Guest guest Posted October 19, 2005 Report Share Posted October 19, 2005 Hi Guys, As I understand it, Marcie has gotten very few responses of our stories that she can share with her Congressman. KC, who dedicates much of his time trying to help mold victims, has asked that we support Marcie. I think he is feeling a bit not happy and a little used. I don't blame him. He spends countless hours supporting you, yet when a request is made for you to support others, which also supports KC - the response is just not coming. We all know what hell Marcie has been through. She has an opportunity to make her voice heard, and yours too. By sharing your voice, hers becomes louder. She has more chance at success of actually moving the issue forward to obtain help. Am I missing something? Why do you all think the personal accounts are not being sent to Marcie? I am not meaning to berate or anything. I just would really like to understand why no letters. If there is a major problem with the sharing, we really need to know why for future reference. WR Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 I wrote a suggestion to Oprah show that this would be important topic with info from group. In my case, I have no proof whatsoever that my problem is with mold. My house air tests turned out good. I have CFS and test positive to Epstein Barr Virus and infectious mono last July and again in February, probably cause of my sore throat, as well as allergies but have no story to tell about mold encounter. I did clean mold in my basement without mask and ventilation a couple years ago. My air tests in basement I had done last year had aspergillus but not at abnormal amounts so don't know what to write. If I would write about mold, I would write about you- all!!!, not myself, even though I suspect mold has impacted my life at home. However my allergy tests came back positive for everything tested on me EXCEPT for mold so I have nothing to write I can back up with any facts. That is why no letter from me. I'm just suspecting mold is a factor from my symptoms. I see others have stories of leaving work places where other people got sick with same symptoms, etc, are important to tell, lost jobs due to illness. I went back to work a few months ago after having cancer surgery and Mono, no test showing mold or fungal infection. Now Dr Shoemaker says I have mycotoxins but from where I don't know and since I had cancer and mono, can't prove my symptoms are from the mycotoxins. In fact may make Dr Shoe's conclusions look suspicious actually. My trouble started when I took a drug that suppressed my immune system. Result looks like it was mono and perhaps cancer (since it was just very early stage, pre-stage-one, accidentally found while doing surgery for something else). Anyway, no way to point a link to mold except in my own head right now. I could try. If you want. I guess I could tell that I had aspergillus in basement and cleaned it up while on drug that suppressed immune system and have cancer diagnosis, CFS diagnosis and Epstein Barr virus now but all my symptoms can be explained by the mono virus and multiple allergies. I would like to write letter to pharmacy and accuse them of making me sick. Anyone want to write a letter to pharmaceutical industry, let me know. Tell me what you want me to do. I will help if you think my story is convincing to you. barbb > > > > Hi Guys, > > As I understand it, Marcie has gotten very few responses of our stories that > she can share with her Congressman. > > KC, who dedicates much of his time trying to help mold victims, has asked > that we support Marcie. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2005 Report Share Posted October 21, 2005 I POSTED MINE, SHARON--DO YOU SUPPOSE IT'D HELP IF I POST MY STORY TO THE LIST AS WELL? VICTORIA [] I don't understand. Why is no one writing to Marcie's legislator? > > > Hi Guys, > > As I understand it, Marcie has gotten very few responses of our stories > that > she can share with her Congressman. > > KC, who dedicates much of his time trying to help mold victims, has asked > that we support Marcie. > > I think he is feeling a bit not happy and a little used. I don't blame > him. > He spends countless hours supporting you, yet when a request is made for > you > to support others, which also supports KC - the response is just not > coming. > > We all know what hell Marcie has been through. She has an opportunity to > make her voice heard, and yours too. By sharing your voice, hers becomes > louder. She has more chance at success of actually moving the issue > forward to > obtain help. > > Am I missing something? > > Why do you all think the personal accounts are not being sent to Marcie? > I > am not meaning to berate or anything. I just would really like to > understand > why no letters. If there is a major problem with the sharing, we really > need to know why for future reference. > > WR > Sharon > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2005 Report Share Posted October 21, 2005 > > I POSTED MINE, SHARON--DO YOU SUPPOSE IT'D HELP IF I POST MY STORY TO THE > LIST AS WELL? > VICTORIA > I sent mine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2005 Report Share Posted October 21, 2005 thank you, linda, & i hope MANY others do, as well. v. [] Re: I don't understand. Why is no one writing to Marcie's legislator? > >> >> I POSTED MINE, SHARON--DO YOU SUPPOSE IT'D HELP IF I POST MY STORY TO > THE >> LIST AS WELL? >> VICTORIA >> > I sent mine. > > > > > > > FAIR USE NOTICE: > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.