Re: Dr.Shoemaker patients, please give progress reports...

December 12, 2005

I'd also like to see this, and especially, any references that people can

give to scientific literature or people's accounts that are lucid and

credible. (Going to try to convince my doctor to do Dr. Shoemakers protocol

in its entirety with me.)

I'm particularly interested in refs on cholestyramine therapy and the blood

and other tests that Dr. Shoemaker recommends.. personal experiences with

same, insurance companies and same, etc.

BTW, I have *never* heard anyone here say *anything* bad about Dr.

Shoemaker. This guy has treated over 3000 mold patients, and I don't think

that any of them have not found his approach worthwhile.

I don't know what he charges but he does get reimbursed by insurance (often)

and also does lots of unpaid outreach - like testifying before Congress.

Seriously.

Bluntly, I don't know how he does it. I started out as a skeptic, but the

more I have heard, the more I feel that Dr. Shoemaker is a real-world bright

light in a field that increasingly is becoming a battleground.

In any field, there is what Galbraith (the economist) called in his

book " The Affluent Society " - with a bit of contempt - 'the conventional

wisdom'. Conventional because it is 'safe'. But the 'conventional wisdom' is

often wrong when people attempt to apply it to new problems.. True

innovation and all advances in scientific knowledge start out as ideas, like

his, that explain some fact that clearly does not fit in to the conventional

wisdom.

Without people like Dr. Shoemaker I think science would not go forward.

I'm saying this as someone who has always prided myself as an innovator, and

I'm also the son of someone who is known now, almost 50 years after his

death, as a world-class innovator. (i.e. its in my genes) So I know it when

I see it. IMO.

One thing we DEFINITELY need to be doing - and this is URGENT, is get mold

out of our schools. If I was in the federal government I would be bringing

Dr. Shoemaker to Washington to oversee some kind of program to test ALL

schools, both public AND private for mold, and to both start a campaign to

find the funds, RAPIDLY, to do nationwide remediation of all of them, and in

the intirim, get the kids in those schools HEPA air cleaners and CSM as

stopgap measures. Lets cut the crap and be pragmatic here. Our nations

future is at stake.

On 12/12/05, fletch_82000 <fletch_8@...> wrote:

>

> Hello Group,

>

> I would like it if all of Dr.Shoemaker(or Dr.Schaller) patients would

> give updates on the progress of your treatments, the good and the bad

> if you please.

>

> Thank you,

>

> Fletch

>

> FAIR USE NOTICE:

>

December 12, 2005

DITTO, DITTO and DITTO. I can't agree with you more. If it is so

obvious to all of us NOW, why isn't it as obvious to the agencies

that can really make a change. They need to do what they were hired

to do and to protect the public, and our best interest.

As far as Dr.Shoemaker's protocol, it's still to early to tell

(speaking of my wife) she has just started the treatment and has

only been on CSM for a little over a month. I don't want to jump the

gun with any type of treatment, since many of us have been through

countless procedures. But, what we are seeing, is definately a step

in the right direction. Some symptoms are subsiding and may not be

as prevalent and less frequent. But there is alot bloodwork (levels)

that need some serious long term procedures. You also must remember,

we've gone almost 8 years without any definitive lessening of

symptoms, until now. Also, did not have the funds to continue with

any other treatments. So this does not mean that they would not work

in the long run.

Dr.Shoemaker's protocol is not just one size fits all, he does start

everyone with CSM, but the rest of the protocol is geared

specifically to YOUR needs, because each persons exposure/illness is

unique unto themselves. So many variables...

We will keep you informed. I know how important this is, not only to

Sharon's (my wife) health, but also to all of you.

Hope this helps,

KC

> >

> > Hello Group,

> >

> > I would like it if all of Dr.Shoemaker(or Dr.Schaller) patients

would

> > give updates on the progress of your treatments, the good and

the bad

> > if you please.

> >

> > Thank you,

> >

> > Fletch

> >

> > FAIR USE NOTICE:

> >

December 12, 2005

> Without people like Dr. Shoemaker I think science would not go

forward.<

I'm not a patient of Dr Shoemaker, but he is THE ONLY ONE who took

into account the amazing 'altitude effect' and identified the EPO

releaase.

All these years, I just thought that I had some " genetic " affinity for

heights and getting as much altitude as possible by any and all means.

Now it appears that I had a damn good reason for liking to get " high "

so much: It made me feel so much better.

Thanks to Dr Shoemaker for listening, observing and finding the

reasons.

All other doctors just brainlocked into " I dunno. Guess it's all in

your head " .

-

December 13, 2005

,

How does altitude help you? barb b

>

> I'm not a patient of Dr Shoemaker, but he is THE ONLY ONE who took

> into account the amazing 'altitude effect' and identified the EPO

> releaase.

December 13, 2005

> ,

> How does altitude help you? barb

In Mold Warriors, Dr Shoemaker describes being intrigued by stories

from two people who concentrated on mountain climbing and had

results which appear to be beyond that of avoidance alone.

He tested himself by driving to altitude and measured Erythropoietin

levels, which were increased dramatically and lowered the

inflammatory response by protecting the blood brain barrier.

I've always felt better by spending time in pristine areas, but I've

always felt my very best by shifting to a higher altitude.

The effect doesn't last, but doing it peristently seemed to have a

long term effect.

It turns out that allergists in the 1950's were quite familiar

with " altitude therapy " and recommended going to the mountains, but

Dr Shoemaker is actively seeking the reasons which allow refinement

of the concept.

It's nice to have validation for an effect that most doctors are

quick to say is probably nothing more than a relaxing break from

normal life..

-

December 13, 2005

From: erikmoldwarrior

Sent: Monday, December 12, 2005 5:10 PM

Subject: [] Re: Dr.Shoemaker patients, please give progress

reports...

He tested himself by driving to altitude and measured Erythropoietin

levels, which were increased dramatically and lowered the

inflammatory response by protecting the blood brain barrier.

I've always felt better by spending time in pristine areas, but I've

always felt my very best by shifting to a higher altitude.

The effect doesn't last, but doing it peristently seemed to have a

long term effect.

* Why doesn't the effect last? Because you come down to a lower altitude?

What would happen if you stayed at a higher altitude? Presumably the body would

need to produce RBCs at a greater rate and the kidneys would keep blood levels

of erythropoietin high.

December 13, 2005

I find this very intriguing and interesting. When I read that infomation in

MOLD WARRIORS, before seeing Dr. Shoemaker, it kind of jumped out at me. I

had been to National Jewish Medical Center in Denver for a week a couple of

summers ago to be evaluated for possible hypersensitivity pnemonitis, and I felt

great most of the time I was there, and then started feeling bad again when I

came home. Then when I had the lab tests done that showed low-normal

erythropoietin that Dr. Shoemaker said did not compensate for my low VEGF, it

really made me wonder if there was a connection. I had thought that I would

feel worse at the higher elevation since there was less oxygen, but since that

makes you increase red blood cell production, it makes sense.

erikmoldwarrior <erikmoldwarrior@...> wrote:

> ,

> How does altitude help you? barb

In Mold Warriors, Dr Shoemaker describes being intrigued by stories

from two people who concentrated on mountain climbing and had

results which appear to be beyond that of avoidance alone.

He tested himself by driving to altitude and measured Erythropoietin

levels, which were increased dramatically and lowered the

inflammatory response by protecting the blood brain barrier.

I've always felt better by spending time in pristine areas, but I've

always felt my very best by shifting to a higher altitude.

The effect doesn't last, but doing it peristently seemed to have a

long term effect.

It turns out that allergists in the 1950's were quite familiar

with " altitude therapy " and recommended going to the mountains, but

Dr Shoemaker is actively seeking the reasons which allow refinement

of the concept.

It's nice to have validation for an effect that most doctors are

quick to say is probably nothing more than a relaxing break from

normal life..

-

FAIR USE NOTICE:

December 13, 2005

> * Why doesn't the effect last? Because you come down to a lower

altitude? What would happen if you stayed at a higher altitude?

Presumably the body would need to produce RBCs at a greater rate and

the kidneys would keep blood levels of erythropoietin high.

>

It appears to be a transitory response to " pushing the anaerobic

threshold " . Staying at altitude just allows eventual equilibrium.

I would go out and deliberately push myself to the limit of

comfortable aerobic capacity and then increase altitude while

maintaining the effect by adjusting pacing.

What I found was that I absolutely must be free of any inflammatory

response before and during the exercise. If I walk through a spore

plume, I would crash and suffer if I were to continue. Sometimes I

would be just sufficiently contaminated to make the choice very

difficult to turn around and go to all the trouble of

decontaminating and starting over, but I finally learned how

important it was.

Bitter experience taught me not to mess around with this.

It was ABSOLUTELY necessary that the immune system be damped down or

the exercise would be Counterproductive, spelled with a

capital " C " rash.

I believe that this is the effect Dr Shoemaker simulates with Actos.

-

December 13, 2005

You know, I definitely have this too. Weird, I had not thought about it, but

its definitely true. When I am over 7,000 feet or so for more than a day or

two, I start feeling much better than I normally do.

December 13, 2005

My son does much better in winter I thought only because the mold

counts are low, maybe the thinner atmosphere helps as well. We have

him off singulair and steroids for a few weeks now.

Fletch

December 13, 2005

> My son does much better in winter I thought only because the mold

> counts are low, maybe the thinner atmosphere helps as well. We have

> him off singulair and steroids for a few weeks now.

> Fletch

I move around a lot - which gives me some insights into what appears

to be completely contradictory, for if I experience the contrarian

exclusionary evidential experience, I have to seek an explanation why

an " effect " could be seemingly opposite.

My reasoning for THIS is that if your primary exposure is wet

colonies that depend on winter water but are OUTSIDE your house,

summer dries them out and increases exposure.

If your main source are OUTSIDE colonies which dry out during the

summer, wet winter months glues the colony together and wet spores

don't travel as far.

So if I get better in the winter, that means I'd be in a " good " house

that is in-between plumes which have damped down due to wetness. But

if you are IN one of those fresh, wet, toxic spore plumes - watch out!

The wet winter plumes seem to have some of the " healthiest " toxins

I've run into! Meaning that if you have mold INSIDE your house, the

colony may well release fewer spores - which travel less far, but they

will probably have the most potent toxins and getting better in such a

place is unlikely.

At least - that's how it seems to work for me.

-

December 15, 2005

I know it's been along time since your wife was originally exposed. Does she

still sufffer from chronic fatigue??? Loni

tigerpaw2c <tigerpaw2c@...> wrote: