Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Thanks to everyone for the warm welcome. My son is 12 years old. He started exhibiting signs as early as 4. We struggled with it for years until we got a firm handle on the fact that it was OCD (not anxiety, not school phobia, etc.), but the puzzle began to click into place after researching my husband's family. It was a verboten topic in their family, but I finally got them talking. There were a number of relatives who exhibited contamination and religious/scrupulosity categories of OCD. Here is a very interesting thing that occurred in our family, and I hope it may help you all think about how powerful it is to try to extinguish compulsions. A member of our family who had severe OCD (religious/scrupulosity/contamination) had a benign brain tumor removed which left her paralyzed (due to an anesthesia error). It was a horrible event, however, while talking to her months afterward about her OCD (which she'd shown as a very young child) she told me that her OCD had abated to a very large extent (90%) because she could no longer perform her rituals! I was fascinated by this. She had spent hours washing, praying, etc. before surgery. When she was not able to do this after surgery, her obsessive thoughts could not get the " relief " compulsions are thought to give, and over time, the thoughts decreased. I think this is why CBT works so well. It works to eliminate the compulsive behaviors first, which helps decrease the obsessive thoughts. I don't want to belabor this here, but I think it's fascinating that my relative was sort of a " test case " for what happens if rituals cannot be performed. It's not likely that this could ever be tested on anyone to any great degree without restraining them for a long period of time, which is just impossible. I just found it very enlightening regarding the theories of tackling the compulsive behavior before dealing with the obssesive thoughts. That said, although we got great results with medication, CBT, and exposure therapy with my son, he still obsesses at times. However, he does not perform the compulsive behaviors which took up so much time and caused such great anxiety if they were not completed correctly. He learned that performing the rituals had nothing to do with the thoughts over time, and now he handles his tendency to obsess about all manner of things with greater control. : My son also showed flashes of scrupulosity/religious related OCD, and it actually kept me away from organized religion, because I was so afraid he would just take off with that if he started thinking too much about God, evil, etc. The more information OCDers get, the more they do with it, etc. Although I kept him off medication for years (I, too, tried Omega 3 for a while), we eventually placed him on Zoloft. It has worked very well for him, and he's been on it for four years or so. It's greatest effect was in easing the anxiety that had so overwhelmed him. I do hope researchers continue to look into the genetic component of OCD. We have been part of the studies at s Hopkins regarding this. My nephew (now 4) was recently diagnosed with OCD. Luckily for him, the family is in full communication regarding our genetic heritage and OCD, so his mom didn't have to struggle to figure out what was happening with him. Sorry so long, just wanted to give you some background. Thanks again for the warm welcomes. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Great work you've done, . Welcome to the group. The full series is being reprinted this month in the Schafer Autism Report. Lenny Schafer EOHarm List Co-Host and SAR editor. > > Hi everyone. > I just joined this group. I see you guys have talked about my > series... Thank you so much for spreading the word about the reports. > The team worked very hard. > I will be at A1 this year. I would love to meet anyone and hear your > comments on our series... > > Thank you! > Reynolds > Areynolds.autism@... > www.combatingautismfromwithin.blogspot.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Hi and welcome. I am new as well. I just replied to Jeanette from Ontario who is also new to the group. Our son (17 yrs) has OCD. We also have a genetic factor. No one else in the family has had OCD, but there is family history of other anxiety disorders and related disorders on both sides of our family. My mom was bipolar. My paternal grandmother has generalized anxiety disorder. My husband's father has depression and my husband has generalized anxiety disorder. So, basically our son has some pretty messed up genes. We also have a daughter (20 yrs) who apparently got all the good genes. From what I have seen already, this is a really supportive group. They have a lot of knowledge and experience they can share with us " newbies " . Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Wow, that is interesting about your paralyzed relative. As I was reading it I was thinking about how she was forced to do exposure therapy, not being able to perform the ritual. She is proof of what I've read about how exposure therpy and CBT can actually change your brain and how it works. That is pretty cool. We also have avoided church due to our son's propensity to focus on all things religious, then meltdown with his scupulosity. I remember one phase where he NEEDED a 100% guarantee that he wasn't going to go to hell. Anything I said made it worse. <sigh> Anyway,at times I've wondered if that was really the best choice (avoiding church). I've found, for our son, the more we avoid a situation, even if it calms him at the time, the more he fears it when he is confronted with it again. There is something to desensitizing the OCDer to the things they fear, but how to apply that without causing meltdown can sure be tricky. Our son's therapist has been working with me as well as our son, to try to help me to realize that my protecting him doesn't always help him. As a Mom, it might feel like the right thing to do, and it might even feel right at the time. .. But, in the long run, it doesn't help him. But, I do know what you mean about being afraid of them being around it because they start thinking about it too much. Our son has done that a lot. Reading Biology last year for school, he started melting down about genetic diseases because my Dad has Alzheimers. These situations are obviously OCD overreacting to a situation. How to handle them? I'm not entirely sure. We've still got some of this to tackle in therapy. I just know I've really missed church over the years. BJ > > Thanks to everyone for the warm welcome. My son is 12 years old. He > started exhibiting signs as early as 4. We struggled with it for > years until we got a firm handle on the fact that it was OCD (not > anxiety, not school phobia, etc.), but the puzzle began to click into > place after researching my husband's family. It was a verboten topic > in their family, but I finally got them talking. There were a number > of relatives who exhibited contamination and religious/scrupulosity > categories of OCD. > > Here is a very interesting thing that occurred in our family, and I > hope it may help you all think about how powerful it is to try to > extinguish compulsions. A member of our family who had severe OCD > (religious/scrupulosity/contamination) had a benign brain tumor > removed which left her paralyzed (due to an anesthesia error). It > was a horrible event, however, while talking to her months afterward > about her OCD (which she'd shown as a very young child) she told me > that her OCD had abated to a very large extent (90%) because she > could no longer perform her rituals! I was fascinated by this. She > had spent hours washing, praying, etc. before surgery. When she was > not able to do this after surgery, her obsessive thoughts could not > get the " relief " compulsions are thought to give, and over time, the > thoughts decreased. > > I think this is why CBT works so well. It works to eliminate the > compulsive behaviors first, which helps decrease the obsessive > thoughts. I don't want to belabor this here, but I think it's > fascinating that my relative was sort of a " test case " for what > happens if rituals cannot be performed. It's not likely that this > could ever be tested on anyone to any great degree without > restraining them for a long period of time, which is just > impossible. I just found it very enlightening regarding the theories > of tackling the compulsive behavior before dealing with the obssesive > thoughts. > > That said, although we got great results with medication, CBT, and > exposure therapy with my son, he still obsesses at times. However, > he does not perform the compulsive behaviors which took up so much > time and caused such great anxiety if they were not completed > correctly. He learned that performing the rituals had nothing to do > with the thoughts over time, and now he handles his tendency to > obsess about all manner of things with greater control. > > : My son also showed flashes of scrupulosity/religious > related OCD, and it actually kept me away from organized religion, > because I was so afraid he would just take off with that if he > started thinking too much about God, evil, etc. The more information > OCDers get, the more they do with it, etc. > > Although I kept him off medication for years (I, too, tried Omega 3 > for a while), we eventually placed him on Zoloft. It has worked very > well for him, and he's been on it for four years or so. It's > greatest effect was in easing the anxiety that had so overwhelmed > him. > > I do hope researchers continue to look into the genetic component of > OCD. We have been part of the studies at s Hopkins regarding > this. My nephew (now 4) was recently diagnosed with OCD. Luckily > for him, the family is in full communication regarding our genetic > heritage and OCD, so his mom didn't have to struggle to figure out > what was happening with him. > > Sorry so long, just wanted to give you some background. Thanks again > for the warm welcomes. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 A comment regarding your relative's inability to perform rituals, and that she was in an enforced or no-choice situation, due to her paralysis (this might apply mainly to scrupulosity or hyper responsibility ocd). I know that ERP is supposed to take place with willing participation of the client, but I think there is something to enforcing treatment, or making it somehow non-negotoiable in some cases, that relieves the individual of responsibility for choosing to do or not do the ritual. If one has no choice but to forgo the rituals (illness, hospitalization, inpatient treatment, disaster/crisis, or whatever non-negotiable setting) I think one's mind tells them that they are not then fully resposnible for consequences-which is a relief in a way. So in cases of scrupulosity or hyper responsbility, an enforced treatment situation might even be relieving b/c the individual is absolved of all the doubts and baggage associated with free will and choice. I think in my dd's case (scrupulous based eating disorder) that was the only way to get her to eat enough(inpatient). If we could have created the non-negotiable set up at home we would have. Inpatient enforced treatment kind of breaks the back of the rituals that are absolute and non-negotiable in the sufferer's perception, so that they can see it otherwise, and treatment can move forward. At some point the free will and choice has to come into play again, but maybe once the ocd-individual is less compromised by a rigid and absolutist perception (and the increased flexibility is initiated by " forced " violation of rituals). nancy grace > > > > Thanks to everyone for the warm welcome. My son is 12 years old. He > > started exhibiting signs as early as 4. We struggled with it for > > years until we got a firm handle on the fact that it was OCD (not > > anxiety, not school phobia, etc.), but the puzzle began to click into > > place after researching my husband's family. It was a verboten topic > > in their family, but I finally got them talking. There were a number > > of relatives who exhibited contamination and religious/scrupulosity > > categories of OCD. > > > > Here is a very interesting thing that occurred in our family, and I > > hope it may help you all think about how powerful it is to try to > > extinguish compulsions. A member of our family who had severe OCD > > (religious/scrupulosity/contamination) had a benign brain tumor > > removed which left her paralyzed (due to an anesthesia error). It > > was a horrible event, however, while talking to her months afterward > > about her OCD (which she'd shown as a very young child) she told me > > that her OCD had abated to a very large extent (90%) because she > > could no longer perform her rituals! I was fascinated by this. She > > had spent hours washing, praying, etc. before surgery. When she was > > not able to do this after surgery, her obsessive thoughts could not > > get the " relief " compulsions are thought to give, and over time, the > > thoughts decreased. > > > > I think this is why CBT works so well. It works to eliminate the > > compulsive behaviors first, which helps decrease the obsessive > > thoughts. I don't want to belabor this here, but I think it's > > fascinating that my relative was sort of a " test case " for what > > happens if rituals cannot be performed. It's not likely that this > > could ever be tested on anyone to any great degree without > > restraining them for a long period of time, which is just > > impossible. I just found it very enlightening regarding the theories > > of tackling the compulsive behavior before dealing with the obssesive > > thoughts. > > > > That said, although we got great results with medication, CBT, and > > exposure therapy with my son, he still obsesses at times. However, > > he does not perform the compulsive behaviors which took up so much > > time and caused such great anxiety if they were not completed > > correctly. He learned that performing the rituals had nothing to do > > with the thoughts over time, and now he handles his tendency to > > obsess about all manner of things with greater control. > > > > : My son also showed flashes of scrupulosity/religious > > related OCD, and it actually kept me away from organized religion, > > because I was so afraid he would just take off with that if he > > started thinking too much about God, evil, etc. The more information > > OCDers get, the more they do with it, etc. > > > > Although I kept him off medication for years (I, too, tried Omega 3 > > for a while), we eventually placed him on Zoloft. It has worked very > > well for him, and he's been on it for four years or so. It's > > greatest effect was in easing the anxiety that had so overwhelmed > > him. > > > > I do hope researchers continue to look into the genetic component of > > OCD. We have been part of the studies at s Hopkins regarding > > this. My nephew (now 4) was recently diagnosed with OCD. Luckily > > for him, the family is in full communication regarding our genetic > > heritage and OCD, so his mom didn't have to struggle to figure out > > what was happening with him. > > > > Sorry so long, just wanted to give you some background. Thanks again > > for the warm welcomes. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 I think you are right on target, . That's why " talk " therapy, or trying to reason with the obsessive throughts behind the rituals is futile. Interesting how tackling the rituals first works backward to get at the obsessive thoughts. The thoughts lose all their power. > > > > > > Thanks to everyone for the warm welcome. My son is 12 years > old. He > > > started exhibiting signs as early as 4. We struggled with it for > > > years until we got a firm handle on the fact that it was OCD (not > > > anxiety, not school phobia, etc.), but the puzzle began to click > into > > > place after researching my husband's family. It was a verboten > topic > > > in their family, but I finally got them talking. There were a > number > > > of relatives who exhibited contamination and > religious/scrupulosity > > > categories of OCD. > > > > > > Here is a very interesting thing that occurred in our family, and > I > > > hope it may help you all think about how powerful it is to try to > > > extinguish compulsions. A member of our family who had severe > OCD > > > (religious/scrupulosity/contamination) had a benign brain tumor > > > removed which left her paralyzed (due to an anesthesia error). > It > > > was a horrible event, however, while talking to her months > afterward > > > about her OCD (which she'd shown as a very young child) she told > me > > > that her OCD had abated to a very large extent (90%) because she > > > could no longer perform her rituals! I was fascinated by this. > She > > > had spent hours washing, praying, etc. before surgery. When she > was > > > not able to do this after surgery, her obsessive thoughts could > not > > > get the " relief " compulsions are thought to give, and over time, > the > > > thoughts decreased. > > > > > > I think this is why CBT works so well. It works to eliminate the > > > compulsive behaviors first, which helps decrease the obsessive > > > thoughts. I don't want to belabor this here, but I think it's > > > fascinating that my relative was sort of a " test case " for what > > > happens if rituals cannot be performed. It's not likely that > this > > > could ever be tested on anyone to any great degree without > > > restraining them for a long period of time, which is just > > > impossible. I just found it very enlightening regarding the > theories > > > of tackling the compulsive behavior before dealing with the > obssesive > > > thoughts. > > > > > > That said, although we got great results with medication, CBT, > and > > > exposure therapy with my son, he still obsesses at times. > However, > > > he does not perform the compulsive behaviors which took up so > much > > > time and caused such great anxiety if they were not completed > > > correctly. He learned that performing the rituals had nothing to > do > > > with the thoughts over time, and now he handles his tendency to > > > obsess about all manner of things with greater control. > > > > > > : My son also showed flashes of > scrupulosity/religious > > > related OCD, and it actually kept me away from organized > religion, > > > because I was so afraid he would just take off with that if he > > > started thinking too much about God, evil, etc. The more > information > > > OCDers get, the more they do with it, etc. > > > > > > Although I kept him off medication for years (I, too, tried Omega > 3 > > > for a while), we eventually placed him on Zoloft. It has worked > very > > > well for him, and he's been on it for four years or so. It's > > > greatest effect was in easing the anxiety that had so overwhelmed > > > him. > > > > > > I do hope researchers continue to look into the genetic component > of > > > OCD. We have been part of the studies at s Hopkins regarding > > > this. My nephew (now 4) was recently diagnosed with OCD. > Luckily > > > for him, the family is in full communication regarding our > genetic > > > heritage and OCD, so his mom didn't have to struggle to figure > out > > > what was happening with him. > > > > > > Sorry so long, just wanted to give you some background. Thanks > again > > > for the warm welcomes. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Good point, Grace. > > > > > > Thanks to everyone for the warm welcome. My son is 12 years > old. He > > > started exhibiting signs as early as 4. We struggled with it for > > > years until we got a firm handle on the fact that it was OCD (not > > > anxiety, not school phobia, etc.), but the puzzle began to click > into > > > place after researching my husband's family. It was a verboten > topic > > > in their family, but I finally got them talking. There were a > number > > > of relatives who exhibited contamination and > religious/scrupulosity > > > categories of OCD. > > > > > > Here is a very interesting thing that occurred in our family, and > I > > > hope it may help you all think about how powerful it is to try to > > > extinguish compulsions. A member of our family who had severe > OCD > > > (religious/scrupulosity/contamination) had a benign brain tumor > > > removed which left her paralyzed (due to an anesthesia error). > It > > > was a horrible event, however, while talking to her months > afterward > > > about her OCD (which she'd shown as a very young child) she told > me > > > that her OCD had abated to a very large extent (90%) because she > > > could no longer perform her rituals! I was fascinated by this. > She > > > had spent hours washing, praying, etc. before surgery. When she > was > > > not able to do this after surgery, her obsessive thoughts could > not > > > get the " relief " compulsions are thought to give, and over time, > the > > > thoughts decreased. > > > > > > I think this is why CBT works so well. It works to eliminate the > > > compulsive behaviors first, which helps decrease the obsessive > > > thoughts. I don't want to belabor this here, but I think it's > > > fascinating that my relative was sort of a " test case " for what > > > happens if rituals cannot be performed. It's not likely that > this > > > could ever be tested on anyone to any great degree without > > > restraining them for a long period of time, which is just > > > impossible. I just found it very enlightening regarding the > theories > > > of tackling the compulsive behavior before dealing with the > obssesive > > > thoughts. > > > > > > That said, although we got great results with medication, CBT, > and > > > exposure therapy with my son, he still obsesses at times. > However, > > > he does not perform the compulsive behaviors which took up so > much > > > time and caused such great anxiety if they were not completed > > > correctly. He learned that performing the rituals had nothing to > do > > > with the thoughts over time, and now he handles his tendency to > > > obsess about all manner of things with greater control. > > > > > > : My son also showed flashes of > scrupulosity/religious > > > related OCD, and it actually kept me away from organized > religion, > > > because I was so afraid he would just take off with that if he > > > started thinking too much about God, evil, etc. The more > information > > > OCDers get, the more they do with it, etc. > > > > > > Although I kept him off medication for years (I, too, tried Omega > 3 > > > for a while), we eventually placed him on Zoloft. It has worked > very > > > well for him, and he's been on it for four years or so. It's > > > greatest effect was in easing the anxiety that had so overwhelmed > > > him. > > > > > > I do hope researchers continue to look into the genetic component > of > > > OCD. We have been part of the studies at s Hopkins regarding > > > this. My nephew (now 4) was recently diagnosed with OCD. > Luckily > > > for him, the family is in full communication regarding our > genetic > > > heritage and OCD, so his mom didn't have to struggle to figure > out > > > what was happening with him. > > > > > > Sorry so long, just wanted to give you some background. Thanks > again > > > for the warm welcomes. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Ms. Reynolds: I will be speaking at AutismOne this year and would be honored to meet you. I think I will be giving what I call my " X-files " lecture which puts the current situation in perspective - historic perspective. How did we get to a place where poorly informed physician-administrator civil servants became the dupes dark-hearted individuals as they a corrupted and manipulated a medical intervention that was originally meant to protect but instead became a tool to make people sick and create revenue streams. This is so much more than heavy metals, the toxicity of which these physicians knew nothing about - that is put the tip of the iceberg. And when they found out they went into cover up mode, because by now they were but employees of the manufacturers. KP Stoller, MD President, International Hyperbaric Medical Assoc Medical Director, Hyperbaric Medical Center of New Mexico www.hbotnm.com _____________________________________________________________ How pure is your water? Click now and get pure water filtration. http://thirdpartyoffers.netzero.net/TGL2221/fc/Ioyw6i4tVtY0yuNXMcFQ5O2dKNlvNmwQD\ P1QYM4PGOA0xNZxtZ5Npa/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Ms. Reynolds: I will be speaking at AutismOne this year and would be honored to meet you. I think I will be giving what I call my " X-files " lecture which puts the current situation in perspective - historic perspective. How did we get to a place where poorly informed physician-administrator civil servants became the dupes dark-hearted individuals as they a corrupted and manipulated a medical intervention that was originally meant to protect but instead became a tool to make people sick and create revenue streams. This is so much more than heavy metals, the toxicity of which these physicians knew nothing about - that is put the tip of the iceberg. And when they found out they went into cover up mode, because by now they were but employees of the manufacturers. KP Stoller, MD President, International Hyperbaric Medical Assoc Medical Director, Hyperbaric Medical Center of New Mexico www.hbotnm.com _____________________________________________________________ How pure is your water? Click now and get pure water filtration. http://thirdpartyoffers.netzero.net/TGL2221/fc/Ioyw6i4tVtY0yuNXMcFQ5O2dKNlvNmwQD\ P1QYM4PGOA0xNZxtZ5Npa/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 I am also fascinated with the paralyzed relative -- good information for the researchers to have. And I really appreciate everyone elses thoughtful comments. I am wondering how this works into the school and school phobia picture. I know this is a hot topic -- for me and for many of you as well. My son is on homebound instruction right now, and my biggest fear was always that if I let him drop school (for now), what would he want to drop out of next? Still worrying about that one. Any thoughts? mm > > > > > > > > Thanks to everyone for the warm welcome. My son is 12 years > > old. He > > > > started exhibiting signs as early as 4. We struggled with it for > > > > years until we got a firm handle on the fact that it was OCD (not > > > > anxiety, not school phobia, etc.), but the puzzle began to click > > into > > > > place after researching my husband's family. It was a verboten > > topic > > > > in their family, but I finally got them talking. There were a > > number > > > > of relatives who exhibited contamination and > > religious/scrupulosity > > > > categories of OCD. > > > > > > > > Here is a very interesting thing that occurred in our family, and > > I > > > > hope it may help you all think about how powerful it is to try to > > > > extinguish compulsions. A member of our family who had severe > > OCD > > > > (religious/scrupulosity/contamination) had a benign brain tumor > > > > removed which left her paralyzed (due to an anesthesia error). > > It > > > > was a horrible event, however, while talking to her months > > afterward > > > > about her OCD (which she'd shown as a very young child) she told > > me > > > > that her OCD had abated to a very large extent (90%) because she > > > > could no longer perform her rituals! I was fascinated by this. > > She > > > > had spent hours washing, praying, etc. before surgery. When she > > was > > > > not able to do this after surgery, her obsessive thoughts could > > not > > > > get the " relief " compulsions are thought to give, and over time, > > the > > > > thoughts decreased. > > > > > > > > I think this is why CBT works so well. It works to eliminate the > > > > compulsive behaviors first, which helps decrease the obsessive > > > > thoughts. I don't want to belabor this here, but I think it's > > > > fascinating that my relative was sort of a " test case " for what > > > > happens if rituals cannot be performed. It's not likely that > > this > > > > could ever be tested on anyone to any great degree without > > > > restraining them for a long period of time, which is just > > > > impossible. I just found it very enlightening regarding the > > theories > > > > of tackling the compulsive behavior before dealing with the > > obssesive > > > > thoughts. > > > > > > > > That said, although we got great results with medication, CBT, > > and > > > > exposure therapy with my son, he still obsesses at times. > > However, > > > > he does not perform the compulsive behaviors which took up so > > much > > > > time and caused such great anxiety if they were not completed > > > > correctly. He learned that performing the rituals had nothing to > > do > > > > with the thoughts over time, and now he handles his tendency to > > > > obsess about all manner of things with greater control. > > > > > > > > : My son also showed flashes of > > scrupulosity/religious > > > > related OCD, and it actually kept me away from organized > > religion, > > > > because I was so afraid he would just take off with that if he > > > > started thinking too much about God, evil, etc. The more > > information > > > > OCDers get, the more they do with it, etc. > > > > > > > > Although I kept him off medication for years (I, too, tried Omega > > 3 > > > > for a while), we eventually placed him on Zoloft. It has worked > > very > > > > well for him, and he's been on it for four years or so. It's > > > > greatest effect was in easing the anxiety that had so overwhelmed > > > > him. > > > > > > > > I do hope researchers continue to look into the genetic component > > of > > > > OCD. We have been part of the studies at s Hopkins regarding > > > > this. My nephew (now 4) was recently diagnosed with OCD. > > Luckily > > > > for him, the family is in full communication regarding our > > genetic > > > > heritage and OCD, so his mom didn't have to struggle to figure > > out > > > > what was happening with him. > > > > > > > > Sorry so long, just wanted to give you some background. Thanks > > again > > > > for the warm welcomes. > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 I am also fascinated with the paralyzed relative -- good information for the researchers to have. And I really appreciate everyone elses thoughtful comments. I am wondering how this works into the school and school phobia picture. I know this is a hot topic -- for me and for many of you as well. My son is on homebound instruction right now, and my biggest fear was always that if I let him drop school (for now), what would he want to drop out of next? Still worrying about that one. Any thoughts? mm > > > > > > > > Thanks to everyone for the warm welcome. My son is 12 years > > old. He > > > > started exhibiting signs as early as 4. We struggled with it for > > > > years until we got a firm handle on the fact that it was OCD (not > > > > anxiety, not school phobia, etc.), but the puzzle began to click > > into > > > > place after researching my husband's family. It was a verboten > > topic > > > > in their family, but I finally got them talking. There were a > > number > > > > of relatives who exhibited contamination and > > religious/scrupulosity > > > > categories of OCD. > > > > > > > > Here is a very interesting thing that occurred in our family, and > > I > > > > hope it may help you all think about how powerful it is to try to > > > > extinguish compulsions. A member of our family who had severe > > OCD > > > > (religious/scrupulosity/contamination) had a benign brain tumor > > > > removed which left her paralyzed (due to an anesthesia error). > > It > > > > was a horrible event, however, while talking to her months > > afterward > > > > about her OCD (which she'd shown as a very young child) she told > > me > > > > that her OCD had abated to a very large extent (90%) because she > > > > could no longer perform her rituals! I was fascinated by this. > > She > > > > had spent hours washing, praying, etc. before surgery. When she > > was > > > > not able to do this after surgery, her obsessive thoughts could > > not > > > > get the " relief " compulsions are thought to give, and over time, > > the > > > > thoughts decreased. > > > > > > > > I think this is why CBT works so well. It works to eliminate the > > > > compulsive behaviors first, which helps decrease the obsessive > > > > thoughts. I don't want to belabor this here, but I think it's > > > > fascinating that my relative was sort of a " test case " for what > > > > happens if rituals cannot be performed. It's not likely that > > this > > > > could ever be tested on anyone to any great degree without > > > > restraining them for a long period of time, which is just > > > > impossible. I just found it very enlightening regarding the > > theories > > > > of tackling the compulsive behavior before dealing with the > > obssesive > > > > thoughts. > > > > > > > > That said, although we got great results with medication, CBT, > > and > > > > exposure therapy with my son, he still obsesses at times. > > However, > > > > he does not perform the compulsive behaviors which took up so > > much > > > > time and caused such great anxiety if they were not completed > > > > correctly. He learned that performing the rituals had nothing to > > do > > > > with the thoughts over time, and now he handles his tendency to > > > > obsess about all manner of things with greater control. > > > > > > > > : My son also showed flashes of > > scrupulosity/religious > > > > related OCD, and it actually kept me away from organized > > religion, > > > > because I was so afraid he would just take off with that if he > > > > started thinking too much about God, evil, etc. The more > > information > > > > OCDers get, the more they do with it, etc. > > > > > > > > Although I kept him off medication for years (I, too, tried Omega > > 3 > > > > for a while), we eventually placed him on Zoloft. It has worked > > very > > > > well for him, and he's been on it for four years or so. It's > > > > greatest effect was in easing the anxiety that had so overwhelmed > > > > him. > > > > > > > > I do hope researchers continue to look into the genetic component > > of > > > > OCD. We have been part of the studies at s Hopkins regarding > > > > this. My nephew (now 4) was recently diagnosed with OCD. > > Luckily > > > > for him, the family is in full communication regarding our > > genetic > > > > heritage and OCD, so his mom didn't have to struggle to figure > > out > > > > what was happening with him. > > > > > > > > Sorry so long, just wanted to give you some background. Thanks > > again > > > > for the warm welcomes. > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Can you clarify for me, does your son only go to school 3 days a week and only a half day then? My daughter is on homebound and it is always a major struggle to get her back to school. She is in high school though. It is so difficult to get her to go 2 days in a row. I almost wonder if it would be better to to plan for her to go every other day instead of fighting every day to get her to school. It is very stressful on everyone and usually isn't successful. Thanks for sharing your story. Kim. In a message dated 1/16/2008 4:06:03 P.M. Central Standard Time, nancynina72@... writes: In my son's case, we shortened his school day. He is still going what we call a " condensed " day 3 times a week in the 6th grade. When we had him going half days in 3rd and 4th grade, he got all A's! I had to work with him, of course, but it still kept him in school. I think school phobia is simply one of the anxieties OCDers exhibit because they'd rather be in a safe place--home. However, it was always my concern that we would slip into too homebound a situation. This goes back to all the discussion about 504s, but if you can get your school to agree to a shortened day and some work to take home, it could help. If you'd like more detail about this, please let me know. **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 In my son's case, we shortened his school day. He is still going what we call a " condensed " day 3 times a week in the 6th grade. When we had him going half days in 3rd and 4th grade, he got all A's! I had to work with him, of course, but it still kept him in school. I think school phobia is simply one of the anxieties OCDers exhibit because they'd rather be in a safe place--home. However, it was always my concern that we would slip into too homebound a situation. This goes back to all the discussion about 504s, but if you can get your school to agree to a shortened day and some work to take home, it could help. If you'd like more detail about this, please let me know. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 In my son's case, we shortened his school day. He is still going what we call a " condensed " day 3 times a week in the 6th grade. When we had him going half days in 3rd and 4th grade, he got all A's! I had to work with him, of course, but it still kept him in school. I think school phobia is simply one of the anxieties OCDers exhibit because they'd rather be in a safe place--home. However, it was always my concern that we would slip into too homebound a situation. This goes back to all the discussion about 504s, but if you can get your school to agree to a shortened day and some work to take home, it could help. If you'd like more detail about this, please let me know. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Hi mm, Been having this same fear (with 10 y/o son on homebound) but the reduced stress seems to improve his depression (or is it the medication?) so that he actually is doing somewhat more than he did when he was overwhelmed by school(going outside, seeing his friend, going on outings with me, interacting more within the family). However most of his contamination OCD that he does not want to work on is still present. I have been thinking about getting him back into school, but with a quite different approach than what was so drastically not working before-maybe full time aide, maybe reduced days, or condensed days (alternatives which have been suggested here). I especially think the idea of forgetting about academics for the time being and attending school just for for the expoures makes sense. But how can the school do that-what about grades so he passes to 6th grade? I just do not think he can do major exposures (w/ attending school) and maintain academics at same time. On the other hand he is not reading (having been an advanced reader before) nor writing-will it turn into an academic/intellect issue and not just the OCD? Do kids with OCD repeat grades? nancy grace > > I am also fascinated with the paralyzed relative -- good information > for the researchers to have. And I really appreciate everyone elses > thoughtful comments. I am wondering how this works into the school > and school phobia picture. I know this is a hot topic -- for me and > for many of you as well. My son is on homebound instruction right > now, and my biggest fear was always that if I let him drop school > (for now), what would he want to drop out of next? Still worrying > about that one. Any thoughts? > > mm > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 Grace: My son has trouble reading, too. Not cognitively, just does not enjoy reading (heartbreaking, since it's one of my favorite things in life). Although my son is on condensed days, his grades are pretty good (a lot of it is because he can handle school in smaller doses), but I have to work with him a lot. More than I like, really, but it's necessary to keep him up to speed. In some cases, I can tell he didn't pay attention to the lesson at all, and I have to start from scratch. Uggh. But it works pretty well. The good part is I'm relearning everything I learned in 6th grade but forgot! -- In , " nancy grace " <nmlinnen@...> wrote: > > Hi mm, > > Been having this same fear (with 10 y/o son on homebound) but the > reduced stress seems to improve his depression (or is it the > medication?) so that he actually is doing somewhat more than he did > when he was overwhelmed by school(going outside, seeing his friend, > going on outings with me, interacting more within the family). > > However most of his contamination OCD that he does not want to work > on is still present. I have been thinking about getting him back into > school, but with a quite different approach than what was so > drastically not working before-maybe full time aide, maybe reduced > days, or condensed days (alternatives which have been suggested > here). I especially think the idea of forgetting about academics for > the time being and attending school just for for the expoures makes > sense. But how can the school do that-what about grades so he passes > to 6th grade? I just do not think he can do major exposures (w/ > attending school) and maintain academics at same time. On the other > hand he is not reading (having been an advanced reader before) nor > writing-will it turn into an academic/intellect issue and not just > the OCD? Do kids with OCD repeat grades? > > nancy grace > > > > > > > > > > I am also fascinated with the paralyzed relative -- good > information > > for the researchers to have. And I really appreciate everyone > elses > > thoughtful comments. I am wondering how this works into the school > > and school phobia picture. I know this is a hot topic -- for me > and > > for many of you as well. My son is on homebound instruction right > > now, and my biggest fear was always that if I let him drop school > > (for now), what would he want to drop out of next? Still worrying > > about that one. Any thoughts? > > > > mm > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 Grace: My son has trouble reading, too. Not cognitively, just does not enjoy reading (heartbreaking, since it's one of my favorite things in life). Although my son is on condensed days, his grades are pretty good (a lot of it is because he can handle school in smaller doses), but I have to work with him a lot. More than I like, really, but it's necessary to keep him up to speed. In some cases, I can tell he didn't pay attention to the lesson at all, and I have to start from scratch. Uggh. But it works pretty well. The good part is I'm relearning everything I learned in 6th grade but forgot! -- In , " nancy grace " <nmlinnen@...> wrote: > > Hi mm, > > Been having this same fear (with 10 y/o son on homebound) but the > reduced stress seems to improve his depression (or is it the > medication?) so that he actually is doing somewhat more than he did > when he was overwhelmed by school(going outside, seeing his friend, > going on outings with me, interacting more within the family). > > However most of his contamination OCD that he does not want to work > on is still present. I have been thinking about getting him back into > school, but with a quite different approach than what was so > drastically not working before-maybe full time aide, maybe reduced > days, or condensed days (alternatives which have been suggested > here). I especially think the idea of forgetting about academics for > the time being and attending school just for for the expoures makes > sense. But how can the school do that-what about grades so he passes > to 6th grade? I just do not think he can do major exposures (w/ > attending school) and maintain academics at same time. On the other > hand he is not reading (having been an advanced reader before) nor > writing-will it turn into an academic/intellect issue and not just > the OCD? Do kids with OCD repeat grades? > > nancy grace > > > > > > > > > > I am also fascinated with the paralyzed relative -- good > information > > for the researchers to have. And I really appreciate everyone > elses > > thoughtful comments. I am wondering how this works into the school > > and school phobia picture. I know this is a hot topic -- for me > and > > for many of you as well. My son is on homebound instruction right > > now, and my biggest fear was always that if I let him drop school > > (for now), what would he want to drop out of next? Still worrying > > about that one. Any thoughts? > > > > mm > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Hello Dara, Look in the file section. There is good information you can print out. Jerry darabergen <darabergen@...> wrote: Hello,My name is Dara. I am an RD and have a private practice in NY. Recently, I have been referred more bariatric clients (mainly pre-op) from local surgeons. I thought it would be a great idea to join this group to make sure I keep up with the latest information. To start with, I'd like to update my handouts on Nutrition Guidelines pre and post surgery. To avoid "recreating the wheel" I was wondering if you have any resources to share or to purchase. Thank you.-DaraDara Bergen, RD Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 Thanks Jerry. I founds a lot of great info. -Dara Dara Bergen, RDjeremiah elizondo <jer_mail23@...> wrote: Hello Dara, Look in the file section. There is good information you can print out. Jerry darabergen <darabergen > wrote: Hello,My name is Dara. I am an RD and have a private practice in NY. Recently, I have been referred more bariatric clients (mainly pre-op) from local surgeons. I thought it would be a great idea to join this group to make sure I keep up with the latest information. To start with, I'd like to update my handouts on Nutrition Guidelines pre and post surgery. To avoid "recreating the wheel" I was wondering if you have any resources to share or to purchase. Thank you.-DaraDara Bergen, RD Looking for last minute shopping deals? Find them fast with Search. Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 , Welcome to the world of CONSTANT CHANGES. Continually having blood work done and lots of variables to fever episodes. My son, fevering for just under 3 years, has had them at least every 28 or less with a couple spread out farther. Some with mouth ulcers, some without, some lasting 5 days some 3, some temps up to 105 mostly just high 103. The HIGH white cell count is normal for my son durning episodes, scared my new doctor senseless until she talked to old INFEC DIS dr. We have showed no real promise w/ any of the medications we have tried, and are now scheduled for a T & A on Apr 4th. Will let you know! **btw, when another non parent says there kid has a fever of a 101. do you like sigh relief, and then relize its HIGH for normal kids** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 : I would recommend barimd (www.barimd.com) attend their education courses and you will be able to develop patient education materials easily from there, also check the files section associated with this website, plenty of handouts and patient ed there Laschkewitsch RD LDDietitian, Legacy Obesity Institute(503) 413-8135 -----Original Message-----From: [mailto: ]On Behalf Of MarshSent: Tuesday, April 22, 2008 7:53 AM Subject: new to group I recently joined Bariatric Nutrition Dietitians as I have been asked to start a Bariatric Center of Excellence as defined by the ASMBS in our hospital. Currently, I am a CDE working in a Diabetes Center but will turn all of my focus on the bariatric center. I have a ton of questions and am eager to hear what anyone has to offer. Some of my first questions are: 1. Any suggestions about credible resources that we could buy for patient education just to get started 2. What materials do you provide in the inital patient seminar packet 3. Any other tips to help me get started??? I appreciate any insight you would like to share! Marsh MS RD LD CDETrinity Regional Medical Center802 Kenyon RoadFort Dodge, IA 50501 Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 Are you to be the RD or the Coordinator for the center? I and another RD made all of our education materials. Many RDs from the listserv have posted materials in the files section on the site. A few resources: -ASMBS Journal SOARD (Surgery for Obesity and Related Diseases) -Eating Well After Wt Loss Surgery (cookbook that includes varitations of every recipe depending on the diet stage) -obesityhelp.com helpful to get pt perspectives i.e., supplement tolerance if you read the forums Amy Long Carrera MS, RD Clinical Dietitian Northridge Hospital Medical Center & Center for Weight Loss Surgery Northridge, CA Amy.Long@... 818-885-8500 x4034 From: [mailto: ] On Behalf Of Laschkwitsch, :LPH Obes InstSent: Tuesday, April 22, 2008 8:04 AM Subject: RE: new to group : I would recommend barimd (www.barimd.com) attend their education courses and you will be able to develop patient education materials easily from there, also check the files section associated with this website, plenty of handouts and patient ed there Laschkewitsch RD LDDietitian, Legacy Obesity Institute(503) 413-8135 -----Original Message-----From: [mailto: ]On Behalf Of MarshSent: Tuesday, April 22, 2008 7:53 AM Subject: new to group I recently joined Bariatric Nutrition Dietitians as I have been asked to start a Bariatric Center of Excellence as defined by the ASMBS in our hospital. Currently, I am a CDE working in a Diabetes Center but will turn all of my focus on the bariatric center. I have a ton of questions and am eager to hear what anyone has to offer. Some of my first questions are: 1. Any suggestions about credible resources that we could buy for patient education just to get started 2. What materials do you provide in the inital patient seminar packet 3. Any other tips to help me get started??? I appreciate any insight you would like to share! Marsh MS RD LD CDETrinity Regional Medical Center802 Kenyon RoadFort Dodge, IA 50501 Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2008 Report Share Posted June 7, 2008 Welcome to you Barb. Glad your son is making progress. There's no limit on that! Francine In a message dated 6/7/2008 2:46:54 A.M. Eastern Daylight Time, craftymom121164@... writes: Hello I just joined you group and would like to say thanks for letting me join. My name is Barb I have a son who is 9 with autism. We found out that he has it when he was 5. He has made get headway in his devlament he now talks and can answer easy questions. His school is begining to mainstream him. We live in Michigan. He still has some temper problems but we are working on that. Thanks again for letting me join.Barb epiousian = the expression of agapequite a bit more than enoughGet trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2008 Report Share Posted June 7, 2008 Yeah, welcome to you Barb. Support your friendly local autistics...........I'm one of them. Re: new to group Welcome to you Barb. Glad your son is making progress. There's no limit on that! Francine In a message dated 6/7/2008 2:46:54 A.M. Eastern Daylight Time, craftymom121164@ att.net writes: Hello I just joined you group and would like to say thanks for letting me join. My name is Barb I have a son who is 9 with autism. We found out that he has it when he was 5. He has made get headway in his devlament he now talks and can answer easy questions. His school is begining to mainstream him. We live in Michigan. He still has some temper problems but we are working on that. Thanks again for letting me join.Barb epiousian = the expression of agapequite a bit more than enough Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2008 Report Share Posted July 6, 2008 Hi , Welcome. Can I ask how you know you are at stage 4? Could someone be at stage four and not know? I hope something works out for you. I am also new to group and new to treatment. I have not been feeling well this past week. Maybe soon I will feel better. Hoku new to group I joined the group recently - this is the first group I have joined. Is there a way to change my id card so that my last name doesn't show on my post ? I am stage 4 hep c (cirrhosis). I have never been thru treatment - didn't find out till I was stage 4. I have been to mayo clinic and a research hospital here in Florida (Shands) - and they agree with my local doctor. I am only one year into recovery from breast cancer - which makes getting a new liver very difficult. If treatment were to damage my liver more I could really be in trouble.I am still working but feel I am nearing the end of my working days. I am so very tired all the time. Kinda scarry - just don't know how it will all work out with disablity and fear I will lose my home. I am the only one that pays the mortgage and now is just not a good time to sell. Well that's my life - so glad to meet all of you. I have been reading the post - we are all in this together. Thanks, Quote Link to comment Share on other sites More sharing options...
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