

http://.com

The premier site on the Web to discover the beauty of Natural Perfume

" The Age of the Foodie is passé. It is now the Age of the Scentie. "

September 21, 2005

Vaccines are a weak form of inoculation, just as prophylatics are a

weak form of birth control.

If you mistakenly think either are highly effective, you're screwed.

Lenny

> what is the difference between

> vaccines and

> inoculations,

> if any?

>

> thanks-

>

> ps- just trying to keep my terms straight

September 30, 2005

Ellipticals are one of the newer pieces of cardio equipment, so the

equations used to calculate calorie burn on them have been tested on

the fewer people. That means they can be pretty far-fetched.

Here was a good Q & A I saw on it:

Q: When I work out on the elliptical trainer at my gym for an hour;

the machine tells me I have burned 850-950 calories. But when I enter

this activity on Internet calorie counters, I'm told that I'm burning

only 500-600 calories per hour. Just how accurate are the cardio

machines?

A: " They can be anywhere from right on the money to 50 percent off, "

says Porcari, Ph.D., a cardio-machine researcher and professor in

the department of exercise and sports science at the University of

Wisconsin in La Crosse. Machines that require you to enter your body

weight tend to be more accurate than those that don't, Porcari says.

But even that feature does not ensure accuracy.

Treadmills are typically the most accurate of the cardio machines,

says Porcari: They have been around the longest, so the equations used

to estimate calorie burn at various speeds and inclines have been

tested on more subjects. Ellipticals, a more-recent addition to the

machine category, tend to offer less-precise calorie estimates.

" Ellipticals can be off 20-30 percent, and tend to be off on the high

side, " Porcari says.

Most women burn 500-650 calories after an hour of exercise on cardio

machines, says Porcari. To burn 850-950 calories, he adds, " you'd have

to be a fairly large woman going full-bore. "

On 9/29/05, <savanah_7@...> wrote:

> How " off " are elliptical machines, for example, percentage wise, when

> calculating calories--the one I use asks for your weight and the

> handles measure your heartrate (although there are intervals were you

> don't use your arms)? Thanks.

>

October 31, 2005

Hi,

I'm trying to learn this all and hopefully will

have the money to buy the ozonesauna and

necessary appartus to help my cousin with

the sports injuries confined to a wheelchair.

He was diagnosed with MS, which I beleive

Dr. Pressman said is curable with ozone.

How do I learn all this stuff...is it better to

take him to a doctor?

I want to learn it...I am concerned as I suspect

he or anyone would be being used to learn on.

Also, the many other remedies I 've read...

do you mix remedies....its a bit overwhelming..

I would appreciate an explaination...Is there

a course somewhere...?

How do you become proficient at it....I am very

concerned not to do more harm than goood to

anyone...

Appreciate any feedback,

kathelee

kathelee@...

Matt: 10:16

November 1, 2005

Hello people,

Maybe I have told it here before but I suffer from Progressive MS. The

therapies I tried have not stopped it. And I have tried colloidal silver

too, for a long time, with some result. I think it varies but mild forms

could get good improvement, and severe cases are having problems with

silver, or any other therapie.

Also due to side effects. I have tried many supplements, vitamins etc. but

it all helps for some time....

I did work on my dental situation too: had amalgam removed when I got the

diagnose.(not with cofferdam unfortunately) It may have helped to a certain

extent; but the mercury is still in the body of course, although I take

chlorella.

I have tried ozone too, as an ozone sauna and ozonated water.

The problem with ozonated water is that it severely reduced my appetite. The

problem with the sauna is that people with MS suffer in hot temperatures....

so it increases the problem (at least temporarily).

I have been to an accupuncturist who says the problem with many people with

MS is that they received dental injections with articaine, which is

inhibiting a certain enzym. That is causing the problem with B12.

I guess that maybe she is right, and many MS-ers have problems with

methylation. In that case, supplementing B12 is not offering the solution.

It may increase in the blood, but it may not increase inside the

cell-membrane. This acupuncturist is now working on me to antidote the

articaine

Hope this helps...

Cathalijne (MS-patient for 10 years)

The Netherlands

-----Oorspronkelijk bericht-----

Van: oxyplus [mailto:oxyplus ]Namens

Kathelee

Verzonden: dinsdag 1 november 2005 14:24

Aan: oxyplus

Onderwerp: Re: Re: question

thanks Gail

I searched briefly the Gerson diet and it says for cancer...

http://www.cancerhelp.org.uk/help/default.asp?page=6019

Re: question

Hi Kathelee,

You might also consider looking into CS (colloidal silver). There

was a testimony about a woman who drank large amounts (16 oz.)

daily. After three weeks, she started getting feeling in her feet.

I can't remember all the story now. Seems like after about a year

she started getting CS IV's. At some point she also started adding

some H202 in the CS as it is suppose to help somehow. But the end of

the story is she healed herself of MS. I wish I had a website with

her testimony so you could read it, but I don't. If anybody reading

this knows more, please chime in.

Also, there is a man on Beck-n-stuff that talked about his wife

healing herself with some diet. I'm thinking it was the Gerson diet,

but maybe not. She, herself, has also posted about her recovery, but

it has been a long time since either one of them has posted. It was

not a complete recovery, but she was at death's door and regained a

large portion of her health. She also did BEing (blood

electrificating and maybe rife), I believe. Funny, tho, the part of

her story that stands out to me is she said she could never have done

it without her husband as he was the one preparing the food, and that

she regained her typing ability. Seems like she could type really

fast like 90 words a minute or something like that. That really

impressed me. And her husband really impressed me, also. He is a

man who loves his wife and that shone through all his posts. Mind

you, tho, she was not totally healed, but was doing very well.

Both these treatments are very inexpensive. You can make you own CS

for just pennys a gallon. You might want to join a CS egroup to get

more information.

Actually, I'm thinking the diet might have been the Bugwig diet

instead of the Gerson.

Best wishes,

Gail

>

> Hi,

>

> I'm trying to learn this all and hopefully will

> have the money to buy the ozonesauna and

> necessary appartus to help my cousin with

> the sports injuries confined to a wheelchair.

> He was diagnosed with MS, which I beleive

> Dr. Pressman said is curable with ozone.

> How do I learn all this stuff...is it better to

> take him to a doctor?

> I want to learn it...I am concerned as I suspect

> he or anyone would be being used to learn on.

> Also, the many other remedies I 've read...

> do you mix remedies....its a bit overwhelming..

> I would appreciate an explaination...Is there

> a course somewhere...?

> How do you become proficient at it....I am very

> concerned not to do more harm than goood to

> anyone...

> Appreciate any feedback,

> kathelee

> kathelee@v...

> Matt: 10:16

>

November 1, 2005

Cathalijn you could also look into Low Dose Nalterexone

http://www.low dose naltrexone.org/ldn_and_ms.htm

It seems to stop the progression of MS for many people.

RE: Re: question

>

> Hello people,

>

> Maybe I have told it here before but I suffer from Progressive MS. The

> therapies I tried have not stopped it.

>

November 2, 2005

Hi Cathalijne,

> Maybe I have told it here before but I suffer from Progressive MS. The...

Here are some links from Dr. Mercola's website on MS that may be of use to

you.

Vitamin D For MS Patients Free twice-weekly natural health newsletter of top

medical news on subjects including splenda, soy, sucralose, statins,

insulin, aspartame, prevention and ...

<http://www.mercola.com/2001/apr/25/vitamin_d.htm>

www.mercola.com/2001/apr/25/vitamin_d.htm - Similar pages

An Herbal Remedy for MS 5/11/05 MS patients have long suspected this herb

improves disease symptoms ... and it does. Just another natural treatment

that reduces your reliance on toxic ...

<http://www.mercola.com/2005/may/11/ms_remedy.htm>

www.mercola.com/2005/may/11/ms_remedy.htm - Similar pages

Sunlight Exposure Beneficial In Multiple Sclerosis 5/28/00 ... from multiple

sclerosis (MS) was found to be reduced by exposure to sunlight. Depending on

the degree of sunlight exposure, the risk of death from MS ...

<http://www.mercola.com/2000/may/28/sunlight_m_s.htm>

www.mercola.com/2000/may/28/sunlight_m_s.htm - Similar pages

Amazing Recovery From Multiple Sclerosis 10/11/03 The longest study to date

on therapies for multiple sclerosis (MS) ... " I was diagnosed with multiple

sclerosis (MS) on May 1, 1999 and was put on Avonex ...

<http://www.mercola.com/2003/oct/11/ms_success.htm>

www.mercola.com/2003/oct/11/ms_success.htm - Similar pages

Best,

November 18, 2005

I never asked that question. But, Ian was only sedated for his MRI too and he moved around a lot during the MRI. I know they were worried that they weren't going to be able to complete the MRI because they had to retake some images as he was moving so much and was starting to wake up before they finished. However, his was oral and not administered through an IV like Lexi's was.

I'd be interested to hear what they say if you ask about it.

Noelle (12-2-01)Ian (8-15-04)

question

after thinking about the anesthesia concern,,,,,,,i am going to ask dr. sander's why they need full blown general and not just a sedation. when lexi had her mri they gave her anesthesia through an iv that completely wiped her out into a deep sleep.....it lasted for about 2 hours before she woke up. i am wondering why they can't just use this method for the casting. i don't see the need for complete loss of sensation that general anesthesia produces for c asting since it is not a surgical operation.anyone out there ever asked this question? if so, what was your response.tracey

November 18, 2005

Yes we have asked this question. Due to the force placed on the spine and in turn organs and posibly airway/lungs, etc. Its a safety precaution. You may have read resently one little girls BP dropped out and they had to cut off the cast. I did read someones child wasn't intubated, but when we asked we were told it was NOT an option. We have tried because our daughter does have a small airway that is very hard to intubate! My whole fear of casting is that she is put out. I am terrified of her airway.... :-/ Beth th77381 <pthahn@...> wrote: after thinking about the anesthesia concern,,,,,,,i am going to ask dr. sander's why they need full blown general and not just a sedation. when lexi had her mri they

gave her anesthesia through an iv that completely wiped her out into a deep sleep.....it lasted for about 2 hours before she woke up. i am wondering why they can't just use this method for the casting. i don't see the need for complete loss of sensation that general anesthesia produces for c asting since it is not a surgical operation. anyone out there ever asked this question? if so, what was your response. tracey

FareChase - Search multiple travel sites in one click.

November 18, 2005

Tracey, I had no idea you had so many medical issues to deal with. God bless you and little Lexi. She is a beautiful and happy little girl and was a pleasure to be around. Good luck with everything, and I'll be praying for you both. As for the anesthesia, Jake was sedated (not completely unconscious) during his MRI like Ian, but his was through the IV. The docs also said he was fighting the med (whatever it was) and kept trying to wake up before the scan was complete. Maybe this is why our little ones are "put under"? And you know, I've never thought of the implications of repeated periods of general anesthesia. You learn something new everyday. mom to and Jake Claflin <noellesmommy@...> wrote: I never asked that question. But, Ian was only sedated for his MRI too and he moved around a lot during the MRI. I know they were worried that they weren't going to be able to complete the MRI because they had to retake some images as he was moving so much and was starting to wake up before they finished. However, his was oral and not administered through an IV like Lexi's was. I'd be interested to hear what they say if you ask about it. Noelle (12-2-01)Ian (8-15-04) question after thinking about the anesthesia concern,,,,,,,i am going to ask dr. sander's why they need full blown general and not just a sedation. when lexi had her mri they gave her anesthesia through an iv that completely wiped her out into a deep sleep.....it lasted for about 2 hours before she woke up. i am wondering why they can't just use this method for the casting. i don't see the need for complete loss of sensation that general anesthesia produces for

c asting since it is not a surgical operation.anyone out there ever asked this question? if so, what was your response.tracey

FareChase - Search multiple travel sites in one click.

November 18, 2005

I haven't ever asked the question but the deep sleep sedation they do for MRI's takes hours to wear off completely so if you child is walking they walk like a drunk. Sammy had to have 2 MRI's one when she was quite young and she came out of the deep sleep stuff fine, but the second time when she was 2 and 1/2 it was horrible!! I would never have her do that stuff again.

E

From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of th77381Sent: Friday, November 18, 2005 11:13 AMinfantile scoliosis treatment Subject: question

after thinking about the anesthesia concern,,,,,,,i am going to ask dr. sander's why they need full blown general and not just a sedation. when lexi had her mri they gave her anesthesia through an iv that completely wiped her out into a deep sleep.....it lasted for about 2 hours before she woke up. i am wondering why they can't just use this method for the casting. i don't see the need for complete loss of sensation that general anesthesia produces for c asting since it is not a surgical operation.anyone out there ever asked this question? if so, what was your response.tracey

November 20, 2005

Hi Tracey,

I understand the fears and concerns we, as parents

have, about repeated anesthesia. Most of the time we

know that a procedure HAS to be done, so we trust our

child's life to the anesthesiologist to know how to

keep them safe and healthy. As a parent, I've had

similar concerns. Braydon just had his 18th major

surgery last week, and he's had multiple other

" conscious sedations " for other testing and such

(i.e., endoscopies, MRIs, etc.). One of our

hospital's pediatric anesthesiologists explained to me

that people (children included) do not build up a

tolerance to anesthesia. The drugs they use are in

the body's system only temporarily. I had asked about

anesthesia effects because she told me that Braydon

requires a higher-than-normal amount of anesthesia to

get him completely sedated for surgery. I know this

isn't specifically what you are concerned about, but

it was something " I " was worried about (building up a

tolerance/resistance to anesthesia).

Also, I learned that repeated intubations can cause

scar tissue in the throat/windpipe. It is VERY

important to have an experienced anesthesiologist do

the intubations, and not a student doc. Braydon has

repeated surgeries. This was a big wake-up call for

me. Some of his surgeries he's had a very

sore/scratchy throat because of the intubation. He

has never bled from the intubation (that I know of) so

that's a good thing. He has enough strikes against

him that if I can keep his airway scar tissue-free,

I'm going to do it.

Good luck getting your questions answered.

Carmell

mom to Kara 19, idiopathic scoliosis, Blake 15, GERD and Braydon 10, VACTERL,

GERD, DGE, Titanium Rib Project patient #137 (dbl implant 8/01), thoracic

insufficiency, rib anomalies, congenital scoliosis (fusion surgery 5/96),

missing coccyx, fatty filum/TC (released 4/99), anal stenosis, chronic

constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney,

ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic

bladder, bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion,

clubfoot with 8 toes (reconstructed 2/96, 3/96, 1/97, 3/04), pes cavus, single

umblilical artery, tonsil-adnoidectomy and ear tubes (3/98), etc.

http://carmellb-ivil.tripod.com/myfamily/

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

December 10, 2005

Hi Sandi,

used Emla or ElaMax for the past 4 years for every stick and we

never had a problem. He is 9 now and has decided he doesn't need it anymore

so we haven't used it for about 6 months or so. Actually, I think his nurse

said the numbing cream can sometimes make it a harder stick, but in our

case, has great veins so we were usually pretty ok. But we never had

the infiltration problem.

But I also know for us if there is a statistic to fall into, we usually

do to, unfortunately! Is your son a hard stick normally. Maybe the cream

made it harder? Have you tried heat to the site? We used one of those hand

warmers that you can break or stick in the microwave. That helped when the

cream made it a little hard to get in. Just a suggestion.

Kim, Mom to 9 - CVID

Question

> Hi All,

> Yesterday was Bri's IVIG day. This time, we tried something different

> and

> used L-M-X- cream for numbing. He is an easy stick, so we knew in advance

> where the IV would be placed. I put it on about an hour before we got to

> the

> hospital.

> For the first time ever, his IV infiltrated and lots of fluid ended up in

> his arm. They started a new IV in the other arm and it infiltrated.

> Third try

> was a bust. Fourth try worked to get the last of the product in. Both of

> the

> infiltrated IV's were in the arms where I used the L-M-X. The nurses said

> this probably wasn't the cause. However, I know that Bri will have

> symptoms if

> only 1% of the population does!!!

> This leaves me wondering if this has happened to anyone else?? I doubt

> he

> will let me use the numbing cream again, but it made the stick so

> painless.

> Sandi, Mom to , age 12--CVID

>

December 12, 2005

In a message dated 12/12/2005 2:12:50 PM Central Standard Time, josgood@... writes:

Thanks Pete.Of course it was 'sync error'...it had been a long day.I'm really glad to have the expanation. Perhaps in switching protocols I moved something.Helps to de-mystify.Jan

Jan, I once got a sync error that only went away after I changed batteries in my active electrodes. Are you using actives?

December 12, 2005

Jan,

I've seen a " sync error " message, but never " no sync " . Usually the sync error

is caused by something getting between the sending and receiving unit or having

them get too far apart. If the green lights are blinking the same number of

times, you should be able to connect. If not, you won't get a sync error, but a

Connecting message that never switches to Connected.

The only other thing I can think of for a failure to sync would be that there

was some kind of electromagnetic interference in the area where you were

training. If BE shows Connected and you are using a Pendant, you can very

easily switch through the RF communication channels by clicking the little

recessed switch on the side of the Pendant. If they are connected, it will

bring the Dongle along with it as it switches to channel 2, 3, 4, etc.

In any case, switching protocols shouldn't have any effect on sync errors that I

can imagine right off hand. Hope someone else can help with this.

Pete

>

> From: " Jan Osgood " <josgood@...>

> Date: 2005/12/12 Mon AM 08:19:35 EST

> < >

> Subject: question

>

> Sorry to ask so such a dumb question folks, but yesterday I was training a kid

and the 'no sync' message appeared.

> Usually when this happens it will go away if I make sure the two green lights

are talking to each other, but this time it didn't.

> Any suggestions please? I solved the problem short term by chosing a different

design, moving the dongles, etc.

> My thought is that it was possibly something trivial, but I'd appreciate

actually knowing.

> Thanks,

>

December 12, 2005

Thanks Pete.

Of course it was 'sync error'...it had been a long day.

I'm really glad to have the expanation. Perhaps in switching protocols I

moved something.

Helps to de-mystify.

Jan

question

>>

>> Sorry to ask so such a dumb question folks, but yesterday I was training

>> a kid and the 'no sync' message appeared.

>> Usually when this happens it will go away if I make sure the two green

>> lights are talking to each other, but this time it didn't.

>> Any suggestions please? I solved the problem short term by chosing a

>> different design, moving the dongles, etc.

>> My thought is that it was possibly something trivial, but I'd appreciate

>> actually knowing.

>> Thanks,

>>

>

December 12, 2005

In a message dated 12/10/2005 9:44:07 PM Pacific Standard Time,

knmb2@... writes:

Is your son a hard stick normally. Maybe the cream

made it harder? Have you tried heat to the site? We used one of those hand

Hi Kim,

Bri is usually a very easy stick. I wonder if the cream just made it

difficult enough that the nurses didn't get good access?? Thanks for the

information!

Sandi, Mom to , CVID

December 12, 2005

Thanks . Not yesterday.

But clearly it's often attributable to some little communication problem.

(not a technical answer).

I made the comment to someone yesterday that soon we'll need engineeging degrees to be able to do

NF :-)

Jan

Re: question

In a message dated 12/12/2005 2:12:50 PM Central Standard Time, josgood@... writes:

Thanks Pete.Of course it was 'sync error'...it had been a long day.I'm really glad to have the expanation. Perhaps in switching protocols I moved something.Helps to de-mystify.Jan

Jan, I once got a sync error that only went away after I changed batteries in my active electrodes. Are you using actives?

December 12, 2005

I have noticed that on the latest version of BE 'sync error' can come on when

the battery is low instead of the other signal..

Bill

Van Deusen <pvdtlc@...> wrote:

> Jan,

>

>I've seen a quot;sync errorquot; message, but never quot;no syncquot;.nbsp;

Usually the sync error is caused by something getting between the sending and

receiving unit or having them get too far apart.nbsp; If the green lights are

blinking the same number of times, you should be able to connect.nbsp; If not,

you won't get a sync error, but a Connecting message that never switches to

Connected.

>

>The only other thing I can think of for a failure to sync would be that there

was some kind of electromagnetic interference in the area where you were

training.nbsp; If BE shows Connected and you are using a Pendant, you can very

easily switch through the RF communication channels by clicking the little

recessed switch on the side of the Pendant.nbsp; If they are connected, it will

bring the Dongle along with it as it switches to channel 2, 3, 4, etc.

>

>In any case, switching protocols shouldn't have any effect on sync errors that

I can imagine right off hand.nbsp; Hope someone else can help with this.

>

>Pete

>

>gt;

>gt; From: quot;Jan Osgoodquot; lt;josgood@...;

>gt; Date: 2005/12/12 Mon AM 08:19:35 EST

>gt; lt;@...;

>gt; Subject: question

>gt;

>gt; Sorry to ask so such a dumb question folks, but yesterday I was training a

kid and the 'no sync' message appeared.

>gt; Usually when this happens it will go away if I make sure the two green

lights are talking to each other, but this time it didn't.

>gt; Any suggestions please? I solved the problem short term by chosing a

different design, moving the dongles, etc.

>gt;nbsp; My thought is that it was possibly something trivial, but I'd

appreciate actually knowing.

>gt; Thanks,

>gt;

>

December 12, 2005

> Hi Kim,

> Bri is usually a very easy stick. I wonder if the cream just

made it

> difficult enough that the nurses didn't get good access?? Thanks

for the

information!

Sandi, Mom to , CVID

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

~~~~

Hi Sandi!!

They told us that the Emla cream tends to make the veins " shrink &

roll " when they are numbed. We tried this on Blake maybe a total of

2 times & both times his veins were very hard to find. Another thing

that we all though was weird is his skin where the cream was(they

cleaned his skin before sticking the vein) was very " White " Blake

always has a blotchy look to his skin & is a very hard stick (not to

mention the Blood clotting disorder not being a big help) & that is

due to the perfusion of his blood. But it scared even the nurse who

cleaned the Emla off because of how white his skin was. I think it

was because the emla deterred the blood flow from getting to the

area as it was " numbing him " . Even when Blake had his ports in

place, we would use the Emla cream to numb where the needle would

go, & his site would stay for at least 4 hrs.

Maybe you could ask the nurse to tell you if has any " rolling "

veins & see what she would reccommend or even the Dr. could help you

with this one.

Just my .2 cents worth.

Good Luck!!!!

mom to Blakester(13, CVID with complete T-cell Dysfunction,

Asthma, GERD, Asperger's Syndrome, 2 RARE Blood Clotting Disorders,

Developmental delays.........loves to Read, Hates Math but loves to

think he is MR. IT & knows it ALL!!! Aah The life of a TEEN!!!!)

http://www.caringbridge.org/sc/blakester

December 13, 2005

Emla and elamax do make the skin white...that is what tells you that it

is working....If they know the veins are rolling, the can try to " hold

it down " by pulling the skin taut...at least that works in the

elderly..there is some thought out there that the numbing thinkgs,

especially lidocaine can make it harder to get the veins. I have found

if I use more rather than less, that it goes better for me......We use

lidocaine injections with our sticks, the kids get emla or elamax....

Just the nurse chiming in.....

Re: Question