Guest guest Posted December 3, 2005 Report Share Posted December 3, 2005 Harriet. I too take florinef. It helps with the dysautonomia that 85% of chemically injured people have. If you have it ( leg swelling due to venous pooling esp. on airplanes (I think due to the proximity to the electrical lines down the center of the plane), tachycardia esp. after meals, exercise and in the heat. I took midodrine for 2 years until I got better and now use it occasionally when I get dysautonomic after eating or while using electrical appliances (phone and computer). I had a tilt table test but your heart rate has to go to 125 on standing for it to be positive. A cardiologist or neurologist specializing in dysautonomia can give you midodrine. Also some Environmental guys are comfortable with it's use. 2.5 mg (it comes in 5 or 10 mg)is a tiny dose (what I use now) 10 mg a good size dose. It is given 3 times a day. You cannot lie down on it or your head will pop off! (called supine hypertension). It is an alpha agonist and raises blood pressure. It saved my ass. In the meantime use support stockings ( thigh high are the most useful). And eat lots of salt to retain your fluid. It is an easy drug to take so find someone to do heart rate variability testing on you (an EI Doc) and who has the balls to start you on it. NDRF is the group concerned with dysautonomia and there has spoken to Bill Rea about increasing communication between their group and ours etc. Nagy MD (508) 693-3048 <mailto:Calls@...> @... Quote Link to comment Share on other sites More sharing options...
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