Guest guest Posted February 18, 2009 Report Share Posted February 18, 2009 Dr Chestnut with ICA in seattle april 25-26.. reg thru ICA,, this is number 2 of 4 and it is on proper diet, “cave man” theory, Dan Beeson From: [mailto: ] On Behalf Of Larry Oliver, DC Sent: Wednesday, February 18, 2009 11:42 AM ChiroListServe Subject: Question Are there any Wellness Seminars coming up in the next few months? Larry L. Oliver, DC 408 NW 7th Corvallis, OR 97330 droheresco voice 541-757-9933 fax 541-757-7713 The information contained in this electronic message may contain protected health information which is confidential under applicable law and is intended only for the use of the individual or entity named above. If the recipient of the message is not the intended recipient, you are hereby notified that any dissemination, copying or disclosure of this communication is strictly prohibited. If you have received the communication in error, please notify Heresco Chiropractic & Associates, 408 NW 7th St, Corvallis, OR 97330, 541-757-9933 and purge the communication immediately without making any copy or distribution Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 I would wait for the titers to return but if you can get over the infections I would hold off on IVIG to see how he does. If they all turn into bacteria infections I would start IVIG. It might take longer to get over a virus but he could build his immune system but if they turn into bacteria then the battle isn't work it. Lorri Kraft 19 CVID (13 years on IVIG From: [mailto: ] On Behalf Of pavlutracy Sent: Tuesday, March 10, 2009 8:10 PM Subject: Question My son is 5 1/2 and has been diagnosed as " borderline immune deficient. " Iknow... you either are deficient, or you're not. However, the first round of tests showed that his levels were all " within normal range " except for his IgG 1 subclass. The second round of tests showed all levels (even subclass 1) in normal range (barely). All other Ig levels are fine. We are in the process of testing his response to childhood immunizations. If he shows no response, our plan of action is to try IVIG. If he does show responses, then we are faced with a big decision. He has never been hospitalized for anything (except ear tubes), but just takes longer to recover from colds, infections, etc. I'm having a hard time deciding if the risks outweigh the benefits to IVIG at this time. Has anyone had a similar situation? We are really thinking this through and praying for our little guy right now. Any advice would be much appreciated. Also, does anyone out there have twins that have been diagnosed with PID? My children are boy/girl twins and my daughter doesn't seem to show the symptoms of PID at this point. Just wondering how likely this might be... the dr's have kind of been boggled by this.. go figure. Thank you for being a wonderful, caring group. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 I have the same situation. My son very clearly needed gamma. He was sick all of the time, low IgG1 and IgG2. Made no response to polysacceride (sp?) vaccines. He was a clear cut case, and gamma is a lifesaver. My daughter, on the other hand has a " sluggish " immune system, like my mom and I. If her IgG drops another 25 points, we will be at the point of borderline. She makes some responses, more than her brother, but not " normal. " We are keeping an eye on her. If she gets sick more often, or she doesn't hold her titres, we will consider gamma. My son was always sick with one " minor " thing or another. I say minor because he was not hospitalized. Even though he was not hospitalized, his quality of life was affected. He never had energy, always had a runny nose, etc. My daughter...not so much. It's hard to decide. The way I am having to look at it is this. If she is OK, I am saving the gamma for the more extreme cases that need it more...until she needs it. It is a tough decision. (Oh, and they are 3 1/2 years apart!) From: llkraft@... Date: Tue, 10 Mar 2009 20:17:42 -0700 Subject: RE: Question I would wait for the titers to return but if you can get over the infections I would hold off on IVIG to see how he does. If they all turn into bacteria infections I would start IVIG. It might take longer to get over a virus but he could build his immune system but if they turn into bacteria then the battle isn't work it. Lorri Kraft 19 CVID (13 years on IVIG From: [mailto: ] On Behalf Of pavlutracy Sent: Tuesday, March 10, 2009 8:10 PM Subject: Question My son is 5 1/2 and has been diagnosed as " borderline immune deficient. " Iknow... you either are deficient, or you're not. However, the first round of tests showed that his levels were all " within normal range " except for his IgG 1 subclass. The second round of tests showed all levels (even subclass 1) in normal range (barely). All other Ig levels are fine. We are in the process of testing his response to childhood immunizations. If he shows no response, our plan of action is to try IVIG. If he does show responses, then we are faced with a big decision. He has never been hospitalized for anything (except ear tubes), but just takes longer to recover from colds, infections, etc. I'm having a hard time deciding if the risks outweigh the benefits to IVIG at this time. Has anyone had a similar situation? We are really thinking this through and praying for our little guy right now. Any advice would be much appreciated. Also, does anyone out there have twins that have been diagnosed with PID? My children are boy/girl twins and my daughter doesn't seem to show the symptoms of PID at this point. Just wondering how likely this might be... the dr's have kind of been boggled by this.. go figure. Thank you for being a wonderful, caring group. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Not so on the " borderline " . Lab values can lead in one direction or another and usually the clinical symptoms help to finish off the diagnosis. If it was so cut and dry then diagnosing the condition wouldn't take on average 7 or so years. IVIG comes with risks (it is after all a blood product). But so does infection. Go by clinical health, only when numbers reach a stupidly low level did we restart treatment. Macey at one point failed a trial off but her health was good. so we stoped for 18 months. then her IgG got down to like 200 or so and we knew it was a definite she had this. plus her Dad was diagnosed and her grandmother is symptomatic so they decided it was hereditary. no use asking for trouble. but as an adult she will have the choice of continuing infusions or not. subq has gone well so i'm hoping she continues Ursula Holleman mom to (16) and Macey (13) www.caringbridge.org/visit/maceyholleman ________________________________ > > From: pavlutracy@... > Date: Wed, 11 Mar 2009 03:10:25 +0000 > Subject: Question > > > > > > > > > > > > > > > > > > > > > > > > My son is 5 1/2 and has been diagnosed as " borderline immune deficient. " > > Iknow... you either are deficient, or you're not. However, the first > > round of tests showed that his levels were all " within normal range " > > except for his IgG 1 subclass. The second round of tests showed all > > levels (even subclass 1) in normal range (barely). All other Ig levels > > are fine. > > > > We are in the process of testing his response to childhood > > immunizations. If he shows no response, our plan of action is to try > > IVIG. If he does show responses, then we are faced with a big decision. > > > > He has never been hospitalized for anything (except ear tubes), but just > > takes longer to recover from colds, infections, etc. > > > > I'm having a hard time deciding if the risks outweigh the benefits to > > IVIG at this time. Has anyone had a similar situation? We are really > > thinking this through and praying for our little guy right now. Any > > advice would be much appreciated. > > > > Also, does anyone out there have twins that have been diagnosed with > > PID? My children are boy/girl twins and my daughter doesn't seem to > > show the symptoms of PID at this point. Just wondering how likely this > > might be... the dr's have kind of been boggled by this.. go figure. > > > > Thank you for being a wonderful, caring group. > > > > - > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2009 Report Share Posted March 11, 2009 ---Hi, I have 3 kids with CVID. As a baby one of mine had " low " IGG levels, but not low enough to treat, other than with prophylaxis. My other two had very low IGG, IGA, and IGM. They all very often get resp infections, and sinus infections. Not usually anything they are admitted for. A lot of the problem is that almost anything they get lands in their lungs at some point, and worsens their asthma. At the time we decided to start IVIG on my two that were " worst " , we decided that since the other childs numbers were not as bad, and clinically, he was decent......lots of sinus infections, but otherwise ok, we held off with him. A yr later, we decided to trial him on IVIG. His numbers were still " borderline " low....basically, at the very lowest they could be while still being " normal " but not nearly as low as the other two kids. He was constantly battling sinus infections and was very fatigued most of the time. He did IVIG for a year and a half. We trialed him, and he has been doing great!! I think he needed it for that time to have time to be healthy, get stronger, and currently, we have no plans to restart IVIG unless things change. HTH, valarie In , " pavlutracy " <pavlutracy@...> wrote: > > > My son is 5 1/2 and has been diagnosed as " borderline immune deficient. " > Iknow... you either are deficient, or you're not. However, the first > round of tests showed that his levels were all " within normal range " > except for his IgG 1 subclass. The second round of tests showed all > levels (even subclass 1) in normal range (barely). All other Ig levels > are fine. > > We are in the process of testing his response to childhood > immunizations. If he shows no response, our plan of action is to try > IVIG. If he does show responses, then we are faced with a big decision. > > He has never been hospitalized for anything (except ear tubes), but just > takes longer to recover from colds, infections, etc. > > I'm having a hard time deciding if the risks outweigh the benefits to > IVIG at this time. Has anyone had a similar situation? We are really > thinking this through and praying for our little guy right now. Any > advice would be much appreciated. > > Also, does anyone out there have twins that have been diagnosed with > PID? My children are boy/girl twins and my daughter doesn't seem to > show the symptoms of PID at this point. Just wondering how likely this > might be... the dr's have kind of been boggled by this.. go figure. > > Thank you for being a wonderful, caring group. > > - > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2009 Report Share Posted March 17, 2009 In message <gpo8qk+6seveGroups> you wrote: > I checked my kombucha yesterday because today it was supposed to be done > and I found the weirdest thing. My scoby had puffed right out of the tea. > It was like under pressure when I poked it back down. I have no idea how > long it was like that. Do you think the tea is still good or should I > leave it sit awhile longer with it (scoby) back in the tea? Hi , the puffing/popping up is completely normal. This happens because of very active bubble activity and accumulation of CO2 inside the scoby. As gas is lighter than the liquid, up it will pop. This is actually great, because it shows you that you have a very well working, active culture! It does not matter if the darling pops out on top of the liquid. It's like a liquid filled sponge anyway and will not dry up in a hurry. You KT will not suffer! Have you tried the KT liquid yet? I should, to find out whether your Kombucha tea has reached the desired acidity. If it has: Happy guzzling and /or bottling, if still too sweet, give it some more days until it does. You are on a winner, ! Greetings most kombuchaly, Margret UK :-) -- +------------------ Minstrel@... --------------------+ <)))<>< http://www.therpc.f9.co.uk <)))<>< http://bavarianminstrel.wordpress.com I try to take one day at a time, but sometimes several days attack me at once. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2009 Report Share Posted March 25, 2009 patterns change all the time, if you have a regular pattern now (and a pattern is a pattern whether its 28 days 14 days or 4 to 6 weeks) theres nothing to say they won't change next month. We kept the same pattern for almost two years and then without notice she stopped fevering for eight months. The fevers then came back all over the map and eventually settled into about every 45 days. People report all different time frames so who knows where the number will fall. The stomache problems with the fevers used to scare us thinking she had something major wrong but nothing ever presented itself. Most people all report their child complaining of horrible stomache and leg pain associated with an attack. We even had our little girl knocked out and ultrasounded and cat scanned to see if any organs looked out of sorts. I don't know who would tell you gastric pains are not related because almost everyone states that their child gets horrible stomache cramping. Keeping a good fever log helps with predictability and can assist with any future Doctor visits.. Good luck.,. Steve. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2009 Report Share Posted March 25, 2009 Who diagnosed you daughter?? Dr. Boyce? That was who diagnosed our son at Mayo. Are you from the Rochester area? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Dr. Boyce did diagnose her! We are from Illinois but travel to Mayo for all our daughters healthcare. We just made our 8th trip in 2 years! Do you live there and Bouman 29:11 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2009 Report Share Posted March 30, 2009 I grew up in Rochester. We currently live about 15 minutes from the Rochester area. We really like Dr. Boyce. I can't imagine anything gets him too excited. He does a great job with education and has showed me the inside of my son's ear during an ear infection. I thought that was pretty neat. I am hopeful we won't need him anymore after my son's T/A in November. I don't miss the episodes. My neighbor has used Dr. Boyce for her daughter for other medical things and she really like him, too. What a baffling disorder this is! Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2009 Report Share Posted March 30, 2009 I grew up in Rochester. We currently live about 15 minutes from the Rochester area. We really like Dr. Boyce. I can't imagine anything gets him too excited. He does a great job with education and has showed me the inside of my son's ear during an ear infection. I thought that was pretty neat. I am hopeful we won't need him anymore after my son's T/A in November. I don't miss the episodes. My neighbor has used Dr. Boyce for her daughter for other medical things and she really like him, too. What a baffling disorder this is! Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2009 Report Share Posted March 31, 2009 Did Dr. Boyce to the T/A? How long did it take him to agree to have it done? He has told us to wait at least a year on the prednisone until he will talk about it. Did he respond this way to you too? and Bouman 29:11 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2009 Report Share Posted March 31, 2009 We had two plus years of with Damian including a hospitalization that started the diagnosis process. We started the prednisone just in July 2008 and had the T/A by Dr. Orvidas at Mayo in ENT who was referred to us by Dr. Boyce. She has done other T/A. We only did prednisone about 3 months before I called him and said this is not working for us. I wanted to look at the T/A option. Our reason for this is because of the other issues have have with our son. He has been in special education for the past 2 years because of behaviors. He has the worlds largest srong will. It was literally a battle to get him to take the prednisone with pure sugar (the only way we could get him to take it when we were success with him taking it). We were having a lot of behaviors in between episodes and then we had to do this battle every two weeks to get him to take the prednisone. I called him and said we can't do this anymore. He was open to the T/A. Damain has a lot of documentation through Mayo regarding his behaviors so it was always a known. I wish I could give you a better approach, but we really were at wits end and he agreed it's not worth the battle. It was to the point I had to bring him to the ER/doctor and have them give him his medication. I think if you can really give him some good reasons why this would be best I think he would listen. I do think he's right to take caution because it is surgery (I cried surgery day) and the other thing I recall him saying to me is he is not completely sure about the statistics that is 100% cured with surgery. So he wants to weigh out the options. I think I have also been reading others that experienced episodes getting farther apart after treatment begins. All that said, I would probably have still wanted the T/A even if there were no behaviors from my son. I do think he's trying to make a sound decision for your family. However, he does not live in your home so I would let him know how this is impacting your family if indeed this is something you strongly feel about. Best of luck. Let me know what you decide to do. It's nice to feel connected to a family. Your family will be in my prayers. Lynn > > Did Dr. Boyce to the T/A? How long did it take him to agree to have it done? He has told us to wait at least a year on the prednisone until he will talk about it. Did he respond this way to you too? > > > > and Bouman > 29:11 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2009 Report Share Posted March 31, 2009 We had two plus years of with Damian including a hospitalization that started the diagnosis process. We started the prednisone just in July 2008 and had the T/A by Dr. Orvidas at Mayo in ENT who was referred to us by Dr. Boyce. She has done other T/A. We only did prednisone about 3 months before I called him and said this is not working for us. I wanted to look at the T/A option. Our reason for this is because of the other issues have have with our son. He has been in special education for the past 2 years because of behaviors. He has the worlds largest srong will. It was literally a battle to get him to take the prednisone with pure sugar (the only way we could get him to take it when we were success with him taking it). We were having a lot of behaviors in between episodes and then we had to do this battle every two weeks to get him to take the prednisone. I called him and said we can't do this anymore. He was open to the T/A. Damain has a lot of documentation through Mayo regarding his behaviors so it was always a known. I wish I could give you a better approach, but we really were at wits end and he agreed it's not worth the battle. It was to the point I had to bring him to the ER/doctor and have them give him his medication. I think if you can really give him some good reasons why this would be best I think he would listen. I do think he's right to take caution because it is surgery (I cried surgery day) and the other thing I recall him saying to me is he is not completely sure about the statistics that is 100% cured with surgery. So he wants to weigh out the options. I think I have also been reading others that experienced episodes getting farther apart after treatment begins. All that said, I would probably have still wanted the T/A even if there were no behaviors from my son. I do think he's trying to make a sound decision for your family. However, he does not live in your home so I would let him know how this is impacting your family if indeed this is something you strongly feel about. Best of luck. Let me know what you decide to do. It's nice to feel connected to a family. Your family will be in my prayers. Lynn > > Did Dr. Boyce to the T/A? How long did it take him to agree to have it done? He has told us to wait at least a year on the prednisone until he will talk about it. Did he respond this way to you too? > > > > and Bouman > 29:11 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2009 Report Share Posted April 1, 2009 Our issue is that Klara also has a chromosome disorder, gastric issues and some developmental delay. She does not have a constant increase in knowledge and skills but has peaks and valleys ( if that makes any sense). She will learn alot for a week and then not learn anything for a couple months. I feel that the fevers are putting her even further behind than she is normally. Since having the fevers her balance and coordination scores have dropped. I told myself I will give the prednisone a couple more fevers and then I am done. Also because when she took the prednisone she did not sleep for a week and was bouncing off furniture! Thanks for your insight. and Bouman 29:11 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2009 Report Share Posted April 1, 2009 Our issue is that Klara also has a chromosome disorder, gastric issues and some developmental delay. She does not have a constant increase in knowledge and skills but has peaks and valleys ( if that makes any sense). She will learn alot for a week and then not learn anything for a couple months. I feel that the fevers are putting her even further behind than she is normally. Since having the fevers her balance and coordination scores have dropped. I told myself I will give the prednisone a couple more fevers and then I am done. Also because when she took the prednisone she did not sleep for a week and was bouncing off furniture! Thanks for your insight. and Bouman 29:11 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2009 Report Share Posted April 1, 2009 I think you would have good reason to pursue this further with Dr. Boyce. I have to tell you Damian had a HUGE growth spurt right after the surgery. It's hard for us to not believe it was related. He also put on some weight that he needed. Keep me informed on what you do and what Dr. Boyce tells you. I wish you luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2009 Report Share Posted April 16, 2009 Most definitely use both! Don't discard it! > I have received Kombucha one week ago. Tomorrow I am going to brew another batch of it. I can see that a new Kumbucha culture has grown additional to a culture that I have received. Should I add both of them ( a new one and an old one) to a new batch or I should discard an old one and use only new one? > > Thank you! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2009 Report Share Posted April 16, 2009 In message <gs6692+s0qneGroups> you wrote: > I have received Kombucha one week ago. Tomorrow I am going to brew another > batch of it. I can see that a new Kumbucha culture has grown additional > to a culture that I have received. Should I add both of them ( a new one > and an old one) to a new batch or I should discard an old one and use > only new one? Yes, Elena, you can use both cultures for your next brew. It is even preferable to use more than one culture, as this increases the bacterial content and makes for a tastier KT at the end of brewing. Greetings and blessings, Margret UK :-) -- +------------------ Minstrel@... --------------------+ <)))<>< http://www.therpc.f9.co.uk <)))<>< http://bavarianminstrel.wordpress.com creation.com God sent His only Son into the world so that we might have life through Him (1 4) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2009 Report Share Posted April 27, 2009 what the mother of me should have but never did teach of me anythings but to avoid. >> I to did not finish my words and felt had...but was saying of that the mother teached me nothing but to avoid.... because her lack of care and her ways towards me caused me to learn to fear people and people had teached me that they would and could cause of me pain... i to avoided much because of them. sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2009 Report Share Posted April 27, 2009 what the mother of me should have but never did teach of me anythings but to avoid. >> I to did not finish my words and felt had...but was saying of that the mother teached me nothing but to avoid.... because her lack of care and her ways towards me caused me to learn to fear people and people had teached me that they would and could cause of me pain... i to avoided much because of them. sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 cathy yes teh flat affect was of much noted over the years of my emotional and facial expressions, and that the monotoned voice was of also mentioned much too. but had of not clue of the tang? things so it meansd of a tangent I to know of that word but did not know that was another word for it? but what you share is of much like of me always since my words in elementary school. but the poverty of speech was of hard for me because of peverty means one who has not enough money to take care of the basic needs so not sure of how that related to speech. it all makes of sense sine you clarified of it. I to be of self advocating for self and marking out all of the information or things I to not want of agencies to have of my past records out of all of my reports , no mention of my maiden name and or family members names or certain things that were of worded wrong of me such as one part it shared my birth father molested of me and that is of NOT true it was of the scary man the maternal grand father of me see how things of that can cause of much harm if into the wrong hands of people as we all know not all places keep of confidential things confidential and that could have caused of my birth fatehr great pains if that got back to him of it being of an untrue... so for self in protecting of self and some extended family and such I to be of blacking out much things that are of not things i to want disclosed to others. I to feel it isof my right to do this. sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 > but the poverty of speech was of hard for me because of peverty > means one who has not enough money In this particular case poverty was meant in the general sense of " lack " , rather than in the monetary way. But you're right; in general we tend to use the word " poverty " to describe a person's income level. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 > but the poverty of speech was of hard for me because of peverty > means one who has not enough money In this particular case poverty was meant in the general sense of " lack " , rather than in the monetary way. But you're right; in general we tend to use the word " poverty " to describe a person's income level. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2009 Report Share Posted May 14, 2009 That's cool awsome Subject: question To: Autism_in_Girls_and_Women Date: Wednesday, May 13, 2009, 6:10 PM I to be of just got of all my records in the mail today from that mental health place and this one record of me of age of 21 shares this but I to lack what it means? " flat affect and tengential thinking with poverty of speech " . too many big words and concepted mixed in to one big sentence so cant figure out what it is of saying. I to also lack how speech can have of poverty? can some one clarify what this all means. sondra Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.