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Re: Digest Number 174 (Marc)

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Hi Marc,

Jeanie here, my lower legs, feet and hands are affected. I went through

phases with staying even and progressing, I even had times that I felt I was

improving. Diagnosed at age 5 due to tripping and falling, then after my 1st

surgery into leg braces. My hands were fine until I was in my 30's. I had

started a full time job plus taking care of two kids, house, and hubby

(#3kid). It was too much for my body and I progressed very fast in a very

short time. It was also with in that same year that I started using an arm

crutch to help me balance and walk.

For me it depends on stress, the longer I can stay away from stress the

betteer I can function. But, if I'm stressed I go down hill with my CMT. I

even notice my vision being worse when stresses, but yet not when doing fine.

Take Care, Jeanie

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