Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 You know, , I read and pondered this whole illness for so long now, that I think it's just really beginning to make sense to me. That bad run-in I had with the antibiotics in September is what really capped it. No way 30 days of that stuff should have wiped me out for a full 8 weeks. But it did. I was so wrecked it took another week of Actos after that before I could tolerate CSM again. It was royally miserable, and it was just like a mini-version of the really ultra-bad stuff last year. Only this time, I had a clue what was happening. (Not that being clueful is worth anything when you're that brain-dead, or I'd have called the doc the minute I knew things were going badly and saved myself a world of hurt.) But it may have been worth it all, in a very perverse way. What happened was just stunning in its ferocity and how fast it got me. That's how close it is - just a single new exposure away. And suddenly, I was reacting to everything, and hurting everywhere. Had the bronchial stuff, too. And this stuff was NOT airborn! It was in a tablet. So I finally, at long last, ate some mold. And hey - whaddya know? The reaction is absolutely identical to breathing it, just in case anyone was still wondering what the heck they're talking about over on Planet CDC. But the second it got hold of me, I started reacting to airborn stuff as well, like the hit coming off that cleanser I got near. When I react, I itch. Here, there, all over, all the time. I was digging holes in my skin again. The myoclonus got worse and hasn't completely cleared up yet. The blurry vision and nightblindness came right back. I was an emotional wreck (though a lot of that had to do with Katrina). Being sick just made it all the worse. Various foods were making me nauseus, and I could barely tell what was a hit from what wasn't again, except for that cleanser stuff. I finally got back on the CSM, the reactivity got dialed back down to the somewhat-do-able range after a few weeks, and I'm pretty much back where I was when the Great Antibiotic Surprise Adventure started. The lessons to me were just how little it really takes, how far and how quickly the illness can go, and how much more vigilant I need to be if I want to be even sort of well. And I can see even more plainly than before how I got so sick when others around me took longer to react and didn't get as ill or stay this way. I had already hit the wall, and some of them hadn't. And now I can never go back, which the antibiotic experience proved to me once and for all. (BTW - it doesn't matter which antibiotic it was that got me. Everyone is different, and there are still some I can take safely if I really need to. I'm not downing antibiotics, just urging caution.) Anyway, not something I'd care to repeat, so I hope I took the best information I could get from it. In an odd way, I'm probably more reconciled to this situation than I ever was before. That is, I'm still mad as hell about it all, and I'll keep fighting until the government and these corporations do right by us, but I understand that no matter what they do, I can't go back. I'm already " cooked " . It would be all swell if somebody could actually invent a super-duper mold cleaner-upper, but they can never build one sufficient for the likes of me. It just is what it is and I have to deal. Serena There is no such thing as an anomaly. Recheck your original premise. ...Ayn Rand, paraphrased --------------------------------- Find Great Deals on Holiday Gifts at Quote Link to comment Share on other sites More sharing options...
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