new to group

[Guest guest]

Welcome to the group;;Dawn;; Im sure you will find it rewarding;; So many caring & neat folks here ,just like you suffering from different handicaps;;

Welcome ((hugs))

Dort from Mich;;;

From: DAWN COFFMAN <cherokee4co@...>Subject: new to group Date: Sunday, January 25, 2009, 11:49 PM

hello my name is Dawn and i am a 51 year old born disabled female that also suffers from depression and anxiety attacks.i just joined the group tonight. i am also visually impaired as well as having type 2 diabetes and high blood pressure.hope to make many new friends here.

[Guest guest]

Welcome to the group;;Dawn;; Im sure you will find it rewarding;; So many caring & neat folks here ,just like you suffering from different handicaps;;

Welcome ((hugs))

Dort from Mich;;;

From: DAWN COFFMAN <cherokee4co@...>Subject: new to group Date: Sunday, January 25, 2009, 11:49 PM

hello my name is Dawn and i am a 51 year old born disabled female that also suffers from depression and anxiety attacks.i just joined the group tonight. i am also visually impaired as well as having type 2 diabetes and high blood pressure.hope to make many new friends here.

[Guest guest]

Hi!

My 19 month old just started the process for speech therapy here in CA. He is

approx 6 month delayed, so is considered borderline for the therapy program, but

with the Dx and multiple ear infections, he may be admitted according to

the therapist who did his evaluation. Our pediatrician doesn't seem to think

there " should " be a link. ? My son is also bright, knows what we are saying and

is now starting to sign (we had started to sign to him at 9 months (only because

we had such success with our daughter).

Funny, we moved from Waterford, CT this past summer...my son was not diagnosed

while we were there...he had only had 2 fevers, but there was talk of us either

going to Hartford or Yale. Good to know we probably would have had a DX there

too.--- And my son hasn't eaten since Monday night dinner. He usually won't eat

the first two days, this time he has a throat ulcer and only wants to drink

liquid. (smoothie didn't work!)

If you learn of a speech link let me know!

Teja

[Guest guest]

Hi and welcome!

Wow, it's so funny that I have the same issue. I've gained some weight in the

past couple years and I'm completely obsessed with it! I've been trying to

control portions, concentrating on having a plan. But even when I do well, I end

up binging at the end of the week.

There are two episodes of 's podcasts that have really helped me at least

begin to start thinking in a different way. They are " power of relaxed intent " ,

episodes 16 and 17. It revolves around " letting go " , which is exactly what I

need to do about the weight issue- not to be neurotic about it. Maybe it'll help

you also?

Good luck

>

> Hi,

>

> Just wanted to introduce myself. I just found this podcast and have been

listening to the episodes in order every night. For the first time in a while, I

am hopeful.

>

> I have been struggling to lose 30 lbs since my twins were born in 2005. I had

a difficult pregnancy with complications. The physical, mental, and emotional

changes that have happened to my body in this time have been immense. Not to

mention that becoming a mom of twins has been a life-changer in an of iteself!

>

> I'm sad because I feel like the weight issue has sucked up so much of my

energy and joy the past few years, when I should have been enjoying my twins and

my new life as a mom. I never had a weight problem growing up. It truly snuck up

on me in my 30's, and especially after a difficult pregnancy.

>

> I am considering plastic surgery, because I have convinced myself (maybe a

limiting belief) that the fat around my middle was caused by the pregnancy and

will not go away without surgery. I have given myself a year to save $$ for the

surgery, and lose as much weight as possible. That is when I found the podcast,

and for the first time have hope that I might not have to have surgery after

all.

> I am obsessed with losing weight. It is embarrassing to me how much time and

space it takes up in my brain. It seems like no matter how " good " I am, it's

never good enough. I have changed so many eating habits in the past 4 years. Had

I not, I'm sure I would have more of a weight problem than I do. However, it

never seems to be enough to create the caloric deficit I need to lose weight. I

have gained and lost 10 lbs over the 4 years, but decided that diets were not

the way to go since I always gain the weight back.

>

> Anyway, that's me! I love yoga, walking, and laughing. I am thankful to

for the podcast and I look forward to being a part of the group.

>

> Thanks!

> js

>

[Guest guest]

Welcome to you new folks!!!

Bonnie

Thoughts become things. Choose the good ones.

On Jun 15, 2009, at 12:08 PM, wrote:

> Good morning everyone! I'm new to the group and IOWL. I just found

> IOWL on podcasts and am addicted. They are so wonderul. But, I

> have to have 100% concentration them or I miss important info.

>

> I'm a 37yo mother of 2 in Pa. I've been struggling with my weight

> since I was 7yo! We moved which was a double whammy. I went from

> the city with lots of kids and things to do, to an urban area that

> was primarily retirees and little to do. And, I learned much later

> that this was a tramtic move for me as well. So, those things

> combined I started to gain weight. Up until then I was 'normal' for

> my age. I hit my highest last year, higher than I was with either

> pregnancy!, and joined Weight Watchers. Since last June I have lost

> 50lb and in the last 6-8 weeks put 12 back on. I'm finally on the

> loosing track again, and I attribute a lot of that to IOWL. I've

> also been seeing a therapist for the last year and half for binge

> eating disorder. I knew I had to do something when I " realized "

> that I was eating and eating and eating and eating with no feeling.

> I was not hungry but could start eating from the time I woke up

> until I went to bed!!! When I realized this, I knew I needed help.

> It took some time for me to be ready to do anything else. As you

> all know, the diet binge cycle is a fearce on that feeds off

> itself. I needed the ok from my dr to do this, that I was in the

> right place and could do it and not perpetuate the cycle. I also

> learned that exercise and weight loss do go hand and hand! Imagine

> that--just like I've been hearing for years! This time I

> implimented it and low and behold! But, with my husband's schedule,

> living 15 miles from the nearest town, and having 2 small children,

> this is no easy task! I like to go to the gym and walk at my pace,

> etc. With child care only available for certain hours and working

> full time, etc, it is not always do-able. But, I try.

>

> Since I found IOWL, it's been life changing for me. I now have the

> motivation to go on and do it without counting points or whatever,

> but finding it within myself! After all, this is a life change and

> not a diet!! I have to learn how to do it and cope WITHIN myself!!

> I think I've found that and hope to see results. Although I'd like

> immediate results, who wouldn't, I know and have accepted (very

> important) that this is not the case and will take my time getting

> to know me, from the inside out.

>

> Thanks for listening, sorr so long!

> in Pa.

>

>

>

> ------------------------------------

>

> Copyright 2005-2007. A. s. All worldwide rights

> reserved.

[Guest guest]

Hi ,

My son, , is 6 and has also been dignosed for CVID. He also is on

Vivaglobin weekly 16ml through 1 site. We are more than likely going to get an

increase of Vivaglobin shortly since his infections are starting to kick back up

in frequency again. He has been on Vivaglobin since February and has never gone

the IVIG route only the SCIG. Welcome to the group you will get a lot of good

information and support from the group.

>

> From: sievertlaura@...

> Date: Fri, 2 Oct 2009 10:13:33 -0700

> Subject: New to Group

>

> Hi,

>

> I am new to this group. I have an 11-year-old son recently (May 2009)

diagnosed with CVID. He does SubQ Vivaglobin injections weekly at home. We are

still trying to learn more and connect with other kids/families with this and

similar illnesses. I'm a novice at posting to discussion groups, so I just

wanted to say hello and catch up on past postings. Thanks.

>

>

>

>

>

>

>

[Guest guest]

Thanks. Tate did one loading dose of IVIG and then switched. He has already seen

a dose increas once. He does 40cc weekly in 3 sites. He's a trooper and has been

doing his own sticks from the begining. I would think it would be harder for

at age 6. Tate says it's worth it because he feels better overall and has

been healthier. How does do?

From: Klipp <ldh010@...>

Subject: RE: New to Group

Date: Friday, October 2, 2009, 5:25 PM

Hi ,

My son, , is 6 and has also been dignosed for CVID.  He also is on

Vivaglobin weekly 16ml through 1 site.  We are more than likely going to get an

increase of Vivaglobin shortly since his infections are starting to kick back up

in frequency again.  He has been on Vivaglobin since February and has never

gone the IVIG route only the SCIG.  Welcome to the group you will get a lot of

good information and support from the group.

>

> From: sievertlaura@...

> Date: Fri, 2 Oct 2009 10:13:33 -0700

> Subject: New to Group

>

> Hi,

> 

> I am new to this group. I have an 11-year-old son recently (May 2009)

diagnosed with CVID. He does SubQ Vivaglobin injections weekly at home. We are

still trying to learn more and connect with other kids/families with this and

similar illnesses. I'm a novice at posting to discussion groups, so I just

wanted to say hello and catch up on past postings. Thanks.

> 

>

>

>

>

>

>

[Guest guest]

Welcome,

My daughter Tristen 4 1/2 was diagnosed a year ago CVID and we've been doing

subq 1 year exactly.

We've seen a big difference in her overall health and are thankful she can be a

" normal " child finally.

Again, welcome!

le

________________________________

From: Sievert <sievertlaura@...>

Sent: Friday, October 2, 2009 10:13:33 AM

Subject: New to Group

Hi,

I am new to this group. I have an 11-year-old son recently (May 2009) diagnosed

with CVID. He does SubQ Vivaglobin injections weekly at home. We are still

trying to learn more and connect with other kids/families with this and similar

illnesses. I'm a novice at posting to discussion groups, so I just wanted to say

hello and catch up on past postings. Thanks.

[Guest guest]

My son Blaek is 17. He was first Dx'ed at age  3. He was DX'ed with

Hypogammaglobuliemia and Hypocomlementemia. IT change to CIVD around age 6. he

was started on IVIG. Then at age 10 Blake was trialed off......al his testing

came back worse taht it had ever been....he DX'ed with SCID...(Sever) Combined

Immunodeficiency...with CompleteT-Cell Dysfuntion. We actually went to DUKE to

get the Final DX. Blaek did IVIG for 8 yrs. He was switched to Sub-Q in

2007....we have NOT loke back since.  Yes he still has break through

infections, we did start with VIVA. BUt, Blake is one who DID have an allergic

reaction because of the amount of IgA taht is in VIVIA. since he makes no IgA,

we went back to doing Gammagard S/D through the sub-q!!! He does 20 grams 2x's

weekly(2 days a a week) with 6 sites each time.....I have a FB page if any one

wants to be a friend, I can share the album with you!!!!!(julie marie stephens

is my page) Blake actually makes doing sub-q

look easy...only because he is use to it after 2 yrs!!!!

Good luck & Welcome to

Mom to Blake

http://www.caringbridge.org/visit/thetalesofblake (Blake's new website)

http://www.caringbridge.org/sc/blakester {Blake's first website with all his

back journal history)

" Children are like butterflies in the wind.

Some fly higher than others, BUT

each one flies the best they can!!!! "

From: Klipp <ldh010hotmail (DOT) com>

Subject: RE: New to Group

groups (DOT) com

Date: Friday, October 2, 2009, 5:25 PM

Hi ,

My son, , is 6 and has also been dignosed for CVID.  He also is on

Vivaglobin weekly 16ml through 1 site.  We are more than likely going to get an

increase of Vivaglobin shortly since his infections are starting to kick back up

in frequency again.  He has been on Vivaglobin since February and has never

gone the IVIG route only the SCIG.  Welcome to the group you will get a lot of

good information and support from the group.

> groups (DOT) com

> From: sievertlaura

> Date: Fri, 2 Oct 2009 10:13:33 -0700

> Subject: New to Group

>

> Hi,

> 

> I am new to this group. I have an 11-year-old son recently (May 2009)

diagnosed with CVID. He does SubQ Vivaglobin injections weekly at home. We are

still trying to learn more and connect with other kids/families with this and

similar illnesses. I'm a novice at posting to discussion groups, so I just

wanted to say hello and catch up on past postings. Thanks.

> 

>

>

>

>

>

>

[Guest guest]

Thanks for the welcome. Happy to be finding other parents to interact with.

From: le Mina <daniellemina@...>

Subject: Re: New to Group

Date: Friday, October 2, 2009, 6:55 PM

 

Welcome,

My daughter Tristen 4 1/2 was diagnosed a year ago CVID and we've been doing

subq 1 year exactly.

We've seen a big difference in her overall health and are thankful she can be a

" normal " child finally.

Again, welcome!

le

____________ _________ _________ __

From: Sievert <sievertlaura>

groups (DOT) com

Sent: Friday, October 2, 2009 10:13:33 AM

Subject: New to Group

Hi,

I am new to this group. I have an 11-year-old son recently (May 2009) diagnosed

with CVID. He does SubQ Vivaglobin injections weekly at home. We are still

trying to learn more and connect with other kids/families with this and similar

illnesses. I'm a novice at posting to discussion groups, so I just wanted to say

hello and catch up on past postings. Thanks.

[Guest guest]

Well says he can notice how his body feels but he still gets scared every

week and runs away from us and we have to hold him down. It is slowly getting

better though it takes time this is a big thing for a little mind to have to

absord.

Welcome to the group.

>

> From: sievertlaura@...

> Date: Fri, 2 Oct 2009 11:20:15 -0700

> Subject: RE: New to Group

>

> Thanks. Tate did one loading dose of IVIG and then switched. He has already

seen a dose increas once. He does 40cc weekly in 3 sites. He's a trooper and has

been doing his own sticks from the begining. I would think it would be harder

for at age 6. Tate says it's worth it because he feels better overall and

has been healthier. How does do?

>

>

>

>

> From: Klipp <ldh010@...>

> Subject: RE: New to Group

>

> Date: Friday, October 2, 2009, 5:25 PM

>

>

>

> Hi ,

>

>

>

> My son, , is 6 and has also been dignosed for CVID. He also is on

Vivaglobin weekly 16ml through 1 site. We are more than likely going to get an

increase of Vivaglobin shortly since his infections are starting to kick back up

in frequency again. He has been on Vivaglobin since February and has never gone

the IVIG route only the SCIG. Welcome to the group you will get a lot of good

information and support from the group.

>

>

>

>

>

> >

> > From: sievertlaura@...

> > Date: Fri, 2 Oct 2009 10:13:33 -0700

> > Subject: New to Group

> >

> > Hi,

> >

> > I am new to this group. I have an 11-year-old son recently (May 2009)

diagnosed with CVID. He does SubQ Vivaglobin injections weekly at home. We are

still trying to learn more and connect with other kids/families with this and

similar illnesses. I'm a novice at posting to discussion groups, so I just

wanted to say hello and catch up on past postings. Thanks.

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Well says he can notice how his body feels but he still gets scared every

week and runs away from us and we have to hold him down. It is slowly getting

better though it takes time this is a big thing for a little mind to have to

absord.

Welcome to the group.

>

> From: sievertlaura@...

> Date: Fri, 2 Oct 2009 11:20:15 -0700

> Subject: RE: New to Group

>

> Thanks. Tate did one loading dose of IVIG and then switched. He has already

seen a dose increas once. He does 40cc weekly in 3 sites. He's a trooper and has

been doing his own sticks from the begining. I would think it would be harder

for at age 6. Tate says it's worth it because he feels better overall and

has been healthier. How does do?

>

>

>

>

> From: Klipp <ldh010@...>

> Subject: RE: New to Group

>

> Date: Friday, October 2, 2009, 5:25 PM

>

>

>

> Hi ,

>

>

>

> My son, , is 6 and has also been dignosed for CVID. He also is on

Vivaglobin weekly 16ml through 1 site. We are more than likely going to get an

increase of Vivaglobin shortly since his infections are starting to kick back up

in frequency again. He has been on Vivaglobin since February and has never gone

the IVIG route only the SCIG. Welcome to the group you will get a lot of good

information and support from the group.

>

>

>

>

>

> >

> > From: sievertlaura@...

> > Date: Fri, 2 Oct 2009 10:13:33 -0700

> > Subject: New to Group

> >

> > Hi,

> >

> > I am new to this group. I have an 11-year-old son recently (May 2009)

diagnosed with CVID. He does SubQ Vivaglobin injections weekly at home. We are

still trying to learn more and connect with other kids/families with this and

similar illnesses. I'm a novice at posting to discussion groups, so I just

wanted to say hello and catch up on past postings. Thanks.

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi Shara and welcome to the group. You are not

alone!!!! I have a 7 year old with high functioning autism, ADHD, and

SPD. Caleb wasn’t officially diagnosed until he was 5 years old.

He had no therapy before we got the diagnosis. We knew he was different

but had no idea what autism was. Caleb started OT shortly after the

diagnosis. Caleb was seeing a play therapist who had to teach him how to

play with toys but that’s all she did. Don’t get me wrong she

helped him to learn how to play with a few toys but that’s as far as he

went. Then he started seeing a behavior therapist. I felt good

after the session but it didn’t help me with Caleb at all. I was

able to vent to someone other than my friends and family. Caleb graduated

or I graduated from behavior therapy right before Christmas. I had

finally found something that worked. I can remember wanting to pull my

hair up. I can even remember saying that I must be a bad mother because I

don’t know how to correct my own child. This was only a few months

ago. The things that worked for Caleb was ADHD medication and the

birthday fairy. The birthday fairy was really mean and Caleb didn’t

like her. If Caleb would do something he knew he wasn’t suppose to like

throw his toys at me she would pass that night and take his toys. At

first she would take his container of superheroes. The superheroes are

his favorite (OCD). If he behaved the next day she would bring his

superheroes back in the middle of the night. If he misbehaved then the

next night she would come and get his favorite DVD’s. It only took

him a few nights to catch on to the way the birthday fairy worked.

Eventually all I had to say was “The birthday fairy is watching you”.

Shara it was really bad before I found the birthday fairy. When we would

be in the vehicle Caleb would throw things at me while I was driving.

Everything in the back seat would end up in the front seat after it first hit

me in the head, leg, arm, etc. Then when nothing was left for him to

throw he would scoot himself to the edge of his seat and start kicking me

really hard. He did all of this while I was attempting to drive. It

got so bad that I eventually bought me 2 pairs of handcuffs. One for his

feet and one for his hands. I only had to use them once. After that

if he just seen them he would straighten up. This is what worked for

Caleb. It took me a long time to find something that would work.

Now when we get in the vehicle I can actually drive in peace. The birthday

fairy hasn’t had to pass by our house in quite a while.

Does your son understand you when you are asking him why he is

hitting the other kids? What is the teacher doing when he hits the other

students? Is she putting him in time out? If she is that’s

the worst thing for him. He could be hitting the other kids just to be in

time out. He wouldn’t have to socialize with the other kids.

I can’t stress enough how important it is to have a great relationship

with his teachers. I email Caleb’s teachers often. If he had

a bad night where he didn’t get much sleep I email the teacher letting

her know. When I do that it helps her to understand why he is misbehaving.

If we have a bad morning getting ready for school or getting on the bus I email

her and let her know what went on that morning. I don’t email her

everyday just on the days that he gives me problems. In return she emails

me if she is having any problems with him. When she gets time she will

even email me to let me know that he’s okay.

You said he had a perfect week last week. What

changed? Is it the weather? Is he not feeling good? Are you

having problems with him at home or is it just at school? I know you feel

like you are being interrogated but these questions will help you to figure out

what is going on. The school isn’t going to help you figure out

what’s going on. They just want you to fix it. If only it was

that easy. You said at home he is pretty good. Just remember that

at home he doesn’t have to seat still all day. He may have some

structure at home but usually they get to play and do what they want to a

certain degree. It’s a totally different atmosphere between

school and home. I would really try and find out what is going on at

school. Something is setting him off. You may need to go visit his

class or better yet let one of his therapist sit in on him in the class.

I had to do that with Caleb last year. I sent his private OT to the

school. Caleb didn’t even know she was there. Of course she

was greeted by the assistant principal, counselors, therapists, you name it

they were there. It took for her to go to the school before things got

better for Caleb. That was last year this year I haven’t had any

problems. (knock on wood lol)

Sorry for writing a novel. I just know how you feel.

There are a bunch of very wise women in this group. Some have older

children and they’ve been there done that. If you need you can

email me offline. Sorry again. Gwen

From:

autism

[mailto:autism ] On Behalf Of sharawillie

Sent: Monday, February 08, 2010 4:24 PM

autism

Subject: new to group

i am new to this group and i'm having problems

with my son. he is 7 years old and has high functioning autism. He was

officially diagnosed at 5 but i have had him in treatment since he was 2. it

wasn't until we moved back to texas from california that he was diagnosed

because in cali they said he was too young to diagnose. anyways he has always

had a problem with keeping his hands and feet to himself. when he was younger

it was worse he would pick up toys and knock other kids over the head with

them. i was so upset because there was nothing i could do. we have done ot and

he is still in speech and we have even had behavioral specialist come weekly to

work with him. NOTHING HAS WORKED!! He just got in trouble today at school for

kicking kids and twisting anothers arm. granted none of it is as hard as it

used to be but i'm not happy with him doing it all. when i talk to him he

really has no reason to hit and kick them. so it all sounds like he has no

reason to like they are not mean to him or anything in the past i've watched

kids pick on him and thats usually what provoked him but i feel like now hes

just bullying. his teacher is supposed to be calling me today and i'm not

looking forward to it because i know theres not much i can do about his

behavior. really as far as i'm concerned they are the professionals and they

should have more resources to deal with him than i can. i guess another meeting

is in my future. they have put him in a normal class room setting so he hasn't

had the one on one he used too since preschool. anyway i was just wondering if

anyone has any successful ways of dealing with him keeping his hands and feet

to himself? whats so strange is he had a perfect week last week and then very

hard day today. its like two steps forward and then one back all the time with

him. i just wish i knew what was really bothering him and what sets him off at

school cuz at home he really is pretty good. thanks so much shara

[Guest guest]

hi gwen,

thanks so much for your reply.with jacob i do take his things away when he has a bad day at at school. he does get them back when he has good days it has helped but not as much as i had hoped. his behavioral therapist just gave me charts to do with him which they actually already do at school. he gets stickers when he is good thats what we did at home for awhile but really it wasn't effective with him that much. i really do not think he understands me when i ask him why he hit other children or kicked them. he will say things like because he was reading a book, and i'm just thinking well that doesn't sound like a reason at all. i've tried wording it differently but its always the same response. i did talk with his teacher and she just said he just kicked a student that was in his way. and at lunch just twisted ones arm and neither times he was provoked. she actually didn't seem to upset she just said she has told him over and over that she was going

to call me and this time decided for him to believe her she had to do it. she says she knows its loud and overcrowded for him and she just recently moved him back with his group and that he seems to be doing ok. she also said she allows him to push on a wall if hes feeling that need instead of pushing other kids. i tried joint compressions last night which i haven't done in awhile and i heard him whisper to himself that that felt better. i keep thinking maybe i should get him a weighted vest or the lap thing. he used to have to be weighted down all the time. we have also used a little back pack with weights. she also allows him to wear earphones if it gets to loud for him. he actually has a therapist that goes in and sits with him but i'm not sure if shes as good as his one last year. he has never hurt me physically but he always seems to hit,kick,push,bump into other kids.for years we stayed home and never really went anywhere with him because of the

fits he would throw and how we could never calm him down. but now he has come along way that i take him pretty much everywhere. he actually doesn't ever really hit his cousins like he used too it just seems to be something he does at school. and at home with his little toddler brother hes pretty good except for the typical brother stuff like taking stuff away from him. sometimes they roll around together but hes never really purposely hurt his brother. like i said it just seems to be a school thing. i can add we have gone through alot in the last two years and most of it in the recent months. i lost a 6 year old niece in 08 to brain cancer then in sept my father passed unexpectedly and then in december my brother which was my nieces dad passed away from a brain tumor also. he was very close with all of them and like us watched them suffer except my father since his was a suprise passing. now we are all trying to deal and maybe i'm not giving him all the

attention he needs but i'm really trying to do the best i can. even the days i don't want to get out of bed i do anyway. i try not to cry in front of him because it makes him cry but somedays he still cries about all of them and how much he misses them. he is getting better though with that its not as often. i'm really dreading in a couple of weeks when my husband has to have surgery for a hernia. thats going to be a big change again for him. he will be home recouping for awhile. i keep in touch with his teacher although not as often as i should i used to do all the things you did which is tell them when hes had a hard morning. i cannot lie i feel drained right now and i need to get back into things. i am glad his teacher is understanding shes better than the office people and the assistant principle. i do use the 123 magic stuff on him at home and it really works here and i did mention it to his teacher so maybe she can do that at school. as far

as hitting you just never know when he will do it so its hard to prevent but i do remind him daily not to do it. anyways sorry so long i just have so much to say lol. thanks so much shara stewart

From: Gwen Hebert <gwenhebert@...>Subject: RE: new to groupautism Date: Tuesday, February 9, 2010, 7:47 PM

Hi Shara and welcome to the group. You are not alone!!!! I have a 7 year old with high functioning autism, ADHD, and SPD. Caleb wasn’t officially diagnosed until he was 5 years old. He had no therapy before we got the diagnosis. We knew he was different but had no idea what autism was. Caleb started OT shortly after the diagnosis. Caleb was seeing a play therapist who had to teach him how to play with toys but that’s all she did. Don’t get me wrong she helped him to learn how to play with a few toys but that’s as far as he went. Then he started seeing a behavior therapist. I felt good after the session but it didn’t help me with Caleb at all. I was able to vent to someone other than my friends and family. Caleb graduated or I graduated from behavior therapy right before Christmas. I had finally found

something that worked. I can remember wanting to pull my hair up. I can even remember saying that I must be a bad mother because I don’t know how to correct my own child. This was only a few months ago. The things that worked for Caleb was ADHD medication and the birthday fairy. The birthday fairy was really mean and Caleb didn’t like her. If Caleb would do something he knew he wasn’t suppose to like throw his toys at me she would pass that night and take his toys. At first she would take his container of superheroes. The superheroes are his favorite (OCD). If he behaved the next day she would bring his superheroes back in the middle of the night. If he misbehaved then the next night she would come and get his favorite DVD’s. It only took him a few nights to catch on to the way the birthday fairy worked. Eventually all I had to say was “The birthday fairy is watching

youâ€. Shara it was really bad before I found the birthday fairy. When we would be in the vehicle Caleb would throw things at me while I was driving. Everything in the back seat would end up in the front seat after it first hit me in the head, leg, arm, etc. Then when nothing was left for him to throw he would scoot himself to the edge of his seat and start kicking me really hard. He did all of this while I was attempting to drive. It got so bad that I eventually bought me 2 pairs of handcuffs. One for his feet and one for his hands. I only had to use them once. After that if he just seen them he would straighten up. This is what worked for Caleb. It took me a long time to find something that would work. Now when we get in the vehicle I can actually drive in peace. The birthday fairy hasn’t had to pass by our house in quite a while.

Does your son understand you when you are asking him why he is hitting the other kids? What is the teacher doing when he hits the other students? Is she putting him in time out? If she is that’s the worst thing for him. He could be hitting the other kids just to be in time out. He wouldn’t have to socialize with the other kids. I can’t stress enough how important it is to have a great relationship with his teachers. I email Caleb’s teachers often. If he had a bad night where he didn’t get much sleep I email the teacher letting her know. When I do that it helps her to understand why he is misbehaving. If we have a bad morning getting ready for school or getting on the bus I email her and let her know what went on that morning. I don’t email her everyday just on the days that he gives me problems. In

return she emails me if she is having any problems with him. When she gets time she will even email me to let me know that he’s okay.

You said he had a perfect week last week. What changed? Is it the weather? Is he not feeling good? Are you having problems with him at home or is it just at school? I know you feel like you are being interrogated but these questions will help you to figure out what is going on. The school isn’t going to help you figure out what’s going on. They just want you to fix it. If only it was that easy. You said at home he is pretty good. Just remember that at home he doesn’t have to seat still all day. He may have some structure at home but usually they get to play and do what they want to a certain degree. It’s a totally different atmosphere between school and home. I would really try and find out what is going on at school. Something is setting him off. You may need to go visit his class

or better yet let one of his therapist sit in on him in the class. I had to do that with Caleb last year. I sent his private OT to the school. Caleb didn’t even know she was there. Of course she was greeted by the assistant principal, counselors, therapists, you name it they were there. It took for her to go to the school before things got better for Caleb. That was last year this year I haven’t had any problems. (knock on wood lol)

Sorry for writing a novel. I just know how you feel. There are a bunch of very wise women in this group. Some have older children and they’ve been there done that. If you need you can email me offline. Sorry again. Gwen

From: AutismBehaviorProbl emsgroups (DOT) com [mailto:AutismBehav iorProblems] On Behalf Of sharawillieSent: Monday, February 08, 2010 4:24 PMAutismBehaviorProbl emsgroups (DOT) comSubject: new to group

i am new to this group and i'm having problems with my son. he is 7 years old and has high functioning autism. He was officially diagnosed at 5 but i have had him in treatment since he was 2. it wasn't until we moved back to texas from california that he was diagnosed because in cali they said he was too young to diagnose. anyways he has always had a problem with keeping his hands and feet to himself. when he was younger it was worse he would pick up toys and knock other kids over the head with them. i was so upset because there was nothing i could do. we have done ot and he is still in speech and we have even had behavioral specialist come weekly to work with him. NOTHING HAS WORKED!! He just got in trouble today at school for kicking kids and twisting anothers arm. granted none of it is as hard as it used to be but i'm not happy with him doing it all. when i talk to him he really has no reason to hit and kick them. so it all sounds like he has no

reason to like they are not mean to him or anything in the past i've watched kids pick on him and thats usually what provoked him but i feel like now hes just bullying. his teacher is supposed to be calling me today and i'm not looking forward to it because i know theres not much i can do about his behavior. really as far as i'm concerned they are the professionals and they should have more resources to deal with him than i can. i guess another meeting is in my future. they have put him in a normal class room setting so he hasn't had the one on one he used too since preschool. anyway i was just wondering if anyone has any successful ways of dealing with him keeping his hands and feet to himself? whats so strange is he had a perfect week last week and then very hard day today. its like two steps forward and then one back all the time with him. i just wish i knew what was really bothering him and what sets him off at school cuz at home he really is pretty

good. thanks so much shara

[Guest guest]

Welcome to the group Judy! My name is and I have 2 children Tara is 25 and

Andy turns 12 in July and 1 grandchild her name is JaidenDawn she turns 3 on the

6th of this month! My son Andy has Aspergers syndrome and JaidenDawn (aka JD)

has Epilepsy, I have Muscular Dystrophy and my daughter Tara has anger issues as

well as bi-polar and OCD. Hope you enjoy your stay with the group!

>^..^<

Sent via BlackBerry from T-Mobile

New to group

Hi,

My name is Judy. I have four children - 16, 14, 11 and 9. My youngest (Luke) was

just diagnosed with Aspergers Syndrome this week, although I have suspected for

quite some time. I look forward to learning from this group and getting some

support as I learn how to help Luke.

Cheers,

Judy

------------------------------------

[Guest guest]

Hi Judy,

I just joined the group recently also. My only son is 2 and may have

autism or maybe PDD-NOS. We are not sure exactly what's going on but have

challenges with his language and social skills. I hope you find the group

helpful. I have already. Take care.

e

>

>

>

> Hi,

>

> My name is Judy. I have four children - 16, 14, 11 and 9. My youngest (Luke)

was just diagnosed with Aspergers Syndrome this week, although I have suspected

for quite some time. I look forward to learning from this group and getting some

support as I learn how to help Luke.

>

> Cheers,

> Judy

>

[Guest guest]

Hello Judy, I have a grandson named Luke also and he has some quirky

behaviors. I was wondering if you would share why you were suspicious

your son might have Aspergers for some time and what they did to

diagnose it. Was he in school and having problems and just finally

needed testing to continue, and what did you see when he was smaller?

They are suggesting at my grandson's kindergarten that he be tested and

they put him in a smaller group for these types of students one day and

he did a lot better they said.

Carolyn OR

jghastings@... wrote:

>

>

>

>

> Hi,

>

> My name is Judy. I have four children - 16, 14, 11 and 9. My youngest

> (Luke) was just diagnosed with Aspergers Syndrome this week, although

> I have suspected for quite some time. I look forward to learning from

> this group and getting some support as I learn how to help Luke.

>

> Cheers,

> Judy

>

>

[Guest guest]

Hi Carolyn,

My oldest son has been diagnosed with ADHD and initially I thought Luke had this

as well. He was so easily distracted and difficult to concentrate on things.

When he was 3, he was having trouble playing with other children - he would much

rather play by himself, which I thought was odd for a fourth child. The

preschool teachers were also telling me every time I picked him up about

something that had happened between him and another child - nothing major, just

always something not appropriate for play, usually not sharing well.

His intellectual skills were fine, but his speech was always a problem, so we

went into therapy for a long time, but I found it difficult to work with him on

developing his skills. At school, he had trouble making friends and sort of

became the bully who was telling everyone what they should be doing whether he

was doing it right or not.

I have been homeschooling him for the past 3 years because school was not

working for him. He didn't work well in a group of children, and much prefers a

smaller group to a larger one.

There are so many things, I won't go into now, but these were my indicators that

something wasn't right. Over the past year, more things have become apparent

because of the lack of developmental changes that he is behind in, mostly

noticable are his co-ordination and motor skills.

He was diagnosed by my paediatrician. I thought that I would have to undergo

psychiatric assessment, but he said that Luke had enough indicators to

definitely place him on the spectrum. Through our discussions, he felt certain

that Luke either fit into the Aspergers or the High Functioning Autism, but said

that there wasn't a huge difference and that treatment is the same anyway.

It wouldn't hurt to have your grandson tested. If Luke had been tested earlier,

I would have been able to get more help for him before now. He is ok, but some

skills would not be so far behind if we had received therapy earlier and knew

what help he needed.

Cheers,

Judy

> Carolyn <charper777@...> wrote:

>

> Hello Judy, I have a grandson named Luke also and he has some quirky

> behaviors. I was wondering if you would share why you were suspicious

> your son might have Aspergers for some time and what they did to

> diagnose it. Was he in school and having problems and just finally

> needed testing to continue, and what did you see when he was smaller?

> They are suggesting at my grandson's kindergarten that he be tested and

> they put him in a smaller group for these types of students one day and

> he did a lot better they said.

>

> Carolyn OR

>

> jghastings@... wrote:

> >

> >

> >

> >

> > Hi,

> >

> > My name is Judy. I have four children - 16, 14, 11 and 9. My youngest

> > (Luke) was just diagnosed with Aspergers Syndrome this week, although

> > I have suspected for quite some time. I look forward to learning from

> > this group and getting some support as I learn how to help Luke.

> >

> > Cheers,

> > Judy

> >

> >

[Guest guest]

Welcome!

I am glad you have found 's podcast and this group.

Take good care of yourself and continued success on your weight loss journey.

Jantje

>

> Hi ,

> I am new to the group experience and new to this program . Im have been

working for many years to overcome my eating problem and have been doing well

and then my dad died. We didn;t really have a great relationship but our happy

times were always when we would eat together. It would make everything go away

for a little while. And I am finding while I am grieving for him that my eating

has gone totally out of control. I am not sure how to reign it in but I thought

maybe if I shared my story I might be able to get strength to do so from all of

you.

>

[Guest guest]

Welcome!

I am glad you have found 's podcast and this group.

Take good care of yourself and continued success on your weight loss journey.

Jantje

>

> Hi ,

> I am new to the group experience and new to this program . Im have been

working for many years to overcome my eating problem and have been doing well

and then my dad died. We didn;t really have a great relationship but our happy

times were always when we would eat together. It would make everything go away

for a little while. And I am finding while I am grieving for him that my eating

has gone totally out of control. I am not sure how to reign it in but I thought

maybe if I shared my story I might be able to get strength to do so from all of

you.

>

[Guest guest]

I'm really sorry to hear about your father. Eating for comfort because of

old happy eating memories is a tough one that I share. I have memories of my

grandparents and eating, my father and mother. Just thinking of eating and

each person such signature meals come to mind and I find myself right now

craving what I used to eat with my Mother just after thinking of this.

Literally I just went from not hungry (midway between breakfast/lunch with a

good morning exercise) to nearly salivating.

There really isn't much you can do while you're in the middle of a

compulsion. But before/after you really have a fighting chance. I'm

listening to episodes 85, 86 and 87 right now (to and from work) and they

deal with painful triggers that cause a compulsion. I'm not quite there to

the end, but promises to guide you to reprogramming your compulsion to

do something healthier than say, eat.

Anyways, welcome to the group

On Mon, Jun 7, 2010 at 7:01 PM, Deb <insidedebi@...> wrote:

>

>

> Hi ,

> I am new to the group experience and new to this program . Im have been

> working for many years to overcome my eating problem and have been doing

> well and then my dad died. We didn;t really have a great relationship but

> our happy times were always when we would eat together. It would make

> everything go away for a little while. And I am finding while I am grieving

> for him that my eating has gone totally out of control. I am not sure how to

> reign it in but I thought maybe if I shared my story I might be able to get

> strength to do so from all of you.

>

>

>

[Guest guest]

I'm really sorry to hear about your father. Eating for comfort because of

old happy eating memories is a tough one that I share. I have memories of my

grandparents and eating, my father and mother. Just thinking of eating and

each person such signature meals come to mind and I find myself right now

craving what I used to eat with my Mother just after thinking of this.

Literally I just went from not hungry (midway between breakfast/lunch with a

good morning exercise) to nearly salivating.

There really isn't much you can do while you're in the middle of a

compulsion. But before/after you really have a fighting chance. I'm

listening to episodes 85, 86 and 87 right now (to and from work) and they

deal with painful triggers that cause a compulsion. I'm not quite there to

the end, but promises to guide you to reprogramming your compulsion to

do something healthier than say, eat.

Anyways, welcome to the group

On Mon, Jun 7, 2010 at 7:01 PM, Deb <insidedebi@...> wrote:

>

>

> Hi ,

> I am new to the group experience and new to this program . Im have been

> working for many years to overcome my eating problem and have been doing

> well and then my dad died. We didn;t really have a great relationship but

> our happy times were always when we would eat together. It would make

> everything go away for a little while. And I am finding while I am grieving

> for him that my eating has gone totally out of control. I am not sure how to

> reign it in but I thought maybe if I shared my story I might be able to get

> strength to do so from all of you.

>

>

>

[Guest guest]

Hi, welcome to CAST! Yes, it does get easier! The first cast is the hardest, it can take a few weeks for your child to adjust and get all of their skills back, but every day does get better and better. I found the whole first month pretty hard emotionally, but my son was up and going and got it down with great determination. He had trouble getting up from the floor- he would get stuck like a turtle on his back or front and need to be picked back up at first. He also had trouble turning over in his crib and climbing stairs in the beginning. Your child will amaze you. What hospital do you go to? Heidi, Bexon's Mommy, (3 years old, in 7th cast from Salt Lake City Shriners, currently down from 62 degrees to 19.7 in cast)

From: Leary <sleary7676@...>infantile scoliosis treatment Sent: Mon, July 5, 2010 6:35:37 PMSubject: new to group

Hi,

I am a mom from outside the Boston area of a 16 month old child who has just had her first cast put on for scoliosis. My husband and I do not know any other parents who have been through this and were looking for some additional support. She is really having a tough weekend and just wanted some feedback about the first cast..please tell me this gets easier. thanks so much..

[Guest guest]

Hi ! You are in the toughest time of cast life. The first week is alot of relearning. They get it though. Each day will bring renewal and independence. is going into cast #4 on Thursday. We will still have our adjustment time after cast 4. It gets shorter with each cast and easier. is 17 months old and has been casted since 10 months old. Sleep has been our hardest part in the last few casts. His mobility has been dramatically improved through weekly therapy. She has worked with him on his core strength. We have found this so helpful! Let us know if you need anything. There are a ton of parents going through this with you. You are definitely not alone! Catie, momSent from my iPhoneOn Jul 5, 2010, at 8:35 PM, Leary <sleary7676@...> wrote:

Hi,

I am a mom from outside the Boston area of a 16 month old child who has just had her first cast put on for scoliosis. My husband and I do not know any other parents who have been through this and were looking for some additional support. She is really having a tough weekend and just wanted some feedback about the first cast..please tell me this gets easier. thanks so much..

[Guest guest]

Hi. Welcome to Cast. We actually have a neurologist in Boston for our son who

just finished being casted. Can I ask where you are getting casted? I want to

say that it will get much much easier. My son Cole started casting at 17 months

old with a curve of 45 degrees laying down. After the first few weeks I really

felt that we were back to life a usual. He could physically do everything he

used to be able to do and didn't even notice the cast. We really worked to show

him how to modify how he did things and encourage him to do as much on his own

as possible. It probably took 3 days to be 90% of the way adjusted and after 2

weeks he was back to 100%. We helped him sit by propping him up with pillows.

He really found sitting down on the floor really tough so we used a chair or

bean back chair in the beginning. We also would put toys on his train table so

he could play standing up. Switching to pull ups from diapers was a life saver

in terms of chafing on the hips. Also suspenders helped keep his pants up.

If you want to chat feel free to email me directly or call me anytime

518-686-1452. I can answer any more question you have about the beginning and

the road ahead as we experienced it.

Jenn

Mommy to Cole, 2.5 years, 1st brace from rochester, 2 degrees down from 47 after

10 months in 5 casts

>

> Hi,

> I am a mom from outside the Boston area of a 16 month old child who has just

had her first cast put on for scoliosis.  My husband and I do not know any other

parents who have been through this and were looking for some additional

support.  She is really having a tough weekend and just wanted some feedback

about the first cast..please tell me this gets easier.  thanks so much..

>