Guest guest Posted December 21, 2005 Report Share Posted December 21, 2005 Recently I asked for real answers to our death or life questions some of us face. some of us are not climbing mountains. Some of us just want to face tomorrow with a clear head and not spend all day trying to stay alive. It makes me want to puke when I see answers telling people they need to leave right now!! I came back here knowing that soon one day I will start feeling that feeling again where life is short. I am close to where I grew up and if I am going to die, I don't want it to be in some strange land. I am not wishing those who gloat about climbing mountains any ill will but just what do you think you are accomplishing by saying this over and over? That your doctors were wrong? If I make it through this, it will no thanks to anyone who had the knowledge and resources to build their own motor home. I cannot even fill out Shoemaker's complicated forms much less go the several day trip. Ask me if I would smoke a joint if I knew someone who sold pot? somehow ggetting rid of this feeling that is in my head right now seems to be the only thing that matters right now? guess I am stupid. Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2005 Report Share Posted December 21, 2005 erikmoldwarrior <erikmoldwarrior@...> wrote: Except that you already thanked me when you finally came to the realization that what I had been telling you about mold in your trailer was right. You make me really sorry that I ever thanked you for anything. gloating at other people's expense is what I would expect from you. why don't you leave these list and enjoy your mountain climbing and leave those of who are ill alone. Your ego would never allow you to do that though. You would rather be right and other people suffering so you prove a point. You are pathetic. Bob __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2005 Report Share Posted December 22, 2005 if everybody on here isn't nice, santa will NOT come in 4 days! be good, gang....... & take care. merry Christmas to all of us, & i hope we ALL have a better 2006. victoria Re: [] Re: Answers > Bob and , > > This needs to stop!!! > ...I have been through a lot of awful things and it amazed all my > friends and the doctors that treated me. It is what you call " a strong > will " . I have been through some things that would curl anyones hair...KC > and Sharon know most of it. I still have a strong will but this " mold " has > really beaten me down unlike anything else that has ever happened to > me.( If I even told you some of the things that have happened to me, you > would find it almost impossible to believe.) I do have proof of it all, > sad to say. > I read your story in Mold Warriors and was very impressed with your > " will " not to take the wrong diagnosis from anyone. But, like you said in > the book, you were never a patient of Dr.Shoemaker's, but diagnosed > yourself. I find that amazing!!!! I sincerely hope that you continue to > stay well. I do know though that I would not be able to do what you have > done. I am too ill to even walk far in my house and just to get up to try > to eat in sometimes too painful. In my mind I am climbing mountains like I > used to love to do but right now I am struggling to live. > Bob.....Please do not jump all over someone else that gets to you. ( you > know like I first did you when you told me it was a waste of time to > contact my Congressman) LOL! Some people think they have all the answers > that cover everyone and it is wrong to put us all in the same category. > One persons cure will not cover everyone else's. The best thing you can do > is to forgive that person that is getting under your skin and let it go. I > found that out after I jumped on you that time. I did prove you wrong > though!!LOL! I sincerely hope that all of us can get better and the sooner > the better. I appreciate your help and 's but its not a " one size fits > all thing " here. Just because what did helped him, it does not mean > it will help you or anyone else. Follow your heart of what you think will > help you and I pray that it works. Same with me. > Sincerely...please play nice! ( that goes out to everyone on the board.) > :-) > Marcie > > erikmoldwarrior <erikmoldwarrior@...> wrote: > If I make it through this, it will no thanks to anyone who had the > knowledge and resources to build their own motor home. >> Bob > > Except that you already thanked me when you finally came to the > realization that what I had been telling you about mold in your > trailer was right. > Imagine how much sooner you could have moved out if you had paid > attention when I kept laying this out in all those CFS groups. > > That's why I keep " gloating " . > When someone who was a prototype for CFS walks out of the ampligen > program at a point of severe illness to follow a strategy that has > such results, people are supposed to wonder how the Hell this could be > possible. > - > > > > > > > > > FAIR USE NOTICE: > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2010 Report Share Posted October 9, 2010 Lottie, Thanks. I'm a cardiovascular nurse and I know the devastating complications of coronary artery disease caused by plaque from elevated cholesterol levels. I plan on bringing this up to one of the cardiac doctors I work with! ________________________________ From: Lottie Duthu <lotajam@...> CML < > Sent: Fri, October 8, 2010 3:34:52 PM Subject: [ ] Answers  Dear Karine, That was an interesting question and I'm glad Tracey had the answer for you. As we age, cholesterol can be a real bitch to live with. Another star on Gleevec's crowded fact sheet, it is multi-faceted. Carpe Diem, Lottie Duthu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2010 Report Share Posted October 9, 2010 > > Lottie, Thanks. I'm a cardiovascular nurse and I know the devastating > complications of coronary artery disease caused by plaque from elevated > cholesterol levels. I plan on bringing this up to one of the cardiac doctors I > work with! __________________________ Hi Karine, I think the drugs would be considered way to costly to Rx cholesterol? unless maybe when Gleevec goes generic. Also, which cholesterol are they lowering, the LDL or the HDL? that would be a definite consideration. My cholesterol when I was on 800mg of Gleevec was sometimes only 129! and that is not necessarily healthy. I am going to try to have a coronary risk panel done which shows how much you have of each type of cholesterol. Even before Gleevec, my cholesterol was usually about 160. C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2010 Report Share Posted October 10, 2010 , You need to get a complete cholesterol panel done. Your total cholesterol is really not as important as your HDL and LDL levels. By the way, My mothers were all in normal range after being on gleevec for 6 months! Previously they were all out of whack!! ________________________________ From: hey00nanc <ncogan@...> Sent: Sat, October 9, 2010 11:51:18 AM Subject: Re: [ ] Answers  > > Lottie, Thanks. I'm a cardiovascular nurse and I know the devastating > complications of coronary artery disease caused by plaque from elevated > cholesterol levels. I plan on bringing this up to one of the cardiac >doctors I > > work with! __________________________ Hi Karine, I think the drugs would be considered way to costly to Rx cholesterol? unless maybe when Gleevec goes generic. Also, which cholesterol are they lowering, the LDL or the HDL? that would be a definite consideration. My cholesterol when I was on 800mg of Gleevec was sometimes only 129! and that is not necessarily healthy. I am going to try to have a coronary risk panel done which shows how much you have of each type of cholesterol. Even before Gleevec, my cholesterol was usually about 160. C. Quote Link to comment Share on other sites More sharing options...
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