Guest guest Posted January 15, 1980 Report Share Posted January 15, 1980 well we have locks on doors and kitchen stuff fridge and cubboards, and nathan has a vailbed and the bathrrom, non slip mat and handle to hangonto, we are inatalling those flat faucet handels for sinks and tub since nathan has such poor FMS and has such a hard t ime turning the round ones. for life, nathan needs constant suervision, and often have to miss work hours if HHA is sick or unavailable, or if he is sick which is often. he is too old for day care, have to take a back pack with a pull up, extra pants and wipes et transition toys everywhere, oh and we use a wheel chair for shopping and trips etc he refuses to walk long distances and is tooo heavy to carry or lift. we are going away tonight and other than family memebers and hha its practically impossible to find a sitter for him. Lack of sleep since he sleeps little, restaurants can be a challenge on occasion he os much better. we usually sit nearer the door, especially at church because we wont have him screaming or having a fit in church, or any public place. At the store he may just open a pop and start drinking it. He chokes easily. oh we use handicap playcard for parking for him because he does on occasion take off, or may drop and flop and wont walk if too far out. Anytime we have a new hha or just family we have to go through his machines (cpap, suction, vailbed) and i have his routines typed up and in his folder to follow as to not have much of a hard time with him. Or if school is having a horrendous time they will call us to get him. The eating issues are really hard, he doesnt chew much and cant handle many textures, he gags or chokes often so i have a list of food for cuation but he still has to be monitored (usually i say sit at table with him or eat with him for sitter or hha) becuase even foods he can eat pretty well he occasionally chokes on. He needs constant suppervision outside too, he will leave or wander off in a split second!!!! And doesnt answer when we call out for him. Oh his clothing is adaptable too, elastic waist, no string shoes usually get skechers) only tshirts he obsesses with buttons and zippers and strings and is unable to fasten either due to poor FMS and he is more independent this way too but finding these types of clothes isnt always easy and they can get pricey. i will probably think a few more after i send but many on this list have just as many if not more. good luck shawna. Help wanted > Hi, > > I am an infrequent poster but an avid listener who could use some help. I have been going through a really, really ugly divorce for 2 1/2 years now. We hope to set a trial date soon. Anyway, when I met with my attorney today, and we were discussing the house, which I hope to keep, he was amazed by all the things I was describing to him. No tables or breakables, no lamps, no electrical cords that will chew through, keeping soap, tissues, etc. out of reach because he'll eat anything, (had to clue him in to the feces things as well) , limited window coverings (he'll chew them or pull them down), all these things that are " normal " for me. His next question was how our life is modified, not just the house, but all of our activities are modified because of 's special needs. This is where I need help. What modifications to home living and other activities have you made? > > My ex has a very extravegent lifestyle, both financially and otherwise, and has been unwilling to provide financial or other support to the the four children and myself. I know that some expenses are obvious but the hidden ones are the ones that are killing me. Extra laundry means more utilities, carpet cleaning constantly, etc. We are trying to provide a contrast that might make the judge understand a bit of my situation. I have lived in the " accomodating " mode for so long, I just don't see sometimes the things we never do or the extra money that is spent. > > I would greatly appreciate anyones thoughts and suggestions in these areas: household accomodations, lifestyle accomodations, financial extras beyond obvious medical bills. > > Anything at all would be helpful and greatly appreciated. > > Connie > Single mom to (9), Austin (7), DS-ASD (7), and (7) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2000 Report Share Posted June 5, 2000 Debbie.. I know that 1999 Grand Champion Lezlee eat mostly vegetables for her carb source during her challenge. Cheryl > [Original Message] > From: Debbie Holland <debbieholland@...> > <bodyforlifeegroups> > Date: 6/5/00 5:58:03 PM > Subject: Help Wanted > > Okay, what do you all think of this? I'm discourgaed with trying to shed lingering bit of body fat. My goal is 15% and I'm stuck on 19%. Struggling with hypoglycemia (low blood sugar) and high cholesterol (must be hereditary... I consume very little, but body must manufacter more than I consume). I've tried lots of food combinations trying to find the right one to keep everything in balance, keep muscle gained and lose remaining BF. What harm would there be in using mostly vegetables in place of carb intake? That is, instead of a complex carb and vegetable combination like BFL suggests. I try to use shakes and soy protein (always with water) mostly for protein source. Have cut back on animal protein and dairy as sources. > > Any advice welcome. Thanks in advance. > > Debbie > --- Cheryl Cundick --- cdautah@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2000 Report Share Posted June 7, 2000 Debbie, I just read a magazine article about that type of diet, getting carbs from vegetables. Something similar to the Atkins diet only they recommend lower fat meats and fish. They also said that an extremely low carb diet is OK for two weeks at a time but our body will need to recuperate for a few weeks too. Remember that carbs are the ONLY fuel your brain uses so you don't want to deplete for too long or you will start to get rummy. They also suggested a metabolism booster during this time like Phen free or Hydroxycut, to give you needed energy during the day that carb depleting saps. They said to no go lower than 50 carbs a day. This article suggested Twinlabs version of the Meal replacement powder called Fuel Plex Lite. It had very few carbs but all the rest was the same as Myoplex. Most GNC stores have this. They said to eat six meals with three being whole food. They had a great egg white omelet with veggies for breakfast. It sounded good to me. I might try this myself for two weeks. ~Laury Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2000 Report Share Posted June 7, 2000 I think you'd do fine with vegatables as your carb some of the time, but if you look at the nutritional facts on the back of a bag of frozen veggies, you'll have to eat A LOT of broccoli to get a decent carb intake. Broccoli, and most other veggies, have like NO carbs to them at all. - In a message dated 05-Jun-00 19:58:42 Eastern Daylight Time, debbieholland@... writes: << Okay, what do you all think of this? I'm discourgaed with trying to shed lingering bit of body fat. My goal is 15% and I'm stuck on 19%. Struggling with hypoglycemia (low blood sugar) and high cholesterol (must be hereditary... I consume very little, but body must manufacter more than I consume). I've tried lots of food combinations trying to find the right one to keep everything in balance, keep muscle gained and lose remaining BF. What harm would there be in using mostly vegetables in place of carb intake? That is, instead of a complex carb and vegetable combination like BFL suggests. I try to use shakes and soy protein (always with water) mostly for protein source. Have cut back on animal protein and dairy as sources. Any advice welcome. Thanks in advance. Debbie >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2000 Report Share Posted June 7, 2000 Hi Gloe, How are you doing on your eating plan? Are you still following the one recommended by your doctor? Best wishes from one of your enrollees, Leaner. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2000 Report Share Posted June 13, 2000 Debbie, Check out the latest issue of Muscle & Fitness magazine. There is an article in there about the " Greenwich Diet " . It is similar to the Atkins diet with the exception of using only lean meats and not all that fat. There is also an article about a two week carb deplete diet that uses the Fuel Plex Lite shakes. They suggest that you only carb deplete for 2 weeks at a time since carbs are the ONLY fuel your brain uses. But they had daily menus in there which sounded great. ~Laury Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2000 Report Share Posted June 13, 2000 Debbie, Sounds like your doctor has you on the " Sugar Busters " diet. I read the book and incorporated it into my BFL meal plans. Dropped fat like crazy. ~Laury Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 In a message dated 2/6/2003 1:59:27 PM Eastern Standard Time, ccurran1@... writes: > His next question was how our life is modified, not just the house, but all > of our activities are modified because of 's special needs. This is > where I need help. What modifications to home living and other activities > have you made? Connie, First of all, I am sorry you are having to go through this!! Ok, we've had to put in central air in a 6 bedroom old stone house because we can't have open windows (she even has ripped holes in our screens to get out) and she doesn't sweat. We never would have done it prior to Maddie because this house doesn't even get hot until August!! Believe me, we're the ONLY house in this neighborhood with it; most people just have window units, but they're too dangerous with Maddie. We've had to put a fence around our entire property. We've built two plexi-glass/wood barricades in our 2nd floor center hall to keep her from going over (Joan has seen them, they're hard to describe). Gates, locks for doors, refrigerators and windows, special safety features on things like bureaus and toilets and electrical outlets, funds for when they DO break or destroy things like plumbing problems (we've had that twice). Our babysitting fees are twice as high as other people because we've got to hire someone very skilled, can't rely on the 13 to 17 year old neighbor kids. With dealing with these behaviors and being on meds 7x a day, we can't take that chance. Anyway, these are just some things that pop into my mind....if I think of more, I'll write again. Good luck, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 I would go from rooom to room and assesss what you have done. In our house---blinds that can be pulled up instead of curtains or shades. Stereo speakers on top of the 6 ft. book cases so they are not pushed over or cords not eaten. Stereo strapped closed. Special locks(deadbolts & flip locks) The lid to the toilet seat is taped up. This is only an example. On Thursday, February 6, 2003, at 11:01 AM, Connie Curran wrote: > Hi, > > I am an infrequent poster but an avid listener who could use some > help. I have been going through a really, really ugly divorce for 2 > 1/2 years now. We hope to set a trial date soon. Anyway, when I met > with my attorney today, and we were discussing the house, which I hope > to keep, he was amazed by all the things I was describing to him. No > tables or breakables, no lamps, no electrical cords that will > chew through, keeping soap, tissues, etc. out of reach because he'll > eat anything, (had to clue him in to the feces things as well) , > limited window coverings (he'll chew them or pull them down), all these > things that are " normal " for me. His next question was how our life is > modified, not just the house, but all of our activities are modified > because of 's special needs. This is where I need help. What > modifications to home living and other activities have you made? > > My ex has a very extravegent lifestyle, both financially and otherwise, > and has been unwilling to provide financial or other support to the the > four children and myself. I know that some expenses are obvious but > the hidden ones are the ones that are killing me. Extra laundry means > more utilities, carpet cleaning constantly, etc. We are trying to > provide a contrast that might make the judge understand a bit of my > situation. I have lived in the " accomodating " mode for so > long, I just don't see sometimes the things we never do or the extra > money that is spent. > > I would greatly appreciate anyones thoughts and suggestions in these > areas: household accomodations, lifestyle accomodations, financial > extras beyond obvious medical bills. > > Anything at all would be helpful and greatly appreciated. > > Connie > Single mom to (9), Austin (7), DS-ASD (7), and (7) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 At 02:01 PM 2/6/2003 -0500, you wrote: >I would greatly appreciate anyones thoughts and suggestions in these >areas: household accomodations, lifestyle accomodations, financial extras >beyond obvious medical bills. Connie: The level of cleanliness necessary to keep things safe for your son (more bleach, more frequent cleaning, more time organizing things for indepenednence) the cost of the visuals: computer, printing laminating.......you were working on that when I was there and you will need to continue with ferver over the years. You must replace things the other boys need when they are destroyed. You must keep extra locks on the pool. The cost of the pool (if you do extra chlorinating, include that) is essential for MIchael as it is one of his few independent experiences. However, keeping it safe must cost more. the cost of extra support so you can enjoy the other boys. the cost of not being able to work as much as you can because of your son's needs The types of foods you purchase and make are undoubtedly different for both and the toher boys. To care for , you cook less for the others which causes you to need more convenient or easy-to-cook items which can be expensive. The car! nancy had a good idea. Go room to room. I remember you doing many things for the boys independence. good luck! joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 Connie, I¹m sorry you have to go through all this. One thing I would emphasis is that unlike with a typical child, your ex-husband¹s financial obligations to your son will not end at 18 yo. (when most child support stops). I would insist on him funding a special needs trust for that would cover all the extra expenses now and far into the future when you are no longer able to care for your son. Your attorney can refer you to someone who specializes in this. Extra expenses I can think of are: specialized sports lessons (swimming, bowling, etc.), extra money for special needs summer camps, replacing furniture ( is a jumper!) and replacing clothing at a rate twice that of a typical kid. Good Luck. Therese (Mom to 12 yo. DS/PDD) 2/6/03 11:01 AM, Connie Curran at ccurran1@... wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 At 03:38 PM 2/6/2003 -0800, you wrote: >replacing clothing at a rate twice that >of a typical kid. Having to buy " spcecial " clothes that may not be easy to find. Not necessarily " special needs clothes, " but as Andy gets older, finding trendy, elastic waisted pants is not easy. j Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 --- In , " Connie Curran " <ccurran1@c...> > Anything at all would be helpful and greatly appreciated. > > Connie > Single mom to (9), Austin (7), DS-ASD (7), and (7) Hi Connie, Just wanted to send you hugs and that all your prayers be answered. I did run into a site during one of my battles with my never-ending battles for my son and thought you might want to glance at the Safety topic, just in case something might help. http://www.swatjobs.com/autism__pdd.htm Take care, Irma,14,DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 Differences in life not necessarily in order of importance No carpets - too hard to clean feces out of - washable floor coverings. Locks and alarms on all external doors. For years the telephone was in a lock box as random dialing produced calals to Poland and China! Locks on cupboards with edibles, medicines, breakables. ****24/7 EYE ON CARE *** That means there needs to be a compis mentis adult available all the time - no bathroom or bath time if only one adult is in the house!! RESPITE care which means finding an adult (expensive and rare) to provide " babysitting " . Special clothing - elastic waisted short legged pants, shirts proportioned correctly - expensive. Medical care watch for the DS comon problems like thryroid and leukemia. Additional medical care and need of specialists. Special child restraints for car. I just put the knobs back on the windows of our car - bought the car in 1995!! Hope this helps. Sara Sara - Choose to make lemonade, not complain about the lemons. _________________________________________________________________ Protect your PC - get McAfee.com VirusScan Online http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Our multidisciplinary (DC, ND, LAc, MD, LMT) office is looking for a part-time front office staff person. If you know of anyone, please pass my email on to them. Thanks Bruce Chaser, D.C. hawthornewellnesscenter.com Quote Link to comment Share on other sites More sharing options...
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