Re: Different manufacturers of CSM

[Guest guest]

Hey KC,

Glad to hear everything went well with your visit to Shoemakers. I hope

Sharon feels better soon.

I just thought I'd mention this to those of you who are or will be taking

CSM.

There are several different manufacturers. The kids take one made by " Eon. "

I take the one made by " Upsher-, " mine is sugar free because I am

sensitive to sugar. Problem with mine is it is VERY gritty. Gags the crap

out of me, it will not dissolve for anything.

The kids take the one by " Eon Labs " it is wonderful to me. It dissolves for

the most part, doesn't smell, doesn't have an after taste, or a fowl taste.

We mix it with apple cider and it still tastes like apple cider.

There are also some other brands out there too.

Just thought some would like to know this.

I'd love to hear what others are taking and how they taste, if they are

gritty. This can only help others.

[] Our visit with Dr.Shoemaker

> It had been a long time coming, but we finally had the privilege to

> meet Dr.Shoemaker, mere words just don't seem to be enough on how

> this man impressed me, as far as his committment and deep concern

> for his patients. Not to mention all the research he has done.

>

> My wife Sharon (not to be confused with the other Sharon on this

> board) has been on the CSM now for approx. 3 weeks now and of course

> it is way too early to start shouting from the rafters..... But as

> far as she can tell right now, trying not to jump the gun, she is

> starting to feel better. Some of the symptoms seemed to have

> subsided and are not occurring as much. Also, she has not been re-

> exposed, which we are doing our best to avoid right now.

>

> The only thing she is on right now, is the CSM, and has not had any

> problems with it whatsoever and hopefully won't. Just food for

> thought, since I have heard many mention of having a hard time

> dissolving the CSM in water or beverage that you may be using. She

> has not had any problem dissolving it in water. What she does is

> fills a quarter glass with warm to hot water, stirs, then fills the

> rest of the glass with tepid water and stirs again. Yes, it's a warm

> drink, but seems to dissolve very well with very little grit.

>

> Several have mentioned immediately after taking their daily dose of

> cramping. She has not experienced this at all, nor has she

> experienced any constipation. It has helped to regulate her. (I know

> a real pleasant topic. lol) After taking her dose a natural burp

> occurs and does help.

>

> My concern is many may be trying to dissolve/drink this in cold or

> ice cold water. Which from what I've always heard is not real

> healthy to do anyway, all because of cramping. And the amount you

> all have to drink at one time, this could be part of the problem. My

> opinion, I would at least recommend tepid water, not ice cold. That

> much water I think would cramp my stomach. Just a thought.

>

> I hope this will continue going in the direction for my wife that it

> already seems to be going, along with the rest of you that are on

> the CSM. This does give me some hope. Something I seemed to have

> been doing alot without, the last several years. We will keep you

> updated on how things progress.

>

> I've always said, whether it is Dr.Shoemaker, Dr.Marinkovich or any

> other doctor, all the research/medication in the world does not make

> any difference, if it is not helping the patients. It's what the

> patients say that carries the most weight with me.

>

> This is not a plug for Dr.Shoemaker or his treatment any more than

> it would be for any other doctor that my wife was in the care of.

> What is important is what is working and what isn't.

>

> I'm not telling you who you have to see or that one doctor is better

> than the other. If you're comfortable with the doctor you are seeing

> and their treatment, by all means continue.

>

> If it works for you, that's what counts.

>

> KC

>

>

>

>

>

>

>

> FAIR USE NOTICE:

>

>

>

[Guest guest]

,

Thank you , this is great information for everyone. I didn't

realize that there were so many companies that made the CSM and by

the sounds of it there is a big difference in brands.

The brand that Sharon has is manufactured by Par Pharmaceutical. 4

grams Cholestyramine Resin USP (cholestyramine powder)

KC

--- In , " " <eaglestone@w...>

wrote:

>

> Hey KC,

> Glad to hear everything went well with your visit to Shoemakers. I

hope

> Sharon feels better soon.

> I just thought I'd mention this to those of you who are or will be

taking

> CSM.

> There are several different manufacturers. The kids take one made

by " Eon. "

> I take the one made by " Upsher-, " mine is sugar free because

I am

> sensitive to sugar. Problem with mine is it is VERY gritty. Gags

the crap

> out of me, it will not dissolve for anything.

> The kids take the one by " Eon Labs " it is wonderful to me. It

dissolves for

> the most part, doesn't smell, doesn't have an after taste, or a

fowl taste.

> We mix it with apple cider and it still tastes like apple cider.

> There are also some other brands out there too.

> Just thought some would like to know this.

> I'd love to hear what others are taking and how they taste, if

they are

> gritty. This can only help others.

>

> [] Our visit with Dr.Shoemaker

>

>

> > It had been a long time coming, but we finally had the privilege

to

> > meet Dr.Shoemaker, mere words just don't seem to be enough on how

> > this man impressed me, as far as his committment and deep concern

> > for his patients. Not to mention all the research he has done.

> >

> > My wife Sharon (not to be confused with the other Sharon on this

> > board) has been on the CSM now for approx. 3 weeks now and of

course

> > it is way too early to start shouting from the rafters..... But

as

> > far as she can tell right now, trying not to jump the gun, she is

> > starting to feel better. Some of the symptoms seemed to have

> > subsided and are not occurring as much. Also, she has not been

re-

> > exposed, which we are doing our best to avoid right now.

> >

> > The only thing she is on right now, is the CSM, and has not had

any

> > problems with it whatsoever and hopefully won't. Just food for

> > thought, since I have heard many mention of having a hard time

> > dissolving the CSM in water or beverage that you may be using.

She

> > has not had any problem dissolving it in water. What she does is

> > fills a quarter glass with warm to hot water, stirs, then fills

the

> > rest of the glass with tepid water and stirs again. Yes, it's a

warm

> > drink, but seems to dissolve very well with very little grit.

> >

> > Several have mentioned immediately after taking their daily dose

of

> > cramping. She has not experienced this at all, nor has she

> > experienced any constipation. It has helped to regulate her. (I

know

> > a real pleasant topic. lol) After taking her dose a natural burp

> > occurs and does help.

> >

> > My concern is many may be trying to dissolve/drink this in cold

or

> > ice cold water. Which from what I've always heard is not real

> > healthy to do anyway, all because of cramping. And the amount you

> > all have to drink at one time, this could be part of the

problem. My

> > opinion, I would at least recommend tepid water, not ice cold.

That

> > much water I think would cramp my stomach. Just a thought.

> >

> > I hope this will continue going in the direction for my wife

that it

> > already seems to be going, along with the rest of you that are on

> > the CSM. This does give me some hope. Something I seemed to have

> > been doing alot without, the last several years. We will keep you

> > updated on how things progress.

> >

> > I've always said, whether it is Dr.Shoemaker, Dr.Marinkovich or

any

> > other doctor, all the research/medication in the world does not

make

> > any difference, if it is not helping the patients. It's what the

> > patients say that carries the most weight with me.

> >

> > This is not a plug for Dr.Shoemaker or his treatment any more

than

> > it would be for any other doctor that my wife was in the care of.

> > What is important is what is working and what isn't.

> >

> > I'm not telling you who you have to see or that one doctor is

better

> > than the other. If you're comfortable with the doctor you are

seeing

> > and their treatment, by all means continue.

> >

> > If it works for you, that's what counts.

> >

> > KC

> >

> >

> >

> >

> >

> >

> >

> > FAIR USE NOTICE:

> >

> >

> >

[Guest guest]

I have tried the 2 you mentioned, kind of like poisoned tang, but

cause I dont want the sugar and dye- get it made from Hoptkinton

Pharmacy- a compounding pharmacy- much less gritty- but hard to mix-

this morning I mixed it with warmer water like KC says and it is

much better

--- In , " " <eaglestone@w...>

wrote:

>

> Hey KC,

> Glad to hear everything went well with your visit to Shoemakers. I

hope

> Sharon feels better soon.

> I just thought I'd mention this to those of you who are or will be

taking

> CSM.

> There are several different manufacturers. The kids take one made

by " Eon. "

> I take the one made by " Upsher-, " mine is sugar free because

I am

> sensitive to sugar. Problem with mine is it is VERY gritty. Gags

the crap

> out of me, it will not dissolve for anything.

> The kids take the one by " Eon Labs " it is wonderful to me. It

dissolves for

> the most part, doesn't smell, doesn't have an after taste, or a

fowl taste.

> We mix it with apple cider and it still tastes like apple cider.

> There are also some other brands out there too.

> Just thought some would like to know this.

> I'd love to hear what others are taking and how they taste, if

they are

> gritty. This can only help others.

>

> [] Our visit with Dr.Shoemaker

>

>

> > It had been a long time coming, but we finally had the privilege

to

> > meet Dr.Shoemaker, mere words just don't seem to be enough on how

> > this man impressed me, as far as his committment and deep concern

> > for his patients. Not to mention all the research he has done.

> >

> > My wife Sharon (not to be confused with the other Sharon on this

> > board) has been on the CSM now for approx. 3 weeks now and of

course

> > it is way too early to start shouting from the rafters..... But

as

> > far as she can tell right now, trying not to jump the gun, she is

> > starting to feel better. Some of the symptoms seemed to have

> > subsided and are not occurring as much. Also, she has not been

re-

> > exposed, which we are doing our best to avoid right now.

> >

> > The only thing she is on right now, is the CSM, and has not had

any

> > problems with it whatsoever and hopefully won't. Just food for

> > thought, since I have heard many mention of having a hard time

> > dissolving the CSM in water or beverage that you may be using.

She

> > has not had any problem dissolving it in water. What she does is

> > fills a quarter glass with warm to hot water, stirs, then fills

the

> > rest of the glass with tepid water and stirs again. Yes, it's a

warm

> > drink, but seems to dissolve very well with very little grit.

> >

> > Several have mentioned immediately after taking their daily dose

of

> > cramping. She has not experienced this at all, nor has she

> > experienced any constipation. It has helped to regulate her. (I

know

> > a real pleasant topic. lol) After taking her dose a natural burp

> > occurs and does help.

> >

> > My concern is many may be trying to dissolve/drink this in cold

or

> > ice cold water. Which from what I've always heard is not real

> > healthy to do anyway, all because of cramping. And the amount you

> > all have to drink at one time, this could be part of the

problem. My

> > opinion, I would at least recommend tepid water, not ice cold.

That

> > much water I think would cramp my stomach. Just a thought.

> >

> > I hope this will continue going in the direction for my wife

that it

> > already seems to be going, along with the rest of you that are on

> > the CSM. This does give me some hope. Something I seemed to have

> > been doing alot without, the last several years. We will keep you

> > updated on how things progress.

> >

> > I've always said, whether it is Dr.Shoemaker, Dr.Marinkovich or

any

> > other doctor, all the research/medication in the world does not

make

> > any difference, if it is not helping the patients. It's what the

> > patients say that carries the most weight with me.

> >

> > This is not a plug for Dr.Shoemaker or his treatment any more

than

> > it would be for any other doctor that my wife was in the care of.

> > What is important is what is working and what isn't.

> >

> > I'm not telling you who you have to see or that one doctor is

better

> > than the other. If you're comfortable with the doctor you are

seeing

> > and their treatment, by all means continue.

> >

> > If it works for you, that's what counts.

> >

> > KC

> >

> >

> >

> >

> >

> >

> >

> > FAIR USE NOTICE:

> >

> >

> >

[Guest guest]

I wonder why they don't put the CSM in capsules, but then I don't know

how much you take at a time.