Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Have you tried the Autism Society of America Greater GA? I don't remember the telephone number but their web address is www.asaga.com New to group My name is . I have a wonderful, beautiful 19 year old daughter with a cortical vision impairment and autism spectrum disorder resulting from brain damage present at birth. She also has extremely mild CP, and has a shunt for hydrocephalus. She is an energetic, personable, loving person with a desire to learn on her own terms. Throughout the years we have run into many obstacles including professionals that didn't believe in her ability to learn. We have continued pursuing learning and even these last two year, she is making amazing progress learning to read Braille after being told since she was seven (and for many years after) that she would never read. My daughter has a very strong desire to have a job post high school. She has her sights set on being a caregiver of some kind. She loves 'taking care of' sick, injured, or sad people. Our school system does not have a good transition program, but I have administration and teachers interested in improving it. This is what has lead me to your group. I am seeking info about improving the transition program in my community, and making more opportunities available for the children coming through. Parent and/or teacher resources are welcome. Any help, advice would be great. Thank You. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 contact the Ga dept of labor. they have programs to help transition disabled teens into the work field. her spec ed director can make the referral or you/her can. hugs she sounds like she has a wonderful human spirit!!! > > My name is . I have a wonderful, beautiful 19 year old daughter > with a cortical vision impairment and autism spectrum disorder > resulting from brain damage present at birth. She also has extremely > mild CP, and has a shunt for hydrocephalus. She is an energetic, > personable, loving person with a desire to learn on her own terms. > Throughout the years we have run into many obstacles including > professionals that didn't believe in her ability to learn. We have > continued pursuing learning and even these last two year, she is making > amazing progress learning to read Braille after being told since she > was seven (and for many years after) that she would never read. > > My daughter has a very strong desire to have a job post high school. > She has her sights set on being a caregiver of some kind. She loves > 'taking care of' sick, injured, or sad people. Our school system does > not have a good transition program, but I have administration and > teachers interested in improving it. This is what has lead me to your > group. > > I am seeking info about improving the transition program in my > community, and making more opportunities available for the children > coming through. Parent and/or teacher resources are welcome. Any > help, advice would be great. > > Thank You. > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 contact the Ga dept of labor. they have programs to help transition disabled teens into the work field. her spec ed director can make the referral or you/her can. hugs she sounds like she has a wonderful human spirit!!! > > My name is . I have a wonderful, beautiful 19 year old daughter > with a cortical vision impairment and autism spectrum disorder > resulting from brain damage present at birth. She also has extremely > mild CP, and has a shunt for hydrocephalus. She is an energetic, > personable, loving person with a desire to learn on her own terms. > Throughout the years we have run into many obstacles including > professionals that didn't believe in her ability to learn. We have > continued pursuing learning and even these last two year, she is making > amazing progress learning to read Braille after being told since she > was seven (and for many years after) that she would never read. > > My daughter has a very strong desire to have a job post high school. > She has her sights set on being a caregiver of some kind. She loves > 'taking care of' sick, injured, or sad people. Our school system does > not have a good transition program, but I have administration and > teachers interested in improving it. This is what has lead me to your > group. > > I am seeking info about improving the transition program in my > community, and making more opportunities available for the children > coming through. Parent and/or teacher resources are welcome. Any > help, advice would be great. > > Thank You. > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Thank you for the suggestion. It is a good place to start. She does have a wonderful spirit and adds joy to all who come in contact with her. --- tatumcrew <tatumcrew@...> wrote: > contact the Ga dept of labor. they have programs to help transition > disabled teens into the work field. her spec ed director can make > the referral or you/her can. hugs she sounds like she has a > wonderful human spirit!!! > > > > > > My name is . I have a wonderful, beautiful 19 year old > daughter > > with a cortical vision impairment and autism spectrum disorder > > resulting from brain damage present at birth. She also has > extremely > > mild CP, and has a shunt for hydrocephalus. She is an energetic, > > personable, loving person with a desire to learn on her own terms. > > Throughout the years we have run into many obstacles including > > professionals that didn't believe in her ability to learn. We have > > continued pursuing learning and even these last two year, she is > making > > amazing progress learning to read Braille after being told since > she > > was seven (and for many years after) that she would never read. > > > > My daughter has a very strong desire to have a job post high > school. > > She has her sights set on being a caregiver of some kind. She > loves > > 'taking care of' sick, injured, or sad people. Our school system > does > > not have a good transition program, but I have administration and > > teachers interested in improving it. This is what has lead me to > your > > group. > > > > I am seeking info about improving the transition program in my > > community, and making more opportunities available for the children > > coming through. Parent and/or teacher resources are welcome. Any > > help, advice would be great. > > > > Thank You. > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Thank you for the suggestion. It is a good place to start. She does have a wonderful spirit and adds joy to all who come in contact with her. --- tatumcrew <tatumcrew@...> wrote: > contact the Ga dept of labor. they have programs to help transition > disabled teens into the work field. her spec ed director can make > the referral or you/her can. hugs she sounds like she has a > wonderful human spirit!!! > > > > > > My name is . I have a wonderful, beautiful 19 year old > daughter > > with a cortical vision impairment and autism spectrum disorder > > resulting from brain damage present at birth. She also has > extremely > > mild CP, and has a shunt for hydrocephalus. She is an energetic, > > personable, loving person with a desire to learn on her own terms. > > Throughout the years we have run into many obstacles including > > professionals that didn't believe in her ability to learn. We have > > continued pursuing learning and even these last two year, she is > making > > amazing progress learning to read Braille after being told since > she > > was seven (and for many years after) that she would never read. > > > > My daughter has a very strong desire to have a job post high > school. > > She has her sights set on being a caregiver of some kind. She > loves > > 'taking care of' sick, injured, or sad people. Our school system > does > > not have a good transition program, but I have administration and > > teachers interested in improving it. This is what has lead me to > your > > group. > > > > I am seeking info about improving the transition program in my > > community, and making more opportunities available for the children > > coming through. Parent and/or teacher resources are welcome. Any > > help, advice would be great. > > > > Thank You. > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 Hello and welcome to the group. Hello !! I'm Derik !! haha Guess there rest of the people will tell us apart by you being the young one and me being the old one. I dont get on here much but was about to fill out the " acceptance questions " when your message popped up. Hope we can chat sometime. Derik Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2006 Report Share Posted November 3, 2006 Thanks, Derik! and I live in the Indianapolis, Indiana area. So just how " old " are you? Be happy to chat with you anytime. >From: Derik786@... >Reply- > >Subject: Re: New to Group >Date: Fri, 3 Nov 2006 07:36:47 EST > >Hello and welcome to the group. Hello !! I'm Derik !! haha Guess >there rest of the people will tell us apart by you being the young one and >me >being the old one. I dont get on here much but was about to fill out the > " acceptance questions " when your message popped up. Hope we can chat >sometime. Derik > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2006 Report Share Posted November 3, 2006 Hi and , and welcome to the group! I'm Tom, I'm 36 and have type 3, diagnosed when I was 15. SMA seems to affect everyone a little differently and it can be very challenging adapting to changes in our bodies and abilities. I'm sure you will get a lot from this group, just ask if you have any questions! Tom -------------- Original message -------------- From: " KAREN HUNT " <huntkb@...> > I have been on this site for only like a week, but was still saddened by the > passing of the moderator just after I'd been approved. I am glad to have > joined and have found it interesting to listen to others talk about SMA and > how it affects their life, as well as how you can find ways to NOT let it > hinder your life. I thought it was time I participated and told you > something about why I'm here. > > My son, , who is now 25, was diagnosed with 'a form of SMA' when he was > 19. I don't know if he has type III or what. He has gone from being a > 'healthy boy', to a young adult who had girlfriends and a car and a job, to > walking with a cane, then a walker and he is now pretty much in the chair > most of the time. He is such a trooper, but we are also struggling with > watching his life go through many changes, and let's be real here, not all > good ones. Last year, he was moved into a group home so that he can try to > work and learn to live away from his mother and become more > independent...who knows how long I'll be on this earth. His father and I are > divorced, but his father is still involved in his life, which is good. > > How does he deal with his disability? One day at a time. is > considered borderline mentally handicapped as well, so he struggles in other > ways besides his legs. I do what I can for him, to accomodate his wishes. > I was hoping to connect with others and maybe have an avenue for both me and > my son to talk to others with a similar situation. His laptop is currently > broken (again!), but I pick him up every Saturday and he spends the day and > night at 'home', so we'll be online this weekend. I haven't yet told him > about this group...wanted to see what it was all about. > > Thanks for listening and thanks for all the good networking about articles > on SMA/disabilities and medical issues and discussions. > > > > > > > A FEW RULES > > * The list members come from many backgrounds, ages and beliefs So all > members most be tolerant and respectful to all members. > > * Some adult language and topics (like sexual health, swearing..) may > occur occasionally in emails. Over use of inappropriate language will > not be allowed. If your under 16 ask your parents/gaurdian before you > join the list. > > * No SPAMMING or sending numerous emails unrelated to the topics of > spinal muscular atrophy, health, and the daily issues of the disabled. > > Post message: > Subscribe: -subscribe > Unsubscribe: -unsubscribe > > List manager: (Sexy Mature Artist) Email: Esma1999@... > > > > > oogroups.com > > List manager: (Sexy Mature Artist) Email: Esma1999@... > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 Hello Rose nice to see you here. I am intrigued..how do you find variety and enjoyment f rom a vegan diet.. I always assume vegans rely on soya..which I have read is not really that healthy in any appreciable amounts for humans. hope you get lots of good info here..I am sure you will. anne uk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 Hello, Anne. Variety is the one thing I enjoy about the vegan diet, but it's variety that I have to search for. So, I peruse the vegan cookbooks, open myself and my palate to new experiences, and I end up with a wider repertoire than when I was an omnivore. For instance, Sunday I had eggplant crouquettes, yesterday's supper was a linguine with shiitake mushrooms, baked tofu cubes, and walnuts; today, I'll be making a lentil-tomato loaf. I'm not sure where the negative spin on soya comes from, but I think you'd have to have a good deal of it. In other words, you'd probably have to have it everyday, 3x/day. But then again, nothing is necessarily good for one if it's the only think one eats. I think we probably have soy, in the form of tofu, almost everyday, but in the case of that pasta dish, it was barely a handful of baked and marinated tofu bits between us. But there's plenty of variety. Oh, yes, sometime last week I made a pizza with carmelized onions and peppers. Mmmm mmmm mmm! Now, I'm looking for more live food. Not that I want to go raw, but I think the freshness and living quality of sprouts is great. Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 Anne, I don't know about Rose, but I've been a whole foods vegan for 8 years and have been going in the direction of Raw Whole Foods Vegan in the past year. I'm 63 years old and have no health problems and take no meds of any kind--not even aspirin. However, I did have high blood pressure, IBS, lots of bladder infections, an extra 20 lbs, many premenopausal problems and constant headaches and frequent migranes before we changed our diet. Those are ALL things of the past!! My husband had also had a heart attack and was told by his doctors that he could never get off his meds. He also, now, takes no meds of any kind and has no health problems. So, even if we didn't have variety, we would probably continue to eat this way for the shear fact that we feel so much better AND younger. But the wonderful thing is that we DO have plenty of variety--even when we eat mostly raw. We also don't do much soy. There is a wonderful veggie dip that I make with boxed Mori Nu Soy Tofu, but other than that I rarely use soy or any processed food. If you are really interested in a vegan diet for health reasons, I also HIGHLY RECOMMEND that you eliminate all refined products (white, flour, sugar, white rice, etc) and additives and preservatives, and cut back on caffeine and alcohol. So, where do you get good recipes. Well, for raw foods, the absolutely best cookbook is Alissa Cohen's book, " Living on Live Food. " The recipies are easy and fantastic. The Date Nut Tort takes 5 minutes to make and is my favorite dessert for guests! Yes, we get guests! Some of the actually come more for the food than to visit us!! My favorite vegan cookbooks are Robbins book, " May All Be Fed " which in addition to a lot of good information, has wonderful recipes and Lair's cookbook, " Feeding the Whole Family. " Of course a Google search will find you more recipes than you can imagine. And last, but not lease, I'll give you my favorite fast & easy spouts meal... I buy Ezekial Sprouted Frain Tortillas at Whole Foods and spread on my raw hummus made with sprouted garbanzo beans and LOTS of fresh sprouts. Wrap it up and enjoy!! I make my own custom mix of sprouts with lots of radish and mustard seed for zing and use them any place you would use lettuce or other greens. They are our only greens in the winter. Happy sprouting! Bonnie vanadeux <vanadeux@...> wrote: Hello Rose nice to see you here. I am intrigued..how do you find variety and enjoyment f rom a vegan diet.. I always assume vegans rely on soya..which I have read is not really that healthy in any appreciable amounts for humans. hope you get lots of good info here..I am sure you will. anne uk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 I'd have to say pretty much the same thing as Bonnie, especially about the whole foods. Fred and I eat mostly whole foods, very few processed foods, and of those, they are not what I consider highly processed, like some of those packaged foods that are supposed to resemble non-vegan meals. We eat nuts and grains, fruits and vegetables, tofu. I try not to overcook, I stay away from heavy frying. We do stir-fry once in a while. We don't worry about calories. My big concern is low blood sugar, so I have to make sure that I'm having protein with a meal that has fruit in it. I'm off sugar, except for the 2 tablespoons that I put in my two-loaf whole wheat bread recipe. (Speaking of bread recipes, the sprouted breads is one of the reasons I'm thinking about sprouts). I've also found that the longer I'm on this diet, the more my " intuition " speaks to me. I start listening to my body. Lately, I've found, that I have no appetite for bread, not that I have a lot to begin with, but that feeling of avoidance tells me my body doesn't want it. I notice also that my desire for coffee has decreased tremendously. All in all, the vegan diet works for me. Of course, everything is organic or certified organic. I won't buy anything that isn't one of those two. I have found that when I went off the vegan diet, my health changed almost immediately. Even if I had butter on toast, everything began to change. The first thing to change was my appetite. It became uncontrollable - and that's with no meat, just dairy. If I ate meat, like a steak, my desire for sugar skyrocketed. So, the non-vegan diet definitely wreaks havoc. I've learned, though, that the reason I had gone off the vegan diets before was because I wasn't paying attention to the blood sugar. I thought that as long as I was eating vegan, whole foods, raw foods, etc., I was OK. But my breakfast contained a bowl full of fruit and some nuts. That blast of sugar was a no-no and began to take its toll after a while. The toll was not only physical, but psychological and emotional. Well, I'll stop, otherwise this will turn into a blog! Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 --- Rose Lieberman <lapis@...> wrote: I'm not sure where the negative spin on soya comes > from, but I think you'd have to have a good deal of > it. Hi all, I suggest looking up " soy and phytic acid " online. The soy plant contains a high amount of phytic acid to such a degree that it inhibits the body's absorption of vitamins and minerals to a very unhealthy level. If you do look it up, you'll probably run across Dr. ph Mercola's site; I found his site nice. Sprouted and fermented forms of soy are cool to eat because their phtyic acid is deactivated. As is a common note on this list, the FDA has certainly chosen the dollar over the man, in this instance, to market the soybean. So keep up the Food For Life tortilla dishes (they have sprouted soy) because they're yummy Lotsa Luv & Luck, Zia ________________________________________________________________________________\ ____ Music Unlimited Access over 1 million songs. http://music./unlimited Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 Rose, it sounds like you are at about the same place I am. I have a wonderful bread recipe that uses lots of raw seeds (sunflower, sesame, poppy, and flax), a little raw honey and no other sweetener, and everyone loves it. However, I now only ever make it for company because the only bread I really enjoy anymore is the Ezekeil. It is so good I haven't bothered to make my own sprouted bread since it is a lot of work and I haven't been happy with the flavor of mine. I also have a blood sugar problem and if I do any sugar or refined flour at all when we are out somewhere, the next thing you know I am hungry all the time! I have found that chia seeds seem to help. I mix them 8:1 with water and add the resulting " chia gel " to watered down orange juice (full strength is too sweet for me) or in fruit smoothies I make in my Vita Mix. The chia seeds are so loaded with Omega 3 that even if you don't think it helps your blood sugar/craving problem, it is certainly the best source of Omega 3 around. For anyone not knowing about chia seeds, click HERE or if that doesn't work, type in this website address... http://www.menu4life.com/magic_of_chia.htm BTW, chia seeds are very bitter sprouted, so the best way is just the soaking for 1/2 hour and storing in the fridge. There is no rinsing because with 8 parts water and 1 part chia seeds, all the water is absorbed into a gel-like consistency. The only taste is that of the water you use--hopefully none!! Bonnie Rose Lieberman <lapis@...> wrote: I'd have to say pretty much the same thing as Bonnie, especially about the whole foods. Fred and I eat mostly whole foods, very few processed foods, and of those, they are not what I consider highly processed, like some of those packaged foods that are supposed to resemble non-vegan meals. We eat nuts and grains, fruits and vegetables, tofu. I try not to overcook, I stay away from heavy frying. We do stir-fry once in a while. We don't worry about calories. My big concern is low blood sugar, so I have to make sure that I'm having protein with a meal that has fruit in it. I'm off sugar, except for the 2 tablespoons that I put in my two-loaf whole wheat bread recipe. (Speaking of bread recipes, the sprouted breads is one of the reasons I'm thinking about sprouts). I've also found that the longer I'm on this diet, the more my " intuition " speaks to me. I start listening to my body. Lately, I've found, that I have no appetite for bread, not that I have a lot to begin with, but that feeling of avoidance tells me my body doesn't want it. I notice also that my desire for coffee has decreased tremendously. All in all, the vegan diet works for me. Of course, everything is organic or certified organic. I won't buy anything that isn't one of those two. I have found that when I went off the vegan diet, my health changed almost immediately. Even if I had butter on toast, everything began to change. The first thing to change was my appetite. It became uncontrollable - and that's with no meat, just dairy. If I ate meat, like a steak, my desire for sugar skyrocketed. So, the non-vegan diet definitely wreaks havoc. I've learned, though, that the reason I had gone off the vegan diets before was because I wasn't paying attention to the blood sugar. I thought that as long as I was eating vegan, whole foods, raw foods, etc., I was OK. But my breakfast contained a bowl full of fruit and some nuts. That blast of sugar was a no-no and began to take its toll after a while. The toll was not only physical, but psychological and emotional. Well, I'll stop, otherwise this will turn into a blog! Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 Hi everybody, I've never posted on the group but did notice some coherent and interesting conversations on the group. A while back I happened to drop in during a pretty disfunctional bickering session so I went away. Thanks for the info. Rick I'd have to say pretty much the same thing as Bonnie, especially about the whole foods. Fred and I eat mostly whole foods, very few processed foods, and of those, they are not what I consider highly processed, like some of those packaged foods that are supposed to resemble non-vegan meals. > > We eat nuts and grains, fruits and vegetables, tofu. I try not to overcook, I stay away from heavy frying. We do stir-fry once in a while. We don't worry about calories. > > My big concern is low blood sugar, so I have to make sure that I'm having protein with a meal that has fruit in it. I'm off sugar, except for the 2 tablespoons that I put in my two-loaf whole wheat bread recipe. (Speaking of bread recipes, the sprouted breads is one of the reasons I'm thinking about sprouts). > > I've also found that the longer I'm on this diet, the more my " intuition " speaks to me. I start listening to my body. Lately, I've found, that I have no appetite for bread, not that I have a lot to begin with, but that feeling of avoidance tells me my body doesn't want it. > > I notice also that my desire for coffee has decreased tremendously. > > All in all, the vegan diet works for me. Of course, everything is organic or certified organic. I won't buy anything that isn't one of those two. > > I have found that when I went off the vegan diet, my health changed almost immediately. Even if I had butter on toast, everything began to change. The first thing to change was my appetite. It became uncontrollable - and that's with no meat, just dairy. If I ate meat, like a steak, my desire for sugar skyrocketed. So, the non-vegan diet definitely wreaks havoc. I've learned, though, that the reason I had gone off the vegan diets before was because I wasn't paying attention to the blood sugar. I thought that as long as I was eating vegan, whole foods, raw foods, etc., I was OK. But my breakfast contained a bowl full of fruit and some nuts. That blast of sugar was a no-no and began to take its toll after a while. The toll was not only physical, but psychological and emotional. > > Well, I'll stop, otherwise this will turn into a blog! > > Rose > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 In a message dated 11/14/2006 6:28:41 A.M. Central Standard Time, bogeoklein@... writes: .. There is a wonderful veggie dip that I make with boxed Mori Nu Soy Tofu, but other than that I rarely use soy or any processed food. please share how u make it Shalom Haver (Hello Friend); Dee , & All the vegan furkids " May God bless you and keep you! " May God deal kindly and graciously with you! " May God bestow favor upon you and grant you peace! " B'Shem Yeshua: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2006 Report Share Posted November 16, 2006 Unfortunately it is a 3 part recipe. I use a recipe for an eggless mayo, a recipe for herbal seasoning, and a recipe for a herb curry dip. The original herb curry dip used real commercial mayonnaise and that is a no-no. I got the Eggless Mayo recipe from a cookbook called " The Light Body " by Marita . Her recipes are wonderful, but they are all a bit time-consuming until you have made them for awhile. They contain a lot of ingredients. I will try to post the recipe in the file section. messianicvegan@... wrote: In a message dated 11/14/2006 6:28:41 A.M. Central Standard Time, bogeoklein@... writes: . There is a wonderful veggie dip that I make with boxed Mori Nu Soy Tofu, but other than that I rarely use soy or any processed food. please share how u make it Shalom Haver (Hello Friend); Dee , & All the vegan furkids " May God bless you and keep you! " May God deal kindly and graciously with you! " May God bestow favor upon you and grant you peace! " B'Shem Yeshua: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 Have you ever done biomedical treatments and/or seen a DAN or alternative doctor? I ask this because if your son is aggressive, there probably is an underlying cause. Gut problems? Any other medical issues? High testosterone? Just a thought. Kathy New To Group Hi, my name is Theresa. I have a 17 year old autistic son who also has an uncontrolled seizure disorder. My main concern with my son right now is his hitting people. He has been going through this for years off and on. He will go months without hitting and then all of a sudden it will start up again. His pediatrician has him on haldol for this and just increases the dosage when he starts up but I am hoping to get suggestions on what I can do besides rely on medicine. Sometimes the hitting is triggered if someone says something to him that he doesn't like and sometimes he will just hit for no apparent reason. Years ago he would literally just start hitting me in the car while we were driving home after I got off work. Just yesterday as we were leaving my parents house, out of the blue he socked me in the arm. This morning when we were about to leave the house he had his arms loaded with things he wanted to take to grandma's house and he kept dropping things so I told him "you are trying to carry too much, you do not need to take all of that, put some things back". Well that was enough to sock me. He also hits kids in his classroom for no apparent reason. One minute he is fine and the next minute, watch out kids. His nuerologist suggested that it may be what they call violent seizures but who knows. I just know that I get very frustrated when he does this because for one, he could hurt someone, and also because I do not know what to do. I could really use some help if anyone has any suggestions. Thank you and sorry this was so long. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 Have you ever done biomedical treatments and/or seen a DAN or alternative doctor? I ask this because if your son is aggressive, there probably is an underlying cause. Gut problems? Any other medical issues? High testosterone? Just a thought. Kathy New To Group Hi, my name is Theresa. I have a 17 year old autistic son who also has an uncontrolled seizure disorder. My main concern with my son right now is his hitting people. He has been going through this for years off and on. He will go months without hitting and then all of a sudden it will start up again. His pediatrician has him on haldol for this and just increases the dosage when he starts up but I am hoping to get suggestions on what I can do besides rely on medicine. Sometimes the hitting is triggered if someone says something to him that he doesn't like and sometimes he will just hit for no apparent reason. Years ago he would literally just start hitting me in the car while we were driving home after I got off work. Just yesterday as we were leaving my parents house, out of the blue he socked me in the arm. This morning when we were about to leave the house he had his arms loaded with things he wanted to take to grandma's house and he kept dropping things so I told him "you are trying to carry too much, you do not need to take all of that, put some things back". Well that was enough to sock me. He also hits kids in his classroom for no apparent reason. One minute he is fine and the next minute, watch out kids. His nuerologist suggested that it may be what they call violent seizures but who knows. I just know that I get very frustrated when he does this because for one, he could hurt someone, and also because I do not know what to do. I could really use some help if anyone has any suggestions. Thank you and sorry this was so long. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Theresa, Hi! I have a 19 year old son with autism (JJ) and J was doing the same thing. B-12 shots has helped J alot!!!!!!!!! He still gets his momants but is doing a whole lot better. Please e-mail me if you want more info. ((HUGS)) Lois New To Group Hi, my name is Theresa. I have a 17 year old autistic son who also has an uncontrolled seizure disorder. My main concern with my son right now is his hitting people. He has been going through this for years off and on. He will go months without hitting and then all of a sudden it will start up again. His pediatrician has him on haldol for this and just increases the dosage when he starts up but I am hoping to get suggestions on what I can do besides rely on medicine. Sometimes the hitting is triggered if someone says something to him that he doesn't like and sometimes he will just hit for no apparent reason. Years ago he would literally just start hitting me in the car while we were driving home after I got off work. Just yesterday as we were leaving my parents house, out of the blue he socked me in the arm. This morning when we were about to leave the house he had his arms loaded with things he wanted to take to grandma's house and he kept dropping things so I told him "you are trying to carry too much, you do not need to take all of that, put some things back". Well that was enough to sock me. He also hits kids in his classroom for no apparent reason. One minute he is fine and the next minute, watch out kids. His nuerologist suggested that it may be what they call violent seizures but who knows. I just know that I get very frustrated when he does this because for one, he could hurt someone, and also because I do not know what to do. I could really use some help if anyone has any suggestions. Thank you and sorry this was so long. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Theresa, Hi! I have a 19 year old son with autism (JJ) and J was doing the same thing. B-12 shots has helped J alot!!!!!!!!! He still gets his momants but is doing a whole lot better. Please e-mail me if you want more info. ((HUGS)) Lois New To Group Hi, my name is Theresa. I have a 17 year old autistic son who also has an uncontrolled seizure disorder. My main concern with my son right now is his hitting people. He has been going through this for years off and on. He will go months without hitting and then all of a sudden it will start up again. His pediatrician has him on haldol for this and just increases the dosage when he starts up but I am hoping to get suggestions on what I can do besides rely on medicine. Sometimes the hitting is triggered if someone says something to him that he doesn't like and sometimes he will just hit for no apparent reason. Years ago he would literally just start hitting me in the car while we were driving home after I got off work. Just yesterday as we were leaving my parents house, out of the blue he socked me in the arm. This morning when we were about to leave the house he had his arms loaded with things he wanted to take to grandma's house and he kept dropping things so I told him "you are trying to carry too much, you do not need to take all of that, put some things back". Well that was enough to sock me. He also hits kids in his classroom for no apparent reason. One minute he is fine and the next minute, watch out kids. His nuerologist suggested that it may be what they call violent seizures but who knows. I just know that I get very frustrated when he does this because for one, he could hurt someone, and also because I do not know what to do. I could really use some help if anyone has any suggestions. Thank you and sorry this was so long. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Hey Eileen! Your husband has something in common with Abraham Lincoln. He also had Marfans Syndrome. Sue For a REALLY HOT time check out http://www.peternoone.com and http://www.mikesmith1964.com New to Group Hello:My name is Eileen I am 53yo and live in New Hampshire. This group so far looks wonderful. I am glad to be a new part of it. I live with my dh who is just wonderful and Ill also. I have Arthritis since birth, copd, sleep apnea, DJD, DDD, have had multiple joint replacements. We unfortunatly had no children but we have 19 wonderful nieces and nephews. My husband has Marfans and just had and aortic replacement in 8/7/06. He is still recuperating and will possibly have to go on ssdi.My hobbies include: Quilting, sewing, reading constantly, scrapbooking and painting but not as much as I used to. We hope to meet all the people in the group and will be glad to listen and help in anyway as i'm sure, it seems, people in here would do it for me also.Eileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Hey Eileen! Your husband has something in common with Abraham Lincoln. He also had Marfans Syndrome. Sue For a REALLY HOT time check out http://www.peternoone.com and http://www.mikesmith1964.com New to Group Hello:My name is Eileen I am 53yo and live in New Hampshire. This group so far looks wonderful. I am glad to be a new part of it. I live with my dh who is just wonderful and Ill also. I have Arthritis since birth, copd, sleep apnea, DJD, DDD, have had multiple joint replacements. We unfortunatly had no children but we have 19 wonderful nieces and nephews. My husband has Marfans and just had and aortic replacement in 8/7/06. He is still recuperating and will possibly have to go on ssdi.My hobbies include: Quilting, sewing, reading constantly, scrapbooking and painting but not as much as I used to. We hope to meet all the people in the group and will be glad to listen and help in anyway as i'm sure, it seems, people in here would do it for me also.Eileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Theresa, welcome to the group; that is a tough one. I have a 14 year old autistic grandson that I diagnosed and have been working with every day for 11 years. That is one problem that he has not had. However, his 5 year old (normal?) little brother hits his mother, sister, friends etc. when things don't go his way. Could your son have an anger problem that needs to find another avenue of expression? Is your son verbal? Could he be taught to say I am angry instead of hitting? Does he get a lot of exercise? I think exercise is good to work off anger. Of course if the hitting is coming from some physiological reflex that he has no control over then I can't think of anything that would work other than medication. I think I read that some aggression can come from damage to the amygdala and that there is a difference in the amygdala in some autistic children. Karac use to bite when he was angry or hurting. We taught him that he couldn't bite people, but he could bite his plastic drinking bottle that he always had with him. He ruined a lot of those bottles before he finally quit biting, but that was better than him biting on my arms! As you said, many of these behaviors just come and go for no apparent reason. Good luck and welcome to the group. Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Theresa, welcome to the group; that is a tough one. I have a 14 year old autistic grandson that I diagnosed and have been working with every day for 11 years. That is one problem that he has not had. However, his 5 year old (normal?) little brother hits his mother, sister, friends etc. when things don't go his way. Could your son have an anger problem that needs to find another avenue of expression? Is your son verbal? Could he be taught to say I am angry instead of hitting? Does he get a lot of exercise? I think exercise is good to work off anger. Of course if the hitting is coming from some physiological reflex that he has no control over then I can't think of anything that would work other than medication. I think I read that some aggression can come from damage to the amygdala and that there is a difference in the amygdala in some autistic children. Karac use to bite when he was angry or hurting. We taught him that he couldn't bite people, but he could bite his plastic drinking bottle that he always had with him. He ruined a lot of those bottles before he finally quit biting, but that was better than him biting on my arms! As you said, many of these behaviors just come and go for no apparent reason. Good luck and welcome to the group. Pat K Quote Link to comment Share on other sites More sharing options...
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