Guest guest Posted December 16, 2006 Report Share Posted December 16, 2006 In a message dated 16/12/2006 19:35:35 GMT Standard Time, alexbebee@... writes: What I want to know is (and Vicky has been giving me some advice on this) but I want to throw the question open to others, can I take ALL my info to my local GP and ask the GP surgery if they will help with the cost of the chelation therapy - as my daughter was originally dx with lead poison from the NHS not Dr Heard. We feel that since she was dx with lead >>What cost are you wanting help with? DMSA caps prescription? Diflucan? If its something the GP can do just then and there, you might get the help. If you are looking for funding for TD's and private tests I hold out little hope you AT THE MOMENT..................I intend to be setting a precedent in the new year - we go to present to the PCT board on 16th January (was Dec but I cancelled as ill). I have hair, urine, fecal and BLOOD tests showing Lead in the red - I do not see how they can dispute that he is toxic - and if they can't dispute it HOW can they refuse treatment? I know, I know its the same as the tribunals for education, (I leave those to Vicky and my dear mate Helen) I intend to get this funding by hook or by crook, for Sam, for me, for all the kids out there. Some baby trainee Public Health person is planning to stand up after me and tell us all about biomed that should be fun - especially if he thinks he can just talk DAN! and no evidence as I am going in with genomics - planning to bullshit my way through that but at least I'll have more of a clue than they do I have had help in the form of Lead urines on NHS (next to useless but can show a pattern or allow you to figure out the best timing for your kids catch), blood safety tests, Flagyl, Diflucan, Nystatin. Even got funding on basis of chronic yeast for consults at the Southampton Centre for Complementary Medicine - shame the doctor there was too precious to work with a mere parent with a brain.................. I have both the consultant paed (who is also the clinical director of paediatrics for the local trust) and GP on my side, my GP has said the funding can come from his 'indicative' care budget. And when they come at me with their bullshit about double blind studies I counter with this:- Science in Medicine “Only about 15% of medical interventions are supported by solid scientific evidence.... Many treatments have never been assessed at all.†, editor. BMJ, 1991; 303: 798-9 “Only an estimated 10 - 20% of the techniques that physicians use are empirically proven.“ Congressional Office of Technology Assessment 1987;7 Motor Mouth Mandi in Dorset Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2006 Report Share Posted December 16, 2006 In a message dated 16/12/2006 19:35:35 GMT Standard Time, alexbebee@... writes: What I want to know is (and Vicky has been giving me some advice on this) but I want to throw the question open to others, can I take ALL my info to my local GP and ask the GP surgery if they will help with the cost of the chelation therapy - as my daughter was originally dx with lead poison from the NHS not Dr Heard. We feel that since she was dx with lead >>What cost are you wanting help with? DMSA caps prescription? Diflucan? If its something the GP can do just then and there, you might get the help. If you are looking for funding for TD's and private tests I hold out little hope you AT THE MOMENT..................I intend to be setting a precedent in the new year - we go to present to the PCT board on 16th January (was Dec but I cancelled as ill). I have hair, urine, fecal and BLOOD tests showing Lead in the red - I do not see how they can dispute that he is toxic - and if they can't dispute it HOW can they refuse treatment? I know, I know its the same as the tribunals for education, (I leave those to Vicky and my dear mate Helen) I intend to get this funding by hook or by crook, for Sam, for me, for all the kids out there. Some baby trainee Public Health person is planning to stand up after me and tell us all about biomed that should be fun - especially if he thinks he can just talk DAN! and no evidence as I am going in with genomics - planning to bullshit my way through that but at least I'll have more of a clue than they do I have had help in the form of Lead urines on NHS (next to useless but can show a pattern or allow you to figure out the best timing for your kids catch), blood safety tests, Flagyl, Diflucan, Nystatin. Even got funding on basis of chronic yeast for consults at the Southampton Centre for Complementary Medicine - shame the doctor there was too precious to work with a mere parent with a brain.................. I have both the consultant paed (who is also the clinical director of paediatrics for the local trust) and GP on my side, my GP has said the funding can come from his 'indicative' care budget. And when they come at me with their bullshit about double blind studies I counter with this:- Science in Medicine “Only about 15% of medical interventions are supported by solid scientific evidence.... Many treatments have never been assessed at all.†, editor. BMJ, 1991; 303: 798-9 “Only an estimated 10 - 20% of the techniques that physicians use are empirically proven.“ Congressional Office of Technology Assessment 1987;7 Motor Mouth Mandi in Dorset Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2006 Report Share Posted December 16, 2006 In a message dated 16/12/2006 22:17:43 GMT Standard Time, MaddiganV@... writes: As I understand it Mandi, wants funding to cover the costs same as the rest of us really, but she has already had the NHS tests done and back showing high lead. They did not treat and I assume she doesen't want them to but still feels they should fund the chelation from Breakspeare.You never know it just takes one forward thinking PCT and the precedent is set, at least it won't cost anything to try, and they can't argue theories and such as they agree lead is high. >>Then support from the GP is the first stop. The hospital will probably say the level she has is not critical, we know that is BS - but in this situtaion they have to admit they were wrong in not doing anything, tricky as we all know. But didn't they ask you was any other PCT funding? Or maybe that was Jo who eventually figired out Darryl will be recovered before the appeal process and mess arsing about is finished there with the Manchester bunch. Yesterday I saw the draft of Jo's presentation for the conference - its totally awesome folks, it shows the point at which the PCT refused refunding and the evidence that was given to support her request, can't wait to have this available on DVD after the conference! Mandi x Go Leona - makes me shiver when she sings - X factor for sure! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2006 Report Share Posted December 16, 2006 In a message dated 16/12/2006 22:17:43 GMT Standard Time, MaddiganV@... writes: As I understand it Mandi, wants funding to cover the costs same as the rest of us really, but she has already had the NHS tests done and back showing high lead. They did not treat and I assume she doesen't want them to but still feels they should fund the chelation from Breakspeare.You never know it just takes one forward thinking PCT and the precedent is set, at least it won't cost anything to try, and they can't argue theories and such as they agree lead is high. >>Then support from the GP is the first stop. The hospital will probably say the level she has is not critical, we know that is BS - but in this situtaion they have to admit they were wrong in not doing anything, tricky as we all know. But didn't they ask you was any other PCT funding? Or maybe that was Jo who eventually figired out Darryl will be recovered before the appeal process and mess arsing about is finished there with the Manchester bunch. Yesterday I saw the draft of Jo's presentation for the conference - its totally awesome folks, it shows the point at which the PCT refused refunding and the evidence that was given to support her request, can't wait to have this available on DVD after the conference! Mandi x Go Leona - makes me shiver when she sings - X factor for sure! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2006 Report Share Posted December 16, 2006 well that seems quite black and white, I'd say yes. Not to them to paying for treatment with Breakspear but to them paying for chelation. Important to keep them in the loop. What are you using? DMSA or EDTA? > > Back in 2004 my daughter was dx with high levels of lead. My daughters Pead Consult. referred her to the hospital. The Pead Consult at the hospital just told us that he would monitor her levels of lead every 6 months . Last year we moved away from that borough in London and now live in a different borough within London. My daughter has only just seen her new Pead Consult at the hospital. She has never seen her local GP as she is quite healthy considering. > > Since September 2006 we have been under Dr Heard who has recommended chelation as my daughter has very high lead levels. We done a few rounds of 3 days on 11 days off. However, last week Dr Heard said that he wants to up the dosage. I do not have a problem with this. > > What I want to know is (and Vicky has been giving me some advice on this) but I want to throw the question open to others, can I take ALL my info to my local GP and ask the GP surgery if they will help with the cost of the chelation therapy - as my daughter was originally dx with lead poison from the NHS not Dr Heard. We feel that since she was dx with lead poison the NHS haven't done anything, beside just monitor it > > Anyway advice or suggestions would be greatfully received as we are off to see the local GP on Monday. > TIA > > > > --------------------------------- > All new " The new Interface is stunning in its simplicity and ease of use. " - PC Magazine > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2006 Report Share Posted December 16, 2006 well that seems quite black and white, I'd say yes. Not to them to paying for treatment with Breakspear but to them paying for chelation. Important to keep them in the loop. What are you using? DMSA or EDTA? > > Back in 2004 my daughter was dx with high levels of lead. My daughters Pead Consult. referred her to the hospital. The Pead Consult at the hospital just told us that he would monitor her levels of lead every 6 months . Last year we moved away from that borough in London and now live in a different borough within London. My daughter has only just seen her new Pead Consult at the hospital. She has never seen her local GP as she is quite healthy considering. > > Since September 2006 we have been under Dr Heard who has recommended chelation as my daughter has very high lead levels. We done a few rounds of 3 days on 11 days off. However, last week Dr Heard said that he wants to up the dosage. I do not have a problem with this. > > What I want to know is (and Vicky has been giving me some advice on this) but I want to throw the question open to others, can I take ALL my info to my local GP and ask the GP surgery if they will help with the cost of the chelation therapy - as my daughter was originally dx with lead poison from the NHS not Dr Heard. We feel that since she was dx with lead poison the NHS haven't done anything, beside just monitor it > > Anyway advice or suggestions would be greatfully received as we are off to see the local GP on Monday. > TIA > > > > --------------------------------- > All new " The new Interface is stunning in its simplicity and ease of use. " - PC Magazine > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2006 Report Share Posted December 16, 2006 > > In a message dated 16/12/2006 19:35:35 GMT Standard Time, > alexbebee@... writes: > > What I want to know is (and Vicky has been giving me some advice on this) > but I want to throw the question open to others, can I take ALL my info to my > local GP and ask the GP surgery if they will help with the cost of the > chelation therapy - as my daughter was originally dx with lead poison from the NHS > not Dr Heard. We feel that since she was dx with lead > > > >>What cost are you wanting help with? DMSA caps prescription? Diflucan? > > If its something the GP can do just then and there, you might get the help. > > If you are looking for funding for TD's and private tests I hold out little > hope you AT THE MOMENT..................I intend to be setting a precedent in > the new year - we go to present to the PCT board on 16th January (was Dec > but I cancelled as ill). > > I have hair, urine, fecal and BLOOD tests showing Lead in the red - I do not > see how they can dispute that he is toxic - and if they can't dispute it HOW > can they refuse treatment? > > I know, I know its the same as the tribunals for education, (I leave those > to Vicky and my dear mate Helen) I intend to get this funding by hook or by > crook, for Sam, for me, for all the kids out there. > > Some baby trainee Public Health person is planning to stand up after me and > tell us all about biomed that should be fun - especially if he thinks he can > just talk DAN! and no evidence as I am going in with genomics - planning to > bullshit my way through that but at least I'll have more of a clue than they > do > > I have had help in the form of Lead urines on NHS (next to useless but can > show a pattern or allow you to figure out the best timing for your kids > catch), blood safety tests, Flagyl, Diflucan, Nystatin. Even got funding on basis > of chronic yeast for consults at the Southampton Centre for Complementary > Medicine - shame the doctor there was too precious to work with a mere parent > with a brain.................. > > I have both the consultant paed (who is also the clinical director of > paediatrics for the local trust) and GP on my side, my GP has said the funding can > come from his 'indicative' care budget. > > And when they come at me with their bullshit about double blind studies I > counter with this:- > > > > Science in Medicine > > > > “Only about 15% of medical interventions are supported by solid scientific > evidence.... Many treatments have never been assessed at all.†> , editor. BMJ, 1991; 303: 798-9 > > > > > > “Only an estimated 10 - 20% of the techniques that physicians use are > empirically proven.“ > Congressional Office of Technology Assessment 1987;7 > > > Motor Mouth Mandi in Dorset As I understand it Mandi, wants funding to cover the costs same as the rest of us really, but she has already had the NHS tests done and back showing high lead. They did not treat and I assume she doesen't want them to but still feels they should fund the chelation from Breakspeare. You never know it just takes one forward thinking PCT and the precedent is set, at least it won't cost anything to try, and they can't argue theories and such as they agree lead is high. Vicky > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2006 Report Share Posted December 16, 2006 > > In a message dated 16/12/2006 19:35:35 GMT Standard Time, > alexbebee@... writes: > > What I want to know is (and Vicky has been giving me some advice on this) > but I want to throw the question open to others, can I take ALL my info to my > local GP and ask the GP surgery if they will help with the cost of the > chelation therapy - as my daughter was originally dx with lead poison from the NHS > not Dr Heard. We feel that since she was dx with lead > > > >>What cost are you wanting help with? DMSA caps prescription? Diflucan? > > If its something the GP can do just then and there, you might get the help. > > If you are looking for funding for TD's and private tests I hold out little > hope you AT THE MOMENT..................I intend to be setting a precedent in > the new year - we go to present to the PCT board on 16th January (was Dec > but I cancelled as ill). > > I have hair, urine, fecal and BLOOD tests showing Lead in the red - I do not > see how they can dispute that he is toxic - and if they can't dispute it HOW > can they refuse treatment? > > I know, I know its the same as the tribunals for education, (I leave those > to Vicky and my dear mate Helen) I intend to get this funding by hook or by > crook, for Sam, for me, for all the kids out there. > > Some baby trainee Public Health person is planning to stand up after me and > tell us all about biomed that should be fun - especially if he thinks he can > just talk DAN! and no evidence as I am going in with genomics - planning to > bullshit my way through that but at least I'll have more of a clue than they > do > > I have had help in the form of Lead urines on NHS (next to useless but can > show a pattern or allow you to figure out the best timing for your kids > catch), blood safety tests, Flagyl, Diflucan, Nystatin. Even got funding on basis > of chronic yeast for consults at the Southampton Centre for Complementary > Medicine - shame the doctor there was too precious to work with a mere parent > with a brain.................. > > I have both the consultant paed (who is also the clinical director of > paediatrics for the local trust) and GP on my side, my GP has said the funding can > come from his 'indicative' care budget. > > And when they come at me with their bullshit about double blind studies I > counter with this:- > > > > Science in Medicine > > > > “Only about 15% of medical interventions are supported by solid scientific > evidence.... Many treatments have never been assessed at all.†> , editor. BMJ, 1991; 303: 798-9 > > > > > > “Only an estimated 10 - 20% of the techniques that physicians use are > empirically proven.“ > Congressional Office of Technology Assessment 1987;7 > > > Motor Mouth Mandi in Dorset As I understand it Mandi, wants funding to cover the costs same as the rest of us really, but she has already had the NHS tests done and back showing high lead. They did not treat and I assume she doesen't want them to but still feels they should fund the chelation from Breakspeare. You never know it just takes one forward thinking PCT and the precedent is set, at least it won't cost anything to try, and they can't argue theories and such as they agree lead is high. Vicky > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2006 Report Share Posted December 17, 2006 Yes Steph, for them to pay for the chelation treatment. We are using DMSA.stephaniesirr <mark.grabiec@...> wrote: well that seems quite black and white, I'd say yes. Not to them topaying for treatment with Breakspear but to them paying for chelation.Important to keep them in the loop. What are you using? DMSA or EDTA?>> Back in 2004 my daughter was dx with high levels of lead. Mydaughters Pead Consult. referred her to the hospital. The PeadConsult at the hospital just told us that he would monitor her levelsof lead every 6 months . Last year we moved away from that borough inLondon and now live in a different borough within London. My daughterhas only just seen her new Pead Consult at the hospital. She hasnever seen her local GP as she is quite healthy considering.> > Since September 2006 we have been under Dr Heard who hasrecommended chelation as my daughter has very high lead levels. Wedone a few rounds of 3 days on 11 days off. However, last week DrHeard said that he wants to up the dosage. I do not have a problemwith this.> > What I want to know is (and Vicky has been giving me some adviceon this) but I want to throw the question open to others, can I takeALL my info to my local GP and ask the GP surgery if they will helpwith the cost of the chelation therapy - as my daughter was originallydx with lead poison from the NHS not Dr Heard. We feel that since shewas dx with lead poison the NHS haven't done anything, beside justmonitor it > > Anyway advice or suggestions would be greatfully received as weare off to see the local GP on Monday.> TIA> > > > ---------------------------------> All new "The new Interface is stunning in itssimplicity and ease of use." - PC Magazine> All new "The new Interface is stunning in its simplicity and ease of use." - PC Magazine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2006 Report Share Posted December 17, 2006 I want help with the cost towards the chelation treatment (DMSA). As my daughter is well in the red with the lead - and it was first dx by Pead Consult, whom haven't done anything for her except keep monitoring her every 6 months Mum231ASD@... wrote: In a message dated 16/12/2006 19:35:35 GMT Standard Time, alexbebee (DOT) co.uk writes: What I want to know is (and Vicky has been giving me some advice on this) but I want to throw the question open to others, can I take ALL my info to my local GP and ask the GP surgery if they will help with the cost of the chelation therapy - as my daughter was originally dx with lead poison from the NHS not Dr Heard. We feel that since she was dx with lead >>What cost are you wanting help with? DMSA caps prescription? Diflucan? If its something the GP can do just then and there, you might get the help. If you are looking for funding for TD's and private tests I hold out little hope you AT THE MOMENT..................I intend to be setting a precedent in the new year - we go to present to the PCT board on 16th January (was Dec but I cancelled as ill). I have hair, urine, fecal and BLOOD tests showing Lead in the red - I do not see how they can dispute that he is toxic - and if they can't dispute it HOW can they refuse treatment? I know, I know its the same as the tribunals for education, (I leave those to Vicky and my dear mate Helen) I intend to get this funding by hook or by crook, for Sam, for me, for all the kids out there. Some baby trainee Public Health person is planning to stand up after me and tell us all about biomed that should be fun - especially if he thinks he can just talk DAN! and no evidence as I am going in with genomics - planning to bullshit my way through that but at least I'll have more of a clue than they do I have had help in the form of Lead urines on NHS (next to useless but can show a pattern or allow you to figure out the best timing for your kids catch), blood safety tests, Flagyl, Diflucan, Nystatin. Even got funding on basis of chronic yeast for consults at the Southampton Centre for Complementary Medicine - shame the doctor there was too precious to work with a mere parent with a brain.................. I have both the consultant paed (who is also the clinical director of paediatrics for the local trust) and GP on my side, my GP has said the funding can come from his 'indicative' care budget. And when they come at me with their bullshit about double blind studies I counter with this:- Science in Medicine “Only about 15% of medical interventions are supported by solid scientific evidence.... Many treatments have never been assessed at all.†, editor. BMJ, 1991; 303: 798-9 “Only an estimated 10 - 20% of the techniques that physicians use are empirically proven.“ Congressional Office of Technology Assessment 1987;7 Motor Mouth Mandi in Dorset The all-new goes wherever you go - free your email address from your Internet provider. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2006 Report Share Posted December 17, 2006 Mandi, my daughters lead levels were very, very excessive BEFORE we ever visited Breakspeare. It was only when Dr Heard showed us that we realised it was worse then we were lead to believe. NHS doctors just played it down when telling us about the lead levels.Mum231ASD@... wrote: In a message dated 16/12/2006 22:17:43 GMT Standard Time, MaddiganVaol writes: As I understand it Mandi, wants funding to cover the costs same as the rest of us really, but she has already had the NHS tests done and back showing high lead. They did not treat and I assume she doesen't want them to but still feels they should fund the chelation from Breakspeare.You never know it just takes one forward thinking PCT and the precedent is set, at least it won't cost anything to try, and they can't argue theories and such as they agree lead is high. >>Then support from the GP is the first stop. The hospital will probably say the level she has is not critical, we know that is BS - but in this situtaion they have to admit they were wrong in not doing anything, tricky as we all know. But didn't they ask you was any other PCT funding? Or maybe that was Jo who eventually figired out Darryl will be recovered before the appeal process and mess arsing about is finished there with the Manchester bunch. Yesterday I saw the draft of Jo's presentation for the conference - its totally awesome folks, it shows the point at which the PCT refused refunding and the evidence that was given to support her request, can't wait to have this available on DVD after the conference! Mandi x Go Leona - makes me shiver when she sings - X factor for sure! Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2006 Report Share Posted December 17, 2006 I'm not sure they'd pay for Breakspear but if they'll pay for meds and then Heard supervises that might be a help? FWIW I think it's a really good idea to try to keep the NHS on board. Firstly, it's their ruddy job. Secondly, if they start to feel they are helping children biomedically then THEY have the data, who knows maybe they'll think it's their idea (and who cares) and suddenly other kids whose parents aren't as pioneering can access treatment and thirdly, the costs rack up so much anyway that even if they're just covering the price of some DMSA on prescription it's better than nothing and opens a door for more funding for more testing/treating. Heard can advise you whether or not he's had NHS referrals. I think he has actually but not sure how severe you need to be and whether he's treated adults only. Steph x > > > > Back in 2004 my daughter was dx with high levels of lead. My > daughters Pead Consult. referred her to the hospital. The Pead > Consult at the hospital just told us that he would monitor her levels > of lead every 6 months . Last year we moved away from that borough in > London and now live in a different borough within London. My daughter > has only just seen her new Pead Consult at the hospital. She has > never seen her local GP as she is quite healthy considering. > > > > Since September 2006 we have been under Dr Heard who has > recommended chelation as my daughter has very high lead levels. We > done a few rounds of 3 days on 11 days off. However, last week Dr > Heard said that he wants to up the dosage. I do not have a problem > with this. > > > > What I want to know is (and Vicky has been giving me some advice > on this) but I want to throw the question open to others, can I take > ALL my info to my local GP and ask the GP surgery if they will help > with the cost of the chelation therapy - as my daughter was originally > dx with lead poison from the NHS not Dr Heard. We feel that since she > was dx with lead poison the NHS haven't done anything, beside just > monitor it > > > > Anyway advice or suggestions would be greatfully received as we > are off to see the local GP on Monday. > > TIA > > > > > > > > --------------------------------- > > All new " The new Interface is stunning in its > simplicity and ease of use. " - PC Magazine > > > > > > > > > --------------------------------- > All new " The new Interface is stunning in its simplicity and ease of use. " - PC Magazine > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2006 Report Share Posted December 17, 2006 I have vague recollection of someone getting treatment through breakspear on the nhs. Something to do with a number but the treatment Gets charged to the NHS. Sure it was for chelation. I am just starting EDTA supps and am going for blood lead level test in a couple of months as pead was concerned about porhryin test result being way high for lead. Hoping that it will show up in blood on a Monday morning after a weekend of edta then I can push for funding!!! Sally -----Original Message----- From: Autism Treatment [mailto:Autism Treatment ] On Behalf Of alex bebee Sent: 17 December 2006 12:52 To: Autism Treatment Subject: Re: Re: OT - advice please Yes Steph, for them to pay for the chelation treatment. We are using DMSA. stephaniesirr <mark.grabiecntlworld> wrote: well that seems quite black and white, I'd say yes. Not to them to paying for treatment with Breakspear but to them paying for chelation. Important to keep them in the loop. What are you using? DMSA or EDTA? > > Back in 2004 my daughter was dx with high levels of lead. My daughters Pead Consult. referred her to the hospital. The Pead Consult at the hospital just told us that he would monitor her levels of lead every 6 months . Last year we moved away from that borough in London and now live in a different borough within London. My daughter has only just seen her new Pead Consult at the hospital. She has never seen her local GP as she is quite healthy considering. > > Since September 2006 we have been under Dr Heard who has recommended chelation as my daughter has very high lead levels. We done a few rounds of 3 days on 11 days off. However, last week Dr Heard said that he wants to up the dosage. I do not have a problem with this. > > What I want to know is (and Vicky has been giving me some advice on this) but I want to throw the question open to others, can I take ALL my info to my local GP and ask the GP surgery if they will help with the cost of the chelation therapy - as my daughter was originally dx with lead poison from the NHS not Dr Heard. We feel that since she was dx with lead poison the NHS haven't done anything, beside just monitor it > > Anyway advice or suggestions would be greatfully received as we are off to see the local GP on Monday. > TIA > > > > --------------------------------- > All new " The new Interface is stunning in its simplicity and ease of use. " - PC Magazine > All new " The new Interface is stunning in its simplicity and ease of use. " - PC Magazine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2006 Report Share Posted December 17, 2006 Mandi, think we should be selling tickets for your pct board meeting!!!! Wish I was one of those flies on the wall!. Could we do one of those secret footage documentaries and sell to channel 4? Sally -----Original Message----- From: Autism Treatment [mailto:Autism Treatment ] On Behalf Of alex bebee Sent: 17 December 2006 12:57 To: Autism Treatment Subject: Re: OT - advice please I want help with the cost towards the chelation treatment (DMSA). As my daughter is well in the red with the lead - and it was first dx by Pead Consult, whom haven't done anything for her except keep monitoring her every 6 months Mum231ASDaol wrote: In a message dated 16/12/2006 19:35:35 GMT Standard Time, alexbebee (DOT) co.uk writes: What I want to know is (and Vicky has been giving me some advice on this) but I want to throw the question open to others, can I take ALL my info to my local GP and ask the GP surgery if they will help with the cost of the chelation therapy - as my daughter was originally dx with lead poison from the NHS not Dr Heard. We feel that since she was dx with lead >>What cost are you wanting help with? DMSA caps prescription? Diflucan? If its something the GP can do just then and there, you might get the help. If you are looking for funding for TD's and private tests I hold out little hope you AT THE MOMENT..................I intend to be setting a precedent in the new year - we go to present to the PCT board on 16th January (was Dec but I cancelled as ill). I have hair, urine, fecal and BLOOD tests showing Lead in the red - I do not see how they can dispute that he is toxic - and if they can't dispute it HOW can they refuse treatment? I know, I know its the same as the tribunals for education, (I leave those to Vicky and my dear mate Helen) I intend to get this funding by hook or by crook, for Sam, for me, for all the kids out there. Some baby trainee Public Health person is planning to stand up after me and tell us all about biomed that should be fun - especially if he thinks he can just talk DAN! and no evidence as I am going in with genomics - planning to bullshit my way through that but at least I'll have more of a clue than they do I have had help in the form of Lead urines on NHS (next to useless but can show a pattern or allow you to figure out the best timing for your kids catch), blood safety tests, Flagyl, Diflucan, Nystatin. Even got funding on basis of chronic yeast for consults at the Southampton Centre for Complementary Medicine - shame the doctor there was too precious to work with a mere parent with a brain.................. I have both the consultant paed (who is also the clinical director of paediatrics for the local trust) and GP on my side, my GP has said the funding can come from his 'indicative' care budget. And when they come at me with their bullshit about double blind studies I counter with this:- Science in Medicine “Only about 15% of medical interventions are supported by solid scientific evidence.... Many treatments have never been assessed at all.†, editor. BMJ, 1991; 303: 798-9 “Only an estimated 10 - 20% of the techniques that physicians use are empirically proven.“ Congressional Office of Technology Assessment 1987;7 Motor Mouth Mandi in Dorset  The all-new goes wherever you go - free your email address from your Internet provider. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 In a message dated 19/12/2006 00:34:47 GMT Standard Time, alexbebee@... writes: Saw the GP, basically laughed us out of the surgery. Said the PCT has no money!!!!! He said he will contact some panel (but said I wouldn't get the funding anyway). Wants to see my daughter as he doesn't believe lead can cause behaviourial problems, low IQ etc. Said chelation was dangerous and he wouldn't recommend it - but then went on to say its not his field of >>Grhhhhhhhhhhhhhhhhhhhhhhh. Did he miss that class at medical school then - the one where they learn about Lead causing developmental delay and all sorts of other nasty things? Maybe he had a hangover or summat. Grhhhhhhhhhhhhhhhhhhhhhhhhh. Part of my case to PCt will be calculating how much I have saved them in eczema creams buy using probiotics, so this is payback time Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 Saw the GP, basically laughed us out of the surgery. Said the PCT has no money!!!!! He said he will contact some panel (but said I wouldn't get the funding anyway). Wants to see my daughter as he doesn't believe lead can cause behaviourial problems, low IQ etc. Said chelation was dangerous and he wouldn't recommend it - but then went on to say its not his field of expertise Sally wrote: I have vague recollection of someone getting treatment through breakspear on the nhs. Something to do with a number but the treatment Gets charged to the NHS. Sure it was for chelation. I am just starting EDTA supps and am going for blood lead level test in a couple of months as pead was concerned about porhryin test result being way high for lead. Hoping that it will show up in blood on a Monday morning after a weekend of edta then I can push for funding!!! Sally -----Original Message-----From: Autism Treatment [mailto:Autism Treatment ] On Behalf Of alex bebeeSent: 17 December 2006 12:52Autism Treatment Subject: Re: Re: OT - advice please Yes Steph, for them to pay for the chelation treatment. We are using DMSA.stephaniesirr <mark.grabiecntlworld> wrote: well that seems quite black and white, I'd say yes. Not to them topaying for treatment with Breakspear but to them paying for chelation.Important to keep them in the loop. What are you using? DMSA or EDTA?>> Back in 2004 my daughter was dx with high levels of lead. Mydaughters Pead Consult. referred her to the hospital. The PeadConsult at the hospital just told us that he would monitor her levelsof lead every 6 months . Last year we moved away from that borough inLondon and now live in a different borough within London. My daughterhas only just seen her new Pead Consult at the hospital. She hasnever seen her local GP as she is quite healthy considering.> > Since September 2006 we have been under Dr Heard who hasrecommended chelation as my daughter has very high lead levels. Wedone a few rounds of 3 days on 11 days off. However, last week DrHeard said that he wants to up the dosage. I do not have a problemwith this.> > What I want to know is (and Vicky has been giving me some adviceon this) but I want to throw the question open to others, can I takeALL my info to my local GP and ask the GP surgery if they will helpwith the cost of the chelation therapy - as my daughter was originallydx with lead poison from the NHS not Dr Heard. We feel that since shewas dx with lead poison the NHS haven't done anything, beside justmonitor it > > Anyway advice or suggestions would be greatfully received as weare off to see the local GP on Monday.> TIA> > > > ---------------------------------> All new "The new Interface is stunning in itssimplicity and ease of use." - PC Magazine> All new Mail "The new Interface is stunning in its simplicity and ease of use." - PC Magazine Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 Why does he suppose they took the lead out of petrol? Sally Mum231ASD@... wrote: In a message dated 19/12/2006 00:34:47 GMT Standard Time, alexbebee (DOT) co.uk writes: Saw the GP, basically laughed us out of the surgery. Said the PCT has no money!!!!! He said he will contact some panel (but said I wouldn't get the funding anyway). Wants to see my daughter as he doesn't believe lead can cause behaviourial problems, low IQ etc. Said chelation was dangerous and he wouldn't recommend it - but then went on to say its not his field of >>Grhhhhhhhhhhhhhhhhh hhhhhh. Did he miss that class at medical school then - the one where they learn about Lead causing developmental delay and all sorts of other nasty things? Maybe he had a hangover or summat. Grhhhhhhhhhhhhhhhhh hhhhhhhh. Part of my case to PCt will be calculating how much I have saved them in eczema creams buy using probiotics, so this is payback time Mandi x No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.409 / Virus Database: 268.15.23/591 - Release Date: 17/12/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Hi all, I am writing in concern to a company that I signed up to be a Health Coach with. They are a national company based out of Texas. Basically I pay for them to have me be a certified Health Coach and then I go into Corporations locally around Portland. I will do talks and health fairs. I will only get paid when people sign up for individual health coaching sessions. I looked at the contracts and the pay rates and had my financial planner take a look at the contract, since he stares at them quite a bit working a lot with professonals, and everything looked good. I sent them the money for the training and then I went through the training and they had someone talk to me aout my sched for working out in Portland. I rushed moving back from VA because they said they needed me here ASAP to start work. I let them know when I would be here so they could get me in with these companies, and now I am getting nothing back from them. I have talked to the one person responsible for the Portland area and he is unsure of what is going on and what I was promised. He said he was too busy to deal with me and would call me back. He did not call me back. I have then tried one e-mail and four scheduled phone calls with this company only to have them not call me. I can get the secretary on the phone to sched the calls to talk about what will be done for work here, but then no one calls me. I then fire off an e-mail to the presedent of the company listing names, dates and times that I attempted to speak to people and no one contacted me. I told him at this point I consider the five times I attempted contact with nothing in return a breech of contract and he needs to give me my money back. He ignors the request for money and says so and so will call me...... well so and so never calls me. I have e-mailed him several times about giving me my money back and makes no mention to my request when I have specifically asked him to. He just says that I should talk to someone in the company about my work in portland and that is all he is trying to do. The more I asked for my money back the more he resists talking about it. Should I report them to the US Attorney Office for fraud? I know that this is a summary but any advice would be helpful. The contract states I am entitled to my money back if after a year I am not satisfied with how much money I have made, but that request has to be made in writing with in 30 days of the end of the contract (one year). Helping your favorite cause is as easy as instant messaging. You IM, we give. Learn more. Quote Link to comment Share on other sites More sharing options...
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