Re: Re: I don't understand. Why is no one writing to Marcie'...

[Guest guest]

In a message dated 10/19/2005 7:57:40 PM Pacific Standard Time,

barb1283@... writes:

I wrote a suggestion to Oprah show that this would be important

topic with info from group. In my case, I have no proof whatsoever

that my problem is with mold. My house air tests turned out good.

I have CFS and test positive to Epstein Barr Virus and infectious

mono last July and again in February, probably cause of my sore

throat, as well as allergies but have no story to tell about mold

encounter. I did clean mold in my basement without mask and

ventilation a couple years ago. My air tests in basement I had done

last year had aspergillus but not at abnormal amounts so don't know

what to write. If I would write about mold, I would write about you-

all!!!, not myself, even though I suspect mold has impacted my life

at home. However my allergy tests came back positive for everything

tested on me EXCEPT for mold so I have nothing to write I can back

up with any facts. That is why no letter from me. I'm just

suspecting mold is a factor from my symptoms. I see others have

stories of leaving work places where other people got sick with same

symptoms, etc, are important to tell, lost jobs due to illness. I

went back to work a few months ago after having cancer surgery and

Mono, no test showing mold or fungal infection. Now Dr Shoemaker

says I have mycotoxins but from where I don't know and since I had

cancer and mono, can't prove my symptoms are from the mycotoxins.

In fact may make Dr Shoe's conclusions look suspicious actually. My

trouble started when I took a drug that suppressed my immune

system. Result looks like it was mono and perhaps cancer (since it

was just very early stage, pre-stage-one, accidentally found while

doing surgery for something else). Anyway, no way to point a link

to mold except in my own head right now. I could try. If you

want. I guess I could tell that I had aspergillus in basement and

cleaned it up while on drug that suppressed immune system and have

cancer diagnosis, CFS diagnosis and Epstein Barr virus now but all

my symptoms can be explained by the mono virus and multiple

allergies. I would like to write letter to pharmacy and accuse them

of making me sick. Anyone want to write a letter to pharmaceutical

industry, let me know. Tell me what you want me to do. I will help

if you think my story is convincing to you. barbb

Hey Barb,

Well that makes alot of sense why you would be hesitant to write. You have

much that would be very complicated to write about. (I don't even know how

you were able to explain what you just did without writing a dissertation!)

Maybe you could write about how you have been very ill and it is thought to be

an environmental illness. You were already immunocompromised from drugs

taken to suppress your immune system and exposure to mold is believed to

exasperate your condition. It is well documented that mold is not good for

those

immunocompromised. - It is a good angle actually, because it addresses how

these

immunosupressants make one more vulnerable for fungal conditions.

If you want, write it and I will edit it for you.

Sharon

[Guest guest]

Could someone post who we should be writing to about

our mold stories?

--- snk1955@... wrote:

>

> In a message dated 10/19/2005 7:57:40 PM Pacific

> Standard Time,

> barb1283@... writes:

>

> I wrote a suggestion to Oprah show that this would

> be important

> topic with info from group. In my case, I have no

> proof whatsoever

> that my problem is with mold. My house air tests

> turned out good.

> I have CFS and test positive to Epstein Barr Virus

> and infectious

> mono last July and again in February, probably

> cause of my sore

> throat, as well as allergies but have no story to

> tell about mold

> encounter. I did clean mold in my basement without

> mask and

> ventilation a couple years ago. My air tests in

> basement I had done

> last year had aspergillus but not at abnormal

> amounts so don't know

> what to write. If I would write about mold, I

> would write about you-

> all!!!, not myself, even though I suspect mold has

> impacted my life

> at home. However my allergy tests came back

> positive for everything

> tested on me EXCEPT for mold so I have nothing to

> write I can back

> up with any facts. That is why no letter from me.

> I'm just

> suspecting mold is a factor from my symptoms. I

> see others have

> stories of leaving work places where other people

> got sick with same

> symptoms, etc, are important to tell, lost jobs due

> to illness. I

> went back to work a few months ago after having

> cancer surgery and

> Mono, no test showing mold or fungal infection. Now

> Dr Shoemaker

> says I have mycotoxins but from where I don't know

> and since I had

> cancer and mono, can't prove my symptoms are from

> the mycotoxins.

> In fact may make Dr Shoe's conclusions look

> suspicious actually. My

> trouble started when I took a drug that suppressed

> my immune

> system. Result looks like it was mono and perhaps

> cancer (since it

> was just very early stage, pre-stage-one,

> accidentally found while

> doing surgery for something else). Anyway, no way

> to point a link

> to mold except in my own head right now. I could

> try. If you

> want. I guess I could tell that I had aspergillus

> in basement and

> cleaned it up while on drug that suppressed immune

> system and have

> cancer diagnosis, CFS diagnosis and Epstein Barr

> virus now but all

> my symptoms can be explained by the mono virus and

> multiple

> allergies. I would like to write letter to pharmacy

> and accuse them

> of making me sick. Anyone want to write a letter

> to pharmaceutical

> industry, let me know. Tell me what you want me to

> do. I will help

> if you think my story is convincing to you. barbb

>

>

> Hey Barb,

>

> Well that makes alot of sense why you would be

> hesitant to write. You have

> much that would be very complicated to write about.

> (I don't even know how

> you were able to explain what you just did without

> writing a dissertation!)

> Maybe you could write about how you have been very

> ill and it is thought to be

> an environmental illness. You were already

> immunocompromised from drugs

> taken to suppress your immune system and exposure

> to mold is believed to

> exasperate your condition. It is well documented

> that mold is not good for those

> immunocompromised. - It is a good angle actually,

> because it addresses how these

> immunosupressants make one more vulnerable for

> fungal conditions.

>

> If you want, write it and I will edit it for you.

>

> Sharon

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

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[Guest guest]

Make that three!!!!!!