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I went to a new doctor because I'm having serious problems with my

thyroid (TSH is 47) despite being on T3 and T4. He doesn't know

much about mold poisoning (my trigger to MCS) or MCS. He works a

lot with Teitelbaum's theories on chronic fatigue.

Wondering if anyone has opinions on:

1) Teitelbaum's protocol

2) taking cortisol --- this concerns me because from my mold

reading, it's often a mistake for mycotoxin poisoned people. But he

assures me it's a " safe dose " -- however, Prednisone tripped my MCS

into a debilitating condition, so I don't trust anything that's a

steroid. Other thoughts?

3) He wants me to take a morning cortisol blood test, a SED rate

test, a testosterone test, and a test called " T & G " to determine if

I'm really gluten intolerant (I am). Are any of these a waste? I'm

trying to save my money to do Dr. Shoemaker's tests and am waiting

to be able to convince this doctor to do that with me, but he claims

he first wants to do these.

And what exactly does SED rate and the T & G test measure?

4) Has anyone done shoemaker's blood tests and determined which ones

are the most critical to do - and does it translate into good

treatment protocols?

THanks!

Jill

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Hi Jill

The SED is one of the tests Shoemaker recommends. I think it can just be

done in the doctor's office. I don't know what it is though. Shoemaker also

asks for some standard tests, so you should look in Mold Warriors and see if

any of the tests the doctor wants to do overlap.

For me, the most important tests were the VEGF, MMP-9, and alpha-MSH,

because those were the ones that showed abnormal values. However, everyone

is different. Find out which tests would be covered by your insurance first

and do all of those. Then, I would really recommend the above 3.

The thing is, the treatment may be different if you test a certain way on

certain tests. For example, with the results I had for the above, I might

need Actos. But since my Leptin was low, I believe Actos is then not a good

idea. So you might want to get the Leptin test too.

Good luck!

<<From: " jbeansved " <Jsverdlove@...>

And what exactly does SED rate and the T & G test measure?

4) Has anyone done shoemaker's blood tests and determined which ones

are the most critical to do - and does it translate into good

treatment protocols?

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