But I don't have coughing etc.

[Guest guest]

She just couldn't think of any other specialist who

would have anything to do with mold???

Harriet

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[Guest guest]

Well, still have the X Ray just to make sure and try to get your doctor to try

you on the CSM. Do you live close enough to go see Dr. Shoemaker? If not, try

to get your doctor to order the lab tests. As Sue said, you can find the list

in Mold Warriors. She has had very good success with this and is very good at

getting the word out. I just wanted you to make sure that there wasn't

something else going on too. That happened to me and it's taken me a long time

to get diagnosed.

kathy

princess bride <herbivoresf@...> wrote:

She just couldn't think of any other specialist who

would have anything to do with mold???

Harriet

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[Guest guest]

Environmental and Occupational doctors deal with mold issues.. At least that

is what I have heard.. (no first hand experience, tho)

On 12/2/05, Kathy <kathywnb@...> wrote:

>

> Well, still have the X Ray just to make sure and try to get your doctor to

> try you on the CSM. Do you live close enough to go see Dr. Shoemaker? If

> not, try to get your doctor to order the lab tests. As Sue said, you can

> find the list in Mold Warriors. She has had very good success with this and

> is very good at getting the word out. I just wanted you to make sure that

> there wasn't something else going on too. That happened to me and it's

> taken me a long time to get diagnosed.

>

> kathy

>

> princess bride <herbivoresf@...> wrote:

> She just couldn't think of any other specialist who

> would have anything to do with mold???

>

> Harriet

>

>

>

> __________________________________

> Start your day with - Make it your home page!

> http://www./r/hs

>

>

>

>

> FAIR USE NOTICE:

>

>

>

>

>

>

[Guest guest]

I would still have the chest Xray and possibly the CT scan. When mine first

started, I wasn't coughing or having any breathing problems, just the fatigue,

flu-like symptoms, etc. etc. Then when I took an antibiotic for a sinus

infection, I started coughing up small amounts of dark brown mucus and then it

progressed from there. I was diagnosed with a small area of bronchiectais on

the first CT scan and it showed an area of possible fibrosis. (Thinking back, I

believe it was dried blood from the effect of the toxins. But then I stayed in

the building for several years after that not knowing what was making me sick.

Maybe if I had left then, CSM might have been all that I needed to get rid of

the toxins and I would have gotten well. I'll never know)

If these check out OK, and you aren't able to go see Dr. Shoemaker, then you

might ask your doctor to let you try the CSM and order at least some of the lab

tests that are listed in Mold Warriors. Sue and others have had great success

with this and she is great at getting the word out. If you can't get all of the

tests done, then these are probably some of the important ones: C3a, C4a, CRP

(C-reactive protein),

MMP-9, which are markers of inflammation. The tests for C3a and C4a can be

sent to National Jewish Medical Center Complement lab. They could probably tell

your doctor their significance. The tube containing the C4a has to be

immediately frozen and shipped by dry ice to the lab because it can activate

invitro (in the tube). I think most labs could do the CRP and MMP-9.

MSH, leptin, VEGF, erythropoeitin, and the HLA genotype are also significant,

but may be harder to get done and interpreted without actually seeing Dr.

Shoemaker. Even my allergist/immunologist didn't know the significane of these,

but is willing to learn, I hope. If I've left out any, someone else can add.

I've done some research on the C4a and it has been linked to chronic fatigue

syndrome and some other nonspecific inflammatory conditons.

I just wanted people to make sure there isn't something else going on too.

This happened to me and it's taken me a long time to get diagnosed.

princess bride <herbivoresf@...> wrote:

She just couldn't think of any other specialist who

would have anything to do with mold???

Harriet

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FAIR USE NOTICE:

[Guest guest]

I never coughed, despite lots of breathing problems, and pain in my

lungs, both lower, deep pain that pulls on my back,and higher

irritaion of throat and upper respiratory- this lack of a cough left

some friends believing " it was all in my head "

>

> She just couldn't think of any other specialist who

> would have anything to do with mold???

>

> Harriet

>

>

>

> __________________________________

> Start your day with - Make it your home page!

> http://www./r/hs

>