re Jan

[Guest guest]

First a cheerful note. Today Jan went off with family friends on a bike

ride to the movies to see Hunger Games " . She will put in about eight

miles on a bike trail. At this point, she is not particularly sick is

going on life as usual without emphasis on the problems, although we

have talked everything over with her.

The mass that worried them in her head is a myloid sarcoma which has a

lot of bad white cells. Late next week she will start radiation therapy

which the radiologist is pretty confident will completely remove it with

relatively low doses or x-rays over a couple of weeks. That will fix

the immediate problem, but clearly there is some AML lurking that the

bone marrow transplant failed to remove.

The plans beyond are tentative, but she will have relatively mild chemo

and then a lymphocyte transplant from her brother's blood. It is a

relatively mild approach and is pretty much agreed to by three separate

oncologists, two of whom know her very well.

I've just started her with a camera and in two days she snapped 160 or

so pictures. Not great art yet, but I expect to get some really good

ones in time. I hope this will add interest to her hikes, which are

part of normal life in our family.

Rick

[Guest guest]

Thank you for keeping us posted!  

Bonnie

>________________________________

> De: Rick Dill <rdill@...>

>Para: DOWN-SYN@...; ;

DS_Teens_Plus ; DS_Teens_Plus

>Enviado: Lunes, 14 de mayo, 2012 0:04:33

>Asunto: re Jan

>

>

> 

>First a cheerful note. Today Jan went off with family friends on a bike

>ride to the movies to see Hunger Games " . She will put in about eight

>miles on a bike trail. At this point, she is not particularly sick is

>going on life as usual without emphasis on the problems, although we

>have talked everything over with her.

>

>The mass that worried them in her head is a myloid sarcoma which has a

>lot of bad white cells. Late next week she will start radiation therapy

>which the radiologist is pretty confident will completely remove it with

>relatively low doses or x-rays over a couple of weeks. That will fix

>the immediate problem, but clearly there is some AML lurking that the

>bone marrow transplant failed to remove.

>

>The plans beyond are tentative, but she will have relatively mild chemo

>and then a lymphocyte transplant from her brother's blood. It is a

>relatively mild approach and is pretty much agreed to by three separate

>oncologists, two of whom know her very well.

>

>I've just started her with a camera and in two days she snapped 160 or

>so pictures. Not great art yet, but I expect to get some really good

>ones in time. I hope this will add interest to her hikes, which are

>part of normal life in our family.

>

>Rick

>

>

>

>