new to group

[Guest guest]

Hi, I am a lurker in the group.

My wife has stage 4 cirrohisis and didn't know it right away. She had a operation to remove her ovaries and nicked the small intestines and had to remove 12". Well she had a lot of pain for 4-5 months afterwards and her doctors could not find what was wrong and kept telling her it was from the operation. Well one doctor finally put 2 and 2 together, did a bisopy of her liver and the rest is history as they say.

We were upset to say the least but that has come and gone, now we are trying to make the most of what we have and live life to its fullest.

Kurt

From: angela <angela_heavenbound@...>Subject: Re: new to groupHepatitis CSupportGroupForDummies Date: Tuesday, July 8, 2008, 1:23 PM

You probably could - however you are under a doctors care and there are signs that would show up in your blood work, cat scans and MRI's. I showed scarring on my liver - therefore a biopsey was done that showed stage four. I also have very low platelets and white blood cells.I wish you the best of luck with the treatment and hope that you feel better soon. >> Hi ,> Welcome. Can I ask how you know you are at stage 4? Could someone be at stage four and not know? I hope something works out for you. I am also new to group and new to treatment. I have not been feeling well this past week. Maybe soon I will feel better.> Hoku> > >

> [Hepatitis CSupportG roupForDummies] new to group> > > I joined the group recently - this is the first group I have > joined. Is there a way to change my id card so that my last name > doesn't show on my post ? > I am stage 4 hep c (cirrhosis). I have never been thru treatment - > didn't find out till I was stage 4. I have been to mayo clinic and a > research hospital here in Florida (Shands) - and they agree with my > local doctor. I am only one year into recovery from breast cancer - > which makes getting a new liver very difficult. If treatment were to

> damage my liver more I could really be in trouble.> > I am still working but feel I am nearing the end of my working days. > I am so very tired all the time. Kinda scarry - just don't know how > it will all work out with disablity and fear I will lose my home. I > am the only one that pays the mortgage and now is just not a good > time to sell. > > Well that's my life - so glad to meet all of you. I have been > reading the post - we are all in this together. > > Thanks, > >

[Guest guest]

Has the doctor sent your wife to a specialist yet.Even if it can't be treated with regular threatment,there is still transplant etc.

Gail

Re: new to groupHepatitis CSupportGroupForDummies Date: Tuesday, July 8, 2008, 1:23 PM

You probably could - however you are under a doctors care and there are signs that would show up in your blood work, cat scans and MRI's. I showed scarring on my liver - therefore a biopsey was done that showed stage four. I also have very low platelets and white blood cells.I wish you the best of luck with the treatment and hope that you feel better soon. >> Hi ,> Welcome. Can I ask how you know you are at stage 4? Could someone be at stage four and not know? I hope something works out for you. I am also new to group and new to treatment. I have not been feeling well this past week. Maybe soon I will feel better.> Hoku> > > > [Hepatitis CSupportG roupForDummies] new to group> > > I joined the group recently - this is the first group I have > joined. Is there a way to change my id card so that my last name > doesn't show on my post ? > I am stage 4 hep c (cirrhosis). I have never been thru treatment - > didn't find out till I was stage 4. I have been to mayo clinic and a > research hospital here in Florida (Shands) - and they agree with my > local doctor. I am only one year into recovery from breast cancer - > which makes getting a new liver very difficult. If treatment were to > damage my liver more I could really be in trouble.> > I am still working but feel I am nearing the end of my working days. > I am so very tired all the time. Kinda scarry - just don't know how > it will all work out with disablity and fear I will lose my home. I > am the only one that pays the mortgage and now is just not a good > time to sell. > > Well that's my life - so glad to meet all of you. I have been > reading the post - we are all in this together. > > Thanks, > >

[Guest guest]

Has the doctor sent your wife to a specialist yet.Even if it can't be treated with regular threatment,there is still transplant etc.

Gail

Re: new to groupHepatitis CSupportGroupForDummies Date: Tuesday, July 8, 2008, 1:23 PM

You probably could - however you are under a doctors care and there are signs that would show up in your blood work, cat scans and MRI's. I showed scarring on my liver - therefore a biopsey was done that showed stage four. I also have very low platelets and white blood cells.I wish you the best of luck with the treatment and hope that you feel better soon. >> Hi ,> Welcome. Can I ask how you know you are at stage 4? Could someone be at stage four and not know? I hope something works out for you. I am also new to group and new to treatment. I have not been feeling well this past week. Maybe soon I will feel better.> Hoku> > > > [Hepatitis CSupportG roupForDummies] new to group> > > I joined the group recently - this is the first group I have > joined. Is there a way to change my id card so that my last name > doesn't show on my post ? > I am stage 4 hep c (cirrhosis). I have never been thru treatment - > didn't find out till I was stage 4. I have been to mayo clinic and a > research hospital here in Florida (Shands) - and they agree with my > local doctor. I am only one year into recovery from breast cancer - > which makes getting a new liver very difficult. If treatment were to > damage my liver more I could really be in trouble.> > I am still working but feel I am nearing the end of my working days. > I am so very tired all the time. Kinda scarry - just don't know how > it will all work out with disablity and fear I will lose my home. I > am the only one that pays the mortgage and now is just not a good > time to sell. > > Well that's my life - so glad to meet all of you. I have been > reading the post - we are all in this together. > > Thanks, > >

[Guest guest]

Hi, Kurt. Welcome to our group. I'm so sorry to hear of your wife's complications from her operation. I too contracted hepatitis-c from the hospital through blood transfusions. They saved my life but caused my hepatitis-c. O well, as you say it's done and overwith. Now we must learn to deal with the virus. I just finished a 48 month treatment successfully with genotype 1-b. I can tell you are a great support for your wife and she does need it. It's hard on you also to deal with this virus. Make sure you take some time off now and then to rest your mind and just get away from it. You will need to take care of yourself in order to

continue to help your wife. This virus takes a tole on the caretakers as well as the patients. Hugs, and God bless you both. VickieG

[Hepatitis CSupportG roupForDummies] new to group> > > I joined the group recently - this is the first group I have > joined. Is there a way to change my id card so that my last name > doesn't show on my post ? > I am stage 4 hep c (cirrhosis). I have never been thru treatment - > didn't find out till I was stage 4. I have been to mayo clinic and a > research hospital here in Florida (Shands) - and they agree with my > local doctor. I am

only one year into recovery from breast cancer - > which makes getting a new liver very difficult. If treatment were to > damage my liver more I could really be in trouble.> > I am still working but feel I am nearing the end of my working days. > I am so very tired all the time. Kinda scarry - just don't know how > it will all work out with disablity and fear I will lose my home. I > am the only one that pays the mortgage and now is just not a good > time to sell. > > Well that's my life - so glad to meet all of you. I have been > reading the post - we are all in this together. > > Thanks, > >

[Guest guest]

Hi, Kurt. Welcome to our group. I'm so sorry to hear of your wife's complications from her operation. I too contracted hepatitis-c from the hospital through blood transfusions. They saved my life but caused my hepatitis-c. O well, as you say it's done and overwith. Now we must learn to deal with the virus. I just finished a 48 month treatment successfully with genotype 1-b. I can tell you are a great support for your wife and she does need it. It's hard on you also to deal with this virus. Make sure you take some time off now and then to rest your mind and just get away from it. You will need to take care of yourself in order to

continue to help your wife. This virus takes a tole on the caretakers as well as the patients. Hugs, and God bless you both. VickieG

[Hepatitis CSupportG roupForDummies] new to group> > > I joined the group recently - this is the first group I have > joined. Is there a way to change my id card so that my last name > doesn't show on my post ? > I am stage 4 hep c (cirrhosis). I have never been thru treatment - > didn't find out till I was stage 4. I have been to mayo clinic and a > research hospital here in Florida (Shands) - and they agree with my > local doctor. I am

only one year into recovery from breast cancer - > which makes getting a new liver very difficult. If treatment were to > damage my liver more I could really be in trouble.> > I am still working but feel I am nearing the end of my working days. > I am so very tired all the time. Kinda scarry - just don't know how > it will all work out with disablity and fear I will lose my home. I > am the only one that pays the mortgage and now is just not a good > time to sell. > > Well that's my life - so glad to meet all of you. I have been > reading the post - we are all in this together. > > Thanks, > >

[Guest guest]

Thanks for the nice reply Vickie.

I get people all the time telling me to take care of myself, and I am or think I am, my wife on the other hand doesn't. I exercise daily or try to and have a inhouse hobby to keep me busy at times, she says I need someone to talk to, who understand where I am coming from. I am looking into local groups for support, problem is my wife(looking after her), and working fulltime, makes for a busy day.

Again thanks for the wonderful message,

God Bless

Kurt

From: angela <angela_heavenbound>Subject: [Hepatitis CSupportG roupForDummies] Re: new to groupHepatitis CSupportGr oupForDummiesDate: Tuesday, July 8, 2008, 1:23 PM

You probably could - however you are under a doctors care and there are signs that would show up in your blood work, cat scans and MRI's. I showed scarring on my liver - therefore a biopsey was done that showed stage four. I also have very low platelets and white blood cells.I wish you the best of luck with the treatment and hope that you feel better soon. >> Hi ,> Welcome. Can I ask how you know you are at stage 4? Could someone be at stage four and not know? I hope something works out for you. I am also new to group and new to treatment. I have not been feeling well this past week. Maybe soon I will feel better.> Hoku> > >

> [Hepatitis CSupportG roupForDummies] new to group> > > I joined the group recently - this is the first group I have > joined. Is there a way to change my id card so that my last name > doesn't show on my post ? > I am stage 4 hep c (cirrhosis). I have never been thru treatment - > didn't find out till I was stage 4. I have been to mayo clinic and a > research hospital here in Florida (Shands) - and they agree with my > local doctor. I am only one year into recovery from breast cancer - > which makes getting a new liver very difficult. If treatment were to

> damage my liver more I could really be in trouble.> > I am still working but feel I am nearing the end of my working days. > I am so very tired all the time. Kinda scarry - just don't know how > it will all work out with disablity and fear I will lose my home. I > am the only one that pays the mortgage and now is just not a good > time to sell. > > Well that's my life - so glad to meet all of you. I have been > reading the post - we are all in this together. > > Thanks, > >

[Guest guest]

I know how you feel, Kurt. You and your wife both need to participate in group. This is a good one to include caregivers and hep-c patients as well as giving you the information you need on all related subjects. And, she is right about your need to talk to others as those who are not involved with this virus can not understand what you or your wife are going through. My biggest frustration, while on treatment(tx), was with my son, who thinks he knows it all but knows nothing about hep-c. And had no compassion for me. It 's really scarey when you consider the fact that he is a paramedic. My husband was a good caregiver but didn't talk to others

during my 48 weeks of tx. I scared him a few times when I passed out and lost all my strength. I know that he was stressed out during that time. He seldom left me alone just in case and always checked on me when he heard something drop to the floor. I started writing poetry in my third month of treatment, which kept me focused and kept my mind off of my side effects somewhat. I know that you and she will work things out between you to get through this time in your lives. Stay strong, take breaks from caregiving to rest your mind when possible, and continue the good work. Hugs, VickieG

[Hepatitis CSupportG roupForDummies] new to group> > > I joined the group recently - this is the first group I have > joined. Is there a way to change my id card so that my last name > doesn't show on my post ? > I am stage 4 hep c (cirrhosis). I have never been thru treatment - > didn't find out till I was stage 4. I have been to mayo clinic and a > research hospital here in Florida (Shands) - and they agree with my > local doctor. I am

only one year into recovery from breast cancer - > which makes getting a new liver very difficult. If treatment were to > damage my liver more I could really be in trouble.> > I am still working but feel I am nearing the end of my working days. > I am so very tired all the time. Kinda scarry - just don't know how > it will all work out with disablity and fear I will lose my home. I > am the only one that pays the mortgage and now is just not a good > time to sell. > > Well that's my life - so glad to meet all of you. I have been > reading the post - we are all in this together. > > Thanks, > >

[Guest guest]

I know how you feel, Kurt. You and your wife both need to participate in group. This is a good one to include caregivers and hep-c patients as well as giving you the information you need on all related subjects. And, she is right about your need to talk to others as those who are not involved with this virus can not understand what you or your wife are going through. My biggest frustration, while on treatment(tx), was with my son, who thinks he knows it all but knows nothing about hep-c. And had no compassion for me. It 's really scarey when you consider the fact that he is a paramedic. My husband was a good caregiver but didn't talk to others

during my 48 weeks of tx. I scared him a few times when I passed out and lost all my strength. I know that he was stressed out during that time. He seldom left me alone just in case and always checked on me when he heard something drop to the floor. I started writing poetry in my third month of treatment, which kept me focused and kept my mind off of my side effects somewhat. I know that you and she will work things out between you to get through this time in your lives. Stay strong, take breaks from caregiving to rest your mind when possible, and continue the good work. Hugs, VickieG

[Hepatitis CSupportG roupForDummies] new to group> > > I joined the group recently - this is the first group I have > joined. Is there a way to change my id card so that my last name > doesn't show on my post ? > I am stage 4 hep c (cirrhosis). I have never been thru treatment - > didn't find out till I was stage 4. I have been to mayo clinic and a > research hospital here in Florida (Shands) - and they agree with my > local doctor. I am

only one year into recovery from breast cancer - > which makes getting a new liver very difficult. If treatment were to > damage my liver more I could really be in trouble.> > I am still working but feel I am nearing the end of my working days. > I am so very tired all the time. Kinda scarry - just don't know how > it will all work out with disablity and fear I will lose my home. I > am the only one that pays the mortgage and now is just not a good > time to sell. > > Well that's my life - so glad to meet all of you. I have been > reading the post - we are all in this together. > > Thanks, > >

[Guest guest]

Jo wrote:

> Good Morning to Everyone,

>

> My name is and I am new to the group. I have recently begun

> learning about essential oils and the associated health benefits. I

> found the term " vibrational aromatherapy " during a search for more

> information on the uses of essential oils. I found this group through

> a search at , in hopes of finding others who already know about

> essential oils. In addition, I am learning about soap-making and would

> very much like to use natural scents to scent my products, rather than

> synthetic. I very much want to learn how to create fragrances on my

> own and this group sounds like a great place to begin my education.

> Thanks for having me. May you have safe and happy journeys.

>

Hi

Welcome to the group and if you have a particular question, please ask

it. That's the best way to get some of the soapers to come out of

lurking to help you :-) You can also search the archives for previous

posts on soapmaking with natural aromatics, including EOs, absolutes,

concrete and floral waxes.

--

Anya

Anya's Garden http://AnyasGarden.com - perfumes, aromatics, classes,

consultation

Natural Perfumers Guild + blog with daily updates

1500+ member Natural Perfumery group -

/

[Guest guest]

> > Good Morning to Everyone,

> >

> > My name is and I am new to the group. I have recently begun

> > learning about essential oils and the associated health benefits.

> Hi

>

> Welcome to the group and if you have a particular question, please ask

> it. That's the best way to get some of the soapers to come out of

> lurking to help you :-) You can also search the archives for previous

> posts on soapmaking with natural aromatics, including EOs, absolutes,

> concrete and floral waxes.

>

>

Hi Anya,

Thank you for the warm welcome. I have to tell you though, as I read

some of the posts, how overwhelmed I am with how much I don't know.

The information is truly fascinating.

[Guest guest]

DIX

I am so glad you joined the group and welcome!!! you certainly are dealing with a lot of problems right now and I dont blame you for not wanting to add more docs or meds to your routine, I hope it dosnt turn out to be parkinsons, good luck on seeking your propper diagnosis on this.

This is a very supportive group and you will find many friends here

i am orginally from Kansas and my sister lives in Kansas city. She really loves it there. I hope you are able to make the move soon.

take care and reach out to people on the list, they really care

hugs Colleen in NY**************Looking for simple solutions to your real-life financial challenges? Check out WalletPop for the latest news and information, tips and calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001)

[Guest guest]

DIX

I am so glad you joined the group and welcome!!! you certainly are dealing with a lot of problems right now and I dont blame you for not wanting to add more docs or meds to your routine, I hope it dosnt turn out to be parkinsons, good luck on seeking your propper diagnosis on this.

This is a very supportive group and you will find many friends here

i am orginally from Kansas and my sister lives in Kansas city. She really loves it there. I hope you are able to make the move soon.

take care and reach out to people on the list, they really care

hugs Colleen in NY**************Looking for simple solutions to your real-life financial challenges? Check out WalletPop for the latest news and information, tips and calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001)

[Guest guest]

DIX

I am so glad you joined the group and welcome!!! you certainly are dealing with a lot of problems right now and I dont blame you for not wanting to add more docs or meds to your routine, I hope it dosnt turn out to be parkinsons, good luck on seeking your propper diagnosis on this.

This is a very supportive group and you will find many friends here

i am orginally from Kansas and my sister lives in Kansas city. She really loves it there. I hope you are able to make the move soon.

take care and reach out to people on the list, they really care

hugs Colleen in NY**************Looking for simple solutions to your real-life financial challenges? Check out WalletPop for the latest news and information, tips and calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001)

[Guest guest]

glad to have you in the group. you will find tons of support here. i hope to hear more from you soon.

evelyncure cystic fibrosis

From: dix7chix <dix7chix@...>Subject: New to Group Date: Tuesday, September 30, 2008, 10:34 PM

Hi! I just joined to learn more about Parkinson's. I don't have a diagnosis ye - will see a specialist Oct. 20. So far, I've been falling down for no reason - not passing out. Sometimes my brain tells me to go one way and my feet go the other. I keep getting stuck in the closet! My once beautiful handwritiing is now tiny and for lack of a better word, crabbed. I get headaches at the very base on my head in back. I hope it isn't Parkinson's, but everything I read says yes, and my Dr. thinks it may be.It runs in my family. I also have severe fibro, arthritis, diabetes, degenerative disk disease, 9 herniated disks, and recently had a minor heart attack. There's more, but those are the "biggies".I don't really have tremors - at least, you can't see them, but I can feel them. Occzsionally my hands will have tremors for a while.I'm also bipolar.In the last month, my Mom died, I had a

heart attack, the chances of our selling our house are going down the drain, and my Dr. wants me to see this specialist. I don't think I can handle one more thing, although I'm usually positive. I already take 16 different meds, and I'm very med intolerant so it took a while to find them. I take Requip for fibro and it helps a lot with the pain.Other than that, I'm officially a senior citizen, live in Illinois and am trying to get to Kansas City with my husband of 39 years. Have 7 children and 2 adorable doggies (Maltipoos). I'm a retired ceertificated psychologist and I don't do much with my life because I can barely walk. I used to love ardening and am hoping I'll be aable to do it again, used to play golf (lousy) but hope to again, used to read but need eye surgery, and used to love to invent superfantqantastic desserts. I try to watch my spelling because my fingers don't work well, but

don't always catch all errors. Sorry.This is probably way too long. If you made it this far, thanks.So what do you think? Does it sound like I'm facing another new illness?Peace,Dix

[Guest guest]

Hi, Dix sorry to say that you just described what is happening with me. The falling down, feet going one way while brain says I'm going some place else and the crabbed handwriting was what alerted my doctor to my parkinsons. I now have hand and leg tremors. I also have some type of seizures do to some of the med's they had me on. So check all of the side effects of your med's and all of your symptoms against the list. Because some symptoms can be because of or be made worse. My seizures are a side effect, that the doctors that I was going to at the time said it was impossible for them to cause. They finally got me on med's that work for me. WELCOME to the group love yourself lovely LMay from Kansas

From: dix7chix <dix7chixcomcast (DOT) net>Subject: New to Group@grou ps.comDate: Tuesday, September 30, 2008, 10:34 PM

Hi! I just joined to learn more about Parkinson's. I don't have a diagnosis ye - will see a specialist Oct. 20. So far, I've been falling down for no reason - not passing out. Sometimes my brain tells me to go one way and my feet go the other. I keep getting stuck in the closet! My once beautiful handwritiing is now tiny and for lack of a better word, crabbed. I get headaches at the very base on my head in back. I hope it isn't Parkinson's, but everything I read says yes, and my Dr. thinks it may be.It runs in my family. I also have severe fibro, arthritis, diabetes, degenerative disk disease, 9 herniated disks, and recently had a minor heart attack. There's more, but those are the "biggies".I don't really have tremors - at least, you can't see them, but I can feel them. Occzsionally my hands will have tremors for a while.I'm also bipolar.In the last month, my Mom died, I had a

heart attack, the chances of our selling our house are going down the drain, and my Dr. wants me to see this specialist. I don't think I can handle one more thing, although I'm usually positive. I already take 16 different meds, and I'm very med intolerant so it took a while to find them. I take Requip for fibro and it helps a lot with the pain.Other than that, I'm officially a senior citizen, live in Illinois and am trying to get to Kansas City with my husband of 39 years. Have 7 children and 2 adorable doggies (Maltipoos). I'm a retired ceertificated psychologist and I don't do much with my life because I can barely walk. I used to love ardening and am hoping I'll be aable to do it again, used to play golf (lousy) but hope to again, used to read but need eye surgery, and used to love to invent superfantqantastic desserts. I try to watch my spelling because my fingers don't work well, but

don't always catch all errors. Sorry.This is probably way too long. If you made it this far, thanks.So what do you think? Does it sound like I'm facing another new illness?Peace,Dix

[Guest guest]

Hi, Dix sorry to say that you just described what is happening with me. The falling down, feet going one way while brain says I'm going some place else and the crabbed handwriting was what alerted my doctor to my parkinsons. I now have hand and leg tremors. I also have some type of seizures do to some of the med's they had me on. So check all of the side effects of your med's and all of your symptoms against the list. Because some symptoms can be because of or be made worse. My seizures are a side effect, that the doctors that I was going to at the time said it was impossible for them to cause. They finally got me on med's that work for me. WELCOME to the group love yourself lovely LMay from Kansas

From: dix7chix <dix7chixcomcast (DOT) net>Subject: New to Group@grou ps.comDate: Tuesday, September 30, 2008, 10:34 PM

Hi! I just joined to learn more about Parkinson's. I don't have a diagnosis ye - will see a specialist Oct. 20. So far, I've been falling down for no reason - not passing out. Sometimes my brain tells me to go one way and my feet go the other. I keep getting stuck in the closet! My once beautiful handwritiing is now tiny and for lack of a better word, crabbed. I get headaches at the very base on my head in back. I hope it isn't Parkinson's, but everything I read says yes, and my Dr. thinks it may be.It runs in my family. I also have severe fibro, arthritis, diabetes, degenerative disk disease, 9 herniated disks, and recently had a minor heart attack. There's more, but those are the "biggies".I don't really have tremors - at least, you can't see them, but I can feel them. Occzsionally my hands will have tremors for a while.I'm also bipolar.In the last month, my Mom died, I had a

heart attack, the chances of our selling our house are going down the drain, and my Dr. wants me to see this specialist. I don't think I can handle one more thing, although I'm usually positive. I already take 16 different meds, and I'm very med intolerant so it took a while to find them. I take Requip for fibro and it helps a lot with the pain.Other than that, I'm officially a senior citizen, live in Illinois and am trying to get to Kansas City with my husband of 39 years. Have 7 children and 2 adorable doggies (Maltipoos). I'm a retired ceertificated psychologist and I don't do much with my life because I can barely walk. I used to love ardening and am hoping I'll be aable to do it again, used to play golf (lousy) but hope to again, used to read but need eye surgery, and used to love to invent superfantqantastic desserts. I try to watch my spelling because my fingers don't work well, but

don't always catch all errors. Sorry.This is probably way too long. If you made it this far, thanks.So what do you think? Does it sound like I'm facing another new illness?Peace,Dix

[Guest guest]

Hi, Dix sorry to say that you just described what is happening with me. The falling down, feet going one way while brain says I'm going some place else and the crabbed handwriting was what alerted my doctor to my parkinsons. I now have hand and leg tremors. I also have some type of seizures do to some of the med's they had me on. So check all of the side effects of your med's and all of your symptoms against the list. Because some symptoms can be because of or be made worse. My seizures are a side effect, that the doctors that I was going to at the time said it was impossible for them to cause. They finally got me on med's that work for me. WELCOME to the group love yourself lovely LMay from Kansas

From: dix7chix <dix7chixcomcast (DOT) net>Subject: New to Group@grou ps.comDate: Tuesday, September 30, 2008, 10:34 PM

Hi! I just joined to learn more about Parkinson's. I don't have a diagnosis ye - will see a specialist Oct. 20. So far, I've been falling down for no reason - not passing out. Sometimes my brain tells me to go one way and my feet go the other. I keep getting stuck in the closet! My once beautiful handwritiing is now tiny and for lack of a better word, crabbed. I get headaches at the very base on my head in back. I hope it isn't Parkinson's, but everything I read says yes, and my Dr. thinks it may be.It runs in my family. I also have severe fibro, arthritis, diabetes, degenerative disk disease, 9 herniated disks, and recently had a minor heart attack. There's more, but those are the "biggies".I don't really have tremors - at least, you can't see them, but I can feel them. Occzsionally my hands will have tremors for a while.I'm also bipolar.In the last month, my Mom died, I had a

heart attack, the chances of our selling our house are going down the drain, and my Dr. wants me to see this specialist. I don't think I can handle one more thing, although I'm usually positive. I already take 16 different meds, and I'm very med intolerant so it took a while to find them. I take Requip for fibro and it helps a lot with the pain.Other than that, I'm officially a senior citizen, live in Illinois and am trying to get to Kansas City with my husband of 39 years. Have 7 children and 2 adorable doggies (Maltipoos). I'm a retired ceertificated psychologist and I don't do much with my life because I can barely walk. I used to love ardening and am hoping I'll be aable to do it again, used to play golf (lousy) but hope to again, used to read but need eye surgery, and used to love to invent superfantqantastic desserts. I try to watch my spelling because my fingers don't work well, but

don't always catch all errors. Sorry.This is probably way too long. If you made it this far, thanks.So what do you think? Does it sound like I'm facing another new illness?Peace,Dix

[Guest guest]

WELCOME TO THE GROUP DIX;; YOU HAVE JOINED A WONDERFUL GROUP OF FOLKS WHO ALSO SUFFER WITH A LOT OF WHAT YOU MENTIONED WHAT YOU HAVE;;I HOPE & PRAY THAT YOU DONT HAVE PARKINSONS;; YOU DONT NEED THAT ON TOP OF EVERYTHING ELSE YOU MENTIONED; & YOU ARE A PSCOLOGIST;; MAYBE YOU CAN ANYALIZE SOME OF US???/WHAT DO YOU MEAN YOU GET STUCK IN THE CLOSET??? YOU SAID YOU TAKE REQUIP FOR YOUR FIBRO??? I THOUGHT THAT WAS FOR RESTLESS LEGS??? I ALSO HAVE FIBRO & SEVERE ARTHRITUS;; & A FEW OTHER THINGS ALSO;; AM ALSO A SENIOR;; BEEN MARRIED FOR 34 YRS;; MY 2ND MARRAIGE;; ALSO HAVE 7 KIDS & 3 STEPS;; & UMPTEEN GRAND KIDS & G-G-KIDS;; YOU TAKE CARE

HUGS

DORT FROM MICH.

From: dix7chix <dix7chix@...>Subject: New to Group Date: Tuesday, September 30, 2008, 10:34 PM

Hi! I just joined to learn more about Parkinson's. I don't have a diagnosis ye - will see a specialist Oct. 20. So far, I've been falling down for no reason - not passing out. Sometimes my brain tells me to go one way and my feet go the other. I keep getting stuck in the closet! My once beautiful handwritiing is now tiny and for lack of a better word, crabbed. I get headaches at the very base on my head in back. I hope it isn't Parkinson's, but everything I read says yes, and my Dr. thinks it may be.It runs in my family. I also have severe fibro, arthritis, diabetes, degenerative disk disease, 9 herniated disks, and recently had a minor heart attack. There's more, but those are the "biggies".I don't really have tremors - at least, you can't see them, but I can feel them. Occzsionally my hands will have tremors for a while.I'm also bipolar.In the last month, my Mom died, I had a

heart attack, the chances of our selling our house are going down the drain, and my Dr. wants me to see this specialist. I don't think I can handle one more thing, although I'm usually positive. I already take 16 different meds, and I'm very med intolerant so it took a while to find them. I take Requip for fibro and it helps a lot with the pain.Other than that, I'm officially a senior citizen, live in Illinois and am trying to get to Kansas City with my husband of 39 years. Have 7 children and 2 adorable doggies (Maltipoos). I'm a retired ceertificated psychologist and I don't do much with my life because I can barely walk. I used to love ardening and am hoping I'll be aable to do it again, used to play golf (lousy) but hope to again, used to read but need eye surgery, and used to love to invent superfantqantastic desserts. I try to watch my spelling because my fingers don't work well, but

don't always catch all errors. Sorry.This is probably way too long. If you made it this far, thanks.So what do you think? Does it sound like I'm facing another new illness?Peace,Dix

[Guest guest]

WELCOME TO THE GROUP DIX;; YOU HAVE JOINED A WONDERFUL GROUP OF FOLKS WHO ALSO SUFFER WITH A LOT OF WHAT YOU MENTIONED WHAT YOU HAVE;;I HOPE & PRAY THAT YOU DONT HAVE PARKINSONS;; YOU DONT NEED THAT ON TOP OF EVERYTHING ELSE YOU MENTIONED; & YOU ARE A PSCOLOGIST;; MAYBE YOU CAN ANYALIZE SOME OF US???/WHAT DO YOU MEAN YOU GET STUCK IN THE CLOSET??? YOU SAID YOU TAKE REQUIP FOR YOUR FIBRO??? I THOUGHT THAT WAS FOR RESTLESS LEGS??? I ALSO HAVE FIBRO & SEVERE ARTHRITUS;; & A FEW OTHER THINGS ALSO;; AM ALSO A SENIOR;; BEEN MARRIED FOR 34 YRS;; MY 2ND MARRAIGE;; ALSO HAVE 7 KIDS & 3 STEPS;; & UMPTEEN GRAND KIDS & G-G-KIDS;; YOU TAKE CARE

HUGS

DORT FROM MICH.

From: dix7chix <dix7chix@...>Subject: New to Group Date: Tuesday, September 30, 2008, 10:34 PM

Hi! I just joined to learn more about Parkinson's. I don't have a diagnosis ye - will see a specialist Oct. 20. So far, I've been falling down for no reason - not passing out. Sometimes my brain tells me to go one way and my feet go the other. I keep getting stuck in the closet! My once beautiful handwritiing is now tiny and for lack of a better word, crabbed. I get headaches at the very base on my head in back. I hope it isn't Parkinson's, but everything I read says yes, and my Dr. thinks it may be.It runs in my family. I also have severe fibro, arthritis, diabetes, degenerative disk disease, 9 herniated disks, and recently had a minor heart attack. There's more, but those are the "biggies".I don't really have tremors - at least, you can't see them, but I can feel them. Occzsionally my hands will have tremors for a while.I'm also bipolar.In the last month, my Mom died, I had a

heart attack, the chances of our selling our house are going down the drain, and my Dr. wants me to see this specialist. I don't think I can handle one more thing, although I'm usually positive. I already take 16 different meds, and I'm very med intolerant so it took a while to find them. I take Requip for fibro and it helps a lot with the pain.Other than that, I'm officially a senior citizen, live in Illinois and am trying to get to Kansas City with my husband of 39 years. Have 7 children and 2 adorable doggies (Maltipoos). I'm a retired ceertificated psychologist and I don't do much with my life because I can barely walk. I used to love ardening and am hoping I'll be aable to do it again, used to play golf (lousy) but hope to again, used to read but need eye surgery, and used to love to invent superfantqantastic desserts. I try to watch my spelling because my fingers don't work well, but

don't always catch all errors. Sorry.This is probably way too long. If you made it this far, thanks.So what do you think? Does it sound like I'm facing another new illness?Peace,Dix

[Guest guest]

WELCOME TO THE GROUP DIX;; YOU HAVE JOINED A WONDERFUL GROUP OF FOLKS WHO ALSO SUFFER WITH A LOT OF WHAT YOU MENTIONED WHAT YOU HAVE;;I HOPE & PRAY THAT YOU DONT HAVE PARKINSONS;; YOU DONT NEED THAT ON TOP OF EVERYTHING ELSE YOU MENTIONED; & YOU ARE A PSCOLOGIST;; MAYBE YOU CAN ANYALIZE SOME OF US???/WHAT DO YOU MEAN YOU GET STUCK IN THE CLOSET??? YOU SAID YOU TAKE REQUIP FOR YOUR FIBRO??? I THOUGHT THAT WAS FOR RESTLESS LEGS??? I ALSO HAVE FIBRO & SEVERE ARTHRITUS;; & A FEW OTHER THINGS ALSO;; AM ALSO A SENIOR;; BEEN MARRIED FOR 34 YRS;; MY 2ND MARRAIGE;; ALSO HAVE 7 KIDS & 3 STEPS;; & UMPTEEN GRAND KIDS & G-G-KIDS;; YOU TAKE CARE

HUGS

DORT FROM MICH.

From: dix7chix <dix7chix@...>Subject: New to Group Date: Tuesday, September 30, 2008, 10:34 PM

Hi! I just joined to learn more about Parkinson's. I don't have a diagnosis ye - will see a specialist Oct. 20. So far, I've been falling down for no reason - not passing out. Sometimes my brain tells me to go one way and my feet go the other. I keep getting stuck in the closet! My once beautiful handwritiing is now tiny and for lack of a better word, crabbed. I get headaches at the very base on my head in back. I hope it isn't Parkinson's, but everything I read says yes, and my Dr. thinks it may be.It runs in my family. I also have severe fibro, arthritis, diabetes, degenerative disk disease, 9 herniated disks, and recently had a minor heart attack. There's more, but those are the "biggies".I don't really have tremors - at least, you can't see them, but I can feel them. Occzsionally my hands will have tremors for a while.I'm also bipolar.In the last month, my Mom died, I had a

heart attack, the chances of our selling our house are going down the drain, and my Dr. wants me to see this specialist. I don't think I can handle one more thing, although I'm usually positive. I already take 16 different meds, and I'm very med intolerant so it took a while to find them. I take Requip for fibro and it helps a lot with the pain.Other than that, I'm officially a senior citizen, live in Illinois and am trying to get to Kansas City with my husband of 39 years. Have 7 children and 2 adorable doggies (Maltipoos). I'm a retired ceertificated psychologist and I don't do much with my life because I can barely walk. I used to love ardening and am hoping I'll be aable to do it again, used to play golf (lousy) but hope to again, used to read but need eye surgery, and used to love to invent superfantqantastic desserts. I try to watch my spelling because my fingers don't work well, but

don't always catch all errors. Sorry.This is probably way too long. If you made it this far, thanks.So what do you think? Does it sound like I'm facing another new illness?Peace,Dix

[Guest guest]

Hi Lesley and welcome to the group. They are a great bunch of people with a wealth of knowledge.

I am mum to 3 kids on the spectrum and hubby is an Aspie as well. I am in NQ. We also run camps for families with Autistic kids.

From: Lesley Hicks <lesley_hcks@...>Subject: New to groupAutism and Aspergers Treatment Received: Tuesday, 7 October, 2008, 7:19 AM

Hello,

I am new to the group and wanted to introduce my self. My son has classic autism he is 6 as of October 1st. I am looking forward getting to know all of you.

Lesley Hicks

Make the switch to the world's best email. Get 7 Mail.

Make the switch to the world's best email. Get 7 Mail.

[Guest guest]

Hi, Suzy I have never heard about the condition you have. But here you will find a shoulder to cry on , jokes to laugh at, people to talk to , people that will help find information that you need , and just plain old caring folk . I am so sorry that you have this problem and that it took so long to find out what it is and that you have to wait so long to get more

testings. Waiting Sucks !!!!!!!!!!! So hang in there and LOVE YOURSELF LOVELY LMay

From: jskc4craigs <jskc4craigs@...>Subject: New to group Date: Monday, October 13, 2008, 11:58 PM

Hi I am new to this group. I have been "sick" for going on 4 1/2 years. It is a long detailed story. (Going on page 6 of my letter to my doctors.)I was told for the last 4 1/2 years that I had anxiety. I always knew they were wrong. I even begged some doctors to check me for some rare stuff. I reacted to every medication in the book. But as I was always told (except for my constant hives) these are not allergic reactions. I was told I had a fear of medication. Which after getting sick on them for so long, and getting no help I must say I did. But I didn't when I first started them. I had never had these problems before in my life. Well I finally got to the right place. And got tested for some rare stuff. And guess what! I did have something wrong. I tested positive for AChR Neuro.gangl. AB. Which is a paraneoplastic antibody. I found out it is also related to other neurological autoimmune diseases

too. I won't know the specific disease I have untill further testing is done. My hope is that it is not paraneoplastic syndrome. But in the mean time i have been through so much. Physically and emotionally. I don't have a lot of strength left. I know so many people have such bad story's, and such bad times in life. I would like to go back to sitting around being criticized for not being able to get over my anxiety, and for this fake disease I created in myself. The sad part was I even bought an anxiety program to try and "get over this" right before my positive test came back. Some ways I'm happy. I have an answer to my pain and anguish. Other ways I am sad. There is no cure.But they said it can be treated. and if it is the paraneoplastic syndrome that is related to small cell lung cancer. I am so scared. I don't trust Drs in my town. they have hurt me so very bad. I have to wait for January to get

"worked up" for this test. The fear isn't helping. I also have a broken tooth that is causing terrific pain that I have not gone to a dentist for because I have a leaky heart valve, and took antibiotics to try and go to the dentist before. It ended in disaster with me sick bad for the next 5 months. Still not better from it. Now I found a laser dentist who will do the work without novicane, but my heart Dr is out of town, and at his office they told me he said I should take the antibiotic. But the last time I talked to him he said I didn't have to. The tooth is so deep now I am afraid I will get an infection anyways. I am so sorry I went on whining like this. I was just planning to introduce myself. It turned into a run on whine. Anyways thats me.Suzy

[Guest guest]

Hi, Suzy I have never heard about the condition you have. But here you will find a shoulder to cry on , jokes to laugh at, people to talk to , people that will help find information that you need , and just plain old caring folk . I am so sorry that you have this problem and that it took so long to find out what it is and that you have to wait so long to get more

testings. Waiting Sucks !!!!!!!!!!! So hang in there and LOVE YOURSELF LOVELY LMay

From: jskc4craigs <jskc4craigs@...>Subject: New to group Date: Monday, October 13, 2008, 11:58 PM

Hi I am new to this group. I have been "sick" for going on 4 1/2 years. It is a long detailed story. (Going on page 6 of my letter to my doctors.)I was told for the last 4 1/2 years that I had anxiety. I always knew they were wrong. I even begged some doctors to check me for some rare stuff. I reacted to every medication in the book. But as I was always told (except for my constant hives) these are not allergic reactions. I was told I had a fear of medication. Which after getting sick on them for so long, and getting no help I must say I did. But I didn't when I first started them. I had never had these problems before in my life. Well I finally got to the right place. And got tested for some rare stuff. And guess what! I did have something wrong. I tested positive for AChR Neuro.gangl. AB. Which is a paraneoplastic antibody. I found out it is also related to other neurological autoimmune diseases

too. I won't know the specific disease I have untill further testing is done. My hope is that it is not paraneoplastic syndrome. But in the mean time i have been through so much. Physically and emotionally. I don't have a lot of strength left. I know so many people have such bad story's, and such bad times in life. I would like to go back to sitting around being criticized for not being able to get over my anxiety, and for this fake disease I created in myself. The sad part was I even bought an anxiety program to try and "get over this" right before my positive test came back. Some ways I'm happy. I have an answer to my pain and anguish. Other ways I am sad. There is no cure.But they said it can be treated. and if it is the paraneoplastic syndrome that is related to small cell lung cancer. I am so scared. I don't trust Drs in my town. they have hurt me so very bad. I have to wait for January to get

"worked up" for this test. The fear isn't helping. I also have a broken tooth that is causing terrific pain that I have not gone to a dentist for because I have a leaky heart valve, and took antibiotics to try and go to the dentist before. It ended in disaster with me sick bad for the next 5 months. Still not better from it. Now I found a laser dentist who will do the work without novicane, but my heart Dr is out of town, and at his office they told me he said I should take the antibiotic. But the last time I talked to him he said I didn't have to. The tooth is so deep now I am afraid I will get an infection anyways. I am so sorry I went on whining like this. I was just planning to introduce myself. It turned into a run on whine. Anyways thats me.Suzy

[Guest guest]

oh wow Suzy

I am so sorry you have had such a very tough time

partly due to the docs not looking hard enough to find out what was wrong

I am glad that at least you now have perhaps the right diagnosis, even though it is NOT what anyone would want to hear, for sure.

I wish you could just take some time off now and get some good rest, before going onto the next level.

But of course you do need more info, probably.

And as if you didn't have enough, you have that tooth too.

I wish there were some magic way to get it taken care of!!

I don't know if homeopathy could help, at least for a while, if you had an expert homeopath nearby.

And btw, I do NOT consider this whining -- or the stories from so many others!

I think you all have a right to be upset, and scared.

And I sure wish it weren't so, for you or anyone else.

Jean

From: jskc4craigs

Sent: Tuesday, October 14, 2008 12:58 AM

Subject: New to group

Hi I am new to this group. I have been "sick" for going on 4 1/2 years. It is a long detailed story. (Going on page 6 of my letter to my doctors.)I was told for the last 4 1/2 years that I had anxiety. I always knew they were wrong. I even begged some doctors to check me for some rare stuff. I reacted to every medication in the book. But as I was always told (except for my constant hives) these are not allergic reactions. I was told I had a fear of medication. Which after getting sick on them for so long, and getting no help I must say I did. But I didn't when I first started them. I had never had these problems before in my life. Well I finally got to the right place. And got tested for some rare stuff. And guess what! I did have something wrong. I tested positive for AChR Neuro.gangl.AB. Which is a paraneoplastic antibody. I found out it is also related to other neurological autoimmune diseases too. I won't know the specific disease I have untill further testing is done. My hope is that it is not paraneoplastic syndrome. But in the mean time i have been through so much. Physically and emotionally. I don't have a lot of strength left. I know so many people have such bad story's, and such bad times in life. I would like to go back to sitting around being criticized for not being able to get over my anxiety, and for this fake disease I created in myself. The sad part was I even bought an anxiety program to try and "get over this" right before my positive test came back. Some ways I'm happy. I have an answer to my pain and anguish. Other ways I am sad. There is no cure.But they said it can be treated. and if it is the paraneoplastic syndrome that is related to small cell lung cancer. I am so scared. I don't trust Drs in my town. they have hurt me so very bad. I have to wait for January to get "worked up" for this test. The fear isn't helping. I also have a broken tooth that is causing terrific pain that I have not gone to a dentist for because I have a leaky heart valve, and took antibiotics to try and go to the dentist before. It ended in disaster with me sick bad for the next 5 months. Still not better from it. Now I found a laser dentist who will do the work without novicane, but my heart Dr is out of town, and at his office they told me he said I should take the antibiotic. But the last time I talked to him he said I didn't have to. The tooth is so deep now I am afraid I will get an infection anyways. I am so sorry I went on whining like this. I was just planning to introduce myself. It turned into a run on whine. Anyways thats me.Suzy

[Guest guest]

oh wow Suzy

I am so sorry you have had such a very tough time

partly due to the docs not looking hard enough to find out what was wrong

I am glad that at least you now have perhaps the right diagnosis, even though it is NOT what anyone would want to hear, for sure.

I wish you could just take some time off now and get some good rest, before going onto the next level.

But of course you do need more info, probably.

And as if you didn't have enough, you have that tooth too.

I wish there were some magic way to get it taken care of!!

I don't know if homeopathy could help, at least for a while, if you had an expert homeopath nearby.

And btw, I do NOT consider this whining -- or the stories from so many others!

I think you all have a right to be upset, and scared.

And I sure wish it weren't so, for you or anyone else.

Jean

From: jskc4craigs

Sent: Tuesday, October 14, 2008 12:58 AM

Subject: New to group

Hi I am new to this group. I have been "sick" for going on 4 1/2 years. It is a long detailed story. (Going on page 6 of my letter to my doctors.)I was told for the last 4 1/2 years that I had anxiety. I always knew they were wrong. I even begged some doctors to check me for some rare stuff. I reacted to every medication in the book. But as I was always told (except for my constant hives) these are not allergic reactions. I was told I had a fear of medication. Which after getting sick on them for so long, and getting no help I must say I did. But I didn't when I first started them. I had never had these problems before in my life. Well I finally got to the right place. And got tested for some rare stuff. And guess what! I did have something wrong. I tested positive for AChR Neuro.gangl.AB. Which is a paraneoplastic antibody. I found out it is also related to other neurological autoimmune diseases too. I won't know the specific disease I have untill further testing is done. My hope is that it is not paraneoplastic syndrome. But in the mean time i have been through so much. Physically and emotionally. I don't have a lot of strength left. I know so many people have such bad story's, and such bad times in life. I would like to go back to sitting around being criticized for not being able to get over my anxiety, and for this fake disease I created in myself. The sad part was I even bought an anxiety program to try and "get over this" right before my positive test came back. Some ways I'm happy. I have an answer to my pain and anguish. Other ways I am sad. There is no cure.But they said it can be treated. and if it is the paraneoplastic syndrome that is related to small cell lung cancer. I am so scared. I don't trust Drs in my town. they have hurt me so very bad. I have to wait for January to get "worked up" for this test. The fear isn't helping. I also have a broken tooth that is causing terrific pain that I have not gone to a dentist for because I have a leaky heart valve, and took antibiotics to try and go to the dentist before. It ended in disaster with me sick bad for the next 5 months. Still not better from it. Now I found a laser dentist who will do the work without novicane, but my heart Dr is out of town, and at his office they told me he said I should take the antibiotic. But the last time I talked to him he said I didn't have to. The tooth is so deep now I am afraid I will get an infection anyways. I am so sorry I went on whining like this. I was just planning to introduce myself. It turned into a run on whine. Anyways thats me.Suzy