Guest guest Posted July 5, 2007 Report Share Posted July 5, 2007 Sometimes my 4 y.o. will go to bed with a fever that I've treated with motrin wake in the morning ater 10+ hours of sleep with no fever and an hour or so later it spikes to 103.? I just mentioned it to his reumetologist on Tues and he had no explaination.? Leg pain is a constant symptom with Evan. Taryn Mom to Evan 4 y.o. Re: question Hi gals, I too feel in the same boat this past week. Zak, just turned 3, has been " not well " since monday. He hasn't had a " classic " fever since March, but we've been getting wierd lower grade temps, upset tummy, mouth ulcers, and constant pain in his chest. I wrote earlier that he had just started the cimenitine (sp?) on friday, on top of his daily prevacid since we're not sure if it's reflux related???? I feel frazzled today and have another call into the dr, as he is miserable for the 8th day in a row. He's up and down, no fever over 102, but chest pain, says his whole body is icky, a little goopy eyes, and LOTS of drooling! I don't know what's going on, but I'm beginning to think that is not the answer! My frustrations and prayers are with you both! Jolie > 3 1/2 years old. started a new fevering episode last Monday, 16 days since the last episode. She ran a fever Mon., Tues., Wedn., Thurs. highest fever 101.7. No fever Friday or Saturday. Then yesterday started again jumped to 102.7 last night. She now is refusing to eat or drink, and complaining that her legs hurt. has never stopped for a day or two then started back so quickly and so strong. Question does anyone else have this happen often. > > On another note also had severe reflux as a infant and toddler. > > Thanks, a mom trying very hard to get a grasp on what is going on with my daughter. > > --------------------------------- > No need to miss a message. Get email on-the-go > with for Mobile. Get started. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2007 Report Share Posted July 5, 2007 Has Evan's dr's ever had an answer as to why the leg pain? No one has been able to explain that to me. molson77@... wrote: Sometimes my 4 y.o. will go to bed with a fever that I've treated with motrin wake in the morning ater 10+ hours of sleep with no fever and an hour or so later it spikes to 103.? I just mentioned it to his reumetologist on Tues and he had no explaination.? Leg pain is a constant symptom with Evan. Taryn Mom to Evan 4 y.o. Re: question Hi gals, I too feel in the same boat this past week. Zak, just turned 3, has been " not well " since monday. He hasn't had a " classic " fever since March, but we've been getting wierd lower grade temps, upset tummy, mouth ulcers, and constant pain in his chest. I wrote earlier that he had just started the cimenitine (sp?) on friday, on top of his daily prevacid since we're not sure if it's reflux related???? I feel frazzled today and have another call into the dr, as he is miserable for the 8th day in a row. He's up and down, no fever over 102, but chest pain, says his whole body is icky, a little goopy eyes, and LOTS of drooling! I don't know what's going on, but I'm beginning to think that is not the answer! My frustrations and prayers are with you both! Jolie > 3 1/2 years old. started a new fevering episode last Monday, 16 days since the last episode. She ran a fever Mon., Tues., Wedn., Thurs. highest fever 101.7. No fever Friday or Saturday. Then yesterday started again jumped to 102.7 last night. She now is refusing to eat or drink, and complaining that her legs hurt. has never stopped for a day or two then started back so quickly and so strong. Question does anyone else have this happen often. > > On another note also had severe reflux as a infant and toddler. > > Thanks, a mom trying very hard to get a grasp on what is going on with my daughter. > > --------------------------------- > No need to miss a message. Get email on-the-go > with for Mobile. Get started. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2007 Report Share Posted July 5, 2007 Nope, I have never gotten a definative answer.? Only that it is his body's response to inflammation.? Leg pain (usually below the knee)?always accompanies his fever episodes and usually is a complaint just before an episode.? Prior to a periodic fever diagnosis he had an episode so bad that he refused to walk on his leg.? His ped. gave it a clinical diagnosis as Toxic Synovitis of the hip, but without removal of synovial fluid it wasn't concrete.? We now know that it was probably related to the periodic fever. Taryn Re: question Hi gals, I too feel in the same boat this past week. Zak, just turned 3, has been " not well " since monday. He hasn't had a " classic " fever since March, but we've been getting wierd lower grade temps, upset tummy, mouth ulcers, and constant pain in his chest. I wrote earlier that he had just started the cimenitine (sp?) on friday, on top of his daily prevacid since we're not sure if it's reflux related???? I feel frazzled today and have another call into the dr, as he is miserable for the 8th day in a row. He's up and down, no fever over 102, but chest pain, says his whole body is icky, a little goopy eyes, and LOTS of drooling! I don't know what's going on, but I'm beginning to think that is not the answer! My frustrations and prayers are with you both! Jolie > 3 1/2 years old. started a new fevering episode last Monday, 16 days since the last episode. She ran a fever Mon., Tues., Wedn., Thurs. highest fever 101.7. No fever Friday or Saturday. Then yesterday started again jumped to 102.7 last night. She now is refusing to eat or drink, and complaining that her legs hurt. has never stopped for a day or two then started back so quickly and so strong. Question does anyone else have this happen often. > > On another note also had severe reflux as a infant and toddler. > > Thanks, a mom trying very hard to get a grasp on what is going on with my daughter. > > --------------------------------- > No need to miss a message. Get email on-the-go > with for Mobile. Get started. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2007 Report Share Posted July 5, 2007 My oldest daughter actually had the Toxic Synovitis of the hip and they had to do hip taps and such forth...When Sami started having the leg pains I was worried to death it was the same thing. The way to know the difference is in my older daughter if she was sound asleep and you moved her leg, she woke up immediately screaming and her entire leg hurt. With my younger only the bottom half of her legs hurt and you could move it slightly when she was asleep and she did not wake up. I know it probably differs with kids but I hope that helps, Trish molson77@... wrote: Nope, I have never gotten a definative answer.? Only that it is his body's response to inflammation.? Leg pain (usually below the knee)?always accompanies his fever episodes and usually is a complaint just before an episode.? Prior to a periodic fever diagnosis he had an episode so bad that he refused to walk on his leg.? His ped. gave it a clinical diagnosis as Toxic Synovitis of the hip, but without removal of synovial fluid it wasn't concrete.? We now know that it was probably related to the periodic fever. Taryn Re: question Hi gals, I too feel in the same boat this past week. Zak, just turned 3, has been " not well " since monday. He hasn't had a " classic " fever since March, but we've been getting wierd lower grade temps, upset tummy, mouth ulcers, and constant pain in his chest. I wrote earlier that he had just started the cimenitine (sp?) on friday, on top of his daily prevacid since we're not sure if it's reflux related???? I feel frazzled today and have another call into the dr, as he is miserable for the 8th day in a row. He's up and down, no fever over 102, but chest pain, says his whole body is icky, a little goopy eyes, and LOTS of drooling! I don't know what's going on, but I'm beginning to think that is not the answer! My frustrations and prayers are with you both! Jolie > 3 1/2 years old. started a new fevering episode last Monday, 16 days since the last episode. She ran a fever Mon., Tues., Wedn., Thurs. highest fever 101.7. No fever Friday or Saturday. Then yesterday started again jumped to 102.7 last night. She now is refusing to eat or drink, and complaining that her legs hurt. has never stopped for a day or two then started back so quickly and so strong. Question does anyone else have this happen often. > > On another note also had severe reflux as a infant and toddler. > > Thanks, a mom trying very hard to get a grasp on what is going on with my daughter. > > --------------------------------- > No need to miss a message. Get email on-the-go > with for Mobile. Get started. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2007 Report Share Posted July 6, 2007 My daughter stopped fevering after getting her tonsils removed so I'm not on here much but I noticed the leg pain question. Maddie always had leg pain with her fevers and sometimes leading up to a fever also. I finally had an infectious disease doctor tell me that the kids get inflammation in their joints with the fevers. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2007 Report Share Posted July 6, 2007 When Kiara first started her episodes it was for 15 days straight! Kiara was looked at for sepsis in her hips, and everything else in the book. The only thing that broke the cycle was IVIG and that only was a temporary solution. Re: question Hi gals, I too feel in the same boat this past week. Zak, just turned 3, has been " not well " since monday. He hasn't had a " classic " fever since March, but we've been getting wierd lower grade temps, upset tummy, mouth ulcers, and constant pain in his chest. I wrote earlier that he had just started the cimenitine (sp?) on friday, on top of his daily prevacid since we're not sure if it's reflux related???? I feel frazzled today and have another call into the dr, as he is miserable for the 8th day in a row. He's up and down, no fever over 102, but chest pain, says his whole body is icky, a little goopy eyes, and LOTS of drooling! I don't know what's going on, but I'm beginning to think that is not the answer! My frustrations and prayers are with you both! Jolie > 3 1/2 years old. started a new fevering episode last Monday, 16 days since the last episode. She ran a fever Mon., Tues., Wedn., Thurs. highest fever 101.7. No fever Friday or Saturday. Then yesterday started again jumped to 102.7 last night. She now is refusing to eat or drink, and complaining that her legs hurt. has never stopped for a day or two then started back so quickly and so strong. Question does anyone else have this happen often. > > On another note also had severe reflux as a infant and toddler. > > Thanks, a mom trying very hard to get a grasp on what is going on with my daughter. > > --------------------------------- > No need to miss a message. Get email on-the-go > with for Mobile. Get started. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 What is IVIG? Bisson <proudmom@...> wrote: When Kiara first started her episodes it was for 15 days straight! Kiara was looked at for sepsis in her hips, and everything else in the book. The only thing that broke the cycle was IVIG and that only was a temporary solution. Re: question Hi gals, I too feel in the same boat this past week. Zak, just turned 3, has been " not well " since monday. He hasn't had a " classic " fever since March, but we've been getting wierd lower grade temps, upset tummy, mouth ulcers, and constant pain in his chest. I wrote earlier that he had just started the cimenitine (sp?) on friday, on top of his daily prevacid since we're not sure if it's reflux related???? I feel frazzled today and have another call into the dr, as he is miserable for the 8th day in a row. He's up and down, no fever over 102, but chest pain, says his whole body is icky, a little goopy eyes, and LOTS of drooling! I don't know what's going on, but I'm beginning to think that is not the answer! My frustrations and prayers are with you both! Jolie > 3 1/2 years old. started a new fevering episode last Monday, 16 days since the last episode. She ran a fever Mon., Tues., Wedn., Thurs. highest fever 101.7. No fever Friday or Saturday. Then yesterday started again jumped to 102.7 last night. She now is refusing to eat or drink, and complaining that her legs hurt. has never stopped for a day or two then started back so quickly and so strong. Question does anyone else have this happen often. > > On another note also had severe reflux as a infant and toddler. > > Thanks, a mom trying very hard to get a grasp on what is going on with my daughter. > > --------------------------------- > No need to miss a message. Get email on-the-go > with for Mobile. Get started. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 Kiara had Intravenous gamma globlin.. often used in immune suppressed patients and is seen as a positive treatment at this point of time for kiara as it works. Re: question Hi gals, I too feel in the same boat this past week. Zak, just turned 3, has been " not well " since monday. He hasn't had a " classic " fever since March, but we've been getting wierd lower grade temps, upset tummy, mouth ulcers, and constant pain in his chest. I wrote earlier that he had just started the cimenitine (sp?) on friday, on top of his daily prevacid since we're not sure if it's reflux related???? I feel frazzled today and have another call into the dr, as he is miserable for the 8th day in a row. He's up and down, no fever over 102, but chest pain, says his whole body is icky, a little goopy eyes, and LOTS of drooling! I don't know what's going on, but I'm beginning to think that is not the answer! My frustrations and prayers are with you both! Jolie > 3 1/2 years old. started a new fevering episode last Monday, 16 days since the last episode. She ran a fever Mon., Tues., Wedn., Thurs. highest fever 101.7. No fever Friday or Saturday. Then yesterday started again jumped to 102.7 last night. She now is refusing to eat or drink, and complaining that her legs hurt. has never stopped for a day or two then started back so quickly and so strong. Question does anyone else have this happen often. > > On another note also had severe reflux as a infant and toddler. > > Thanks, a mom trying very hard to get a grasp on what is going on with my daughter. > > --------------------------------- > No need to miss a message. Get email on-the-go > with for Mobile. Get started. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 what made the doctors decide to try this method of treatment. did a test confrim that she has a immune deficiency. Has this treatment helped her leg and hip pain? Sorry if i'm asking you a lot of questions just tring to figure out things - just got off of a 10 day fever but has been complaining of her legs this time for about 15 days. the leg pain seems to start before the fevers come. I had to take my son 5 in today for the dr to look at a spot on his head. While i was there was talking to the dr about he said that he and the I & D dr are discussing sending to DUKE in NC. Which is only about 3 hours away. Bisson <proudmom@...> wrote: Kiara had Intravenous gamma globlin.. often used in immune suppressed patients and is seen as a positive treatment at this point of time for kiara as it works. Re: question Hi gals, I too feel in the same boat this past week. Zak, just turned 3, has been " not well " since monday. He hasn't had a " classic " fever since March, but we've been getting wierd lower grade temps, upset tummy, mouth ulcers, and constant pain in his chest. I wrote earlier that he had just started the cimenitine (sp?) on friday, on top of his daily prevacid since we're not sure if it's reflux related???? I feel frazzled today and have another call into the dr, as he is miserable for the 8th day in a row. He's up and down, no fever over 102, but chest pain, says his whole body is icky, a little goopy eyes, and LOTS of drooling! I don't know what's going on, but I'm beginning to think that is not the answer! My frustrations and prayers are with you both! Jolie > 3 1/2 years old. started a new fevering episode last Monday, 16 days since the last episode. She ran a fever Mon., Tues., Wedn., Thurs. highest fever 101.7. No fever Friday or Saturday. Then yesterday started again jumped to 102.7 last night. She now is refusing to eat or drink, and complaining that her legs hurt. has never stopped for a day or two then started back so quickly and so strong. Question does anyone else have this happen often. > > On another note also had severe reflux as a infant and toddler. > > Thanks, a mom trying very hard to get a grasp on what is going on with my daughter. > > --------------------------------- > No need to miss a message. Get email on-the-go > with for Mobile. Get started. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 Kiara has almost no IGa levels,., thus the positive response to IVIG Yes it helped stop the 15th day of fever and then 18th. It was the only thing they could think of doing. Kiara id not a candidate actually for and the NIH feel she has something else .. whether it is TRAPS and familial cold or something else. ALl they know is they wont release her from the NIH at this point of time! Re: question Hi gals, I too feel in the same boat this past week. Zak, just turned 3, has been " not well " since monday. He hasn't had a " classic " fever since March, but we've been getting wierd lower grade temps, upset tummy, mouth ulcers, and constant pain in his chest. I wrote earlier that he had just started the cimenitine (sp?) on friday, on top of his daily prevacid since we're not sure if it's reflux related???? I feel frazzled today and have another call into the dr, as he is miserable for the 8th day in a row. He's up and down, no fever over 102, but chest pain, says his whole body is icky, a little goopy eyes, and LOTS of drooling! I don't know what's going on, but I'm beginning to think that is not the answer! My frustrations and prayers are with you both! Jolie > 3 1/2 years old. started a new fevering episode last Monday, 16 days since the last episode. She ran a fever Mon., Tues., Wedn., Thurs. highest fever 101.7. No fever Friday or Saturday. Then yesterday started again jumped to 102.7 last night. She now is refusing to eat or drink, and complaining that her legs hurt. has never stopped for a day or two then started back so quickly and so strong. Question does anyone else have this happen often. > > On another note also had severe reflux as a infant and toddler. > > Thanks, a mom trying very hard to get a grasp on what is going on with my daughter. > > --------------------------------- > No need to miss a message. Get email on-the-go > with for Mobile. Get started. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2007 Report Share Posted August 4, 2007 Gosh, I hate the regime of pills now, at 6 weeks. I can't imagine further on down the road in this treatment. It's going to be interesting. I can do it! I can do it! I can do it! I can do it., etc. etc. etc.............. Hugs, VickieGDel Compton wrote: I didn't do tx, too long.. but I still find I have more energy by drinking a can of Ensure.. but the wal mart equal,. It's only about a buck a day, gives you as much or more nutients as you should have, according to "them".. and personally, I look forward to rising each and every morning now, because I know I'll have my nutrients for the whole day....., what a blessing and piece of mind!! I just LOVE how they taste! My children even see a "happier me!! (this has been a paid endorsement. Individual results may vary. The writer of this endorsement is not even real), but obstain from taking this infomail with a grain of salt, as thats a whole 'nother set of problems!). Seriously, Vivian, if he's like me and allready hates the regamine of pills, this was a viable alternative for me. DelVivian Partin <vpartin1> wrote: What can you do about the fatigue from the inteferon? My husband is taking PEG-Intron and he is tired all of the time.Suggestions (other than supplements which he refuses to take)?Thank you.Vivian Park yourself in front of a world of choices in alternative vehicles.Visit the Yahoo! Auto Green Center. Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2007 Report Share Posted August 4, 2007 Gosh, I hate the regime of pills now, at 6 weeks. I can't imagine further on down the road in this treatment. It's going to be interesting. I can do it! I can do it! I can do it! I can do it., etc. etc. etc.............. Hugs, VickieGDel Compton wrote: I didn't do tx, too long.. but I still find I have more energy by drinking a can of Ensure.. but the wal mart equal,. It's only about a buck a day, gives you as much or more nutients as you should have, according to "them".. and personally, I look forward to rising each and every morning now, because I know I'll have my nutrients for the whole day....., what a blessing and piece of mind!! I just LOVE how they taste! My children even see a "happier me!! (this has been a paid endorsement. Individual results may vary. The writer of this endorsement is not even real), but obstain from taking this infomail with a grain of salt, as thats a whole 'nother set of problems!). Seriously, Vivian, if he's like me and allready hates the regamine of pills, this was a viable alternative for me. DelVivian Partin <vpartin1> wrote: What can you do about the fatigue from the inteferon? My husband is taking PEG-Intron and he is tired all of the time.Suggestions (other than supplements which he refuses to take)?Thank you.Vivian Park yourself in front of a world of choices in alternative vehicles.Visit the Yahoo! Auto Green Center. Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2007 Report Share Posted August 5, 2007 Treatment started getting to me by the time I was 10 months into it.I had to take a tylenol half hour before shot to settle me down to take the shot.Three shots a wk for 52wks can get to you after awhile.The pills didn't bother me as much as the needles.I hate needles and my attitude didn't improve during treatment. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of VickieGSent: August 4, 2007 8:09 AMTo: HepatitisCSupportGroupForDummies Subject: Re: QuestionGosh, I hate the regime of pills now, at 6 weeks. I can't imagine further on down the road in this treatment. It's going to be interesting. I can do it! I can do it! I can do it! I can do it., etc. etc. etc.............. Hugs, VickieGDel Compton wrote: I didn't do tx, too long.. but I still find I have more energy by drinking a can of Ensure.. but the wal mart equal,. It's only about a buck a day, gives you as much or more nutients as you should have, according to "them".. and personally, I look forward to rising each and every morning now, because I know I'll have my nutrients for the whole day....., what a blessing and piece of mind!! I just LOVE how they taste! My children even see a "happier me!! (this has been a paid endorsement. Individual results may vary. The writer of this endorsement is not even real), but obstain from taking this infomail with a grain of salt, as thats a whole 'nother set of problems!). Seriously, Vivian, if he's like me and allready hates the regamine of pills, this was a viable alternative for me. DelVivian Partin <vpartin1> wrote: What can you do about the fatigue from the inteferon? My husband is taking PEG-Intron and he is tired all of the time.Suggestions (other than supplements which he refuses to take)?Thank you.Vivian Park yourself in front of a world of choices in alternative vehicles.Visit the Yahoo! Auto Green Center. Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos & more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2007 Report Share Posted August 5, 2007 Treatment started getting to me by the time I was 10 months into it.I had to take a tylenol half hour before shot to settle me down to take the shot.Three shots a wk for 52wks can get to you after awhile.The pills didn't bother me as much as the needles.I hate needles and my attitude didn't improve during treatment. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of VickieGSent: August 4, 2007 8:09 AMTo: HepatitisCSupportGroupForDummies Subject: Re: QuestionGosh, I hate the regime of pills now, at 6 weeks. I can't imagine further on down the road in this treatment. It's going to be interesting. I can do it! I can do it! I can do it! I can do it., etc. etc. etc.............. Hugs, VickieGDel Compton wrote: I didn't do tx, too long.. but I still find I have more energy by drinking a can of Ensure.. but the wal mart equal,. It's only about a buck a day, gives you as much or more nutients as you should have, according to "them".. and personally, I look forward to rising each and every morning now, because I know I'll have my nutrients for the whole day....., what a blessing and piece of mind!! I just LOVE how they taste! My children even see a "happier me!! (this has been a paid endorsement. Individual results may vary. The writer of this endorsement is not even real), but obstain from taking this infomail with a grain of salt, as thats a whole 'nother set of problems!). Seriously, Vivian, if he's like me and allready hates the regamine of pills, this was a viable alternative for me. DelVivian Partin <vpartin1> wrote: What can you do about the fatigue from the inteferon? My husband is taking PEG-Intron and he is tired all of the time.Suggestions (other than supplements which he refuses to take)?Thank you.Vivian Park yourself in front of a world of choices in alternative vehicles.Visit the Yahoo! Auto Green Center. Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos & more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2007 Report Share Posted August 5, 2007 I'm kind of the other way around. The shot, once a week, is not nearly as bad as swallowing pills every day. I'm beginning to have problems swallowing and I am only in week six. I've started swallowing with some type of food that goes down easy and pushes those pills down my throat. I know it's all in my head, but I'm not used to taking pills. I've always been healthy. Only take something now and then and then, it was over-the-counter stuff. Maybe that's why my liver wasn't scared any more than it was. Who knows? Hugs, Vickiegail wrote: Treatment started getting to me by the time I was 10 months into it.I had to take a tylenol half hour before shot to settle me down to take the shot.Three shots a wk for 52wks can get to you after awhile.The pills didn't bother me as much as the needles.I hate needles and my attitude didn't improve during treatment. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of VickieGSent: August 4, 2007 8:09 AMTo: HepatitisCSupportGroupForDummies Subject: Re: QuestionGosh, I hate the regime of pills now, at 6 weeks. I can't imagine further on down the road in this treatment. It's going to be interesting. I can do it! I can do it! I can do it! I can do it., etc. etc. etc.............. Hugs, VickieGDel Compton <go_deliman> wrote: I didn't do tx, too long.. but I still find I have more energy by drinking a can of Ensure.. but the wal mart equal,. It's only about a buck a day, gives you as much or more nutients as you should have, according to "them".. and personally, I look forward to rising each and every morning now, because I know I'll have my nutrients for the whole day....., what a blessing and piece of mind!! I just LOVE how they taste! My children even see a "happier me!! (this has been a paid endorsement. Individual results may vary. The writer of this endorsement is not even real), but obstain from taking this infomail with a grain of salt, as thats a whole 'nother set of problems!). Seriously, Vivian, if he's like me and allready hates the regamine of pills, this was a viable alternative for me. DelVivian Partin <vpartin1> wrote: What can you do about the fatigue from the inteferon? My husband is taking PEG-Intron and he is tired all of the time.Suggestions (other than supplements which he refuses to take)?Thank you.Vivian Park yourself in front of a world of choices in alternative vehicles.Visit the Yahoo! Auto Green Center. Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos & more. Need a vacation? Get great deals to amazing places on Yahoo! Travel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2007 Report Share Posted August 5, 2007 I'm kind of the other way around. The shot, once a week, is not nearly as bad as swallowing pills every day. I'm beginning to have problems swallowing and I am only in week six. I've started swallowing with some type of food that goes down easy and pushes those pills down my throat. I know it's all in my head, but I'm not used to taking pills. I've always been healthy. Only take something now and then and then, it was over-the-counter stuff. Maybe that's why my liver wasn't scared any more than it was. Who knows? Hugs, Vickiegail wrote: Treatment started getting to me by the time I was 10 months into it.I had to take a tylenol half hour before shot to settle me down to take the shot.Three shots a wk for 52wks can get to you after awhile.The pills didn't bother me as much as the needles.I hate needles and my attitude didn't improve during treatment. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of VickieGSent: August 4, 2007 8:09 AMTo: HepatitisCSupportGroupForDummies Subject: Re: QuestionGosh, I hate the regime of pills now, at 6 weeks. I can't imagine further on down the road in this treatment. It's going to be interesting. I can do it! I can do it! I can do it! I can do it., etc. etc. etc.............. Hugs, VickieGDel Compton <go_deliman> wrote: I didn't do tx, too long.. but I still find I have more energy by drinking a can of Ensure.. but the wal mart equal,. It's only about a buck a day, gives you as much or more nutients as you should have, according to "them".. and personally, I look forward to rising each and every morning now, because I know I'll have my nutrients for the whole day....., what a blessing and piece of mind!! I just LOVE how they taste! My children even see a "happier me!! (this has been a paid endorsement. Individual results may vary. The writer of this endorsement is not even real), but obstain from taking this infomail with a grain of salt, as thats a whole 'nother set of problems!). Seriously, Vivian, if he's like me and allready hates the regamine of pills, this was a viable alternative for me. DelVivian Partin <vpartin1> wrote: What can you do about the fatigue from the inteferon? My husband is taking PEG-Intron and he is tired all of the time.Suggestions (other than supplements which he refuses to take)?Thank you.Vivian Park yourself in front of a world of choices in alternative vehicles.Visit the Yahoo! Auto Green Center. Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos & more. Need a vacation? Get great deals to amazing places on Yahoo! Travel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2007 Report Share Posted August 5, 2007 I'm kind of the other way around. The shot, once a week, is not nearly as bad as swallowing pills every day. I'm beginning to have problems swallowing and I am only in week six. I've started swallowing with some type of food that goes down easy and pushes those pills down my throat. I know it's all in my head, but I'm not used to taking pills. I've always been healthy. Only take something now and then and then, it was over-the-counter stuff. Maybe that's why my liver wasn't scared any more than it was. Who knows? Hugs, Vickiegail wrote: Treatment started getting to me by the time I was 10 months into it.I had to take a tylenol half hour before shot to settle me down to take the shot.Three shots a wk for 52wks can get to you after awhile.The pills didn't bother me as much as the needles.I hate needles and my attitude didn't improve during treatment. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of VickieGSent: August 4, 2007 8:09 AMTo: HepatitisCSupportGroupForDummies Subject: Re: QuestionGosh, I hate the regime of pills now, at 6 weeks. I can't imagine further on down the road in this treatment. It's going to be interesting. I can do it! I can do it! I can do it! I can do it., etc. etc. etc.............. Hugs, VickieGDel Compton <go_deliman> wrote: I didn't do tx, too long.. but I still find I have more energy by drinking a can of Ensure.. but the wal mart equal,. It's only about a buck a day, gives you as much or more nutients as you should have, according to "them".. and personally, I look forward to rising each and every morning now, because I know I'll have my nutrients for the whole day....., what a blessing and piece of mind!! I just LOVE how they taste! My children even see a "happier me!! (this has been a paid endorsement. Individual results may vary. The writer of this endorsement is not even real), but obstain from taking this infomail with a grain of salt, as thats a whole 'nother set of problems!). Seriously, Vivian, if he's like me and allready hates the regamine of pills, this was a viable alternative for me. DelVivian Partin <vpartin1> wrote: What can you do about the fatigue from the inteferon? My husband is taking PEG-Intron and he is tired all of the time.Suggestions (other than supplements which he refuses to take)?Thank you.Vivian Park yourself in front of a world of choices in alternative vehicles.Visit the Yahoo! Auto Green Center. Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos & more. Need a vacation? Get great deals to amazing places on Yahoo! Travel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 Do whatever it takes to get them down hon.Treatment isn't a picnic but will save our lives Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of VickieGSent: August 5, 2007 8:41 AMTo: HepatitisCSupportGroupForDummies Subject: RE: QuestionI'm kind of the other way around. The shot, once a week, is not nearly as bad as swallowing pills every day. I'm beginning to have problems swallowing and I am only in week six. I've started swallowing with some type of food that goes down easy and pushes those pills down my throat. I know it's all in my head, but I'm not used to taking pills. I've always been healthy. Only take something now and then and then, it was over-the-counter stuff. Maybe that's why my liver wasn't scared any more than it was. Who knows? Hugs, Vickiegail wrote: Treatment started getting to me by the time I was 10 months into it.I had to take a tylenol half hour before shot to settle me down to take the shot.Three shots a wk for 52wks can get to you after awhile.The pills didn't bother me as much as the needles.I hate needles and my attitude didn't improve during treatment. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of VickieGSent: August 4, 2007 8:09 AMTo: HepatitisCSupportGroupForDummies Subject: Re: QuestionGosh, I hate the regime of pills now, at 6 weeks. I can't imagine further on down the road in this treatment. It's going to be interesting. I can do it! I can do it! I can do it! I can do it., etc. etc. etc.............. Hugs, VickieGDel Compton <go_deliman> wrote: I didn't do tx, too long.. but I still find I have more energy by drinking a can of Ensure.. but the wal mart equal,. It's only about a buck a day, gives you as much or more nutients as you should have, according to "them".. and personally, I look forward to rising each and every morning now, because I know I'll have my nutrients for the whole day....., what a blessing and piece of mind!! I just LOVE how they taste! My children even see a "happier me!! (this has been a paid endorsement. Individual results may vary. The writer of this endorsement is not even real), but obstain from taking this infomail with a grain of salt, as thats a whole 'nother set of problems!). Seriously, Vivian, if he's like me and allready hates the regamine of pills, this was a viable alternative for me. DelVivian Partin <vpartin1> wrote: What can you do about the fatigue from the inteferon? My husband is taking PEG-Intron and he is tired all of the time.Suggestions (other than supplements which he refuses to take)?Thank you.Vivian Park yourself in front of a world of choices in alternative vehicles.Visit the Yahoo! Auto Green Center. Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos & more. Need a vacation? Get great deals to amazing places on Yahoo! Travel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 Do whatever it takes to get them down hon.Treatment isn't a picnic but will save our lives Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of VickieGSent: August 5, 2007 8:41 AMTo: HepatitisCSupportGroupForDummies Subject: RE: QuestionI'm kind of the other way around. The shot, once a week, is not nearly as bad as swallowing pills every day. I'm beginning to have problems swallowing and I am only in week six. I've started swallowing with some type of food that goes down easy and pushes those pills down my throat. I know it's all in my head, but I'm not used to taking pills. I've always been healthy. Only take something now and then and then, it was over-the-counter stuff. Maybe that's why my liver wasn't scared any more than it was. Who knows? Hugs, Vickiegail wrote: Treatment started getting to me by the time I was 10 months into it.I had to take a tylenol half hour before shot to settle me down to take the shot.Three shots a wk for 52wks can get to you after awhile.The pills didn't bother me as much as the needles.I hate needles and my attitude didn't improve during treatment. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of VickieGSent: August 4, 2007 8:09 AMTo: HepatitisCSupportGroupForDummies Subject: Re: QuestionGosh, I hate the regime of pills now, at 6 weeks. I can't imagine further on down the road in this treatment. It's going to be interesting. I can do it! I can do it! I can do it! I can do it., etc. etc. etc.............. Hugs, VickieGDel Compton <go_deliman> wrote: I didn't do tx, too long.. but I still find I have more energy by drinking a can of Ensure.. but the wal mart equal,. It's only about a buck a day, gives you as much or more nutients as you should have, according to "them".. and personally, I look forward to rising each and every morning now, because I know I'll have my nutrients for the whole day....., what a blessing and piece of mind!! I just LOVE how they taste! My children even see a "happier me!! (this has been a paid endorsement. Individual results may vary. The writer of this endorsement is not even real), but obstain from taking this infomail with a grain of salt, as thats a whole 'nother set of problems!). Seriously, Vivian, if he's like me and allready hates the regamine of pills, this was a viable alternative for me. DelVivian Partin <vpartin1> wrote: What can you do about the fatigue from the inteferon? My husband is taking PEG-Intron and he is tired all of the time.Suggestions (other than supplements which he refuses to take)?Thank you.Vivian Park yourself in front of a world of choices in alternative vehicles.Visit the Yahoo! Auto Green Center. Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos & more. Need a vacation? Get great deals to amazing places on Yahoo! Travel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 Do whatever it takes to get them down hon.Treatment isn't a picnic but will save our lives Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of VickieGSent: August 5, 2007 8:41 AMTo: HepatitisCSupportGroupForDummies Subject: RE: QuestionI'm kind of the other way around. The shot, once a week, is not nearly as bad as swallowing pills every day. I'm beginning to have problems swallowing and I am only in week six. I've started swallowing with some type of food that goes down easy and pushes those pills down my throat. I know it's all in my head, but I'm not used to taking pills. I've always been healthy. Only take something now and then and then, it was over-the-counter stuff. Maybe that's why my liver wasn't scared any more than it was. Who knows? Hugs, Vickiegail wrote: Treatment started getting to me by the time I was 10 months into it.I had to take a tylenol half hour before shot to settle me down to take the shot.Three shots a wk for 52wks can get to you after awhile.The pills didn't bother me as much as the needles.I hate needles and my attitude didn't improve during treatment. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of VickieGSent: August 4, 2007 8:09 AMTo: HepatitisCSupportGroupForDummies Subject: Re: QuestionGosh, I hate the regime of pills now, at 6 weeks. I can't imagine further on down the road in this treatment. It's going to be interesting. I can do it! I can do it! I can do it! I can do it., etc. etc. etc.............. Hugs, VickieGDel Compton <go_deliman> wrote: I didn't do tx, too long.. but I still find I have more energy by drinking a can of Ensure.. but the wal mart equal,. It's only about a buck a day, gives you as much or more nutients as you should have, according to "them".. and personally, I look forward to rising each and every morning now, because I know I'll have my nutrients for the whole day....., what a blessing and piece of mind!! I just LOVE how they taste! My children even see a "happier me!! (this has been a paid endorsement. Individual results may vary. The writer of this endorsement is not even real), but obstain from taking this infomail with a grain of salt, as thats a whole 'nother set of problems!). Seriously, Vivian, if he's like me and allready hates the regamine of pills, this was a viable alternative for me. DelVivian Partin <vpartin1> wrote: What can you do about the fatigue from the inteferon? My husband is taking PEG-Intron and he is tired all of the time.Suggestions (other than supplements which he refuses to take)?Thank you.Vivian Park yourself in front of a world of choices in alternative vehicles.Visit the Yahoo! Auto Green Center. Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos & more. Need a vacation? Get great deals to amazing places on Yahoo! Travel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2007 Report Share Posted August 22, 2007 Any possibility that it's just the differences becoming more obvious? Our son seems to improve as he has aged in that he is more able to cope with things. Tonya question Can a child become more autistic as they get older? Just wondering. Thank you, Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2007 Report Share Posted August 25, 2007 I think its more obvious because there peers are passing them up. Its not as obvious when they are young because you are still parenting them like a child. There are more expectations of behavior when they become older, and you see there still like a younger child. My stepson 18 is the oldest child, dad doesn't realize how behind he is because he doesn't have any older children to compare him too. I have raised 3 children all adults and when I moved here it was so strange to see a 17 year old with the abilities of a 5 year old. It wasn't explained to me so I had to figure it out on my own. I had a vision that our kids would grow up and we would have our time together, but now I realize he will never grow up. I am trying to accept it and go with it. --- Tonya Hettler <spff@...> wrote: > Any possibility that it's just the differences > becoming more obvious? > > Our son seems to improve as he has aged in that he > is more able to cope with > things. > > Tonya > question > > Can a child become more autistic as they get older? > Just wondering. > Thank you, Jodi > > > > > ________________________________________________________________________________\ ____ Sick sense of humor? Visit TV's Comedy with an Edge to see what's on, when. http://tv./collections/222 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 I am on cholesteral meds Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of pat mcbrideSent: September 4, 2007 5:29 PMTo: HepatitisCSupportGroupForDummies Subject: Question How many folks here are on cholestrol meds..??..Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 I am on cholesteral meds Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of pat mcbrideSent: September 4, 2007 5:29 PMTo: HepatitisCSupportGroupForDummies Subject: Question How many folks here are on cholestrol meds..??..Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 My boys get swollen lymph nodes all over. once had one that was right above his appendix that was swollen! Peace of Christ be with you, Pattie Absence of proof is not proof of absence. Hi, I am just wondering if anyone else's kids have lymph nodes that are very promonent in the neck area? My son just finished a round of antibotics and is getting sick again...I have been noticing that he gets the lymph nodes and you can see them right before he gets sick...like right before the fever starts. thanks, Jodi Quote Link to comment Share on other sites More sharing options...
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