Guest guest Posted December 9, 2005 Report Share Posted December 9, 2005 Iris, Glad I could help, anything that I can possibly do to make your life or anyone elses easier just by giving accurate information, it makes it all worth while. This is why we are all here, for support and guidance and just to help one another. Don't feel like you have to post your whole story all in one shot, make it easy on yourself so you don't pay for it later. It's nice to know someone that is in the music industry, for the main reason this discussion has come up on and off over the years for a song or songs that the public can connect with and that will also help explain the hardships that so many have experienced. I think many of us would like to grasp that bit of acknowledgement and hopefully one day we can look back and say thank goodness this nightmare is over. It wasn't all in our heads,it was throughout our bodies. KC > > Hi, my first post was one of sheer desperation,I appreciate Kc > contacting me and thank you Kathy for your email. I've > learned so much since talking to Kc and others he's referred me to > including the Immuno_ Science labs, Dr. V. > I am almost at a breaking point, feel like I'm in chemical warfare. > My face bruns so bad, as well as my little stomach(I had gastric > bypass- in 1997 whcih gave me malabsortion, and bone disease), but > I've already overcome so many obstacles in my life, and tried to > focus on my songwriting, and truly making a difference..despite the > bureacracy and DRs who just would never listen. I had to go to Mayo > Clinic in 2000, to even get a diagnosis for 4 broken bones, > pain,vitamin def.) > And a hand injury to my piano hand from a hospital, and losing my > disability..medical and income due to error on their part. My papers > are lost in the system..and I'm so sick from the mold, I can't ven > funtion..Can't think..PAPERS...? I'm trying to just live in this > torment. > I lived in a home built in 1952, a nice little home (I Thot)..with > gov. insulation (cellouse/fiberglass) put in by the Gov in late 70's. > First symptoms I had in that home were freaky. My face went into this > contorted spasm, and left side of my body. It was my central Nervous > System. Parameds asked had I taken poison? Wasn't a seisure..as I was > fully aware..I still get spasms in my face. Then I had severe > muscle,body pain..to the point of near--giving up- begging to die- > while wanting to live..then I had some mosquito bites, they just > turned to bruises..obviously this toxic stuff in my blood. Then my > face, arms..exposue body parts began burning badly..like a wind- > burn.. then my lips started swelling on the insisde memranes, skind > started to feel glassy. > I had a ceiling tile come open, and a leak for about 6 months in > living Room where I worked on my music. And kept noticing water > coming from under tiles in Kitche. It rained for months here in Ga. > By Jan. 2005, I relaized it was something in home making me sick, My > skin was so fibery feeling, and burning in my stomach, eyes blood > red, could not breathe indoors, so horrible..slept in motels for 3 > months, from one to another, sick and trying to look for another > place in the meantime. Drs. would not belive me. Nobody would check > my home. Country said, go to the city, EPA, CDC, I tried them > all..nobody would help me. > I've been out for 9 months..the fibers got out of my skin..But this > stuff was toxic to me. I know all those vaporizers I had going to > help me breathe were just allowing that mold to grow on wet > insulation that was old, and I'm sure filthy. I have photos, I found > recently..man, how could any Dr. see somebody like that and ignore > thier complaints about home being toxic? > I'm losing vision..not like a near or farsightedness..rather..just > blurs..My face is crawling, burning, throbbing, my stmach feels like > a torch is burning..can't beathe really well..at times..but no > coughing..my so called Dr who ignored me told me I had copd..when in > fact I just discovered he had a letter from a nice pulmonary Dr > saying I had no evidence of copd..he , my reg. Dr. however, thinks > I'm just delusion and a hypochondriac. > I've been trying for over a week to get bloodwork done..as I had > home tested Nov. 30th, and after 8 mnoths of being dry and sealed, it > showed elveated and potentially toxic mold levels and needs > remediation. So I imagine and was told it was probably much, much > worse when wet, open and when I lived there. I tried to tell the > family there now how sick I got, even showed them photos..they were > thankful at first and offered to help me pay for testing..when I went > back..nobody would help and they're not concerned, despite the lady > only being there 4 weeks said she had a stragne spasm in her face the > other day and she already lost a child to cancer, and didn;t want her > child she has now to get sick. they all turned on me..landlord, nor > them would help me. > And NO DOCTOR will write me a prescription to have bloodwork done, > even tho home was tested and I'm telling them I'm almost dying, > cannot baer this. I have many of the sypmtoms of the tricolemene > (sorry, don't have spelling in front of me)..NOBODY will help. why is > there a problem with having my blood drawn and sent to lab of my > choice..This is INSANE. I have dozens upon dozens of DR visits, Er > visits, all symptoms..but nobody cares. I'm supposed to go back to > allergist Monday..she has to decide wheteher to write me a scipt or > not..says she must check it out with her contacts and make sure lab > and test are legit and proven and necessary. if I don't get this > bloodwork done, I don't have a prayer. > And I am SO determined to fight this, depsite the intolerable pain, > for I promised to write songs on THIS mold issue, and the cover- up, > the fact that it's a letahl weapon..it's time for someoeother tha > the victims exposure..but exposing those who just don't care..if THEY > felt the pain, or their children..they might open their eyes..Please > pray that I'll get test and live to get these songs done and my story > out. I'm so frustrated with Drs. and working so long..thru all this > time of agongy..still producing and writing 3 cds and now I'm too > sick to even promote them to help others and support myself. Thanks > for the support. I'd visit more but too hard to sit here and type. > > Take care. feel free to visit my site www.centurydemos.com > > Also, my seems to be stuck in attach mode..I can't reply..so > anyone wants to email me..you can do so at centurydemos@h... , > for now. > > Hang on, I pray for all of you. We got a mission here to help save > others, if we can and I gotta survive. I wish I had the mold book, > maybe I can get it somehow. God bless. > > Songcerely..Iris > Quote Link to comment Share on other sites More sharing options...
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