Re: To those who have gotten a lot better.

[Guest guest]

Bob <blue74730@y...> wrote:

>

> I have read posts from different people who have said they have

gotten a lot better, some even well enough to climb mountains like

. I asked the other day about how he was able to buy a

motor home. The new ones cost from $75k upwards and if you buy a

used one, they want a huge down payment of up to $5k and I don't

have that much to pay down. I believe that many of us could profit

from the experiences of the people here who have gottten better but

it would be good to hear how you did it.

>

> has been kind enough to take my calls in the past and tell

somethings he has done to keep his bedroom a " safe place " and I have

implemented then even in my two-room tent but , I think you have

a motor home and you said you are able to move from " bad " place to a

better one. I tried that living in a tent but I could not find a

warm place which was not also a moldy place, such as Florida.

>

The camper that I " tested " and used to recover in 1998 went " bad "

on me. Touring a RV wrecking yard, I found that the type of

materials lend themselves to mold growth and are designed in such a

way that remediation is impossible. I was ferociously disappointed

and determined that this should not happen again. After

scrutinizing the materials and construction methods of new RV's, I

didn't find any that I consider to be trustworthy.

So I designed and built my own out of special materials that can be

remediated from the interior - if necessary.

It has worked so well that on the old IAQ list a couple of years

ago, I proposed that the group should collectively ask RV

manufacturers to design an " MCS/MOLD special " for all the desperate

mold victims that I could see were just about to emerge from the

moldy woodwork. There is really no other truly effective means of

suppying desperate people with reliable options, as Dr Klein

describes in his many moves through multiple motels before finding a

suitable " safe zone " .

I believe it is a testament to the IAQ's lack of appreciation of

the serious difficulties involved in surviving extreme mold

reactivity that no response was made to my suggestion.

Had this been implemented, it would have been a terrific option for

people who now have none, except perhaps a tent.

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[Guest guest]

> So I designed and built my own out of special materials that can be

> remediated from the interior - if necessary.

> It has worked so well that on the old IAQ list a couple of years

> ago, I proposed that the group should collectively ask RV

> manufacturers to design an " MCS/MOLD special " for all the desperate

> mold victims that I could see were just about to emerge from the

> moldy woodwork. There is really no other truly effective means of

> suppying desperate people with reliable options, as Dr Klein

> describes in his many moves through multiple motels before finding a

> suitable " safe zone " .

Did you give out this info before on another list, or somewhere? What you built

it out of,

etc? Just wondering. I am not in a position right at the moment to take

advantage of the

info, but was wondering if I could look it up for a good read.

[Guest guest]

>

> I have read posts from different people who have said they have gotten a lot

better,

some even well enough to climb mountains like . I asked the other day

about how

he was able to buy a motor home. The new ones cost from $75k upwards and if you

buy a

used one, they want a huge down payment of up to $5k and I don't have that much

to pay

down. I believe that many of us could profit from the experiences of the people

here who

have gottten better but it would be good to hear how you did it.

I have gotten much better by taking needed vitamins & minerals (AllOne vegan

powdered

supplement) for over a year, also took some enzyme/herb formulas for liver and

adrenal

support. This was for the problems from the massive candida, which did help my

energy,

but it was after I started the diflucan that it really helped. Then the

probiotics really kicked

in, and worked, which they had not before, I was too far gone.

Also I needed desensitization, which I get from sublinguals, which work very

well. I have

had both shots and sublinguals. I had so many problems from the shots, since

living in

this house (I didn't know there was mold in it), I could not tolerate them at

all. Before I

lived in this house, I tolerated them just fine.

Now I take Flax oil to help rebuild the nerve damage; the diflucan, and the

drops.

I think it was all helpful, since I continued to be exposed to mold in the home

while trying

to manage getting rid of it, (and trying to avoid exposure), but finally

getting it all out is

the best part. Avoidance is ideal.

[Guest guest]

I am in no way better but I will tell what helped for me. I have had

this illness for about as long as (7 years) funny seems like I

have heard many that have been ill for about 7 years.

One thing that a doctor told me as long as you are in a moldy

environment no amount of surgery, medicine will get you better until

you are away from the mold.

I had to move 5 times in the last 7 years so I am not budging until

someone shows me someplace with out mold or chemicals. Fragrance is

my main problem here. Never thought I would leave the mold and have

to breath these chemicals all the time.

I can atleast walk a good hard walk in the summer and take a good

swim without any problem at all. I could even walk in the heat. But

I couldn't even have the ac on this summer cuz of fragrance and had

to buy a portable unit with a dehumidifier eventually.

I have had sinus surgery that went ok but I still had many moldy

places after the surgery. The surgeon told me to use saline spray so

that is all I use cuz I have tried all the others with not much luck.

The chemicals bothered me. I took Diflican for about 8 months and

that helped alot but then I had to stop cuz of the expense when we

lost insurance. I tried the allergy shots but always had rashes so I

had to stop. I am allergic to candida albicans to it is very

difficult to get rid of the yeast but I try. I had to stop the

inhalers cuz it causes the yeast on the tongue. Sometimes my tongue

is cracked and hurts and very white patches on it. I tried the yeast

diet but got down to 95 lbs so I had to go off to gain weight. I do

take flaxseed oil cuz I thought it would help with constipation and

dry skin. Now I am waiting for a miracle.

[Guest guest]

> Did you give out this info before on another list, or somewhere?

What you built it out of, etc?

>

No, I haven't bothered to describe the methods and materials since

this is just an experimental unit.

I just put the suggestion forward, describing the need for such a

custom RV decon unit, thinking that those who deal with moldies would

instantly recognize that this would be a valuable tool for getting

people out of agonizing pain with greater predictability.

Remediation can " go bad " and I thought that remediators who were

conversant with the possibility of negative consequences would

perceive the benefits of having a " Portable Plan B " available.

I imagine there must be more than a few people who would jump at the

chance to get themselves reliably mold free - at least for a while, to

see if it helps.

-

[Guest guest]

" ldelp84227 " < wrote:

I have had this illness for about as long as (7 years) funny

seems like I have heard many that have been ill for about 7 years.

>

> One thing that a doctor told me as long as you are in a moldy

> environment no amount of surgery, medicine will get you better until

you are away from the mold.

>

Actually, it's been seven years since I proposed extreme mold

avoidance to CFS doctors who all told me that this was impossible -

that I was barking up the wrong tree and that " it won't do any good " .

I've been making a point of celebrating my recovery by climbing Mt

Whitney every year.

Seven times so far.

That's how long it has been since I learned to ESCAPE living Hell.

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