Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 KC, I apolgized to you and Carl back-channel and here now. I get that way not often but too often. I think the subject has been beaten to death and I hoped it can be dropped. I have not posted anything since I went to emergency wednesday night. Like I told you and others need to understand, I have been a list member with for 5-6 years! I may hold personal feelings about him for a reason but I shouldn't have said them on the list and for the umptenth time, I apologize. KC, like I also mentioned to you, I am more result oriented than many on this list. I have a problem which is worse that the CFS I lived with for 29 years before the mold and MCS, It is hard for me to find a place where I can live and feel like living. Like someone before me said, We feel like Katrina victims but no one is helping us. I believe there are many in the same boat as I am. We are told to leave out house but where do we go then and what if we rent an apartment and find out 2-3 days later you are feeling bad from mold in the a/c? One idea I have takes more money and energy that I have alone but maybe several of us could pull it off. when I was staying in Van Horn, Tx, I saw a closed RV park. All the pavement and hookups still there. There is another smaller one which is still open but not much business. It has about 20 spaces. Several people with good credit and some income could buy something like that and either put up tents or their RV's. We would to be able to make it mold avoidance. What was bad about Van Horn is it gets to windy and dusty in the winter. The tent flaps all day making a popping sound driving me crazy! The cold is not that bad if you have a couple of electric heaters. I checked the weather around Tuscon and it drops close to freezing but the wind doesn't seem to get above ten mph. People are making bundles of money with RV parks renting to normal public. I believe that if such a park was built, they would come. I bought a new toyota tundra thinking of buying a travel trailer but then posted that he contaminated his first trailer. I need someone to travel with me and help with the gas and expenses. I need a camper shell and then we either buy a travel trailer and try not to contaminate it or we stay in a tent. I was paying $300/month and that included cable and utilities. I wonder if there are 3-40 couples out there who could pay the same and we could make the park suitable for people like us? Marcia, you live nearby. Do you have any interest in trying to find a different way to live? Are their others around the DFW area who need to find a safe place to live? Dr Rea has several one-bedroom apartments in the Dallas area and he gets $2,000/month for each. I think we could do the same but for a lot cheaper. Bob Marcie McGovern <marcie1029@...> wrote: Amen KC!!!! Marcie tigerpaw2c <tigerpaw2c@...> wrote: Bob, Your comments are completely uncalled for. If you would like to take it up with the person through email, please do so, but don't use this group as your personal podium to attack others. I will decide who stays and who goes, along with conversing with other long time members. What has happened on other boards is their problem, not ours. In my opinion has helped many on this board since its conception and has expressed to many of us many times what has worked for him and what is one of the main action that many of us need to take in order to recover and that is avoidance. Whether we can go to the extreme he has taken, that is each individuals decision. The main purpose for this board is so we can communicate with each other without fear of being attacked, to lend support, understanding, compassion and immediate guidance in the right direction. Because of the direction this type of dialogue has taken we have lost 2 members. One of which was a " newbie " . KC , It wasn't meant as an insult. I respect & admire what you have done > > Loni, his ego is large enough! He only cares about being right and it is obvious that he does not care about the people who are ill. why is he even allowed on a list with sick people? Go climb a mountain and leave us alone. > > Bob > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 Bob wrote: > I bought a new toyota tundra thinking of buying a travel trailer but then posted that he contaminated his first trailer. I need someone to travel with me and help with the gas and expenses. I need a camper shell and then we either buy a travel trailer and try not to contaminate it or we stay in a tent. a lot cheaper. > Bob I've lost four campers through the years to mold. The style of construction and materials of RV's tend to support mold growth strongly - and the manufacturers warn against constant use for that reason. One of the people I discussed this with bought a metal and fiberglass trailer as an empty shell and is building it up from the interior as a safe zone. Even a bare trailer with a heater and a cot is like paradise to an extreme mold responder, and amenities can be added later. A Toyota Tundra would be perfect for towing a small trailer. When I first established a safe zone with the intent of controlling cross contamination - it was the floor of an office where the building felt good. I was so desperate for relief that I scrubbed the linoleum before trying to sleep and just lay directly on the floor with no blankets. It wasn't much, as a beginning, but that's how I started. All it takes to determine a safe zone is to " get clear " enough to recognize a place that feels good when you find it - and introduce nothing into that location after encountering any " mold hits " during the day. I remember a mold remediologist who was giving me strong " hits " when we met at a restaurant. He said that his wife has CFS and that the doctors could do nothing to help her. I explained that I could feel a level of mold on his clothing that would be more than enough to be a driving force in my symptoms and described the possibility that controlling cross contamination from his work might provide his wife significant relief. He decided not to pursue this course of action. I took this to mean that he didn't take the advice seriously, wasn't too concerned about his wifes comfort, or perhaps both. Just like my " Hang Glider " stories, at least I can say I gave him the information, and the option, but it is his choice. If you can find a location that feels acceptible, and avoid bringing fresh toxic spores into your sleeping area, there doesn't seem to be any need to make dramatic changes in location, although I did know someone who just decided to go " tent it " in Mexico because that was so much easier. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 Bob, Thanks, apology accepted. I know how frustrations, emotions and ones everyday life can be very overwhelming at times, it also is very difficult to direct that energy in a positive manner. It has been brought to my attention many times as far as having our own community. But like me and you, by the time people find this board, our health, finances and credit no longer exist and before this exposure we had everything, good health, savings account and A1 credit. Is this what they mean by the good old days? On top of all that we are supposed to remain positive and keep a good sense of humor, boy does this take a lot of practice. lol Speaking to friends, family and neighbors on what has happened to us and so many other, they say " Man how do you do it? " I'm still trying to figure that out. But when you want to discuss these issues with them they are not really listening, which is very obvious. The second you shut your mouth they go to a completely different topic. They go back into their little comfort zone and close the door and it all goes away. How many of you can do that? I keep trying, darn bill collectors. lol How do we make it through these hard times? Thank goodness for the members of this board, because I would have gone AWOL along time ago. I'm just sorry that you all are here for the same reason I am. But we've all made it this far and THERE ISN'T ANY STOPPING US NOW. Bob, I know there are close to a half dozen MCS communities in the southwest, mostly in Arizona and New Mexico. The price? I would love to have a community like this for all of us. If I was a millionaire I wouldn't be for long, because this is what my money would go towards. We would have our own pearly gates and a safe environment to live in, but I'm not going to stop dreaming, that is what keeps us going. Maybe some day... I wish everybody a Merry Christmas and the safest of Holidays. Let's end this year on a positive note for all of us.. Health, Hope and Look out 2006. KC , It wasn't meant as an > insult. I respect & admire what you have done > > > > Loni, his ego is large enough! He only cares about being right > and it is obvious that he does not care about the people who are > ill. why is he even allowed on a list with sick people? Go climb a > mountain and leave us alone. > > > > Bob > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2005 Report Share Posted December 24, 2005 erikmoldwarrior <erikmoldwarrior@...> wrote: lost four campers through the years to mold. , thanks for telling me what your experience was. Maybe I can learn from what happened to you. when I bought the truck, I thought it would pull anything but the RV salesman told me I couldn't even haul a fifth-wheel! It is large with a large V-8 but he said it didn't have the suspension for towing. I agree about being in a trailer with a heater and blanket as long as it is a good night's sleep. I was at the local KOA camnpgrounds recently and noticed someone had taken a regular trailer about 12' long and put a door on the back with a small a/c. We have gotten to use to being spoiled. One thing I learned in my visits to latin countries is how people get by with so much less than we do. For some odd reason I do not recall ever seeing RV's in Peru, costa rica or Mexico. I was searching a website for Puerto Penasco and they have RV parks, but they are only an hour's drive from AZ. You will see houses started with maybe 20 cement blocks up and when they get a little more money, they add on. I have been back to places and people were still building their ho You mentioned a friend buy something with metal and fiberglass on the bottom and building upward. What did you think when I posted about the man using used airstreams? I haven't talked with him so I do not know why he chooses them. They are built different than most. You posted several things that will help me and it is appreciated. Especially after my rudeness. This man who is building safe houses is way behind, That is a good market. Bob --------------------------------- Find Great Deals on Holiday Gifts at Quote Link to comment Share on other sites More sharing options...
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